Topic: COVID 19 VAX with BILATERAL LYMPHEDMA

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Dec 22, 2020 12:15PM

Posted on: Dec 22, 2020 12:15PM

purple32 wrote:

UGH
A new challenge!

Thoughts ?

BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 5/1/2012 Lumpectomy; Lumpectomy (Left)
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Feb 27, 2021 07:25AM purple32 wrote:

Minus Two RE : "Finding someplace to give shots in my butt...."

Just an FYI _ I read online NOT to get MODERNA ( specifically) in the butt - flu shots okay.


Glad you had your 2nd shot and seem to be none the worse for the wear' Minus Two.

Still trying to decide if I should get my 2nd ( MODERNA) in my bad leg ( bad hip, knee etc ) or try again on the R leg which swelled. I measured the legs and the R leg (THIGH) is one inch bigger but I cant swear it wasnt before. Just feeling like that R leg will be sure to swell again yet the left leg has ' other issues' UGH- what to do what to do.

Damn Covid!

Damn Cancer !


Damn LE!

BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 5/1/2012 Lumpectomy; Lumpectomy (Left)
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Feb 27, 2021 07:28AM purple32 wrote:

DONT go with Moderna if you get the choice PLUS it s all over the news now it is getting ' false mamos' due to enlarged L nodes- sure wish I had known.

BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 5/1/2012 Lumpectomy; Lumpectomy (Left)
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Feb 27, 2021 11:07PM minustwo wrote:

Actually the pharmacist who has been giving me all kinds of shots in my hip for several years did some research and switched to thigh last year. He said there's less chance to hit a sciatic nerve.

Sorry for your dilemma Purple. Let us know what you decide.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 27, 2021 11:39PM beaverntx wrote:

The swollen lymph nodes have been found with both Pfizer and Moderna vaccines as a normal immune response. In connection with mammograms, the advice is to have the mammo before starting the vaccine or wait a month after the second vaccine to avoid having a false positive reading.

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Radiation Therapy 3/11/2018 Whole breast: Breast Surgery 6/15/2018 Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 28, 2021 06:34AM - edited Feb 28, 2021 09:01AM by purple32

Beaverntx

NO, if you investigate further, the MODERNA has more of an impact on the nodes and can cause " COVID ARM" ... just google it.

I'm sure if there was NO lymphedema OR propensity for it that would be transient. All of the articles say 24-48 hrs. It has impacted my thigh for app 4 weeks- NOT 48 hrs like the NON-LE people. Mine is a friendly word of caution because I know that IF I had to do it all over again, I would go where PFIZER was given, My thigh is now one full inch bigger than the other. This is NOT what thye mena by a normal response 4 weeks later.

I'm sounding a horn for those who want to hear it. It pays to be cautious ..we are very early in this vaccine game,.

CHECK THIS OUT : https://www.health.com/condition/infectious-diseases/coronavirus/covid-arm-rash-moderna


Probably not that big a deal if you can hand off the other arm ( or in my case the LEG) but my L leg is bad and may need knee replacement. I don't want to risk LE and NONE of the info they know about has so far reported on pts with existing LE. Get the darn PFIZER!


BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 5/1/2012 Lumpectomy; Lumpectomy (Left)
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Mar 6, 2021 05:52AM - edited Mar 6, 2021 05:53AM by mutt1963

I got the Pfizer #1 yesterday. I get most of my flu, pneumonia, and other vaccines in my hip. Yesterday the pharmacist that were running the vaccination site wanted it in my leg. It's mildly sore at injection site. I had a mild headache for an hour, chills later, now nodes in my armpits feel a little swollen. I usually have painful truncal lymphedema so the swelling maybe attributed to my normal ebb and flow, I will try to keep you guys informed as to how my body is handling it

Leave me with the driving/riding parts! Dx 6/3/2011, IDC, 3cm, Stage IIB, Grade 1, 4/11 nodes, ER+/PR+, HER2- Surgery 6/15/2011 Lymph node removal: Left, Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal Dx 6/16/2011, ILC Chemotherapy 7/21/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 12/29/2011 Breast, Lymph nodes Hormonal Therapy 3/14/2012 Arimidex (anastrozole)
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Mar 8, 2021 05:03PM purple32 wrote:

so I called m o d e r n a today after looking up on their website. What a nasty little defensive man I ended up speaking to! He told me that I had gotten an experimental vaccine that all agents who administered the vaccine were notified in December of 2020 that this impacted the lymph nodes and that they should not give it to people who had problems with their lymph nodes or who has lymph nodes removed. I found this incredibly hard to believe. I called the Mercy hospital where I had my vaccine and I asked them if this was true and they said they never had any time had that knowledge in December of 2020 or they would have just given me the Pfizer since they have both vaccines which was true. I am on a mission to warn everybody about this place and but don't believe me and don't take my word for it call them for yourself and just ask them. I'm sorry I don't have their number off hand it's pretty easy to look them up with a Google and get their telephone number. Good luck to everybody

BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 5/1/2012 Lumpectomy; Lumpectomy (Left)
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Mar 11, 2021 10:28AM BlueGirlRedState wrote:

purple - it is very frustrating with the covid vax. Hard to sign up and get appt, so I grabbed the first one I could. 4 pharmacies were unable/unwilling to use thigh as alternate site, said they were not trained for that. Had the pfeizer shot in the "good" arm (actually not good, because lymph nodes removed in 2009, 2016), but the other arm is so swollen with lymph, itis not an option . I do not know if I had waited for a clinic to have an opening if it would have any good. probably need a nurse, not a tech for vax anywhere else. I even had notes from 2 DRs, and printouts from Pfeizer and Moderna - they have a very tiny footnote in their guidelines that the thigh can be used. So how to get the word out and make this option available? I emailed a local reporter who had been reporting about all the unused appts in our area, and described my dilemma, hoping she will get that into one of her stories. Also contacted local health district,but have not heard back.

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May 14, 2021 09:59AM purple32 wrote:

BlueGirlRed

TY! Glad you got the PFIZER..I started another thread.


I THINK the Moderna has left me with LE in both legs ( and I have it in both arms)

BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 5/1/2012 Lumpectomy; Lumpectomy (Left)
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May 14, 2021 10:00AM purple32 wrote:

mutt1963

My best guess is the inguinal nodes in your legs might have swelled...not nodes in your aerms so hoping this is coincedence for you.

BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 5/1/2012 Lumpectomy; Lumpectomy (Left)

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