Topic: Rant away about COVID, the vaccine, etc.

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Aug 27, 2021 07:00PM - edited Sep 3, 2021 04:56PM by kbl

Posted on: Aug 27, 2021 07:00PM - edited Sep 3, 2021 04:56PM by kbl

kbl wrote:

Covid discussion.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other

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Aug 28, 2021 10:34AM illimae wrote:

Wrenn, we definitely agree on that. Unfortunately, the responsible unvaccinated are being lumped in with the jerks.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2- Radiation Therapy 10/19/2017 External Local Metastases 10/19/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/22/2019 External Local Metastases 5/22/2019 Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External Local Metastases 2/16/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Aug 28, 2021 10:37AM wrenn wrote:

Illimae, So true and so unfair.

Aug 28, 2021 10:40AM olma61 wrote:

I’ll add this - here’s something I don’t do, because it carries risk and it doesn’t spark joy - I don’t go shopping. I was doing about 60% of my grocery and other shopping online before COVID anyway, now it’s pretty much 100%. I did set foot in a Walgreens while I was on vacation and I’ve been to Walgreens near my oncologist office once or twice to pick up a few things, but that’s about it. I save my contact with the public for things that either really pleasant for me or necessary at the time.

I was getting my laundry picked up and delivered to me too versus doing it in my apt laundry room, although now I’ve loosened up on that ‘rule’ especially since the CDC has said contracting COVID from surfaces is unlikely. I do clean the machines with peroxide anyway,which might be more than the laundry service does , I didn’t ask specifically though they say they “sanitize” everything.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+, IHC Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/29/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/29/2019 External Local Metastases 5/29/2019 Radiation therapy: Bone

Aug 28, 2021 11:25AM exbrnxgrl wrote:

Illimae,

I know that some lump all who are not getting vaccinated into the same category but please know that most people understand legitimate medical reasons for not being vaccinated. Those who don’t need to educate themselves. BTW, I hate auto correct! It changed your username to what it wanted three times 🤨


Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-

Aug 28, 2021 11:27AM kikomoon wrote:

This is such a messy and hard issue. I can understand vaccine hesitancy. I have some dearly loved friends and family that don’t want it. Unfortunately, one of them is on a ventilator right now after 5 weeks in the hospital. They say it will be at least 2 months until he comes home. This is someone who had many other health issues, and this has greatly affected the family, obviously. What makes me angry is he tried to talk DH’s parents into NOT getting it, and they are in their 70s and 80s. They also both got Covid at the same time, but had a very easy time of it. I can’t begin to imagine my DH having his BIL and both parents in the hospital while dealing with my diagnosis too. I have a friend who has an autoimmune disorder and doesn’t want it. I get it. I felt with my condition, I need the jabs. I felt my BIL with all his other issues, being over fifty and with a young daughter needed it. Glad my mom got it, she’s a retired teacher but still substitutes. The only thing I know for sure is people should be wearing masks now and should have been this whole time. Such a mess. Glad we can discuss.

Dx 10/16/2020, IDC, Left, 6cm+, Stage IV, metastasized to brain/bone/liver/lungs, Grade 2, ER-/PR-, HER2+ Chemotherapy Xeloda (capecitabine) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Tukysa (tucatinib) Radiation Therapy External Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Local Metastases Brain

Aug 28, 2021 11:33AM alwaysmec wrote:

Illimae, I don't mind the vaccine passport idea because it at least can minimize exposure indoors, but I think it shouldn't be implemented without options. There should be a pass for people with legitimate health reasons for not taking the vaccine because, let's face it, what person that was unable to get the vaccine would go about their day without taking precautions not to catch it? Also, I don't agree with anti vaxxers, but somewhat understand the vaccine hesitant. There should be options for those people like maintaining outdoor dining and other ways to complete getting government paperwork, banking, etcetera done. Maybe have certain times for unvaccinated people to do their errands? Our county had certain times for the elderly and immune compromised to do their errands when the vaccine wasn't around. Maybe now is the time for the unvaccinated to do their part in sacrificing some of their freedoms? It seems like a fair trade since the elderly and compromised did it all last year.

Dx 4/2/2021, IDC, Left, 1cm, Stage IIA, Grade 2, ER-/PR-, HER2-

Aug 28, 2021 11:38AM spookiesmom wrote:

I have no other comment.

Aug 28, 2021 11:56AM trinigirl50 wrote:

Let me make this very real:

My wonderful MIL, got cancer (non Hodgkinsons) was treated and doing well, had to go into hospital for pain in her stomach. Drs didn't even bother to suggest repairing a tear that was found in her stomach lining because of the Covid 19 packed hospital. They sent her back home to die? wait? recover? but oops on the Friday she was meant to be released, she tested positive for Covid 19. My mother in law died on the Saturday. (Pre Vaccine). RIP Carol. I loved you.

