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Topic: Rant away about COVID, the vaccine, etc.

Forum: All things COVID-19 or coronavirus —

A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Aug 27, 2021 07:00PM - edited Sep 3, 2021 04:56PM by KBL

KBL wrote:

Covid discussion.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)

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Aug 27, 2021 08:34PM - edited Sep 7, 2021 05:14AM by Del14

Deleted

Aug 27, 2021 08:55PM illimae wrote:

I’m annoyed by the vaccine passport idea that seems to be acceptable by many. If a restaurant has rules, fine, I can dine elsewhere but places like government buildings and banks are going too far when there are still some things that need to be done in person. I would qualify for a medical exemption due to CDC recognized vaccine allergy but I’ve found no medical exemption form yet.

Basically, if you want it, great, get it but I wish there was more understanding of those who want more time to consider evolving results and side effects. So, I’m a sheep for the mask and crazy, stupid or selfish for no vax.

Whatever, I’m going to go live on my mountain, just outside of a tiny town in a county with a positivity rate of 0.0%. I wish you all kindness and luck.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Aug 27, 2021 09:34PM jhl wrote:

Mae,

You can obtain an exemption from the Texas Department of State Health Services:

https://www.dshs.state.tx.us/immunize/docs/faq_exe...

You can certainly do any banking or government business if you call ahead & arrange for an appointment. This is just like a parent who has a child with measles or chicken pox. You must arrange for an appointment & be admitted through a limited access area. Personally, in the past 15 months, I have had to deal with selling a home I did not own, process securities for sale in which I was only a beneficiary and work through other financial hurdles. None of these required me to go into a bank or other brick and mortar facility. Everything was accommodated online.

I appreciate you masking when you need to interact with the public. You are an outlier with regard to a vaccine but each has their own reasons.

Stay well,

Jane

Dx 11/15/2019, IDC: Cribriform, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH)

Aug 27, 2021 09:41PM jhl wrote:

JO,

I'm not sure why you are upset. You had 16 responses to your question and all remarked they had slight side effects. Someone suggested you had enough answers and you agreed. What else do you need to help you make your decision? If you need more information, I feel you need to be specific about your concerns.

Stay well,

Jane

Dx 11/15/2019, IDC: Cribriform, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH)

Aug 27, 2021 10:45PM - edited Aug 27, 2021 10:47PM by dutchiris

JO, I don't think anything was wrong with your thread. I do think someone probably complained. I can't say I've ever heard of a thread being shut down for having enough information already. That could apply to many long running threads.

If you are vaccinated or not, please wear a mask. Whenever someone "gives me permission" to wear a mask, I want to respond by saying you're welcome as the mask does more for others than for me.

I am not sure why someone would turn to a Podcaster, politician, eye doctor/surgeon, internal medicine doctor, etc. for medical advice outside their field. If I wanted a second opinion regarding my cancer would I consult a podiatrist? I have stage 4 cancer and had an internal medicine doctor ask me when treatment will be done.

If I offend maybe I can be sent to a special room, banned, or blocked.

Dx 1/25/2013, IDC, Left, Stage IIIC, Grade 2, 19/24 nodes, ER+/PR+, HER2- Chemotherapy 2/21/2013 AC + T (Taxol) Surgery 6/18/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Hormonal Therapy 7/1/2013 Radiation Therapy 7/14/2013 Dx 7/26/2019, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (IHC) Hormonal Therapy 8/9/2019 Femara (letrozole) Targeted Therapy 8/16/2019 Ibrance (palbociclib) Dx 4/7/2021, IDC, Stage IV, metastasized to other, Grade 3, ER-/PR+, HER2- (FISH) Chemotherapy 5/13/2021 Xeloda (capecitabine)

Aug 28, 2021 02:54AM - edited Aug 28, 2021 03:03AM by KBL

JO-5, you are certainly welcome to post here, and please don't leave the forum.

I only ask that everyone be respectful.

This is definitely a hot-button topic, but I think we should be able to have open discussion from all sides respectfully.



De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)

Aug 28, 2021 04:01AM Melbo wrote:

my biggest source of anger about those who aren’t getting the vaccine out of personal preference is that their choice doesn’t just affect them, it affects them, their families, anyone who comes into contact with them, and ultimately the general public and all of society. I have zero anger toward the people who can’t get the vaccine for health reasons, but I am angry on their behalf.

