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Topic: One year into COVID-19, share your experiences!

Forum: All things COVID-19 or coronavirus —

A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Feb 10, 2021 10:59AM

Moderators wrote:

We're a year into COVID and we're looking for your experiences from this year, how it impacted your breast cancer diagnosis/treatment and otherwise! We really appreciate any all! Share here. Thank you.

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Posts 1 - 23 (23 total)

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Feb 11, 2021 01:39PM JayC10 wrote:

Howdy All,

New to the site. Stage 3 HER2/ESR+ with lymph mets. Chemo was extended in 3-5/2020 due to COVID and inability to access an OR. Mastectomy first Thurs. in May. Emergency surgeries first and last weeks of June 2020 for necrosis of incision and then dehisance of incision and removal; of the tissue expander. There was no time prior to those for covid testing so I had to go to COVID OR's in a different hospital. As a registered nurse my ability to work was greatly limited, then not allowed by my oncologist due to COVID and compromised immunity. . Due to many complications and pain I remain unable to work and hope not to be living in a cardboard box soon. Scared

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Feb 11, 2021 01:53PM Moderators wrote:

JayC10, we're sorry for what you're going through! We too so hope that you can get out of that "cardboard box" soon! We appreciate you sharing your experience.


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Feb 11, 2021 07:44PM - edited Feb 11, 2021 07:48PM by DivineMrsM

I remember as we headed into the pandemic last March, I could see it was going to be very long term. Not everyone believed that, but some of us have those minds that can see all the ramifications of what's going to go down. It caused me some anxiety.

My husband and I followed all the guidelines: mask-wearing, social distancing, hand washing and sanitizer. No family gatherings, no restaurants, no mall shopping, no groups of people. I ordered groceries online and had contactless pick-up. Thanksgiving and Christmas was the two of us and our son. We made the most of the whole situation as best we could.

In January, my husband and I both got Covid19. We don't know how. I had a fever for 14 days and a continuous cough and was in bed the whole time. My husband's symptoms were less severe than mine, so tho he was sick, he was able to make us small meals and keep things going around the house.

It was a rough time but we recovered.

We're fortunate we got through that. But we see many who follow no guidelines and are uncaring how that affects others. It's frustrating. But I already knew human nature was like that, so it wasn't a surprise to me. I've had to be responsible for myself since I was a child, so that habit caries over into the pandemic.

I'm always aware of both the positive and the negative in any situation. My husband and I live comfortably and have a support system. We are grateful, but we were grateful before the pandemic. But we know many are struggling.

I grieve over the loss of normal coming and going and regular activities. I live with metastatic breast cancer. It feels like I had a year (so far) of my life stolen. Yet I was more heartbroken for high school seniors and college graduates last year who didn't get the traditional endings of academia. We have all had things stolen from us because of the pandemic. That sucks. And almost half a million people are dead due to Covid19. It's staggering. Yet some people are still cavalier about it. That's tragic.

I see a light at the end of the tunnel, but the effects of the pandemic still drag on. Things could be worse, things could be better. Living with mbc taught me to stay more in the present. That's helped during this time. But, oh my God, I can't wait till we all pull out of this nosedive.





found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Feb 12, 2021 04:32AM Karenfizedbo15 wrote:

Like everyone living with metastatic BC, I feel like an entire year of what will likely be a short life has been taken away. My treatment has continued, but everything takes longer than it should and I spend more time speaking to my oncologist on the phone than face to face. Scans take far longer to arrange and have had to be chased up by my team and by myself. This was extremely evident recently when I experienced some progression in the lining of my lung which caused a large pleural effusion. I was effectively drowning in my own fluid.

Two and a half years ago I had a medium sized effusion in the same lung which was treated as urgent and I was brought in the next day to have it drained as a day case. This time a scan appointment had to be chased up and took yet another week, when I was already in pretty poor condition. The clinical teams are trying not to have hospital admissions in order to avoid the risk of COVID and any other infection, completely understandably. However, in my case once the scan result came in the respiratory team took over and I ended up in hospital for 5 days with chest drain in for 3 of those. So I was admitted in worse condition, spent longer in hospital than I would have if this had been dealt with earlier and it is taking me far longer to recover.

