Topic: How has the Pandemic affected you as a cancer patient/survivor

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Sep 8, 2021 05:58PM

Posted on: Sep 8, 2021 05:58PM

trishyla wrote:

Has the Pandemic substantially impacted your life as a current or former cancer patient? Please post your stories; heartbreaking, frustrating, even uplifting.

If you post anything about treatments, cures, vaccinations, hospitalizations or deaths, please back it up with research from accepted, credible sources. Your Uncle's neighbor's third wife who posted a crazy conspiracy theory on Facebook is not a credible source.

Angry, passionate, sad are all acceptable, disrespectful is not.


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/4/2017 Xeloda (capecitabine)
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Feb 9, 2022 10:18AM wrenn wrote:

Thanks so much Rah,

Something worrying about this pandemic is the provinces lifting restrictions. I think in Alberta it is because of the truck convoys putting pressure on them (which means more convoys...what's with the confederate flags????).

I think BC will take a little longer to open up which feels safer but also is a reminder that this thing isn't going away and we have to adapt.

Hope everyone is having a manageable day. Not one of those "have a great day" moments in history.

SillyHeart


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Mar 1, 2022 02:25PM serenitystat wrote:

I'm not ready. Not while public spaces aren't cleaning the air, elective surgeries are backed up, and HCWs are burned out. And we have a shortage of ambulances. I'm keeping my mask on.



🌻 πŸ‡ΊπŸ‡¦ BCO leaked our private data. πŸ€¦πŸ»β€β™€οΈπŸ€·πŸ»β€β™€οΈ . . . . . "Do not overlook the little joys!" (Hesse, 1905) 🐢Dx.11/2015.IDC.L.IIIC.10/11nodes.++- β˜•οΈ12/2015.L.Mast πŸ›€2/2016.4AC.12Taxol.fasted πŸ–Ό9/2016.Rads.Nodes.ChestWall.15+4boosts πŸ₯10/2016.Tamox(2.5y) 🌲4/2019.Exemestane 🎭12/2019.Ibrance/Xgeva πŸ•Š
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Mar 1, 2022 02:53PM kathindc wrote:

Excellent. Now for that to be made into a usable mask.

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Mar 1, 2022 04:02PM serenitystat wrote:

Looks like a print is available. You could ask?

https://www.etsy.com/listing/1184655961/mask-8x10-print?ref=shop_home_active_15&crt=1


🌻 πŸ‡ΊπŸ‡¦ BCO leaked our private data. πŸ€¦πŸ»β€β™€οΈπŸ€·πŸ»β€β™€οΈ . . . . . "Do not overlook the little joys!" (Hesse, 1905) 🐢Dx.11/2015.IDC.L.IIIC.10/11nodes.++- β˜•οΈ12/2015.L.Mast πŸ›€2/2016.4AC.12Taxol.fasted πŸ–Ό9/2016.Rads.Nodes.ChestWall.15+4boosts πŸ₯10/2016.Tamox(2.5y) 🌲4/2019.Exemestane 🎭12/2019.Ibrance/Xgeva πŸ•Š
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Mar 1, 2022 09:10PM dancemom wrote:

I think its way too early in cities. And for any transit going into cities. And for people planning to visit cities. There is just no such thing as being 6 feet away in nyc!!! It physically can't happen. Store aisles are tighter and more crowded. Buses and subway cars are back to standing room only. In my 900 unit building, I am sharing the elevator air with every previous rider of the past hour. The "highest" in area vax rate is Manhattan at 72%. What happened to herd immunity at 95%, 90%, then 85%...? And why should unvaxxed tourists eat out when I can't because of them? Relaxing everything in big open spaces with big box stores, big SUVs, and big chain restaurants might be acceptable in vaccinated areas. But NOT in densely populated areas. The same people who won't vax also wont mask.