To get the vaccine or not is not like the choice for breast cancer patients to take an AI or get chemo. For cancer patients, you can look at your specific situation, get advice from an oncologist or two and find out the standard of care and various options and risks, and then make the decision that will only affect you and the people you are close to.

With the vaccine, misinformation is spreading rampantly and distrust is extremely high, but the decisions to get vaccinated has life and death implications that affect you, your family, and literally everyone you come into contact with, regardless of whether you wear a mask or not. (Masks help, everyone should wear them — but they were never expected to completely protect everyone all of the time.) And of course, beyond the actual life and death risks an unvaccinated person is taking at this point with the delta variant, they are also helping this pandemic continue, giving covid more opportunities to mutate yet again, and prolonging all of the various mitigation efforts that stress us all out and make us angry.

For those of us on this forum, I have an even harder time understanding hesitation. If you’re here, you were most likely diagnosed with cancer and understand the sheer fear that diagnosis causes. And then you almost certainly got treated — almost certainly with surgery, and a high likelihood of either chemo, radiation, or an AI — or all of the above. Chemo is literal poison — but when faced with the prospect of chemo, most of us look at our risks and decide the poison will do. The vaccine has some side effects, sure, and some things are unknown about it — but at this point it has been tested millions of times on millions of people and has proven to be a safe, effective way to save lives. And unlike the choice to have chemo or take an AI, the decision to vaccine or not affects everyone.

This is why I’m angry.

Diagnosed right before my 42nd birthday. One husband, two dogs, one cat and no kids. Dx 7/16/2020, IDC, Left, 2cm, Stage IIA, Grade 3, 1/7 nodes, ER-/PR-, HER2+ Targeted Therapy 8/7/2020 Herceptin (trastuzumab) Targeted Therapy 8/7/2020 Perjeta (pertuzumab) Chemotherapy 8/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/20/2020 Lumpectomy: Left; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Radiation Therapy 1/31/2021 Whole-breast: Breast, Lymph nodes

Aug 28, 2021 05:53AM - edited Aug 28, 2021 05:58AM by ctmbsikia

Iceland has their people over 90% vaccinated. Yes they have cases -only 18 in the hospital and ZERO deaths since May.

I find this to be pretty compelling proof that vaccines work.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)

Aug 28, 2021 06:44AM - edited Aug 28, 2021 06:45AM by M_and_G

The vaccine passport is useless for restaurants and concerts. You can purchase one at the local flea market for 25 bucks. So, do not think vaccination passport mandates locally are going to prevent unvaccinated people from attending these venues.

Aug 28, 2021 06:49AM Tinkerbell107 wrote:

When I woke up this morning this thread was the first one on my active list by KBL. So I decided to pop in but with hesitation. No rants, nor judgements. Each one of us come from a different perspective. With that being said, I find myself in weekly dilemmas. It’s about dining. Up until now I felt relatively safe going outdoors with a select group of peers, family, etc. After Labor Day most of the restaurants close outdoor dining. Hence its back to indoors which I don’t want to give up this activity. I enjoy socializing and going out to eat once or twice a week. I wear my mask everywhere in public but dining is the only exception. Obviously being Stage IV has altered my opinion and practices to a point but my DH is a carpe diem type. Enjoy the moment. Just wondering how others manage with dining indoors. My group of peers love going to restaurants so house gathering are not really a substitute for my dilemma.

Dx 8/23/2019, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2-

Aug 28, 2021 07:18AM AliceBastable wrote:

Tinkerbell107, My husband and I ate out three times when things seemed relatively safer after our vaccines. One was just a Denny's 😐 for a late breakfast after a test I'd had to starve for. We picked it for convenience and because it's one that has scattered seating in the best of times. They were really spreading patrons out in different sections this time. Another place is almost all booths, and they had put plexiglass extensions up to the ceiling between each. The third has always had their seating far apart, so we took a chance because it's one place we missed. But that was it, we're still doing carry-out when I don't want to cook or picnics on weekends. Luckily, we're year-round picnickers unless it's actually snowing. I saw a lot of places last winter that did tented patios, but I don't see how that would be any safer than going indoors.