Clinical support has been as good as it can be in that I can contact my excellent team and they will get back to me quickly, but our system is stretched to the max and advocating for yourself is far more important - as is the relationship you have with your key people. I depend on them to work their way around the system and they do their best in very challenging circumstances. I've also found if I'm perceived to be "sensible" and " pleasant to deal with" ( words used by my team), they are just that bit more likely to give me a little time. I need them on my side, so it's worth the effort even though sometimes you really just want to scream!

Our vaccination roll out is continuing apace, so there is hopefully a bit of light. However, I think the systems and processes around our treatments will take much longer to improve and there is also the concern that new drug developments and approvals will take too long now to benefit those of us at stage 4. I know it is complex but I do question why vaccines ( albeit with underpinning work already in place) can be approved in 10 months, but it takes 10 years to approve cancer drugs!






Surgery 9/6/2007 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Latissimus dorsi flap Dx 4/2018, IDC, Right, Stage IV, metastasized to lungs, 1/17 nodes, ER+/PR+, HER2- Dx 2021, Stage IV, metastasized to bone Chemotherapy 2/3/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Feb 12, 2021 06:31PM SF-Cakes wrote:

I was diagnosed during COVID, and I realize I have never seen the entire face of any of my medical providers (they've all been wearing masks/shields)! It's been surreal to not be allowed any visitors with me at any point, from the first biopsy to doctor's appointments to surgery to chemo to radiation, especially when I've always accompanied my loved ones who were ill in the past. Breast cancer has been quite an isolated and solitary journey for me due to COVID. People who have been through tx themselves in the past kept telling me to "take someone with you, they can take notes and ask questions", and I had to keep reminding them I can't take anyone, no visitors are allowed. And they routinely responded, "oh right, I forgot".

I will say that I have felt proud of my own emotional strength throughout this journey, and I continue to remind myself of everything I'm grateful for. My medical team has been pretty amazing and I'm grateful for all of them coming to work in order to offer me care and treatment.

Now that I've been diagnosed with MBC, I have some anxiety that time is passing and I'm not able to do the things I love (eg, meet friends for dinner, visit friends and family in other parts of the country, go to the theater and symphony, go to London for theater). I'm hopeful that later this year all of that might start to be possible again, and in the meantime, all my cupboards and drawers and closets have been organized! Hoping to get the vaccine as soon as I'm eligible.

Dx 6/2020, ILC, Left, 6cm+, Stage IIB, Grade 3, 2/4 nodes, ER+/PR-, HER2- Surgery 7/1/2020 Mastectomy: Left Chemotherapy 8/4/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/3/2020 Chest wall Dx 1/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR-, HER2- Radiation Therapy 2/10/2021 External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Feb 15, 2021 09:00AM DivineMrsM wrote:

SFCakes, wow, you were diagnosed with mbc during Covid. Of all times to have to go through the start of that kind of diagnosis. And to never have seen the full faces of your medical team! It’s almost like something out of a science fiction movie.

I agree 100% that yes, you do have a lot of emotional strength to move through your journey with not being able to have someone accompany you to doctor visits, radiation, ect. That is a lot on just your shoulders, and as you say, isolating. But you are doing it! And there’s a lot to be said for that.

Hopefully, with the Covid vaccine rolling out, we shouldn’t have many more months of distancing, and things will be opening up more fully. You still have a lot of good times ahead of you.


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Feb 16, 2021 05:00PM SF-Cakes wrote:

Thank you DivineMrsM, and I believe lots of good times are coming, as well! So sorry to hear you and your husband got covid, and very very glad to hear you are recovering.

Dx 6/2020, ILC, Left, 6cm+, Stage IIB, Grade 3, 2/4 nodes, ER+/PR-, HER2- Surgery 7/1/2020 Mastectomy: Left Chemotherapy 8/4/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/3/2020 Chest wall Dx 1/2021, ILC, Left, Stage IV, metastasized to bone, ER+/PR-, HER2- Radiation Therapy 2/10/2021 External: Bone Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)
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Feb 17, 2021 08:52AM purple32 wrote:

COVID VACCINES:

Just Google COVID ARM ...For those with lymphedema ( and we are all at risk) you may wnat to get PFIZER...only MODERNA lists covid arm as a side effet and I have it ( in my leg since I have BI LAT LE) Sure hope this helps someone.

