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Topic: Vaccine not recommended for some patients

Forum: All things COVID-19 or coronavirus —

A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Feb 4, 2021 12:53PM

illimae wrote:

Just sharing info I just received. I asked my MO at MD Anderson about the Covid vaccine and she had the pharmacist do some research and call me back. At this time the vaccine to not recommended for those who’ve had a severe reaction to taxol due to an ingredient believed to cause problems for some of us. I’m told this is in accordance with CDC guidelines on the subject. Taxol put me in the ER, so I just have to remain cautious until we have an alternative.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Feb 4, 2021 01:44PM - edited Feb 4, 2021 01:44PM by NotAsCalmAsILook

Following for more info. I had an allergic reaction to emend IV and to taxol. Both reactions were managed in the infusion roo.


my oncologist had no reason to dissuade me from the vaccine when I asked ...

Dx 7/2020, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 4/12 nodes, ER+/PR-, HER2- Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal
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Feb 4, 2021 03:15PM illimae wrote:

notascalmasilook, in my case the reactions were very severe and use was discontinued with both taxotere and taxol, this is presumably due to polyethylene glycol or polysorbate in the mix.

Here’s what I found on the CDC website.


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Feb 4, 2021 03:59PM Spookiesmom wrote:

Thanks, I think? I had a severe allergic reaction to taxotere. So bad the MO stopped any further chemo. I wasn’t in hospital, but think I should have been. Happened with one infusion. I’d that what you mean?

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Feb 4, 2021 04:52PM illimae wrote:

Yes, most severe reactions can cause dangerous anaphylaxis. With taxotere my BP dropped to 80/60, an oxygen drop to 88%, I had abdominal pain and a possible seizure. With taxol BP skyrocketed to 170/110, monster back pain, vomiting and a stay in the ER.

This is not to scare anyone, just to inform. This is obviously important to us patients but hasn’t been mentioned much in media.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Feb 4, 2021 05:03PM buttonsmachine wrote:

Thanks for posting this, illimae. I am in the very bad reactions to Taxotere camp, too. I have not discussed whether to get the vaccine with my MO yet (the cancer has been keeping us busy lately, and that has been front and center) but this is definitely another aspect to discuss when the time comes.

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/31/2017 Whole-breast Hormonal Therapy 3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/14/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Feb 4, 2021 05:54PM NotAsCalmAsILook wrote:

I wonder if the PEG (which I had heard of back when vaccines were first approved) is the same thing the Emend was mixed with which I reacted to,... they switched me to emend pills and I was fine. So it wasn’t the Emend itself.

I’ll ask more specifically when I become eligible.

Even with my medical conditions I won’t qualify for a bit longer.

Dx 7/2020, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 4/12 nodes, ER+/PR-, HER2- Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal
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Feb 4, 2021 06:07PM Trishyla wrote:

Thanks for the info, illamae. I didn't have a bad reaction to the taxanes, so I should be okay. But I did get a chuckle out of your comment that "your blood pressure dropped all the way down to 80 over 60". That's my normal blood pressure. I've gone as low as 70/52 and as high as 110/70 (but only when pregnant). 😁

Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)
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Feb 4, 2021 06:42PM Spookiesmom wrote:

My reaction started before I was out of the office, but didn’t know it then. I swelled up all over, eventually peeled skin from soles of feet to my very bald head. Lost every nail. Don’t ever want that to happen again.

I have a call into MO.

I wonder if this will be in the J&Jvaccine? And how to find out?

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Feb 8, 2021 08:27AM R_LIND_10 wrote:

Thank you so much for sharing this valuable information.

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Feb 8, 2021 01:04PM DanniB wrote:

Just wanted to share personal experience - i had my first dose of Astrazeneca (im in UK) last Friday. I had a severe reaction to Taxol during chemo and am allergic to penicillin. When the administering dr was putting info on the system, as soon as he put these allergies in, a red warning came up saying that only Astrazeneca is suitable and Pfizer must not be used. Hope this helps a little. x

Dx 9/25/2020, DCIS/IDC, Right, 1cm, Stage IIA, Grade 2, 2/4 nodes, ER+/PR+, HER2- Surgery 10/16/2020 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/27/2020 Taxol (paclitaxel) Radiation Therapy 2/15/2021 Whole-breast: Breast, Lymph nodes Hormonal Therapy 3/1/2021
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Feb 8, 2021 01:52PM Spookiesmom wrote:

oh THANK YOU. I’m allergic to penicillin too!! Just got off the phone with pcp and MO, no answer yet. This information is a big help.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Feb 8, 2021 02:44PM DanniB wrote:

You are welcome, it is anaphylactic shock reaction to penicillin for me in case it makes a difference.