My husband's large family is having their annual gathering Labor Day weekend. It was cancelled for the first time in decades last year. As far as I know, all adults are vaccinated, but some of them, based on their FB posts, have been socializing quite a bit, plus there are a lot of school-age children. Luckily, it's always been an outdoor event, so I guess I'll claim a spot with some others who don't have minor children or grandchildren and have a mask handy. My life-long RBF comes in handy for keeping children and social butterflies at bay.


Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes

Aug 28, 2021 07:23AM - edited Sep 7, 2021 04:30AM by Olma61

This Post was deleted by Olma61.
10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone

Aug 28, 2021 07:39AM illimae wrote:

Jhl, thank you for the link. I have looked at that form before but I do t feel like it applies, as it more a medical thing for me and appears to be related to schools or school children. I do appreciate you taking the time to find and post it though 🙂

Melbo, I never thought I’d do chemo pre cancer but being diagnosed stage IV from the get go brought a desperation that left little room for alternatives. Unfortunately, my first two failed attempts (due to extremely severe reactions) didn’t help that initial mindsbut I eventually found one effective and tolerable.

Ideally, I’d like more time with the vaccine information particularly the efficacy and effects 2-5 years out.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Aug 28, 2021 07:40AM - edited Aug 28, 2021 07:41AM by KBL

Olma, I hope you don't regret posting. I truly would love to read every perspective. I don't want to live in a bubble of just one-sided information. I want to hear how others feel on all sides.

Tinkerbell has a very valid question. I don't have the answer, but maybe someone here can let her know how they're handling dining. I have gone to a few restaurants, but I have started cooking more at home. I don't work any longer, so I have the time to cook. That's not your question, though. You want to be with your friends.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)

Aug 28, 2021 08:01AM - edited Aug 28, 2021 08:06AM by Olma61

Honestly, since being vaxed, I have not worried about restaurant dining. I go to the diner for lunch after every onc appt. the staff is all masked but they don't require customers to mask. If you sit in a booth you aren't near other customers, that's an advantage of diners or anyplace with booth seating.

We went out on New Years Eve. Pre-vaccination. The restaurant we chose was crowded and we were a little doubtful about staying but the staff was accommodating and let us sit upstairs, which had been closed, so we were the only people up there. It was wonderful!

I've been to two weddings - pre vax, celebrated outdoors. Post vax, church ceremony with social distancing and masking, reception outdoors.

I'm still COVID negative. No one from either wedding has COVID.

I flew twice before vaccination and twice since. The airlines and the airports are taking precautions. I know I am “privileged" in that I am not on chemo, not immune compromised, etc. But I am Stage IV and for me it's a balancing between - do I do the things that bring me joy, right now, while I can — or do I sequester myself for who knows how long until there is absolute zero COVID risk.

I am not advocating recklessness, although zero-risk advocates would disagree. Like I said, I am finding balance.


***forgot, I went to a baby shower also. Post-vax. Was supposed to be outdoors but had to be brought indoors. Church rec room, all doors left open for ventilation. Homecooked food from my relatives.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone

Aug 28, 2021 08:26AM wrenn wrote:

Something that has me flummoxed is that everyone isn't doing all they can to bring an end to a pandemic that is killing millions. Using this time to declare freedoms or show that you can't be bossed around by big government or anything political when lives are in danger blows my mind. I wonder if it was like this in 1918 or during other outbreaks that threatened our existence? The chest beating without one providing one iota of scientific evidence against masks or vaccines is so tiresome. Quoting nuts on Fox news or podcasters like Joe Rogan and others is not evidence.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right

Aug 28, 2021 08:44AM - edited Aug 28, 2021 08:52AM by Tinkerbell107

AliceBastable, Olma and KBL: I appreciate how you are are making choices based on having a balance but within your comfort level. I recognize there is not an ideal response to dining. You either do it or don't do it. I guess the middle ground would be as AliceBastable mentioned, scattered seating and the plexiglass booths. This is just another layer added of stress, negotiating life decisions, which becomes tiresome.. KBL: Cooking?? Maybe you will follow your daughter's footsteps, lol.

