Topic: Rant away about COVID, the vaccine, etc.

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Aug 27, 2021 09:00PM - edited Sep 3, 2021 06:56PM by kbl

Posted on: Aug 27, 2021 09:00PM - edited Sep 3, 2021 06:56PM by kbl

kbl wrote:

Covid discussion.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Chemotherapy 9/27/2021 Other

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Aug 28, 2021 03:49PM alwaysmec wrote:

Jane, I am glad you brought that up. In fact, I just mentioned to my husband the other day that with the speed of the Covid vaccine I hope they create mRNA vaccines for breast cancers. I had heard about the HIV trials, but hadn't heard about the one for the colon. That's very exciting news. The Covid vaccine in my mind sets precedence. Drug companies take forever for approval, but if they've already got the ball rolling on cancer vaccines, then I am all for speeding them up.

Dx 4/2/2021, IDC, Left, 1cm, Stage IIA, Grade 2, ER-/PR-, HER2-

Aug 28, 2021 03:59PM exbrnxgrl wrote:

olma,

Good question about restaurant employees and there is a simple way to deal with it. Ask the owner or manager of said restaurant if they require proof of vaccination for their employees. Increasingly businesses are requiring employees to show proof of vaccination or have weekly tests. This is the case with my former school district and that general info is available to the public. Because the public is aware of this there is no need for families to approach staff individually to see proof of vaccination or negative tests. That part is managed by the school district. Now I don’t know if restaurants are publicly disclosing their staff vaccine/testing but I bet they’d be happy to tell you if you asked.

Dx IDC, Left, 4cm, Stage IV, Grade 1, ER+/PR+, HER2-

Aug 28, 2021 04:03PM trinigirl50 wrote:

Thank you to those who took the time to acknowledge my reality. Covid is up close and personal for me. And that doesn't take into account when I was doing symptom checking with Covid positive people who were isolating. I called them every day for 10 days and although most people got through it, I had more than enough people die on me. One particular person lost her father and brother, and was scared that she and her mother wouldn't make it either. It was unbearable, so we took turns calling her. Thank God, they both made it.

Illmae I respect your right to want to know more about the vaccine. I was really terrified getting chemo too (and I did end up in hospital due to chemo induced inflammation of lungs), but I did it. I thought long and hard about my 14 year old son (due to reports of inflammation in young males 16+), but in the end I felt the positives outweighed the possible negatives.

I fear for the world if we have become so brainwashed that we prefer to listen to internet "experts", politicians, and the opinions of like minded people rather than educated experts on a topic. They too are not infallible but at least there is logic and experience.

exbrnxgrl, I am absolutely from Trinidad. How cool of you to get it.

trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/13/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole breast: Breast, Lymph nodes

Aug 28, 2021 04:06PM - edited Aug 28, 2021 04:08PM by olma61

exbrnxgrl, true and I have not heard or researched if there are any requirements for restaurant workers here yet. There might already be. Good thing to look into though.

Different question - I thought it might be a good idea to get the antibody test to see how much protection I actually have but everything I see says that we should not be doing that. I don't fully understand why, even after reading explainers like this one -

https://www.pbs.org/newshour/health/covid-antibody-test-after-vaccine

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+, IHC Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/29/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/29/2019 External Local Metastases 5/29/2019 Radiation therapy: Bone

Aug 28, 2021 04:26PM exbrnxgrl wrote:

trinigirl,

If you look at my username you can figure out that I’m from the Bronx. Born, raised and ventured as far as Queens for college. NYC has a large communities from all of the islands. I adore the diversity and get lots of here in CA too (where I have now lived for more than 30 years).

Here’s an interesting si. I was listening to various officials from Louisiana urging citizens to evacuate their homes if they are ordered to do so. They very clearly stated that those who chose to stay will not be given priority for rescues and will not be rescued if it presents a danger to the first responders. This seems somewhat, but not exactly, analogous to doctors who say they will not serve the unvaccinated. i.e. You knew what the risks were, you were clearly warned and now you will have to deal with the consequences of your choice. Thoughts? I also want to add that officials in LA are concerned about moving hospital patients out of harms way because all of the hospitals in the state are heavily impacted by Covid19 patients. What a horrible dilemma. Thoughts and prayers anyone?

