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Sep 9, 2021 09:24PM
Thrishyla, thanks for starting this thread. An important question, can be answered from different perspectives. I try to point some views, mostly related to my fears and emotions.
No doubt that the pandemic has negative effects on my life, I tried different ways to manage some of difficulties and learned to give up those that I do not have power to change them.
- I diagnosed stage 4 at the beginning, and ended up in hospital and bed rest a couple of months before the previous administration decided to talk about the virus! I needed emotional and physical support, so my sister offered to come over here and stay with me for a month or until I could safely walk, then bam Europe-US borders went to complicated relationship, I did not want her to take any risks, so the plan didn’t work.
+ a good number of meditation classes, support groups etc switched to online, which worked well for me as I wasn’t in good shape to attend them in person in the world without virus. So I took advantage of those resources while working on my emotions accepting my new normal as MBC with broken vertebrae who must be very careful about basic daily activities, and dealing with unknown future.
+ lockdown gave me good reasons to reduce my relationship with annoying/ toxic people...mmm some in-laws, friends. so I don’t have to listen their expert opinion based on their neighbors great grandmother’s cat died of cancer. a bonus, I made a good number of friends, virtual and real.
- I am deeply disappointed in few relatives& friends, I work on few plans hopefully I can make some positive changes in my life (the pandemic and cancer slow down my plans).
+ lockdown has also made people to learn new skills, hobby included, and that enables them to cope with isolation/ new normal. I enjoy seeing people do some meaningful actions, unlike those that have nothing to offer but craps.
+ I had a very busy life before cancer, so did not pay much attention in simple joys, during the pandemic/ lockdown while I was so slow because of rads+treatments- the good thing was I did not have to push myself to be more because the world was slow despite fast-spreading virus-, we created some good quality time, as simple as making cookies together, watching silly movies, some high school games etc.
- from August to April I hadn’t had in person meeting with my new MO. It was Scary, no physical examination performed for 8 months. My follow up mri after radiation postponed 2 months, the results weren’t good but no changes in treatment, so didn’t really matter the delay at the end.
- scan/mri machines are the most scariest, when they accept patients back to back and I have no power to change it.
+ I rather prefer to go to my appointments solely, so ‘no guest’ policy is my favorite part!
+ Now we have highest vaccine rates after Massachusetts, my city 77% of eligible people are fully vaccinated, before delta variant 77% could lead us to herd immunity, many healthy people don’t wear masks which is fine but I take extra precaution. I haven’t seen fully vaccinated people around here get infected by virus as I think it is because the population of vaccinated is high. California handled the spread relatively well. I hope people take a few minutes of their precious time to vote no on this ridiculous recall or we’ll face a new pandemic here, and before someone with medieval opinion- embarrassing democracy even more- makes decision for women’s body, my blood is boiling.....
De Novo stage IV
9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC)