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May 16, 2021 08:59AM
I have not been vaccinated yet. I have not had the option until recently because I am young-ish and despite having MBC I was not in the priority groups. However, now I am hesitant because I'd like to find someone who can vaccinate my lower extremities instead.
I was fortunate enough to be warned about lymphadenopathy by my lymphedema therapist. She advised that I should be vaccinated, but that I should be vaccinated in the thigh or hip area because BOTH my upper extremities are so compromised at this point due ongoing LE issues aggravated by MBC.
By the way, BOTH the Pfizer and Moderna vaccines can cause lymphadenopathy, which is the medical term for the condition that is of concern to us with our impaired lymphatic systems. (I think J&J can too, although I personally have not looked into it as much because my MO told me to avoid that one.)
Thanks for starting this thread and I'm sorry for those of you who are suffering with the effects of the Covid vaccine on our already compromised lymphatic systems.
Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC.
8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel
10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
1/31/2017 Whole breast
3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2-
11/1/2017 Lymph node removal; Mastectomy: Right
3/31/2018 Lymph node removal; Mastectomy: Right
4/30/2018 External: Lymph nodes, Chest wall
6/30/2018 Xeloda (capecitabine)
7/30/2018 Zoladex (goserelin)
2/1/2019 Aromasin (exemestane)
9/30/2019 Faslodex (fulvestrant)
8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2-
8/30/2020 Ibrance (palbociclib)
1/2021, IDC, Stage IV, metastasized to liver/lungs
1/14/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)