Topic: Rant away about COVID, the vaccine, etc.

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Aug 28, 2021 03:00AM - edited Sep 4, 2021 12:56AM by kbl

Posted on: Aug 28, 2021 03:00AM - edited Sep 4, 2021 12:56AM by kbl

kbl wrote:

Covid discussion.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other

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Aug 28, 2021 08:22PM - edited Aug 28, 2021 08:25PM by olma61

For those worried about vaccine resisters, here's the good news: they are the minority, even here in the good old USA.

Here's a very recent article from USAToday -

“According to a recent survey conducted by the U.S. Census Bureau, 25,900,000 Americans — or 10.4% of the 18 and older population — say they will either probably or definitely not agree to receive the vaccination.“


https://www.usatoday.com/story/news/health/2021/08/21/covid-vaccination-hesitancy-rates-state/8210703002/


A quick scan of the data show Wyoming and South Carolina with resisters at 25% and 20% respectively , every other state has fewer than 20%.
25% is a lot, but still a minority and good thing Wyoming is not densely populated, I guess.

I don't think they've explored reasons why these people don't want to be vaccinated. I can't get the link to the census survey to work to see if they asked about that.

States such as NJ, CT, MA, CA and even FL have under 10% of population likely or definitely refusing vaccination

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+, IHC Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External Local Metastases 5/30/2019 Radiation therapy: Bone

Aug 28, 2021 08:24PM kbl wrote:

I myself would not be doing what you’re describing. I’ve read about the other protocols (please forgive me, I can’t remember the name) of where people take an animal dewormer for cancer. I wouldn’t do that either. I don’t know enough about the dewormer and would not take it unless I did a lot more research. If I do get COVID, what I do will be decided by a licensed physician and me and my family.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other

Aug 28, 2021 08:36PM - edited Aug 28, 2021 09:01PM by olma61

ok finally got the survey link to work.

https://www.census.gov/library/visualizations/interactive/household-pulse-survey-covid-19-vaccination-tracker.html

Most cited reason for vaccine hesitancy: afraid of side effects.

Although, “don't trust the vaccine” and “don't trust the govt”are popular as well. But still, it's 10.5% of total population




And - 82.4% of US adults have received one dose and 99.4% who have received one dose will plan or have received all doses



10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+, IHC Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External Local Metastases 5/30/2019 Radiation therapy: Bone

Aug 28, 2021 08:44PM Teedoff wrote:

To add to my rant about vaccine maybe not working for immune compromised me… I am even more at the mercy of the anti Vaxxers who don’t give a hoot and live in an alternate reality


Teedoff Dx 1/2011, IDC, Left, Grade 2, ER+/PR+, HER2- Dx 10/2015, IDC, Left, Stage IV, metastasized to bone/liver Chemotherapy Xeloda (capecitabine) Hormonal Therapy Aromasin (exemestane) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Chemotherapy AC + T (Taxol) Chemotherapy Taxol (paclitaxel)

Aug 28, 2021 08:47PM illimae wrote:

I’ve been reading here and appreciating the thoughtful and respectful conversation. I just have two things to add to some of the comments.

Restricted hours for unvaccinated at businesses would cause a huge storm of rebellion from way more than the freedom preachers, I for one (even sympathetic and responsible) would be outraged at rules like that and I am certainly not alone.

Also, some reasons people are hesitant are concerns about lasting effects of the vaccine, such as the increased risk of blood clots and potential heart damage issue. None of us know how long these may last or what might be discovered later, it’s all too fast for people who are used to 5 years or more of data. I can’t blame them, they are not unreasonable, there’s a lot we don’t know yet, and if it turns out to be nothing great but if some major lasting harm is discovered a year or two from now, then what? “We didn’t know” won’t cut it.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2- Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Aug 28, 2021 08:54PM kbl wrote:

Trinigirl50, I’m very sorry for the losses you’ve suffered.


De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other

Aug 28, 2021 08:55PM kbl wrote:

Thank you for the charts, Olma.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Chemotherapy 9/27/2021 Other

Aug 28, 2021 08:55PM - edited Aug 28, 2021 08:56PM by alwaysmec

KBL, The deworming protocol you read about is likely the Ivermectin. I've used it on a brand bew kitty cat a while back.

From your recent posts, I am guessing you are not antivax, but vaccine hesitant? I understand some people are hesitant within good reason. I have a family member who developed an autoimmune condition after the HPV vaccine as a child. She was hesitant to get the Covid vaccine, but ended up getting it on the advice from a couple of her doctors (including an immunologist), and because she had a horrible bout of Covid in 2020. She had every symptom from the headaches, to high fever, to loss of taste, to covid toes, and lung inflammation. She decided she didn't want to go through that again or worry about spreading it to other people that would go through it or worse.

Dx 4/2/2021, IDC, Left, 1cm, Stage IIA, Grade 2, ER-/PR-, HER2-

Aug 28, 2021 09:00PM jhl wrote:

Illimae,

I am truly not trying to pick on you but you brought up the issue of not knowing anyone who has died of Covid. I find this mindset to be a problem actually. Below your post there are several folks who have brought you their realities. I, personally, work in the acute care setting. The Covid patient has changed in the last year. Currently, we have young (20's) men & women who are healthy - absolutely no pre-existing conditions other than they are human. Some are on vents. Several have died on vents. Most not on vents are on BiPap & are teetering. Their lives will forever be changed because of this illness. I have colleagues who work in Children's Hospitals & their ICU's are full of kids as young as 18 months to 18 years on vents & BiPaps. Most of them have not had a chance to start their lives & because of stupid choices (not yours) they may not get that chance &/or their future looks worrisome. Why do people want to wait 5 years to see the outcome of the vaccine when we have children who are sick & dying in whom 5 years may look very grim. That, to me, is the definition of being self centered.

We do not yell FIRE in a movie theater, we don't drive excessive speeds on crowded highways, we put bleach & rat poison in places where children cannot get them & we don't fuss because they are in child resistant containers. We do these things for the greater good of society. Finally, I have read so many rants on here about how friends, family & the general public can make comments about how we as BC patients might have done something to cause our cancer. Everyone here is so supportive to encourage people to let go of that guilt. Well, let us not blame or try to find a reason someone got sick & died of Covid. That is exactly the same mindset - they must have had a pre-existing condition! No, most in the last 5 months have been healthy.

Covid is the most worrisome infectious illness of this century. It has significant morbidity & we've all seen the horrible mortality. A truly empathetic person does not have to have personal experience to want the best outcome for those affected & to want to try to help.

Stay well,

Jane

Dx 11/15/2019, IDC: Cribriform, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-

Aug 28, 2021 09:09PM Teedoff wrote:

Apologize for any misunderstanding about not getting vaccinated. Just a very emotional issue for me. Yes, there are very legitimate reasons for not doing so, but I don’t understand the reasoning where Covid deniers don’t believe their lyin’ eyes.

Teedoff Dx 1/2011, IDC, Left, Grade 2, ER+/PR+, HER2- Dx 10/2015, IDC, Left, Stage IV, metastasized to bone/liver Chemotherapy Xeloda (capecitabine) Hormonal Therapy Aromasin (exemestane) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Chemotherapy AC + T (Taxol) Chemotherapy Taxol (paclitaxel)

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