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Topic: How has the Pandemic affected you as a cancer patient/survivor

Forum: All things COVID-19 or coronavirus —

A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Sep 9, 2021 10:58AM

Trishyla wrote:

Has the Pandemic substantially impacted your life as a current or former cancer patient? Please post your stories; heartbreaking, frustrating, even uplifting.

If you post anything about treatments, cures, vaccinations, hospitalizations or deaths, please back it up with research from accepted, credible sources. Your Uncle's neighbor's third wife who posted a crazy conspiracy theory on Facebook is not a credible source.

Angry, passionate, sad are all acceptable, disrespectful is not.


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/4/2017 Xeloda (capecitabine)
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Nov 30, 2021 07:49AM wrenn wrote:

Still flummoxed by the numbers of people who think aerosols enter and exit the body through the chin.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Nov 30, 2021 11:38AM Dancemom wrote:

Wrenn, that made me laugh out loud!🤣 BUT, my observations on the bus to work lately lead me to believe that masks are ACTUALLY to cover the lack of facial hair on far too many high schoolers' chins?

Dx 3/16/2021, IDC, Right, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/28/2021 Femara (letrozole) Targeted Therapy 4/20/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal: Sentinel; Mastectomy: Right
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Nov 30, 2021 01:26PM - edited Nov 30, 2021 01:26PM by ErenTo

hahaha wrenn :)

I have an English friend who lives and works in Malawi. She said there are some practical reasons for people not bothering to get vaxxed, main one being that it costs them half a day's salary to get to and from a vaccination centre. It is apparently a big problem, she volunteers and transports people who want to get the shot.

Another reason is indifference mixed with social media mistruth. In a country/continent that HIV, accidents, childbirth, malaria are still killing people in droves, getting vaccinated against a disease that is likely not going to kill them (it's a very young continent) isn't simply a priority in their minds.

Survived an unexplained sudden cardiac arrest b/w surgery and chemo (while attending a chemo info session at the hospital). Code blue, CPR, induced coma, ICU, ICD. Escaped alive with heart and brain unscathed! Dx 12/8/2014, IDC, Left, 2cm, Stage IIIA, Grade 3, 6/13 nodes, ER+/PR+, HER2- (FISH) Surgery 1/12/2015 Lumpectomy: Left Chemotherapy 3/20/2015 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 7/23/2015 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 8/4/2015 Breast, Lymph nodes
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Nov 30, 2021 11:45PM Jelson wrote:

DivineMrsM - I hope your son, his ex girlfriend and her family members do not contract Covid and the one relative who did, recovers quickly.

Dx 4/17/2009, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+
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Dec 1, 2021 05:18AM GR4C1E wrote:

Wait - you can get a fourth Covid vaccine?

12/30/2021 - Xgeva for bone mets Dx 9/2/2011, IDC, Left, 2cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 10/25/2011 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Chemotherapy 11/23/2011 AC + T (Taxotere) Dx 1/4/2021, IDC, Right, Stage IV, metastasized to lungs, ER-/PR-, HER2- Chemotherapy 1/20/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 7/20/2021 Gemzar (gemcitabine) Chemotherapy 9/16/2021 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 10/7/2021 Taxotere (docetaxel) Dx 12/13/2021, IDC, Right, Stage IV, metastasized to bone, ER-/PR-, HER2-
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Dec 1, 2021 06:26AM - edited Dec 1, 2021 06:29AM by DivineMrsM

Thanks Jelson. Ds's girlfriend called her doctor who told her to get tested five to seven days after exposure so she plans to get tested tomorrow and Friday. Ds is a bit miffed that the gf's dad had symptoms Friday but waited till Sunday evening to tell his daughter. Her parents are big church goers and initially were not going to get the vaccine but changed their mind in early summer. Bet they are glad now that they did.

I keep thinking of my neighbor who stood at the fence between our yards last October cynically saying Covid would be gone by the end of the following month. Because he thought it was all a ploy to somehow fix the election against the former President. Even tho he and others from his church had Covid.

Went to line dance class today after not having it last week due to Thanksgiving. A few women were hugging and kissing each other. What the what? Not a good idea after everyone' s just getting back from traveling all over to see family!