Dx 3/16/2021, IDC, Right, 3cm, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/29/2021 Femara (letrozole) Targeted Therapy 4/26/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Radiation Therapy 3/14/2022 Whole breast, Radiation boost: Right breast, Chest wall, Lymph nodes, Other part
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Mar 2, 2022 05:08AM salamandra wrote:

I am planning to continue wearing my mask at school, to help support kids who don't feel safe taking it off. I'm honestly not sure about how to make the decision beyond school. I am intellectually leaning towards masking until all ages are eligible for vaccines.

Dx at 39. 1.8cm. Oncotype 9. Dx 9/19/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 10/17/2018 Lumpectomy; Lymph node removal Hormonal Therapy 11/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 12/3/2018 Whole breast: Breast Hormonal Therapy 12/18/2019 Fareston (toremifene)
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Mar 5, 2022 04:04PM dancemom wrote:

I am currently not so worried about being sick as I am about more delays in treatment. Until the medical establishment says I don't need to show keep negative covid tests to have Mri, a CT scans, bone scans, biopsies, surgery, have my radiation mapping.. . It is still a pandemic. Anyone who thinks it is over should have to get a negative test to use their GD toilet.

Its not over. 72% vaxxed NYC is not herd immunity. Allowing tourists to eat inside with no vax proof is prolonging this spread.

Ok, maybe we won't get AS sick now (I know of dozens of break through, mostly pretty mild, but 2 friends were hospitalized). But I (and MANY others) can be DENIED TREATMENT because somebody didn't feel like getting vaxxed or wearing a mask, and then we test positive.

It is TOO early to abandon both vax restrictions AND mask mandates at the same time. My child cannot go to school next week until I see how things play out.

Dx 3/16/2021, IDC, Right, 3cm, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/29/2021 Femara (letrozole) Targeted Therapy 4/26/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Radiation Therapy 3/14/2022 Whole breast, Radiation boost: Right breast, Chest wall, Lymph nodes, Other part
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Mar 13, 2022 07:22PM illimae wrote:

Well, todays stats put Houston at a 3.8 positivity rate, which is great, and I’m happy that I’ve managed to avoid the beast for over two years now but I will absolutely continue masking indoors and around crowds in the city. Without a vaccine for those of us with severe allergies, I must remain on guard. But that’s ok, I’m happy progress is being made for the majority of others out there. Stay safe πŸ™‚

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/2/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/2/2017 Herceptin (trastuzumab) Targeted Therapy 1/2/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ Radiation Therapy 10/20/2017 External Local Metastases 10/20/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/23/2019 External Local Metastases 5/23/2019 Brain Surgery 1/22/2020 Radiation Therapy 2/17/2020 External Local Metastases 2/17/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 17, 2022 01:02PM dancemom wrote:

illimae i love how you are always so calm and positive. I hope people continue to respect that some people really need community protection.

Dx 3/16/2021, IDC, Right, 3cm, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/29/2021 Femara (letrozole) Targeted Therapy 4/26/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Radiation Therapy 3/14/2022 Whole breast, Radiation boost: Right breast, Chest wall, Lymph nodes, Other part
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Apr 20, 2022 02:34PM edge_of_no_return wrote:

trishyla, great topic. so now just about everything, include air transport, is dropping mask requirements. as stage IV with bone mets, i'm not too thrilled about it even though i've done very well with isolating as i'm already a quasi-hermit LOL. i'm interested in hearing from anyone in the bc.org community who has survived covid. oh did i also mention i had sepsis last summer? good times! PS - PCC area Pasadena here in the house!

Dx 11/2016: right, IDC stage 1 grade 3, ER/PR+, HER2-. lumpectomy + sentinel dissection 1/2017. whole breast radiation only, opted out on meds. NED until 2021. MBC Stage IV Dx 9/2021: L1 vertebrae & possible rib 1. started arimidex & ibrance 12/2021, stopped 5/1/2022, re-evaluating. radiation scheduled for June 2022.

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