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Topic: Rant away about COVID, the vaccine, etc.

Forum: All things COVID-19 or coronavirus —

A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Aug 27, 2021 07:00PM - edited Sep 3, 2021 04:56PM by KBL

KBL wrote:

Covid discussion.

Missed diagnosis from 8/2013 - De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)

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Posts 691 - 709 (709 total)

Sep 7, 2021 05:51PM Teedoff wrote:

runor: Yes, we all will die one day. Some sooner than others, and cause of death is not always old age or illness. One's perspective may change if he/she is diagnosed with a terminal illness. I find It is so cavalier for people to be dismissive and willing to write off my life so easily because I'm old and will die anyway. Not an emergency for them.

Well, I've hung on with Stage 4 for almost 6 years and hope for a few more. At least you begrudgingly wear the damn mask. I hate them too! If I am unlucky enough to get a whopping case of Covid, I won't be intubated or resuscitated. Have a DNR-DNI. That way I won't take up a bed needed by others. I sincerely pray you never find yourself where I am on the BC train or get Covid for that matter. I also pray you do not transmit it to anyone.

In the meantime, your silence on the increasing cases of Covid hitting the unvaccinated, and breakthrough cases of the vaccinated to a far lesser degree, should give you something to consider as you sign off. No one here wishes you ill although we are saddened and yes, angered, by your perspective. Not holding my breath waiting for you to get vaccinated. ‘Nuff said

Teedoff Dx 1/2011, IDC, Left, Grade 2, ER+/PR+, HER2- Dx 10/2015, IDC, Left, Stage IV, metastasized to bone/liver Chemotherapy Xeloda (capecitabine) Hormonal Therapy Aromasin (exemestane) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Chemotherapy AC + T (Taxol) Chemotherapy Taxol (paclitaxel)

Sep 7, 2021 06:05PM - edited Sep 7, 2021 10:27PM by Cowgirl13

This Post was deleted by Cowgirl13.
Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/16/2009 Chemotherapy 8/2/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/22/2010 Arimidex (anastrozole)

Sep 7, 2021 06:30PM AliceBastable wrote:

I wonder if I should tell my friend who lost her brother that it's not a crisis? His son, my friend's nephew, is now in ICU with his own case of Covid. No, not a crisis at all.

How dare anyone say such a blatant untruth after all the unnecessary deaths? How smug and heartless.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes

Sep 7, 2021 06:34PM wrenn wrote:

At least she won't be allowed a BC vaccine passport. That will save a few that she thinks are expendable. Almost 200,000 people signed up for it on it's first day.

Soon her access (masked or not) to many places here will be blocked.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right

Sep 7, 2021 06:57PM - edited Sep 7, 2021 08:19PM by exbrnxgrl

I am on holiday but thought this experience fits this topic. I went out to the Channel Islands today. Accessible only by boat, it is made very clear that masks are to be worn at all times, inside and out. A couple was boarding ahead of me. The husband had his mask pulled under his chin. An employee reminded him of the mask policy and he then proceeded to argue with her! The boat operator is contracted by the National Park Service to provide service to the islands which are a national park and the policy is stated and restated every step of the way from making reservations to check in. Well, he argued for a few minutes until his wife, who looked like she would die of embarrassment, elbowed him in the side and then he pulled up his mask. Jerk!

As to old people being less of a loss because no one lives forever… I am a senior citizen with stage IV bc. I can speak with great certainty when I say that my family, if I contracted Covid19 and died, would consider it a tragedy and be extremely upset. It makes me slightly ill to know that some are willing to write off seniors as acceptable collateral damage from the pandemic. Yup, let's just kick grandma to the curb..

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)

Sep 7, 2021 07:16PM jhl wrote:

Yeah, Runor, I agree with you it is time you stepped away from this topic. You seem to have a narcissistic need to foment discord. Yes, you are sensitive & savage in your assessments. We know you don't approve of any of this & that is certainly your right. However, we all here hope you stay in your own bubble & don't infect anyone while you self-righteously tell yourself you are doing it only because you don't agree with any of the measures which have been taken. But, here's the thing - no one asked you what you thought. Everyone, from the grocery clerk who has to breathe the air of your pontification to the officials who tried their best to mitigate was has been a once in a century pandemic. Honestly, no one really cares what you think. People who have a more expert and measured approach to our global crisis as well as those of us little people who are just trying to keep ourselves and loved ones alive will carry on, hopefully without your hysteria.