One woman asked if anyone was getting the booster. I told her I already got it Another woman is on the fence about it—-her boyfriend died of Covid in January! While I was telling the first woman she should get it, the woman whose bf died was merely telling her to ask her doctor or go get an antibody test! In my humble opinion, some people are nuts!


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Dec 1, 2021 08:25AM ShetlandPony wrote:

The stupidity is just stunning.

2011 Stage I ITCs sn, premenopausal, Oncotype 16. 2014 Stage IV mets breast,liver. TaxolNEAD. Ibrance+letrozole 2yrs. Fas+afinitor nope. XelodaNEAD 2yrs. Eribulin,Doxil nope. SUMMIT FaslodexHerceptinNeratinib for Her2mut NEAD 1 1/2yrs. GI/perit mets Dx 2011, ILC, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 2014, ILC, 2cm, Stage IV, metastasized to liver/other, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast Surgery Lumpectomy
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Dec 1, 2021 05:30PM - edited Dec 1, 2021 05:37PM by ChiSandy

The WHO (and, alas, Dr. Hotez whose scientific expertise I respect) are still laying the blame for vaccine inequity at the feet of Americans getting booster shots. I'm sorry, but it's NOT our boosters that are preventing shots getting into arms in the Third World. (Just as my eating three meals a day is not responsible for famine and world hunger). My booster shot is not responsible for people in the hinterlands halfway across the world being unable to afford the time or the transportation to travel to vaccine clinics. The U.S. has donated more doses to the Third World than has the entire continent of Europe (and we will have donated a billion and a half by summer).

Whom shall we blame? Well, certainly the vaccine manufacturers (Moderna & Pfizer) who refuse to open-source the technology to the Third World, much less train scientists there in how to make the vaccines. (They'll still make hefty profits selling doses to First World governments). Petty bureaucracies unable & unwilling to set up the infrastructure for getting doses out of storage and distributing them throughout their countries, much less marshalling personnel to administer them. Syringe manufacturers who are not shipping enough of the specialized syringes necessary to administer doses--as well as those nations responsible for holding back cargo container ships so they can't get to ports & airports. Social media for facilitating the spread of disinformation, especially in countries where people's only source of news is "the grapevine" and their cellphones, with that "news" coming from social media platforms and websites.

The fact remains that most of Africa, while under-vaccinated and most likely under-supplied, is NOT where cases are spiking, much less variants appearing. Their citizens by and large do not engage in nor encounter international travel. But South Africa--where Omicron was first identified after a sudden spike--has a surplus of vaccines, enough personnel & equipment to administer them, yet massive vaccine hesitancy & COVID-denialism to rival the worst areas of our "red" states. I forget which African nation actually sent back the vaccines donated to them because they wouldn't be able to be administered before spoiling due to lack of proper storage facilities. Still more in southern Africa (including Malawi) have discarded doses because they could not store them properly, not enough people were willing to get them, and so they did spoil. We donated AstraZeneca doses because the FDA has yet to authorize them (though they're used throughout the UK and much of the rest of Europe) and they needed to go into arms rather than languish in storage--we did not deliberately "dump" expired doses on the Third World.

And no, AFAIK nobody is getting fourth shots yet. Back late last summer some immunologists suggested that the severely immunocompromised be vaccinated every month, but that was shot down (pun intended) pretty quickly. Still, though, it might be that the COVID vaccines are, like those against childhood diseases, ideally a multi-dose regimen--in which case giving incomplete treatment could prove disastrous. The last cohort of N. American kids who got polio were those who had not yet gotten their second Salk shot or Sabin sugarcube before being exposed. (The husband of my BFF is one, and Joni Mitchell is another).

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Dec 3, 2021 06:41AM - edited Dec 3, 2021 06:41AM by SerenitySTAT

Maybe we should stop blaming Africa?

https://www.cbsnews.com/news/omicron-variant-covid-in-europe-netherlands-before-alert-raised/

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 3, 2021 06:48AM SerenitySTAT wrote:

SA scientists who identified omicron variant asking for support.

https://twitter.com/tuliodna?s=21



"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 3, 2021 07:10AM SerenitySTAT wrote:

I was hoping to wait until January for a third dose, but my charge nurse suggested I get it soon because of rising cases here. I'll see MO next week and ask about taking a longer break from Ibrance to lower risk of rash. I still have a couple small rough patches from the first dose. Which vaccine should I get after 2 doses of Moderna 15 weeks apart? It's been 4 months since the second dose.


