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Topic: Rant away about COVID, the vaccine, etc.

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

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Posted on: Aug 27, 2021 10:00PM - edited Sep 3, 2021 07:56PM by kbl

Posted on: Aug 27, 2021 10:00PM - edited Sep 3, 2021 07:56PM by kbl

kbl wrote:

Covid discussion.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)

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Aug 28, 2021 08:44PM exbrnxgrl wrote:

KBL,

VAERS is a passive reporting system whose data base is really aimed at medical researchers. It seems obvious to me i.e. unverified info, that it is not intended to be a consumer source of information or to confirm that a vaccine caused an adverse event. Here’s some additional info:

  • The federal government's Vaccine Adverse Event Reporting System helps researchers collect data on vaccine after-effects and to detect patterns that may warrant a closer look.
  • VAERS is designed as an open system, where anyone can submit a report, and the reports are widely accessible. The reports are not verified, and incomplete VAERS data is often used in conjunction with false claims about vaccine safety.
  • The CDC cautions that VAERS results are not enough to determine whether a vaccine causes a particular adverse event.
  • For the COVID-19 vaccines, VAERS has received a flood of reports and become especially potent fuel for misinformation.
Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-

Aug 28, 2021 08:49PM exbrnxgrl wrote:

olma,

Did you see my comment above re: Louisiana? The governor as well as several public health and safety officials were very clear that rescuers would not endanger their own lives nor make rescues a priority for those who did not heed evacuation orders. Isn’t that in the same vein? I think that’s perfectly fair by the way.

Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-

Aug 28, 2021 08:52PM debbew wrote:

Olma61 wrote:

Doctors choosing not to treat the unvaccinated- are they refusing to treat people they think might be contagious or are they choosing not to treat people as punishment?

Personally, I have not heard credible reports of this actually happening but I have seen plenty of mean people online saying it should happen.

I don't think it's very common, but here is a report of one: https://www.nbcnews.com/news/us-news/alabama-docto...


Aug 28, 2021 08:55PM - edited Aug 28, 2021 08:55PM by olma61

is this a current situation or was this during Hurricane Katrina? I know there wer a lot of people who criticized the way Katrina was handled at every level. I also read about hospitalized patients who were left to die in the floods because it was difficult to move them. Many people disagree with the handling of that particular aspect,also.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+, IHC Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External Local Metastases 5/30/2019 Radiation therapy: Bone

Aug 28, 2021 08:57PM kbl wrote:

Wrenn, we definitely don’t have a great medical system, and insurance is ridiculous. My husband works at a big company. We have a high deductible account. We pay. over $4,000 in premiums, the first $3,000 at 100%, and 80/20 until we hit $8,000. I hit that in July. On top of that, I have been denied medical tests as unnecessary. I have lobular. It’s so sneaky. Thank you, insurance person who has no clue about my disease. I’m with you about the crappy medical system. I don’t know what the answer is there.

Love your post, Olma.

As far as Delta charging a $200-per-month surcharge, how fair is that to anyone who doesn’t get COVID? I know there is a surcharge that my husband’s work has for smokers, but it’s because a person chooses to smoke. Thinking about it, how fair is that for them if they never have any treatment concerning smoking? I guess that’s how it has to be, but I don’t like it. They also make us test every year (not the last two due to COVID), but if your BMI is over a certain amount, you better lose some weight or you have a surcharge. I’m surprised they don’t have a surcharge for cancer. Oh, you got cancer. You’re costing us too much money. Surcharge.

Thank you, exbrnxgirl. I guess I won’t even bother with VAERS.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)

Aug 28, 2021 08:59PM olma61 wrote:

debbew, thanks for the link. Even in this report, hard to verify if he has actually done it or just made a post on FB. I’d question if he actually even works there


“NBC News has not verified the authenticity of the post, which is now private. Neither Valentine nor representatives at the medical clinic where he works could be reached for comment.”


10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+, IHC Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External Local Metastases 5/30/2019 Radiation therapy: Bone

Aug 28, 2021 09:03PM kathindc wrote:

Wrenn, when is comes to the covid vaccine, it's free to anyone who wants one here in the US regardless of your socio-economic standing so if you want one there's no excuse for not getting it.

Aug 28, 2021 09:07PM - edited Aug 28, 2021 09:26PM by aprilgirl1

My opinion is not directed to anyone on these boards who has had cancer, currently has cancer or is stage IV cancer like I am. I know there are people with medical reasons to not get vaccinated, including those in treatment that don't want one more "shot". If you take those in to consideration, as a world we could still reach herd immunity if the vast majority get vaccinated. Without enough people vaccinated, we will continue to have variants. It seems to me that the general public does not understand the science and the general public is very self centered.

Three of my neighbors are Phd Microbiologists. 2 have been working on the Covid vaccine (one has been on cnn and national news quite a bit) and the other one is working on type 1 diabetes. We had a casual outdoor gathering last night in our Court (bring your own lawn chair and beverage) and these scientists are shocked and horrified that the US and the world are in the position. They warned us that the lambda variant is very strong and on it's way - all because people want to shout "my body my rights" . This only works if your decision doesn't impact the rest of us. Yes, it is my choice to take Ibrance/Fulvestrant. If I choose not to take these drugs, most likely my cancer will progress faster and I will die sooner. It will not spread to others in my household and my community and potentially kill them. MY BODY MY CHOICE. When the news media announces a variant, the "anti-vaxxers" start up with the "see - vaccines don't work" DUH - they won't work unless we have a very high percentage vaccinated? It is really sad/frustrating/unreal to me.

I am stage IV, I would LOVE to travel while I am up to it, I would LOVE to see my family that lives far away. I am not able to live freely due to too many people discounting the serious nature of the pandemic and the actual science. This is like Polio. Polio vaccines were mandatory. Polio was eradicated.

Teedoff, I hear you. I also feel cheated out of living the life I have left.

edited to add: Yes, I have had the Pfizer vaccines and my husband has as well. We did not have any reactions (besides sore arm, slightly achy). We were vaccinated in March and I just had the booster, on the advice of my oncologist as my husband and i will be traveling by plane on Sept. 3rd to the east coast. I really don't want to get Covid, have Ibrance and my current treatment put on hold, and have my cancer get worse.

recurrence in lymph nodes (superclavicle/mediastinal)"You can do it like it's a great weight on you, or you can do it like it's part of the dance." Ram Dass Dx 11/7/2008, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 11/13/2019, IDC, Left, Stage IV, metastasized to other, ER+/PR+, HER2-

Aug 28, 2021 09:11PM wrenn wrote:

kathindc, I just wondered if people were more suspicious in general due to a monetary value being placed on health over the years and decisions on people's well being being left up to someone making/saving money? Some might be accustomed to minimizing health problems when it is directly related to affordability and might be mistrustful of those making decisions for them.
Just random ruminations here.

Aug 28, 2021 09:31PM - edited Aug 29, 2021 07:38AM by kbl

Elderberry had a question of me in STEAMROOM, and I let her know I would answer it here.

She had asked me if I would say where I live. I've said it before, but I can't remember on which thread. I will wait for the reaction. I live in Florida. If you do come here, Elderberry, can you please let me know where you read the quote you cited about the governor here. I live here, and I also know others in here do as well. I don't want to get into politics on this thread, but I'd be curious where the quote came from.

Edited: Here is the quote that was cited in STEAM: Desantis - “Doesn’t give a blip about COVID.”

Actual quote: “I don’t want to hear a blip about COVID from Biden.”

Very different meaning.


De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole) Targeted Therapy Ibrance (palbociclib)

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