Be well,

Jane

Dx 11/15/2019, IDC: Cribriform, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (FISH)

Sep 7, 2021 07:40PM Sadiesservant wrote:

I’m saddened by the latest. While I abhor the idea of anyone being offended, I wonder what the heck we are all doing trying to find ways to stretch out our days before giving in to this crap disease since, apparently, our lives don’t count after the age of what? 12? 14? Or? I am someone’s child… albeit pushing 60…

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/20/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External: Bone Radiation Therapy 11/5/2018 External: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine)

Sep 7, 2021 07:50PM Trishyla wrote:

I find I have nothing to say that won't get me banned. And frankly, not worth it.

Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)

Sep 7, 2021 07:55PM Chowdog wrote:

Same. Not worth my energy & time.

Dx 6/2007, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/2/2007 Mastectomy: Left, Right Chemotherapy 8/15/2007 AC + T (Taxol) Hormonal Therapy 1/10/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Dx 2/12/2018, IDC, Stage IV, metastasized to brain/bone/lungs, ER+/PR+, HER2- Hormonal Therapy 2/12/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 3/19/2018 External: Brain Targeted Therapy 4/9/2018 Ibrance (palbociclib) Hormonal Therapy 4/9/2018 Femara (letrozole), Zoladex (goserelin)

Sep 7, 2021 08:31PM Betrayal wrote:

I have been a watchful lurker here because I was not in agreement with the ability to rationalize deaths related to Covid in the elderly and did not wish to partake in an argument about this. Many of those who died had survived child diseases prior to the development of vaccines, infections prior to the discovery of antibiotics and other life prolonging treatments and their contributions to the world were immeasurable. They are missed and will continue to be missed by anyone whose paths they crossed. I applaud those of you who tried to present a reasonable approach but were being rebuffed and bombarded by "words" without weight or merit.

Again, "no man is an island entire of itself" as posted by Trishyla. "United we stand, divided we fall" so we need those who can get the vaccine safely, to do so as a means of controlling this pandemic. I have postponed health needs, limited contacts outside my "pod" and canceled scheduled vacations or had them canceled when US citizens were denied access due to our burgeoning infection rates. I am vaccinated, still wear my mask and social distance so I am doing my part as are many of you. I am tired of suffering fools.

Surgery 1/31/2016 Lumpectomy: Left Surgery 1/31/2016 Lymph node removal: Sentinel Surgery 3/3/2016 Lumpectomy: Left Radiation Therapy 3/30/2016 Whole-breast: Breast Hormonal Therapy 6/24/2016 Arimidex (anastrozole) Hormonal Therapy 5/18/2017 Femara (letrozole) Hormonal Therapy 6/15/2020 Aromasin (exemestane)

Sep 7, 2021 09:13PM AlwaysMeC wrote:

I really don't agree that it's been a slugfest in here. That's quite a bit exaggerated. There have been words like stupid and dumb stated in response to some comments, but that's nothing compared to the death of an elderly person, yet the expectation is that people should not be offended by losing beloved elderly. Perspective is relevant, and it appears the people who did respond with not so strong (literally school yard level) language experienced Covid to the worst extent or pretty badly. But let's get our feelings, or is it pride, hurt because they wanna say F off, or feel the need to bombard a person with as much information they feel is necessary to get their point across? To be offended by words compared to not being offended by the physical consequence of death in the elderly is a very strange reason for taking offense to. As the saying goes, "sticks and stones..." IMO it's more offensive to dismiss a life than to try to convince someone that that life matters, especially when the rationale is that people should be able to live their life as they please. It's a conflicting viewpoint; the importance of quality of life, yet being okay to sacrifice others lives.

It's also odd that some people feel the need to express their dissatisfaction with evidence presented to them, yet are unwilling to accept another person's dissatisfaction with what they themselves are presenting.

Dx 4/2/2021, IDC, Left, 1cm, Stage IIA, Grade 2, 1/4 nodes, ER-/PR-, HER2+ (FISH)

Sep 7, 2021 09:29PM nopink2019 wrote:

I too "have 1 foot in the grave" along with all of us stage IV. Guess all the wonderful research we rely on to keep us alive for maybe a brief time could have been put to better use? Should we only write off stage IV, or maybe stage 1 too since there is no cure for bc, only NED? As far as "safe and effective" go...maybe you should research chemo drugs! Start with adriamycin aka red devil.

Dx 2008, IDC, Stage IA, Grade 3, ER+/PR-, HER2- Dx 2019, Stage IV, metastasized to bone/liver/lungs, ER+/PR-, HER2- Chemotherapy 8/22/2019 Taxotere (docetaxel) Chemotherapy 9/12/2019 Xeloda (capecitabine) Targeted Therapy 11/8/2019 Kisqali Hormonal Therapy 11/8/2019 Faslodex (fulvestrant) Targeted Therapy 5/10/2021 Afinitor (everolimus) Hormonal Therapy 5/10/2021 Aromasin (exemestane) Chemotherapy 11/14/2021 Xeloda (capecitabine)

Sep 7, 2021 09:37PM blue22 wrote:

Arguing that it is or was not an emergency is also not taking into account what would have happened if we had not taken the measures we already have. Imagine the impact on hospitals and medical staff if we had just let the virus burn through the population. It is already horrendous. Why is that so difficult for people to understand?