"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 3, 2021 07:21AM moth wrote:

i mixed mine - Pfizer + Pfizer & then Moderna for my 3rd on the advice of public health here but that was before omicron so I don't know what they're recommending now

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Dec 3, 2021 07:50AM SerenitySTAT wrote:

moth - For the Moderna shot, did you get the full or half dose? Thanks!

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 3, 2021 09:45AM moth wrote:

Serenity- full dose for my moderna

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Dec 3, 2021 11:01AM SerenitySTAT wrote:

moth - Thanks! I just got an email from the nurse that she would give the full dose for me. I made an appointment with her, but the timing with Ibrance isn’t ideal. If I go to a mass vax site with better availability, they would give me Pfizer. I’m leaning towards Pfizer to mix it up, avoid thefull dose of Moderna (rash PTSD), and have better timing with Ibrance. I need to ask about getting the shot in my thigh though.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 3, 2021 11:28AM SerenitySTAT wrote:

Earlier this week I had a dermatology appointment. I stopped at oncology to see the charge nurse who has taken a personal interest in my rash experience. The maskless clerk was there. Apparently he thinks having COVID and one vaccine dose exempts him from properly wearing a mask. Weirdly I accidentally deleted the emails with the ombudsman. Instead I DM’d someone on Twitter who will try to escalate it on their end. I said I’m willing to make a scene if it would help.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 3, 2021 03:22PM Chowdog wrote:

So the U.S finally found a bunch omicron cases, but the administration's "solution" is to have people pay for at home rapid test, then get reimbursed by insurance companies? why? why do we make things so complicated, from vaccine appointments to covid tests, after 2 years into the pandemic? Also this doesn't kick in until Jan 2022. WTH. isn't now the most crucial time to use at home test coz of the holiday? I just don't get it.

Also, I went the supermarket yesterday and saw at least 5 senior citizens with masks on their chins or under their nose at the checkout counter. Shocked

Dx 6/2007, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/2/2007 Mastectomy: Left, Right Chemotherapy 8/15/2007 AC + T (Taxol) Hormonal Therapy 1/10/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Dx 2/12/2018, IDC, Stage IV, metastasized to brain/bone/lungs, ER+/PR+, HER2- Hormonal Therapy 2/12/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 3/19/2018 External: Brain Targeted Therapy 4/9/2018 Ibrance (palbociclib) Hormonal Therapy 4/9/2018 Femara (letrozole), Zoladex (goserelin)
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Dec 3, 2021 04:14PM Dancemom wrote:

The line for that omicron convention wrapped and looped outside my building. All the young semi-responsible vaxxed people who are willing to wear makes indoors for the event were outside maskless in a tight line that doubled back on itself. No distancing, no masks, for hours. I just hope this doesn't affect "elective " surgery again. I can't keep gearing up for this. Its been an f'd up almost 2 years and selfish people need to take responsibility. Im tired of giving up everything because I wanted to move forward, while everyone else travels and parties and spreads new variants.

Dx 3/16/2021, IDC, Right, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/28/2021 Femara (letrozole) Targeted Therapy 4/20/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal: Sentinel; Mastectomy: Right
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Dec 3, 2021 04:33PM wrenn wrote:

I am so angry at those who keep the insanity going. My 2 year old granddaughter was in emerg with what was thought to be croup but because some young people have croup symptoms with covid she had to have that damn painful brain poke test. My daughter is 38 weeks pregnant and had to sit in emerg with her sad child. She isn't an angry person so I am doing her share of rage. I am so done with assholes.

Baby girl is neg for covid but the worry was unnecessary dammit

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Dec 3, 2021 06:41PM SerenitySTAT wrote:

Chowdog - We don't have easy access to home tests here. Do you think those seniors are relying on their third shots to protect them? It's not hard to wear a mask correctly!

Dancemom - I saw videos of some of the attendees. Even indoor ones had maskless people.

wrenn - I'm sorry your family had to go through that. Hope they're ok.

