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Topic: How has the Pandemic affected you as a cancer patient/survivor

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

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Posted on: Sep 8, 2021 06:58PM

Posted on: Sep 8, 2021 06:58PM

trishyla wrote:

Has the Pandemic substantially impacted your life as a current or former cancer patient? Please post your stories; heartbreaking, frustrating, even uplifting.

If you post anything about treatments, cures, vaccinations, hospitalizations or deaths, please back it up with research from accepted, credible sources. Your Uncle's neighbor's third wife who posted a crazy conspiracy theory on Facebook is not a credible source.

Angry, passionate, sad are all acceptable, disrespectful is not.


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)
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Feb 7, 2022 06:34PM wrenn wrote:

Alice, Since health care here is free I basically had a very large file and am surprised at how patient my GP was. I have a nurse practitioner at the cancer centre now (doc retired) and there they follow up on every little thing so I was seeing her a lot too. We actually laughed about how i thought everything was cancer and she would double check before ordering anything. So really it is a good thing that the pandemic kept me away but for some reason very recently I have worried. Probably cabin fever.

Triple Negative Metaplastic. I had one dose of Cytoxan/Taxotere and was then cut off due to complications. Surgery 8/16/2013 Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy (Left): Simple; Mastectomy (Right): Simple
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Feb 7, 2022 06:42PM wrenn wrote:

Alice, I get that about being stoic. I am with my family. Coming here with it was easier. In my family if you mention a medical condition you are attention seeking. I trust the people here and maybe you can try it here. :-) Or PM?

Triple Negative Metaplastic. I had one dose of Cytoxan/Taxotere and was then cut off due to complications. Surgery 8/16/2013 Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy (Left): Simple; Mastectomy (Right): Simple
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Feb 7, 2022 08:28PM sadiesservant wrote:

Wrenn, I don’t think. Richard looks like a leg eater. 😁 He was gorgeous and, a pussy cat I’m sure. I’m glad you are feeling a bit better and hope you will reach out if stress starts to get on top of you. I can’t pop over easily but am a good listener. 😊

Alice, totally hear you on the issue of seeming like a hypochondriac. It’s a HUGE issue for me despite or because of my MBC diagnosis. Prior to MBC I rarely went to a doctor but now? OMG! I feel like I am there all the time as it is but then, when I report a new symptom I end up in the fast lane. Don’t get me wrong, I really appreciate the responsiveness but when tests come back normal I have a huge amount of guilt (wasting precious health care resources) and, quite frankly, feel like I am neurotic. The reality is, I am probably right thinking something is going on more often than I am wrong but still… for those of us raised to stay calm and carry on, this disease and the resulting angst is crazy making!

Serenity, soooo irritated with the Ottawa occupation and the fact that the official opposition seems to be supporting them. It needs to be recognized that this is a very vocal minority. Thankfully the Go Fund Me gravy train has been cut off so hopefully they will go home..

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Other Chemotherapy 1/7/2022 Other
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Feb 7, 2022 09:05PM wrenn wrote:

Thanks Sadieservant. I haven't been to the island since my daughter was in UBC. Costs a fortune to get back and forth. I often wonder how people there who have to come here for treatment deal with the nightmare of cost and time it takes and way worse with Covid.

I get hesitating to talk about fears. You never know what reaction you will get.

Triple Negative Metaplastic. I had one dose of Cytoxan/Taxotere and was then cut off due to complications. Surgery 8/16/2013 Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy (Left): Simple; Mastectomy (Right): Simple
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Feb 8, 2022 05:32AM rah2464 wrote:

Wren thank you for giving voice to those anxieties and fears we all can have. I truly hope you find some relief from the worry. Handsome Richard certainly looks large enough to nosh on a leg, but I agree with Sadiesservant, I think he is more of a sweetie. I am sorry you are unable to have the furry companionship. I will offer a spare bedroom as I have plenty of furry ones down here. However, I won't guarantee that mine are as well behaved as Richard

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 6/27/2018 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 8, 2022 12:37PM wrenn wrote:

Well Ativan for the win. I had a great sleep and today is much better. I really think it was ranting and being heard here that did the trick. I hold off telling family on anxious days in case they vote me off the island but here I didn't feel like an attention seeker or crazy. :-)

What a blessing (non god kind).

Triple Negative Metaplastic. I had one dose of Cytoxan/Taxotere and was then cut off due to complications. Surgery 8/16/2013 Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy (Left): Simple; Mastectomy (Right): Simple
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Feb 8, 2022 01:56PM alicebastable wrote:

Wrenn, So glad you're feeling better!

Ignore treatment info (below) which is a BCO glitch. Do not enter personal information on this site since they grossly mishandled a data breach.
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Feb 8, 2022 02:26PM serenitystat wrote:

wrenn - Yay! I need to dig out my Ativan.

Sadiesservant - The terrorists in Ottawa need to go. Hoping they lose their insurance and licenses at the minimum.Arson and assault are not part of a peaceful protest.

🌻 🇺🇦 BCO leaked our private data. 🤦🏻‍♀️🤷🏻‍♀️ . . . . . "Do not overlook the little joys!" (Hesse, 1905) 🐶Dx.11/2015.IDC.L.IIIC.10/11nodes.++- ☕️12/2015.L.Mast 🛀2/2016.4AC.12Taxol.fasted 🖼9/2016.Rads.Nodes.ChestWall.15+4boosts 🥐10/2016.Tamox(2.5y) 🌲4/2019.Exemestane 🎭12/2019.Ibrance/Xgeva 🕊
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Feb 8, 2022 02:38PM wrenn wrote:

Thanks. With my high BP yesterday and headache I was thinking the worst. Here is BP yesterday (top row) and today (bottom row) after an Ativan sleep. All about the chill.

Triple Negative Metaplastic. I had one dose of Cytoxan/Taxotere and was then cut off due to complications. Surgery 8/16/2013 Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy (Left): Simple; Mastectomy (Right): Simple
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Feb 9, 2022 05:28AM rah2464 wrote:

Wow Wrenn glad you are feeling better.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 6/27/2018 Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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