BILAT LE! from 5.12.12.LX DX 3/2012 IDC <1 cm stage 1 GR 1 ( 0/2 nodes) ER PR pos HER2- RECURRENCE same breast Jan 2020 LX FEB 2020 . NO rads or hormones. Dx 3/2012, IDC, Left, <1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2+ Surgery 5/1/2012 Lumpectomy: Left
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Feb 18, 2021 04:52AM Prayers2021 wrote:

Hi,

I am age 34. I had multiple lumps in my left breast since childhood and was continuing a yearly scan since 2017 which shown them stable and benign, the lumps were non painful. Married in 2011 I have total of 3 kids. In March 2019 I was blessed with a baby girl (my 3rd kid).

In January 2020 During feeding my kid, i felt bleeding from left breast. I went to breast clinic who saw my scans history and performed a surgery to remove lumps. Histopath of removed ducts and lumps was conducted and showed B2 Bengin.

During Covid I could'nt visit Clinic for follow up of my lump removal surgery. In Oct 2020 I visited clinic and told them that the breast has hardened , they told me its post operative changes. On 27 January 2021 I again visited as there was a red rash with itching on Lt Breast. Doc said it was inflammatory breast cancer. My Biopsy showed a Grade 2 tumor with ER+ (100%) , PR+(63%) , HER2-ve (by FISH). Bone Scan Showed Mets in Right Hip joint and some Vertaberal Portion and 1 rib and Rt Shoulder. CT scan showed all vital organs clear.

I recieved my 1st dose of Hormone therapy Tamoxifin Pills and Zoladex 3.6mg on 8 Feb 2021. After bone Mets were confirmed thru Pet scan (T4b , cN1, cM1) , on 17 February, 2021 I have started Kisqali 600mg (3x200mg daily). I have taken time from Radiation Onco for Ovarian Ablation in some time.

I am 34 years old and 3 kids (Son age 7, Son Age 5 & Daughter age 2). My morale is high and I am committed to defeat this for my family.

Need prayers and Motivation

Regards

Surgery 1/26/2020 Lumpectomy: Left Dx 1/27/2021, IBC, Left, 6cm+, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2- (FISH) Hormonal Therapy 2/8/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Targeted Therapy 2/17/2021 Kisqali
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Feb 18, 2021 02:35PM beach2beach wrote:

After being diagnosed and going through the shock, surgery, etc, you finally seem to come through to the other side. Take a little more time to enjoy, having learned you never know what will happen next. This pandemic has stolen time, freedom, stolen the joy of just being around other people, seeing family, gabbing a bite, browsing in a store, even my favorite,,the beach has somewhat lost its appeal with masking up, Even now when you go by the beach you are reminded of the pandemic as it is one of our State vaccination site. Dr' visits feel impersonal, colder with wearing a mask. My onco visit was virtual last june. Sounds crazy but I really needed that reassurance of her examining me,,rather than just asking me via virutal how I'm doing. I had a breast mri in August..bad enough being face down, but a mask for the whole time I felt like I was suffocating. Like I said,,things that may have been hard enough to do before COVID , really got toug during.

I want to get back to living life, not just living in limbo, waiting on what is going to happen next with the pandemic. Cancer is enough to worry about what next. All control taken away again, throw in the politics of it all..soul sucking, life sucking and all around stinks!

Hoping that there is an end in sight sooner than later.


Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 19, 2021 12:56PM Mstein1970 wrote:

Has anyone received their Covid vaccine at Sloan Kettering? I was horrified by the crowded, totally unsafe conditions there. There was virtually no social distancing or control of the numbers of people waiting on lines and getting into elevators. I had my first vaccine on the 4th floor of the hospital's main building, and my second on the 11th floor of their new Koch building. They moved the operation to the Koch building because the main building was so crowded, but conditions were even worse after the move. There was no monitoring of spacing between people on the long lobby line to get to the elevators, and then there was a frighteningly long line in a narrow hallway on the 11th floor to wait to be vaccinated. The waiting rooms where people sat for 15 minutes after their vaccine were also crowded.

In my view, treating vaccine recipients -- especially cancer patients -- this way is a travesty.

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Feb 23, 2021 08:58AM Moderators wrote:

Thank you Everyone for sharing your stories. Indeed surprising re. MSK. We hope everyone is staying safe. Our thoughts are with all of you!

