Topic: Rant away about COVID, the vaccine, etc.

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Aug 27, 2021 07:00PM - edited Sep 3, 2021 04:56PM by kbl

Posted on: Aug 27, 2021 07:00PM - edited Sep 3, 2021 04:56PM by kbl

kbl wrote:

Covid discussion.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other

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Aug 28, 2021 07:23AM - edited Sep 7, 2021 04:30AM by olma61

This Post was deleted by olma61.
10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+, IHC Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External Local Metastases 5/30/2019 Radiation therapy: Bone

Aug 28, 2021 07:39AM illimae wrote:

Jhl, thank you for the link. I have looked at that form before but I do t feel like it applies, as it more a medical thing for me and appears to be related to schools or school children. I do appreciate you taking the time to find and post it though 🙂

Melbo, I never thought I’d do chemo pre cancer but being diagnosed stage IV from the get go brought a desperation that left little room for alternatives. Unfortunately, my first two failed attempts (due to extremely severe reactions) didn’t help that initial mindsbut I eventually found one effective and tolerable.

Ideally, I’d like more time with the vaccine information particularly the efficacy and effects 2-5 years out.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2- Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Aug 28, 2021 07:40AM - edited Aug 28, 2021 07:41AM by kbl

Olma, I hope you don't regret posting. I truly would love to read every perspective. I don't want to live in a bubble of just one-sided information. I want to hear how others feel on all sides.

Tinkerbell has a very valid question. I don't have the answer, but maybe someone here can let her know how they're handling dining. I have gone to a few restaurants, but I have started cooking more at home. I don't work any longer, so I have the time to cook. That's not your question, though. You want to be with your friends.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other

Aug 28, 2021 08:01AM - edited Aug 28, 2021 08:06AM by olma61

Honestly, since being vaxed, I have not worried about restaurant dining. I go to the diner for lunch after every onc appt. the staff is all masked but they don't require customers to mask. If you sit in a booth you aren't near other customers, that's an advantage of diners or anyplace with booth seating.

We went out on New Years Eve. Pre-vaccination. The restaurant we chose was crowded and we were a little doubtful about staying but the staff was accommodating and let us sit upstairs, which had been closed, so we were the only people up there. It was wonderful!

I've been to two weddings - pre vax, celebrated outdoors. Post vax, church ceremony with social distancing and masking, reception outdoors.

I'm still COVID negative. No one from either wedding has COVID.

I flew twice before vaccination and twice since. The airlines and the airports are taking precautions. I know I am “privileged" in that I am not on chemo, not immune compromised, etc. But I am Stage IV and for me it's a balancing between - do I do the things that bring me joy, right now, while I can — or do I sequester myself for who knows how long until there is absolute zero COVID risk.

I am not advocating recklessness, although zero-risk advocates would disagree. Like I said, I am finding balance.


***forgot, I went to a baby shower also. Post-vax. Was supposed to be outdoors but had to be brought indoors. Church rec room, all doors left open for ventilation. Homecooked food from my relatives.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+, IHC Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External Local Metastases 5/30/2019 Radiation therapy: Bone

Aug 28, 2021 08:26AM wrenn wrote:

Something that has me flummoxed is that everyone isn't doing all they can to bring an end to a pandemic that is killing millions. Using this time to declare freedoms or show that you can't be bossed around by big government or anything political when lives are in danger blows my mind. I wonder if it was like this in 1918 or during other outbreaks that threatened our existence? The chest beating without one providing one iota of scientific evidence against masks or vaccines is so tiresome. Quoting nuts on Fox news or podcasters like Joe Rogan and others is not evidence.

Aug 28, 2021 08:44AM - edited Aug 28, 2021 08:52AM by Tinkerbell107

AliceBastable, Olma and KBL: I appreciate how you are are making choices based on having a balance but within your comfort level. I recognize there is not an ideal response to dining. You either do it or don't do it. I guess the middle ground would be as AliceBastable mentioned, scattered seating and the plexiglass booths. This is just another layer added of stress, negotiating life decisions, which becomes tiresome.. KBL: Cooking?? Maybe you will follow your daughter's footsteps, lol.

Dx 8/23/2019, IDC, Left, 2cm, Stage IV, metastasized to bone, Grade 3, 5/6 nodes, ER+/PR+, HER2-

Aug 28, 2021 08:54AM kbl wrote:

Tinkerbell, Lord, I will never be the cook my daughter is. I have a very plain repertoire. Spaghetti, plain chicken, Rice-a-Roni. I am and always have been a horrible cook. Luckily, my husband appreciates anything I give him, sweet man that he is.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other

Aug 28, 2021 09:15AM - edited Aug 28, 2021 09:17AM by kbl

Hi, Wrenn. I want to acknowledge you as well. I will continue to read your posts and research.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other

Aug 28, 2021 09:44AM illimae wrote:

wrenn, I don’t understand why some people are so resistant to masks and distancing, which require such minimal effort but I do understand why some are waiting to get vaccinated. Personally, I feel that I am being cautious and responsible to minimize my risk and any risk I pose to others, that is enough for me.

Also, I understand people are dying but I wish we knew more about how significant their pre existing conditions were. Even in Houston, TX (a covid hot spot according to media), I’ve only known of a few people who got it and they recovered, not a single person I know of has died.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2- Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Aug 28, 2021 09:58AM wrenn wrote:

Illimae, I have nothing agains anyone unable to be vaccinated and I believe most of them are being cautious to protect themselves and others. My rant is about people using this time to announce to the world about their "freedoms" or any political excuse making things worse for us all.

Wishing you well.

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