Dx 8/23/2019, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2-

Aug 28, 2021 08:54AM KBL wrote:

Tinkerbell, Lord, I will never be the cook my daughter is. I have a very plain repertoire. Spaghetti, plain chicken, Rice-a-Roni. I am and always have been a horrible cook. Luckily, my husband appreciates anything I give him, sweet man that he is.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)

Aug 28, 2021 09:15AM - edited Aug 28, 2021 09:17AM by KBL

Hi, Wrenn. I want to acknowledge you as well. I will continue to read your posts and research.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)

Aug 28, 2021 09:44AM illimae wrote:

wrenn, I don’t understand why some people are so resistant to masks and distancing, which require such minimal effort but I do understand why some are waiting to get vaccinated. Personally, I feel that I am being cautious and responsible to minimize my risk and any risk I pose to others, that is enough for me.

Also, I understand people are dying but I wish we knew more about how significant their pre existing conditions were. Even in Houston, TX (a covid hot spot according to media), I’ve only known of a few people who got it and they recovered, not a single person I know of has died.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Aug 28, 2021 09:58AM wrenn wrote:

Illimae, I have nothing agains anyone unable to be vaccinated and I believe most of them are being cautious to protect themselves and others. My rant is about people using this time to announce to the world about their "freedoms" or any political excuse making things worse for us all.

Wishing you well.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right

Aug 28, 2021 10:34AM illimae wrote:

Wrenn, we definitely agree on that. Unfortunately, the responsible unvaccinated are being lumped in with the jerks.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Aug 28, 2021 10:37AM wrenn wrote:

Illimae, So true and so unfair.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right

Aug 28, 2021 10:40AM Olma61 wrote:

I’ll add this - here’s something I don’t do, because it carries risk and it doesn’t spark joy - I don’t go shopping. I was doing about 60% of my grocery and other shopping online before COVID anyway, now it’s pretty much 100%. I did set foot in a Walgreens while I was on vacation and I’ve been to Walgreens near my oncologist office once or twice to pick up a few things, but that’s about it. I save my contact with the public for things that either really pleasant for me or necessary at the time.

I was getting my laundry picked up and delivered to me too versus doing it in my apt laundry room, although now I’ve loosened up on that ‘rule’ especially since the CDC has said contracting COVID from surfaces is unlikely. I do clean the machines with peroxide anyway,which might be more than the laundry service does , I didn’t ask specifically though they say they “sanitize” everything.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone

Aug 28, 2021 11:25AM exbrnxgrl wrote:

Illimae,

I know that some lump all who are not getting vaccinated into the same category but please know that most people understand legitimate medical reasons for not being vaccinated. Those who don’t need to educate themselves. BTW, I hate auto correct! It changed your username to what it wanted three times 🤨


Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)

Aug 28, 2021 11:27AM Kikomoon wrote:

This is such a messy and hard issue. I can understand vaccine hesitancy. I have some dearly loved friends and family that don’t want it. Unfortunately, one of them is on a ventilator right now after 5 weeks in the hospital. They say it will be at least 2 months until he comes home. This is someone who had many other health issues, and this has greatly affected the family, obviously. What makes me angry is he tried to talk DH’s parents into NOT getting it, and they are in their 70s and 80s. They also both got Covid at the same time, but had a very easy time of it. I can’t begin to imagine my DH having his BIL and both parents in the hospital while dealing with my diagnosis too. I have a friend who has an autoimmune disorder and doesn’t want it. I get it. I felt with my condition, I need the jabs. I felt my BIL with all his other issues, being over fifty and with a young daughter needed it. Glad my mom got it, she’s a retired teacher but still substitutes. The only thing I know for sure is people should be wearing masks now and should have been this whole time. Such a mess. Glad we can discuss.

Dx 10/16/2020, IDC, Left, 6cm+, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, ER-/PR-, HER2+ Chemotherapy Xeloda (capecitabine) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Tukysa (tucatinib) Radiation Therapy External: Brain Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel)

Aug 28, 2021 11:33AM AlwaysMeC wrote:

Illimae, I don't mind the vaccine passport idea because it at least can minimize exposure indoors, but I think it shouldn't be implemented without options. There should be a pass for people with legitimate health reasons for not taking the vaccine because, let's face it, what person that was unable to get the vaccine would go about their day without taking precautions not to catch it? Also, I don't agree with anti vaxxers, but somewhat understand the vaccine hesitant. There should be options for those people like maintaining outdoor dining and other ways to complete getting government paperwork, banking, etcetera done. Maybe have certain times for unvaccinated people to do their errands? Our county had certain times for the elderly and immune compromised to do their errands when the vaccine wasn't around. Maybe now is the time for the unvaccinated to do their part in sacrificing some of their freedoms? It seems like a fair trade since the elderly and compromised did it all last year.