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Feb 24, 2021 02:10PM ClearCreek1 wrote:

My experience a little different from some. I work in the construction industry which was "essential" and kept right on working for the whole year...sometimes too much. I was consumed with grief for most of 2020 with the sudden passing of my beloved Dad in Feb. It was sudden and not related to COVID so I withdrew from folks more so from that than anything. Then I was diagnosed in November with DCIS stage 0, grade 3. My husband accompanied me to the breast surgeon consultation and all doctors visits. I had surgery and sent home same day due to COVID concerns. I have practiced social distancing, mask wearing, etc. and do everything I can to avoid people as much as possible. Had a teenager coming and going with total disregard for restrictions and another younger teenager suffering from missing his Mother (my absent daughter) so as a family we were dealing with life issues along with COVID all year long. Surgery early in January and back to work again just this last week. Unfortunately for me I have to get back out and about. The six weeks I was recuperating I barely left home. I am always conscious of being around people now and plastic surgeon recommended I get shot as soon as possible. I am 56 and if I am correct I can't get the shot any sooner than anyone else my age. I do think priorities are a little screwy in regards to COVID shots in some cases. Read an article about incarcerated folks being given shots. Doesn't make sense when you have a younger population with at risk conditions that have to wait.

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Feb 24, 2021 04:16PM cm2020 wrote:

I was diagnosed last March the very week that my state was going into lock down. I was lucky enough to get in immediately with my MO and made a plan in the event Covid prevented the usual treatment plan. She also advised me strongly to have a lumpectomy instead of the BMX I wanted. Her thinking was to get into and out of the hospital as quickly as possible. It was during this time that NY was absolutely falling apart due to Covid cases and being completely overwhelmed. The fear was that our area and the hospital system could become the same way. I listed to her. Had an MRI (they had the national news on in the waiting room and I got to see the horror in NY...it did nothing for my already ramped up anxiety) and they found a second tumor. Luckily I was able to get in for the lumpectomy less than 3 weeks after my diagnosis. I started Letrozole in the even radiation had to be postponed. It didn't though so I just stopped it for radiation (under the direction of my RO). The fear was always present and really weighed on me that I may not get the treatment I needed due to Covid.

I was fortunate. My care was excellent and treatment not delayed at all. However, I will always be a bit bitter that I didn't get the BMX that I wanted. My plan had been to talk to my BS about it at my 6 month follow up. I didn't. My husband checked out emotionally/mentally after my diagnosis. I have gotten no support and no help. He has ignored my cries and pleas for the support I desperately need. He didn't even ask or notice any of my follow up appointments and ignore me when I cried about how hard radiation was on me emotionally. Then didn't even realize I finished radiation. No way am I putting myself through major surgery when I don't have the support I need. He failed me in every way this past year. Between Covid and my husband this journey was harder than it would have otherwise been. It has also been very lonely and scary because I went through it all alone. I never dreamed my husband of almost 35 years would desert me the way he has.

Dx 3/20/2020, IDC, Right, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC) Dx 4/2/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 4/6/2020 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 4/25/2020 Femara (letrozole) Radiation Therapy 6/10/2020 Whole-breast: Breast, Lymph nodes
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Feb 24, 2021 07:38PM - edited Feb 24, 2021 07:38PM by marinochka

This Post was deleted by marinochka.
Dx 11/4/2019, DCIS, Right, Stage 0, Grade 2, ER+/PR- Surgery 12/19/2019
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Feb 24, 2021 07:39PM marinochka wrote:

I had it done in MSK. I did not feel this way at all, it was crowded, but there were spaces in waiting room(11 floor) and i waited there 5 minutes. I was alone with a nurse when getting my shot. I was waiting 15 minutes after, again -there were people but on a distance.

In elevator there were 3 people.

I felt comfortable and actually said thank you there because of very efficient and quick organized way it was done.

going there on 13th for the second dose.

Dx 11/4/2019, DCIS, Right, Stage 0, Grade 2, ER+/PR- Surgery 12/19/2019
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Feb 24, 2021 08:41PM MinusTwo wrote:

cm2020 - so sorry your journey has been a nightmare. We hear ya girl. And umderstand "men are from mars..."