Dx 1/2019, IBC, Left, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2- (FISH) Chemotherapy 2/14/2019 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 7/29/2019 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left Dx 7/30/2019, IDC/IBC, Left, 6cm+, Stage IIIC, Grade 3, 4/14 nodes, ER+/PR+, HER2+ (IHC) Dx 8/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+ Radiation Therapy 10/8/2019 Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Xeloda (capecitabine)

Sep 7, 2021 10:10PM trinigirl50 wrote:

Runor

It seems to me, that you rather enjoy using highly emotive (combative) language yourself. So do I, but I have schooled myself not to engage. We don't want a real slugfest. Good of you to step away. Perhaps a crack will let the light in. Be well.

My rant for today: my son got another "close contact" phone call today. What the fucking fucking fuck. He is vaccinated, but how many "close contacts" can he have before he catches Covid?

Lawd fadder. (Caribbean slang for "Lord Father" said while rolling one's eyes).



trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/13/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes

Sep 7, 2021 10:18PM SerenitySTAT wrote:

trinigirl - Hope your son isn't infected. Schools do seem to be stress testing the vaccine.

On runor- I know her so many words were callous. Frankly, her words never made me feel bad because they carry no weight. Her pandemic ideas come from failed physician/comedian podcasters(???). I have never expected she'd change her mind when she chooses not to listen to experts.

What surprised me is that she repeated her words when it hurt people the first time she posted them. Is she a glutton for punishing? jhl is right. Let's carry on without her hysteria.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva

Sep 8, 2021 05:15AM - edited Sep 8, 2021 05:16AM by muska

@ runor ThumbsDown

“I still think this pandemic was not a crisis and should have been downgraded in emergency status about 2 months in when we knew our kids were not dying. Is it okay for frail elderly to die? I guess if you expect another 100 years out of your frail elderly then you might be shocked and freaked out to learn that old people die. But to me, no, the deaths of those who had one foot in the grave already is not a global panic.“

My dear, with your diagnosis you might join the “one foot in the grave" group sooner than you hope.


Dx at 54 Dx 5/9/2013, DCIS/IDC, Right, <1cm, Stage IIIA, Grade 3, 7/11 nodes, ER+/PR+, HER2- (FISH) Dx 6/13/2013, LCIS, Both breasts Surgery 6/13/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/25/2013 AC + T (Taxol) Surgery 2/20/2014 Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/12/2014 Arimidex (anastrozole) Radiation Therapy 3/23/2014 Breast, Lymph nodes, Bone

Sep 8, 2021 07:42AM wrenn wrote:

It's like the anti intellect types have broken receivers. They are only able to transmit. Spewing the same craziness even after being shunned is proof that she is not taking in any information other than from the other nuts like Joe Rogan (wonder how he is doing with his covid?).

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right

Sep 8, 2021 07:43AM - edited Sep 8, 2021 07:50AM by ErenTo

Someone with Stage II breast cancer who is on Tamoxifen, has a much higher chance of dying of uterine or breast (or ovarian) cancer than any side effect that the "experimental" mRNA vaccine may have. I blame this lapping up on pseudoscience and BS podcasters, who are mostly in it for the profit, on an education system that failed to teach critical thinking. The whole fringe "truth-seeking" anti-vax community is like a cult and when looked at that way, is best ignored. They're hopelessly unreachable, no matter how damaging to the rest of us they are. Let's hope science and an updated vaccine will negate the need for them to get vaxxed.

The irony is that they never understand or admit that they are primarily protected thanks to rest of us who did get vaccinated.

Survived an unexplained sudden cardiac arrest b/w surgery and chemo (while attending a chemo info session at the hospital). Code blue, CPR, induced coma, ICU, ICD. Escaped alive with heart and brain unscathed! Dx 12/8/2014, IDC, Left, 2cm, Stage IIIA, Grade 3, 6/13 nodes, ER+/PR+, HER2- (FISH) Surgery 1/12/2015 Lumpectomy: Left Chemotherapy 3/20/2015 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 7/23/2015 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 8/4/2015 Breast, Lymph nodes

Sep 8, 2021 08:53AM Moderators wrote:

Hi all,

At the request of the OP, we are locking this thread to no longer allow comments. Thanks to those who participated respectively and responsibly. Please be safe out there!

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...

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