Dx IDC, Left, 4cm, Stage IV, Grade 1, ER+/PR+, HER2-

Aug 28, 2021 04:40PM - edited Aug 28, 2021 04:50PM by beesie.is.out-of-office

trinigirl and Jane (jhl), thank you both for all you are doing on the front lines of this crisis. ❤️

The following article is from January 2018, which is interesting since it pre-dates the Covid crisis by 2 years:

mRNA vaccines — a new era in vaccinology https://www.nature.com/articles/nrd.2017.243

Here are the charts listing the human vaccine trials and cancer trials as of that date.






Edited to provide more clear versions of the cancer trial chart.

Aug 28, 2021 04:56PM illimae wrote:

Just to clarify a few things, I do not feel picked on at all and I have been very upset by several people who bitched about wearing a mask last year or worse went without masking or distancing as an act of overconfidence or civil disobedience.

I’ve gone through a lot to stay alive since cancer and if a vaccine becomes available that does not contain PEG or Polysorbate 80, I would absolutely consider it but for now I will minimize the risk to myself and others the best way I can.

Yes, I am incredibly lucky to have not lost anyone to covid and for those that have, I am sorry and I totally get when the passion or anger comes from. With regard to pre existing conditions, I intended no blame at all, I just wonder about the data being reported and the difference between dying with covid vs from covid.

Finally, the mountain is real and I can’t wait, 2020 for me was recovering from brain surgery, 8 months of starvation due to partial vocal cord paralysis (from the brain surgery) and some cancer progression, covid was the turd on top, I am due for a break and this is it.


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/19/2017 External Local Metastases 10/19/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/16/2020 External Local Metastases 2/16/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

Aug 28, 2021 05:20PM - edited Aug 28, 2021 05:25PM by kbl

Beesie, thank you for posting that. I've looked at one so far for breast cancer. It doesn't look like there is a report on it. It has been completed. It had 31 participants. That doesn't seem like many. I'm going to keep looking at these and try to find results.

The second one is for triple negative with 42 patients and Phase 1. It’s active but not recruiting.

When I have time, I will be looking at each one. I’d love to have one or two that have results and more participants.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole) Chemotherapy 9/27/2021 Other

Aug 28, 2021 05:22PM gb2115 wrote:

Illimae...my concern is the polysorbate. I've had a reaction to the poly, and then the CDC warned about cross reactions with PEG. I was about to see allergy to get it sorted when I got my recurrence diagnosis. Everything came to a halt. So I'm unvaccinated, getting chemo and working in healthcare, in a building with a poorly enforced mask policy. I hide in my office every day...

I don't like how in our society it's almost like you're labeled as some bad person if you aren't vaccinated. Like "less than" somehow. I need to stay off social media probably!

First Dx IDC in 10/16 at age 38, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Lumpectomy + radiation + tamoxifen. Second Dx IDC recurrence in original location 5/21. 1.3 cm ER/PR+, Her2 -. Grade 2. 2/2 nodes. UMX + AC/T + Zoladex/Exemestane + Zometa.

Aug 28, 2021 05:38PM - edited Aug 28, 2021 06:16PM by exbrnxgrl

gb2115,

I'm sorry about your sensitivity to those ingredients. It appears as if you might have an allergy and though you haven't been allergy tested yet, I think most people would understand why you are not vaccinated.

This is a worldwide pandemic, something we haven't seen in a century. Personally, I feel it's important for me to be part of what stops this pandemic ( I understand that Covid19 may be with us for some time but getting vaccinated helps decrease the overall infection rate, hospitalization and death rate) and since getting the vax presents no imminent danger to me I consider the health of my community and society at large to be a priority. Do I know what this vaccine might do to me in 2,5,10 years etc? Nope but the crisis is happening now and I feel some peace in knowing that I am helping my fellow citizens today.Do the unvaccinated feel “less than"? I can't answer that as I know no one who is eligible, age and health wise, who has not gotten vaccinated but I would expect the unvaccinated to understand any limitations that are placed them as a result of their choice. You simply can't have it both ways during a public health crisis.

Dx IDC, Left, 4cm, Stage IV, Grade 1, ER+/PR+, HER2-

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