We are back to being the hotspot in Canada thanks to our provincial idiots in charge. Most of the new cases are in the unvaccinated young and likely their parents. But they don't want to mandate vaccination. 🤬


"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 3, 2021 06:46PM AliceBastable wrote:

Oh, Wrenn, how awful she had to go through that!

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Dec 3, 2021 06:49PM wrenn wrote:

about not wearing masks properly. I am finding out that people don't really think. They do what they are told if it is convenient and if they won't get caught. Being careful drinking and driving (danger doesn't count but just getting caught).

Very few make the connection about aerosols entering/exiting body. Just "I have my mask on my face". I want to ask why they have it on at all and if they say it is mandated I could ask why they think it is mandated. I badly want to point out the purpose. But I am also growing weary from it all and just vent here and shut up out there. Scared

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Dec 3, 2021 06:51PM wrenn wrote:

Thanks guys. It really is just croup but she is suck a sweet trusting child and hearing she had to have that done just made me sad/mad.

Stunned by how many selfish people there are in the world. Mad at interwebs for showing me. I had no idea there were that many not that long ago

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Dec 3, 2021 06:59PM SerenitySTAT wrote:

You know the game with the paper triangle football? I’m tempted to make a bunch of them to flick over the stupid plexiglass onto the maskless clerk. Each one would have an image of the virus captioned with “Gotcha!”.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 3, 2021 07:02PM SerenitySTAT wrote:

If my family saw me making them, they might not let me go to the hospital unaccompanied.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 3, 2021 07:06PM wrenn wrote:

ThumbsUp Happy

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Dec 3, 2021 07:39PM - edited Dec 4, 2021 07:50AM by ChiSandy

Serenity, that graph tells it all: we Boomers are being responsible and in return have the lowest incidence of COVID; but teens, Gen-Z, millennials and younger Gen-Xers are reaping the whirlwind.

The emerging etiology of Omicron shows once again that it did not start in areas with low availability of vaccines, but rather in countries with good supply and low demand--Europe and then the parts of southern Africa similarly situated, to which Europeans (especially apparently the Dutch) had traveled and "left a little something" for South Africa & Botswana "to remember them by" (reverse souvenirs). The fact remains that the Third World countries with the least vaccine equity have paradoxically turned out to be those with low COVID transmission--again, perhaps their very insularity (caused in large part by poverty) may be protecting them despite logistical fusterclucks. It shoots to hell the self-righteous contention that First Worlders getting boosters are depriving the Third World of first shots, causing death and despair among the poorest. It's mostly the First Worlders refusing to both vaccinate themselves and mask up who are sowing and reaping death & despair, largely among and within their own countries--and then likely spreading it beyond their borders. It's tempting to buy into the WHO's trope of wealthy nations hogging vaccines resulting in inequity in the Third World, because on the surface it seems so logical (and quite frankly, righteousness and sanctimony can feel so selt-satisfying). But as we're seeing, that argument fails to take into account the unforeseen variables that complicate the picture and seem to defy logic.

The saving grace (thus far) is that the earliest identified Omicron cases have been mild & fleeting. Both of the first two identified American Omicron cases were mild and fleeting--they've already recovered. (The San Franciscan had visited South Africa, the Minnesotan had attended the NYC anime convention from which 5 NY cases were identified yesterday). And even if the currently available vaccines are less effective against Omicron, they're not ineffective. Even if the variant can elude antibodies produced by vaccination & previous infection, it can't elude T-cells, which antibodies recruit. The more antibodies, the more T-cells (except in those with myeloid & lymphatic cancers whose bone marrow can't produce T-cells and white cells).

I had three Modernas: Jan., Feb., and then Aug. All were the full 100mcg. doses. So not only was my antibody titer multiplied almost 100-fold, those antibodies will recruit plenty of T-cells. But that doesn't mean I'll ditch my mask and hang out in crowds. In fact, I'm shelving my surgical-style and cloth masks for the better-fitting and better-filtering KN95s & KF94s. (They're more comfortable too, don't need to be layered or laundered, and can be rotated and used until they get soiled, wet or their straps fail). I have a few duckbill N95s, but their head straps are uncomfortable; I'll save them for airplane travel and (heaven forbid) surgeries.