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 24, 2021 11:58PM SondraF wrote:

Just after I was diagnosed in fall 2019 I can very clearly remember going home early from work as I didn't feel very well and closing my locker and having a very strong sensation that it would be a long time before I opened it again. And I was right! Sacral fracture happened the next day and then I was on crutches for a few months and by the time I was able to start going back to the office a few days, Covid shut it all down. Ive seen the office four times since October 2019, but they were quick visits and now all the electronic locks are dead on the lockers so I can't open it anyway :)

Karen and I are in the same system and you can just tell its on survival mode. The first wave my cancer hospital had wards filled with Covid patients transferred in, which meant I couldn't get up to the chemo floor to have my bone injections so they were paused. All MO visits were phone only, though they did try to make it easy for the blood and zoladex by setting up a separate clinic in another building. There was a lot of miscommunication and "dont call us well call you". The govt told us all to shield (in fact, I think we are supposed to until end of March) but I could only get to the hospital on the bus or an Uber so...Im home most of the time anyway because there is no place to go.

I did opt out and switch MOs and into the private system (but within an NHS trust, in a "cold" hospital) and while now I see the same MO for longer every month and in person, I've never seen the bottom half of her face. Or my new MBC nurses face, etc. And we keep wanting to shake hands every monthly chat! I do have to sit a bit in the day patient waiting room sometimes while they pull my drugs, but its fairly well spaced, everyone is masked, and when the wait gets too long or the waiting room a bit full then they find a private room for me/others to wait. The MO still hasn't seen my original diagnostics or imagining because those hospitals were in some of the worst hit parts - while its not hugely important, it would be nice to see the changes!

I've tried to see the positive side of Covid in that it forced the WFH considerations and capabilities to the forefront of every business which, if you are still trying to work with MBC and are way off retirement age, is extremely helpful for now and the future. I wasn't really mobile before July anyway but it would have been nice to go on a real vacation last fall and certainly this winter. I've found I am becoming more impatient and frustrated about the situation the closer we get to "the end" even though that is a good few months away yet in the UK. I haven't seen my family in a year and a half and we are hoping for a trip home to the US in late June.

"The closer we come to the negative, to death, the more we blossom" - Montgomery Clift Dx 9/27/2019, IDC, Right, 5cm, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- Hormonal Therapy 11/29/2019 Femara (letrozole) Targeted Therapy 11/29/2019 Ibrance (palbociclib) Surgery Prophylactic ovary removal
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Feb 25, 2021 10:18AM ctmbsikia wrote:

February 2020 I was working, my husband was also out doing a few things when he could between chemo treatments and however he was feeling. Our lives had already changed with his stage IV cancer diagnosis in late Oct. 2019. I started working from home a week before the shut down because I was really afraid of bringing it home to my husband. We have project managers flying all around the country, and the CA and NY ones really worried me. Once the state and schools shut down, my daughter (a teacher) came home. Looking back, we were blessed to have spent everyday together. My son would also pop his head in the door on almost a daily basis. There were a few times my daughter left to go home and I was frightful something would happen when she wasn't there. Thankfully it didn't. Thankful that caring for a sick person did not fall on solely one of us. We did it together. By the time he was hospitalized and passed (late May), the hospital did let me in 1 hr. per day, and on his last day all of us were cleared to be there. I cannot imagine what it was like for all the covid19 patients and families that had to be separated. Just horrible. Not having a funeral was another thing. Funeral home only allowed 10. So it was very stressful trying to figure all that out with the amount of family and friends that he had. I paid for an extra time and did 3 shifts of 10. My family, his family, select other close family and 1 or 2 dear dear friends. Since it was May we also had a small lunch (under 30) and we could spread out and also used the outdoors. Thankfully, no one was exposed from anywhere else, and no one got sick. Whew, we were really stressing that. Being able to visit and eat a few places outdoors in the summer helped a lot to try and feel normal when everything was anything but.

Follow up care for me was not really affected. I had a change in MOs of all timing, and the day I had my 1st appt. with him in June, my mother in law had passed away earlier that morning. He said my last name was familiar to him. He was the oncologist on call at the hospital the day my husband passed. I apologized and told him I don't remember the meeting. He took mercy on me, didn't touch me, and sent me on my way. He was very kind as I was still very distressed. I am behind on annual CT lung cancer screening. He does have this in his notes that I just read from my last appt. (Jan. 2021) He noted "when Covid19 calms down" he will order it. My Primary care Dr. kept renewing the script I have with them, and they finally called me to set an appt., so I went. I have some sort of fear of doctors and making appointments now. Prior to pandemic I thought it maybe was a mild ptsd from just getting a cancer diagnosis (2017). I am trying to work through it.

Sorry this was so long, huge thank you to the Moderators and members for listening to me re live this horrid year once again. I do appreciate the chance to talk about it. I've actually fared well in comparison of others. Sending all of you much peace!

