Topic: How has the Pandemic affected you as a cancer patient/survivor

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Sep 8, 2021 06:58PM

Posted on: Sep 8, 2021 06:58PM

trishyla wrote:

Has the Pandemic substantially impacted your life as a current or former cancer patient? Please post your stories; heartbreaking, frustrating, even uplifting.

If you post anything about treatments, cures, vaccinations, hospitalizations or deaths, please back it up with research from accepted, credible sources. Your Uncle's neighbor's third wife who posted a crazy conspiracy theory on Facebook is not a credible source.

Angry, passionate, sad are all acceptable, disrespectful is not.


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/4/2017 Xeloda (capecitabine)
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Sep 23, 2021 08:59PM serenitystat wrote:

This academic has an interesting long version of "Get vaccinated!".

https://twitter.com/jamesheathers/status/144104427...


🤦🏻‍♀️🤷🏻‍♀️ . . . . . "Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx-11/2015-IDC.L.IIIC.10/11-nodes.++- 12/2015-L.Mast 2/2016-4AC+12Taxol fasted 9/2016-Rads.Nodes.Chest-wall.15+4boosts 10/2016-Tamox(2.5y) 4/2019-Exemestane 12/2019-Ibrance/Xgeva
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Sep 23, 2021 09:02PM - edited Sep 23, 2021 10:55PM by alicebastable

I live in Missouri, a state that is fighting its way to the bottom of the cess pool under Gubner Evil Goober Parson. The majority of vaccines were sent to small towns when they first became available, because those are the areas that mostly support GEGP. Those hicks didn't want the vaccines, so the state registry notified people in St. Louis and Kansas City that we were welcome to drive hours to get vaccinated. I had also signed up through MyChart, and got my shots locally. But people who had no option except the state distribution had to travel. They didn't care about poor people without cars, or those who couldn't take a whole day or two off work. It took several weeks for government-distributed vaccines to hit the urban areas. But now the anti-vaxxers have the Delta variation and they are being shipped to hospitals in the urban areas to save their damn lives.

My husband works for the state and has been playing hide and seek for a year and a half with coworkers who ignore building rules (that aren't enforceable anyway under GEGP, who doesn't believe in mandates) with masks under noses or chins, and reports to me every day how many tested positive. I'm furious that he, and I, and other sensible people, have to live like this and I reserve the right to call anti-vaxxers any fucking name I please.

BCO is not trustworthy. Do not share personal information on this site. Surgery 7/11/2018 Lumpectomy; Lumpectomy (Left); Lymph node removal Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole breast: Breast, Lymph nodes
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Sep 23, 2021 09:21PM traveltext wrote:

Lots of familiar people here, so fertile ground for another article I'd like to write for Health Union, who publish the US-based cancer websites.

If anyone here is happy to share their experiences, based on comments posted here, please let me know.



Chemotherapy 3/6/2014 Other Chemotherapy 3/6/2014 AC + T (Taxotere) Chemotherapy 3/10/2014 FAC Hormonal Therapy 4/16/2014 Surgery 7/1/2014 Lymph node removal (Left); Mastectomy (Left) Surgery 7/23/2014 Lymph node removal (Left); Mastectomy (Left) Radiation Therapy 8/8/2014 Whole breast: Left breast, Lymph nodes Radiation Therapy 8/22/2014 Whole breast: Left breast, Chest wall, Lymph nodes Hormonal Therapy 10/24/2014 Liquid tamoxifen (Soltamox) Hormonal Therapy 10/30/2014 Hormonal Therapy 11/1/2014 Surgery 5/8/2022 Radiation Therapy Surgery Surgery Surgery Hormonal Therapy Surgery
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Sep 23, 2021 09:28PM minustwo wrote:

Hey Traveltext - good to see ya. Thought of you the other day when I posted "women" and remembered to take it back before I submitted. Will you provide questions or an outline - or is it just relating a story?

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 23, 2021 10:00PM serenitystat wrote:

An actual COVID party?!? This is why officials/doctors pushing "natural" immunity is so dangerous.

https://twitter.com/fagstein/status/14408237348315...


🤦🏻‍♀️🤷🏻‍♀️ . . . . . "Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx-11/2015-IDC.L.IIIC.10/11-nodes.++- 12/2015-L.Mast 2/2016-4AC+12Taxol fasted 9/2016-Rads.Nodes.Chest-wall.15+4boosts 10/2016-Tamox(2.5y) 4/2019-Exemestane 12/2019-Ibrance/Xgeva
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Sep 23, 2021 10:08PM - edited Sep 23, 2021 10:14PM by simonerc

The level of protection afforded by vaccines against variants is driven by how far the VOC deviates from the original. The same is true for natural immunity. It is true that vaccines can be engineered to represent a large population of single point mutations in the RBDs of the corona virus spike protein. It is not true that the effectiveness of the immune response is determined entirely or even mainly by the affinity of the antibody for RBDs on the spike protein. Antibodies directed against other epitopes on the virus are important because they allow cell surface signalling identifying infected cells for NK cells to attack. This critical arm of the immune system tends to be ignored by people not well versed in immunology.

For clarity, I strongly support people getting vaccinated, including those who have already recovered from Covid. There is, however, no evidence that natural immunity is less efficacious than vaccine-induced immunity and much evidence, including our entire experience with infectious diseases over many decades, that it is in fact more so.