Dx 9/25/2020, DCIS/IDC, Right, 1cm, Stage IIA, Grade 2, 2/4 nodes, ER+/PR+, HER2- Surgery 10/16/2020 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/27/2020 Taxol (paclitaxel) Radiation Therapy 2/15/2021 Whole-breast: Breast, Lymph nodes Hormonal Therapy 3/1/2021
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Feb 8, 2021 03:46PM illimae wrote:

Danni, thank you for sharing that info, I appreciate it. I think only Pfizer and moderna are available in the US but I’m sure we’ll get something that works soon.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Feb 8, 2021 04:39PM ChemicalWorld wrote:

Does this mean the typical allergic reaction i.e. breathing problems, hives, swelling etc, or other?

I had a severe pain reaction to taxotere and had to take pretty heavy steroids to get it down, I also developed hand and foot syndrome which delayed one of my doses, although I did get three rounds. Lost all my fingernails and toenails etc. I was told that my first dose was too high for what I was supposed to get, FWIW.

I'm also allergic to penicillin although I last had it when I was a very young child.

Dx 9/28/2010, IDC, 3cm, Stage II, 0/4 nodes, ER+/PR+, HER2- Surgery 10/12/2010 Lumpectomy: Right Chemotherapy 12/5/2010 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 5/3/2011 Breast Hormonal Therapy 7/6/2011
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Feb 8, 2021 04:50PM illimae wrote:

Chemicalworld, I think symptoms like trouble breathing and hives would be an indication of anaphylaxis, which can be dangerous. I’d definitely discuss this with your oncologist. Some reactions may only warrant closer observation after the vaccine, others are recommended to wait for one without the concerning ingredients.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Feb 9, 2021 01:03PM Spookiesmom wrote:

My PCP finally called back, said I should get the shot. I’m so afraid of it, almost to tears. From the little I can find, it’s the polysorbate 80 that’s the problem for me.

Then I started to settle. When I had that infusion, it was a lot of it. The shot is only a little bit. This 80 stuff is in a lot of products we use daily, with no problems. So maybe the shot would be same?

I also think I’ll wait for the J&J to come, it’s only one shot.

Thoughts?

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Feb 9, 2021 01:42PM - edited Feb 9, 2021 01:46PM by DanniB

Spookiesmom - the way i calmed myself (and my other half) down when i went for it was by checking with the centre that they were prepared for a severe reaction with adrenalin, antihistamines and steroids etc - and they were. I didn't know at this point which vaccine i was going to get. I was monitored for about 15 min afterwards too and with my previous reactions, my throat closed within 30 seconds so i was comfortable it was appropriate.

Illimae - thank you for posting the information in the first place, i read it just before getting a call and it was very helpful for me in asking the right questions at the centre.

Danni x

Dx 9/25/2020, DCIS/IDC, Right, 1cm, Stage IIA, Grade 2, 2/4 nodes, ER+/PR+, HER2- Surgery 10/16/2020 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/27/2020 Taxol (paclitaxel) Radiation Therapy 2/15/2021 Whole-breast: Breast, Lymph nodes Hormonal Therapy 3/1/2021
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Feb 9, 2021 02:37PM Spookiesmom wrote:

I did check at a vax site. Was told I’d wait for 15 min after, pharmacist had EpiPen available. That’s not what my reaction was. Think Stevens-Johnson syndrome. Or an all body hand-foot reaction. I didn’t have trouble breathing

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Feb 9, 2021 06:02PM brittonkb wrote:

My cancer center called me last week about the Taxol risk. I had an allergic reaction to Taxol but it was mild enough that I was able to complete 12 weekly infusions with doubled up steroids and benadryl. They requested that I don't get the Moderna or Pfizer vaccines but to wait for the J&J vaccine which apparently doesn't contain the ingredient in Taxol. I'm only 49 so no idea when I'd even be eligible but wanted to share in case useful to anyone.

Dx 4/29/2020, IDC, Right, 4cm, Stage IIB, Grade 3, 3/13 nodes, ER+/PR+, HER2- (IHC) Surgery 5/20/2020 Lumpectomy; Lymph node removal: Sentinel Surgery 7/6/2020 Lymph node removal: Underarm/Axillary Chemotherapy 8/3/2020 AC + T (Taxol) Radiation Therapy 1/20/2021 Whole-breast: Breast, Lymph nodes Hormonal Therapy 3/24/2021 Arimidex (anastrozole) Surgery 4/23/2021 Prophylactic ovary removal
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Feb 9, 2021 06:03PM illimae wrote:

I have no idea what the right decision is. I do think that those with more mild reactions would possibly be ok with the risk and allergy meds available.

In my case, with the reaction so severe, I would need an ER available but I’m still going to wait for another option.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Feb 10, 2021 11:31AM BevJen wrote:

Interesting read from the National Cancer Institute's newsletter regarding cancer patients and the Covid vaccine:

https://www.cancer.gov/news-events/cancer-currents...