Will I stop dining at restaurants and traveling? No--but I will alter where & how I do both. Not going to travel to, get personal care services, nor eat in places where mask-wearing is the exception rather than the norm. (For instance, we're blowing off a nurses' Christmas party tomorrow night at a banquet hall in the right-wing SW suburbs--generic drinks and mediocre family-style platters of banquet food aren't worth the risk, despite the $80 we paid in advance. The nurses throwing the party are required by their hospital to be fully-vaccinated or tested weekly; but, knowing the locale and their politics--they're all white South Siders--I don't trust them to be partying safely).

Get vaccinated (be current on all your vaccines--flu, pneumonia & TDaP included). Get boostered when eligible (and if you feel guilty about that, donate to an organization that actively works towards vaccine equity). Wash your hands. Avoid crowds. Wear a good mask & wear it properly whenever in an indoor public space or can't social-distance when outdoors. Use curbside pickup whenever it's offered. Get tested if you have symptoms (even if you think it might just be a cold) &/or think you've been exposed--and RSVP "no" to any family or friends' gatherings till you test negative.

Above all, don't do anything stupid. Weigh your risks, and ask yourself--as the old WWII-era gas-rationing slogan goes--"Is this trip really necessary?" (We have decided that vacations are not, but our son's destination wedding this spring is).

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Dec 3, 2021 08:04PM - edited Dec 3, 2021 08:10PM by SerenitySTAT

ChiSandy - It's weird to see the same graph, but come to different conclusions. But you're looking at it without context.Gotta dig deeper. The outbreaks are occurring in schools (with no ventilation improvements, little distancing, weak exposure rules) with the kids (just recently eligible) bringing it home to parents (with no boosters). Last month the province lifted mask requirements in secondary schools because that age group wasn't getting hospitalized. Now they are. Are Boomers really more responsible when policies benefit them the most? You can't expect kids to be more careful than they're required. I could do more with the rest of your post, but it's late.

ETA: The group responsible for the stupid policies leading to this mess happen to be Boomers and the older Gen-Xers.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 3, 2021 10:07PM SerenitySTAT wrote:

Insomnia…

Here in QC, only 70+ or limited immunocompromised are eligible for the booster or third dose. Under 12 just became eligible for dose 1. It's the provincial leadership that's responsible for all the sick kids/parents. They wanted to make sure the parents are working in person, but they didn't implement NPIs to protect kids in daycare or schools. You can't assume from the chart that Boomers are more responsible. They're protected.

I'm going to switch to VOC, because numerous variants arise everywhere. It's only the VOC that matter. VOC have occurred in areas with low vax rates. Stating that omicron developed in an area with low demand really means low vax rate.

Boosters vs vaccines everywhere - Why do you think that both can't happen at the same time? The scientists are pushing for both. Maybe they know more than you. I even heard a clip of Biden saying vaccinating the world was a moral imperative.

"Self-righteous"? "Sanctimonious"? That's horrific. You should let that go.

I don't want to use "First World" or "Third World". All areas with low vax rates are susceptible to the pandemic even if they're isolated. COVID data from many countries are inaccurate. If the country has few resources, you can assume the data are missing cases/deaths. The whole world will be exposed eventually. Why are you against minimizing the damage? Dr. Hotez and many scientists disagreewith you.

The African continent stands out on maps of vax rates by country because they are so low compared to the rest of the world. We shouldn't lump all the countries together. They won't all need or accept the same support, but dismissing the effort is not conducive to ending the pandemic. Plus, we need Africa to do well. We're in a global economy. They grow the best vanilla.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Dec 4, 2021 12:10AM gb2115 wrote:

Ah, the chin mask wearing. That happens in my oncologist's waiting room. Nobody says anything. That happens with the patients/staff in the clinic where I work. Nobody says anything.

I think literally no one cares about anyone else.


Dx IDC in Oct 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes, Lumpectomy + rads + tam. Age 38. 5/21 Dx IDC. 1.6 cm ER/PR+, Her2 -. Gr 2. 2/2 nodes positive. AC/T. Age 42 Dx 10/2016, IDC, Right, 1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 11/4/2016 Lumpectomy Dx 5/3/2021, IDC, Right, 1cm, Grade 2, 2/2 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Lymph nodes Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin) Chemotherapy AC + T (Taxol) Surgery Lymph node removal: Right Surgery Lymph node removal: Sentinel; Mastectomy: Right Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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