I will be interested to see, as I have said before, real peer reviewed data on reinfection rates of people who have had the natural infection.


ATM Gene Mutation, Deletion. IDC w/Lobular Features and Focal Mucinous Features. Pre Pectoral Reconstruction. Hysterectomy
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Sep 23, 2021 10:19PM serenitystat wrote:

Simone - I follow a few immunologists and haven't read that. I won't be looking for studies on reinfection rates for prior COVID patients in case you were waiting for it. At this point it makes no difference to me.

🤦🏻‍♀️🤷🏻‍♀️ . . . . . "Do not overlook the little joys!" (Hesse, 1905) 🐶☕️🛀🖼🥐🌲🎭 Dx-11/2015-IDC.L.IIIC.10/11-nodes.++- 12/2015-L.Mast 2/2016-4AC+12Taxol fasted 9/2016-Rads.Nodes.Chest-wall.15+4boosts 10/2016-Tamox(2.5y) 4/2019-Exemestane 12/2019-Ibrance/Xgeva
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Sep 23, 2021 10:22PM Chowdog wrote:

Here is a CDC MMWR cites a study of natural infection vs. vaccine in kentucky during May to June, which covers a period of delta wave

https://www.cdc.gov/media/releases/2021/s0806-vacc...

https://www.cdc.gov/media/releases/2021/s0806-vacc...


Dx 6/2007, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/2/2007 Mastectomy: Left, Right Chemotherapy 8/15/2007 AC + T (Taxol) Hormonal Therapy 1/10/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Dx 2/12/2018, IDC, Stage IV, metastasized to brain/bone/lungs, ER+/PR+, HER2- Hormonal Therapy 2/12/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 3/19/2018 External: Brain Targeted Therapy 4/9/2018 Ibrance (palbociclib) Hormonal Therapy 4/9/2018 Femara (letrozole), Zoladex (goserelin)
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Sep 24, 2021 04:31AM - edited Sep 24, 2021 04:33AM by alwaysmec

Chowdog, as devil's advocate, one question I have that arose from the Kentucky study you posted is, although reinfection was greater for natural immunity, what's the severity and duration of the illness? Could it be good enough to stave off serious illness? On the other hand, the study authors suggest that natural immunity does not provide good protection against variants, so while it may stave off current variants, who's to say it will be effective at reducing severity, duration, and hospitalization for any new variant, as opposed to the vaccine which does so far?

I lean towards those with natural immunity getting at least one shot for the hybrid protection, which is thought to be far superior to both vaccine or naturally acquired. At least, it would help to decrease spread by lessening the chances of another infection. Plus what are the associated health risks of catching Covid more than once? I've read some news articles suggesting some people suffer worse side effects and possibly long covid the second time around.

To be fair, I sympathize with the vaccine hesitant. We don't know if there are legitimate reasons for their hesitancy. Usually, it's someone with a negative previous vaccine experience, a person with a not so well understood autoimmune condition, or someone who is very sensitive to medical treatments. The ones I consider hesitant in my associations are very careful to follow mandates, even if it inconveniences them. I also find they are still open to discussion and seem to be on the fence still. There's a clear distinction between those people and the pro Covid Covidiots, maskholes, however we choose to describe them. Those people clearly don't give a damn about spreading the disease. There's no other singular words that encompass their actions. I don't think it's name calling at all to call a bully out on their actions with an all encompassing descriptive word or noun. Would it be more openly acceptible to call those people agressive abusers, or unempathetic narcissists? Is abuser or narcissist really kinder word than idiot? Come on -- It's all arguing over semantics at that point, with one side clearly proponents of being okay with risking their own lives as well as others.

Dx 4/2/2021, IDC, Left, 1cm, Stage IIA, Grade 2, ER-/PR-, HER2-
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Sep 24, 2021 07:40AM - edited Sep 24, 2021 12:01PM by divinemrsm

For many in the U.S., myself included, the debate over mask wearing was immediately politicized when the former president (fp) refused to wear one, refused to advocate wearing them, ridiculed people who wore them, trivialized Covid19, downplayed the severity of its spread, repeatedly referred to Covid19 as the Chinese flu. It was politicized and it didn't need to be. The actual virus itself was called a hoax by followers of the fp, with those in political power as well as those with large media presence spreading lies that Covid19 was made up by opponents of the fp. People I knew personally were telling me that all the coronavirus stuff and the pandemic were going to be over at the end of November 2020, meaning after the election. As the realities and ramifications of Covid19 grew rather than dissipated, many fp followers turned their twisted thinking from hoax-believing to you're-not-taking-my-rights-away non-vaxxers. Maybe they think they're freedom fighters. We personally know more people now who died of Covid19 since the vaccine has rolled out than prior to its availability.

There's lots of data and it's ever changing. I don't research it. But where is the data on people who died from getting the vaccine, not getting Covid19 after the vaccine but the vaccine itself? Of the women who got the vaccine while pregnant, what is the data of the babies delivered afterwards that were adversely affected in some way by the vaccine? Where is the data of women who became infertile because they got the vaccine? These are some of the reasons people and women of child-bearing age are choosing not to get the vaccine. I'm not sure there is data to back up their worries and concerns.


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*

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