Microwave Ablations,Liver 3x ;Radiation Therapy to Femur (Both) April 2021; total hip replacement (R) and placement of rod (L) to stabilize femur both sides; immunotherapy (single agent - keytruda) Dx 11/2003, ILC, Left, Stage IIIC, 13/18 nodes, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+, HER2- Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Femara (letrozole) Radiation Therapy Immunotherapy
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Feb 22, 2021 01:41PM rosesinwinter wrote:

I am a healthcare provider - a renal dietitian in dialysis, who was due for my second Moderna vaccination last Tuesday. I completed chemo in 2008 for stage 3 breast cancer. On my second chemo with Taxol, i had a severe anaphylactic reaction after only 4 drops were infused. I turned bright red, had back pain, my pulse ox dropped and my BP went up. I had large doses of i.v steroids and benedryl while I was still in the chemo unit and had an oxygen mask on for quite a while. Fortunately, they were able to change me to Abraxane which was Taxol carried by microalbumin particles, rather than by the polyethylene glycol (PEG) substance. I had no more issues - I was not allergic to the Taxol but rather to the carrier substance.

I had my first Moderna vaccine 5 weeks ago now. Ten minutes later, in the observation area I had a mild feeling of my throat starting to close. I informed them and they observed me in the medics area for a while. My BP went higher than it ever has, 168/90. But I was okay. So I went back for the second shot. The advice had changed in the intervening 4 weeks and they would not allow me to get the second dose due to my history of PEG allergy. They recommended I ask my PCP - he refused to allow it. So now I am waiting for a vaccine that does not contain PEG. And it is important to know that PEG is used for many oral meds, like Miralax for constipation, but it is an entirely different situation when it is given intramuscularly or i.v..

Janet Dx 9/2007, IDC, 5cm, Stage IIIB, Grade 2, 4/11 nodes, ER+/PR+, HER2+
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Feb 27, 2021 02:25PM denny10 wrote:

I had a severe allergic reaction to taxol and now have Abraxane infusions. I never want to go through that experience again . Thanks for the information about PEG. I will be looking for it in any new medications.

I had my first covid vaccination at the end of January, without side effects. It was Astrozeneca. I live in the UK.

Dx 2007, Left, Stage IIB Dx 12/2013, Right, Stage IV, metastasized to liver/lungs/other, ER+
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Feb 27, 2021 04:07PM Spookiesmom wrote:

My PCP and MO are saying I should get the vax, that thee PEG is closely related to the polysorbate 80. And that there would be a very tiny amount of it in vax, compared to the taxotere bag.

I have appointment Monday for vax. And scared to get it. But I will, and already know where the closest ER is.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Feb 27, 2021 04:38PM illimae wrote:

Spookiesmom, good planning with the nearby ER. I wish you and uneventful vaccine and if you don’t mind, I’d love an update on how you’re feeling after.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine)
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Mar 1, 2021 06:57PM Spookiesmom wrote:

I got to the vax site early, lots of traffic. Found out this wasn’t a drive thru site. Bummer. Was a line, but was efficient and moving. Showed my DL, that’s all they wanted. Stick!! Wait in here 30 min. An EMT was walking around asking if everyone felt ok. I did, and left. No problems. It was Phizer vax

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Mar 3, 2021 05:40PM ChemicalWorld wrote:

They are rolling out the AstraZenena vaccine in my province in the coming weeks. It'll be first come first serve, so who knows. Also age-based, not vulnerability based.

Dx 9/28/2010, IDC, 3cm, Stage II, 0/4 nodes, ER+/PR+, HER2- Surgery 10/12/2010 Lumpectomy: Right Chemotherapy 12/5/2010 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Radiation Therapy 5/3/2011 Breast Hormonal Therapy 7/6/2011
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Mar 9, 2021 08:49PM NotAsCalmAsILook wrote:

I will be eligible to sign up for a vaccine this week. I contacted my MO to confirm that the allergic reactions I’ve had are not from the same substance causing reactions in the vaccines.

They verified it is not the same.


still a tad nervous because I’ve been dealing with lots of uncommon reactions and complications over the last year. But not nervous enough to stop me

Dx 7/2020, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 4/12 nodes, ER+/PR-, HER2- Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic ovary removal
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Mar 9, 2021 10:51PM LW422 wrote:

Slightly different take here... I saw my MO today at MD Anderson and he told me not to get the vaccine at this point. I have upcoming scans, and apparently the vaccines can cause imaging issues, even creating false positives from swollen lymph nodes. So that was all I needed to hear.

Dx 1/20/2021, IDC/IBC, Right, Stage IIIB, Grade 3, 0/32 nodes, ER-/PR+, HER2- Chemotherapy 2/7/2021 AC + T (Taxol) Surgery 8/23/2021 Lymph node removal: Right; Mastectomy: Right Radiation Therapy 10/4/2021
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Mar 10, 2021 12:31AM MinusTwo wrote:

LW - your doc is on the ball. What I've read is that you're supposed to wait 6 weeks after a vaccine before scans to avoid imaging issues. Glad you're doing your scans first.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014

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