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Mar 5, 2021 07:11AM ClearCreek1 wrote:

CM2020, I was following up on some of the posts and wanted to respond to your post. I am so sorry that your treatment course was determined in some way by your husband's checking out on you. The last couple years hard on our marriage and 2020 seemed to be a culmination of everything bad to the point that soon after my diagnosis I wanted a divorce. I felt we were so distant and had grown apart that I could cope better on my own. I gave him an ultimatum...be there for me or we were not together at all. I was surprised and very grateful that he was with me every step of the way after that. We have gone back to our "normal" lives and we are both still trying to make things be okay. I hate to think a cancer diagnosis was what it took to bring us back together but yit was. It could have gone the other way and been the final nail in the relationship. Looking back it would have been so tough to have navigated this process by myself so my heart goes out to you. I hope you find the support you deserve and need from other folks. I had few friends but have been humbled by the outpouring of concern from folks which I didn't expect to reach out. I hope you are doing better now with both health and home.

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Mar 6, 2021 06:50AM cm2020 wrote:

ClearCreek1...Thank you very much for the support and kind words. It is wonderful that you and your husband were able to find your way back to each other and that got on board with supporting you. Sadly my husband didn't. Oh I told him the same thing you told your husband about being supportive or it is over. He ignored me. For all practical purposes we are separated. We still live together and all, but there is nothing left of our relationship. I continue to deal with everything with no support at all from anyone (except my sweet 16 year old...she is amazing but I try hard not to burden her in any way). The whole thing is just profoundly sad. I am very tired.

Dx 3/20/2020, IDC, Right, 1cm, Stage IA, Grade 1, ER+/PR+, HER2- (IHC) Dx 4/2/2020, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 4/6/2020 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 4/25/2020 Femara (letrozole) Radiation Therapy 6/10/2020 Whole-breast: Breast, Lymph nodes
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Jul 1, 2021 09:55PM Dancemom wrote:

New here. I was also diagnosed during covid. Lockdown here was intense, our business was shuttered, the city was shut down and nobody went outside for months. I noticed something late summer 2020. Finally got appt to see my gp in Sept. School here (and my related job) was a disaster and we finally settled into a remote routine deep into Oct, so I FINALLY made my mammogram appt. Earliest was Dec. Call back was new years eve. Biopsy was scheduled for Jan 16. Diagnosed w covid Jan 12 (exposed at my preschool job. Covid is no joke. 2 weeks of low grade fever and intense cough. Even though I isolated as soon as I started feeling sick it was too late. My kids had fever and cough for a few days. My husband was SICK. 3 weeks fever and more of very terrible cough. He was in bed for a month). My biopsy was pushed back week by week. They kept saying I needed a negative pcr in order to have the biopsy. But no one knew why, as it's known that you can test positive for months. Finally I was allowed to have it in late Feb. I got my vaccine appointment for mid March.. Then a Mastectomy was scheduled for April 1, so vaccine had to be canceled. Then the testing really got going, I'm sure you are all familiar, Ct scans, MRIs, MRI guided biopsy, insurance wouldn't cover the PET scan so more ct and bone scans. March 29 my surgeon called me to say she was canceling the surgery and I should see the medical oncologist the following day instead. The scans show something in my sternum. I'm now on letrozole and Ibrance, although I keep having to take 2 week breaks instead of one, and my dose is now reduced to 75mg. I hope my body can take it. I feel pretty ok, a little tired and easily winded, but nothing unmanageable. But my ANC is always too low. (500 on day 15 each cycle). Oncologist said they will reasses with the surgeon after I've been in treatment for 6 months. Luckiky they were able to get me vaccinated before I started the ibrance. Everything feels so in the air. We are finally beginning to open up here, but I haven't been able to schedule anything personal because I can't predict when my 15 day and end cycle blood draws will be, or if/ when surgery will be, plus in so afraid of getting sick.

I also wish my husband would STOP telling people!!!!! Its MY body.

Ok, thanks for listening.

Dx 3/16/2021, IDC, Right, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/29/2021 Femara (letrozole) Targeted Therapy 4/21/2021 Ibrance (palbociclib)
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Sep 15, 2021 03:40AM janetfrome wrote:

For me it was the worst year of my life, being stuck in doors for 16 months drove me up the wall! I did manage to do some chairty work though online from this site I found - that kinda kept me busy during the dark days.

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