Dx 4/2/2021, IDC, Left, 1cm, Stage IIA, Grade 2, ER-/PR-, HER2+ (FISH)

Aug 28, 2021 11:38AM Spookiesmom wrote:

I have no other comment.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3

Aug 28, 2021 11:56AM trinigirl50 wrote:

Let me make this very real:

My wonderful MIL, got cancer (non Hodgkinsons) was treated and doing well, had to go into hospital for pain in her stomach. Drs didn't even bother to suggest repairing a tear that was found in her stomach lining because of the Covid 19 packed hospital. They sent her back home to die? wait? recover? but oops on the Friday she was meant to be released, she tested positive for Covid 19. My mother in law died on the Saturday. (Pre Vaccine). RIP Carol. I loved you.

A very good family friend/uncle got Covid 19, no underlying conditions except he was in his 70s (probably high cholesterol- he certainly loved his food),not overweight or anything but not an exerciser, he went to hospital because he had trouble breathing, he got oxygen felt better they sent him home. Three days later his sister went to see him because he wasn't answering calls. She found him dead on the kitchen floor. Pre vaccine.. RIP Lennox.. I miss you.

My friend, C, lost both her aunts (having already lost her mother to breast cancer) to Covid - one lived in Canada, the other in the Caribbean. They had been on one of the very first cruises at the start of the pandemic. I don't know if they had underlying conditions.

My youngest sister fought Covid for 3 terrifying weeks (she has asthma but was too young for the vaccine at that time). Three weeks shitting myself wondering if I was going to lose my sister. She made it through okay with oxygen, she didn't need a ventilator. Her stupid partner/BF wasn't a mask wearer and didn't think Covid was a big deal.

My husband was on a ventilator back in 2017 for an unrelated condition but developed Acute respiratory distress syndrome. Five days of sheer fucking terror when the Drs told me he had a 50/50 chance. He made it. I have spent the entire year scrubbing myself down (I have to go out to work), not touching my husband, my poor son unable to go out, for fear of killing my husband.

When we were allowed to get vaccinated I cried with joy and relief. When my son was able to be vaccinated (he is 14), I started to breathe again.

And now I am fucking furious that I am surrounded with Covid again. Entirely preventable.

I really really hope that the government and all the corporations tell everyone that if they don't want the vaccine, then stay home. Your body, sure. So keep your body away from civilized society. Civilized society recognizes that we care for each other and not just ourselves. Get over your personal freedom shit and think about your fellow man instead.

My coworker (who was told get vaccinated or get another job - we work with the elderly), cheerily told me that my MIL had really died of the flu. I resisted the urge to bitchslap him because I am in favour of reasoning rather than violence to make my point. Roll on 8 months later, he coaches football at school with another young man 20s, healthy, fit. So this young man died of Covid (vehemently unvaccinated) last week. My coworker has stopped talking about the flu. What a godawful lesson.

BTW this is not aimed at anyone on this site, it's just my rant. I have no issues with those who have bona fide reasons for remaining unvaccinated as opposed to political bullshit. I could give a rats ass about politics except for the fact that it seems to have turned mainly decent people into blinkered morons.

There are 17 of us in my immediate family, we have all now been vaccinated (we live in the US, UK, Ireland, Caribbean). Vaccinated in that country order as well. I am grateful every day, that I live in the US and had first chance.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/14/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes

Aug 28, 2021 11:58AM Teedoff wrote:

Just a thought. I am fully vaccinated, including my booster. However, I may very well not have produced antibodies since I am in active treatment and am definitely immuno-compromised with low lymphocytes and borderline neutrophils. Until antibody testing is more accurate I won't know if I have any level of protection. I could be like an unvaccinated person as well as being even more vulnerable. Guess I will continue to hide away at home until better information is available one way or another. Obviously unhappy and frustrated and feel cheated out of living the life I have left. Thanks for listening.

Teedoff Dx 1/2011, IDC, Left, Grade 2, ER+/PR+, HER2- Dx 10/2015, IDC, Left, Stage IV, metastasized to bone/liver Chemotherapy Xeloda (capecitabine) Hormonal Therapy Aromasin (exemestane) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Taxol (paclitaxel) Hormonal Therapy Arimidex (anastrozole) Chemotherapy AC + T (Taxol)

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