A very good family friend/uncle got Covid 19, no underlying conditions except he was in his 70s (probably high cholesterol- he certainly loved his food),not overweight or anything but not an exerciser, he went to hospital because he had trouble breathing, he got oxygen felt better they sent him home. Three days later his sister went to see him because he wasn't answering calls. She found him dead on the kitchen floor. Pre vaccine.. RIP Lennox.. I miss you.

My friend, C, lost both her aunts (having already lost her mother to breast cancer) to Covid - one lived in Canada, the other in the Caribbean. They had been on one of the very first cruises at the start of the pandemic. I don't know if they had underlying conditions.

My youngest sister fought Covid for 3 terrifying weeks (she has asthma but was too young for the vaccine at that time). Three weeks shitting myself wondering if I was going to lose my sister. She made it through okay with oxygen, she didn't need a ventilator. Her stupid partner/BF wasn't a mask wearer and didn't think Covid was a big deal.

My husband was on a ventilator back in 2017 for an unrelated condition but developed Acute respiratory distress syndrome. Five days of sheer fucking terror when the Drs told me he had a 50/50 chance. He made it. I have spent the entire year scrubbing myself down (I have to go out to work), not touching my husband, my poor son unable to go out, for fear of killing my husband.

When we were allowed to get vaccinated I cried with joy and relief. When my son was able to be vaccinated (he is 14), I started to breathe again.

And now I am fucking furious that I am surrounded with Covid again. Entirely preventable.

I really really hope that the government and all the corporations tell everyone that if they don't want the vaccine, then stay home. Your body, sure. So keep your body away from civilized society. Civilized society recognizes that we care for each other and not just ourselves. Get over your personal freedom shit and think about your fellow man instead.

My coworker (who was told get vaccinated or get another job - we work with the elderly), cheerily told me that my MIL had really died of the flu. I resisted the urge to bitchslap him because I am in favour of reasoning rather than violence to make my point. Roll on 8 months later, he coaches football at school with another young man 20s, healthy, fit. So this young man died of Covid (vehemently unvaccinated) last week. My coworker has stopped talking about the flu. What a godawful lesson.

BTW this is not aimed at anyone on this site, it's just my rant. I have no issues with those who have bona fide reasons for remaining unvaccinated as opposed to political bullshit. I could give a rats ass about politics except for the fact that it seems to have turned mainly decent people into blinkered morons.

There are 17 of us in my immediate family, we have all now been vaccinated (we live in the US, UK, Ireland, Caribbean). Vaccinated in that country order as well. I am grateful every day, that I live in the US and had first chance.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/13/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole breast: Breast, Lymph nodes

Aug 28, 2021 11:58AM Teedoff wrote:

Just a thought. I am fully vaccinated, including my booster. However, I may very well not have produced antibodies since I am in active treatment and am definitely immuno-compromised with low lymphocytes and borderline neutrophils. Until antibody testing is more accurate I won't know if I have any level of protection. I could be like an unvaccinated person as well as being even more vulnerable. Guess I will continue to hide away at home until better information is available one way or another. Obviously unhappy and frustrated and feel cheated out of living the life I have left. Thanks for listening.

Teedoff Dx 1/2011, IDC, Left, Grade 2, ER+/PR+, HER2- Dx 10/2015, IDC, Left, Stage IV, metastasized to bone/liver Chemotherapy Xeloda (capecitabine) Hormonal Therapy Aromasin (exemestane) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Chemotherapy AC + T (Taxol) Chemotherapy Taxol (paclitaxel)

Aug 28, 2021 11:58AM alwaysmec wrote:

There's an irony in not wanting the vaccination, but being willing to take a drug off label and also in formulations intended for livestock. I've read poison control calls are up from people taking Ivermectin on their own, and there have been people hospitalized for heart failure.

The vaccination is a choice, but I feel like Ivermectin shouldn't be at all because nobody but a certain subset of sketchy non virologist or infectiologist MDs are saying it's okay. With that said, I often see people touting America's Frontline Doctors. This article from Time states the founder was one of the people arrested for taking part in the Jan 6 insurrection, and that their site is taking money from people without providing services or treatment. Seems like they have conned vulnerable people.

https://time.com/6092368/americas-frontline-doctors-covid-19-misinformation/?amp=true


Dx 4/2/2021, IDC, Left, 1cm, Stage IIA, Grade 2, ER-/PR-, HER2-

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