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Topic: How has the Pandemic affected you as a cancer patient/survivor

Forum: All things COVID-19 or coronavirus —

A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Sep 8, 2021 06:58PM

Trishyla wrote:

Has the Pandemic substantially impacted your life as a current or former cancer patient? Please post your stories; heartbreaking, frustrating, even uplifting.

If you post anything about treatments, cures, vaccinations, hospitalizations or deaths, please back it up with research from accepted, credible sources. Your Uncle's neighbor's third wife who posted a crazy conspiracy theory on Facebook is not a credible source.

Angry, passionate, sad are all acceptable, disrespectful is not.


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/4/2017 Xeloda (capecitabine)
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Posts 1351 - 1368 (1,368 total)

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Jan 10, 2022 10:26AM SerenitySTAT wrote:

Alice - Your coughing sounds painful! Hope it gets better. My home now is modern, but I’m able to run the HVAC system continuously. Where I lived before was a 1950s house that was leaky. There are instructions on how to build an air cleaner with a box fan and some MERV-13 filters.

My daughter seems recovered. Instead of stats, she said she’s all good. I think the pulse oximeter helped. She was feeling SOB, and the pulse ox would read 94. I told her to walk and take deep breaths first. Then her pulse ox would rise above 95. Last reading was 98. I think the COVID scare was making her anxious.

The specialty pharmacy called to schedule my next Ibrance delivery. Bonus: they have rapid tests! Will deliver Thursday.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 10, 2022 02:02PM SerenitySTAT wrote:

Spoke too soon. Daughter started coughing from bringing in groceries that were delivered. Exertion or frigid air? Pulse ox at 99.


"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 11, 2022 03:19PM SerenitySTAT wrote:

ThumbsUp

For immunocompromised Montrealers needing a safe vaccination space for 3rd/4th doses! See link for more details to contact this kind pharmacist.

https://twitter.com/balloonian/status/1480976773118574596?s=21



"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 11, 2022 11:17PM Bonniebleu wrote:

Alice,

***HUGS*** thinking of you

Dx 3/31/16. Age 47, IDC right, 2cm, ER+95%, PR+95%, HER2-, oncotype 13, ki67 30%, Dx 3/31/2016, IDC, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/11/2016 Mastectomy
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Jan 12, 2022 12:53AM AliceBastable wrote:

Our local paper had a helpful article about masks. Since the best aren't easy to find, this ranks the selections, and gives advice on what double masking works.

https://safeliving101.com/lifestyles/health-med-fit/with-omicron-surging-now-s-the-time-to-upgrade-your-face-covering/article_e4ad8fb1-8731-5e4f-80ab-6fac7281f922.html

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Jan 12, 2022 08:21AM Dancemom wrote:

this made me laugh, adding it all to my "mom brain".

https://www.nbcnewyork.com/news/coronavirus/even-mild-covid-infections-can-have-lasting-impacts-like-chemo-brain-study-finds/3489958/

Dx 3/16/2021, IDC, Right, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/28/2021 Femara (letrozole) Targeted Therapy 4/20/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal: Sentinel; Mastectomy: Right
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Jan 12, 2022 11:21AM SerenitySTAT wrote:

Not surprised! Wrote this in July 2020 when we had just 28 new cases in a day. We’re just had 52 deaths reported yesterday. :(


"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 12, 2022 02:44PM Cowgirl13 wrote:

Got my booster today!

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/17/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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Jan 12, 2022 03:26PM SerenitySTAT wrote:

Yay! Hope no or few side effects.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 12, 2022 09:53PM SerenitySTAT wrote:

Older daughter is feeling better. Eligible to schedule her booster later this month. Younger daughter is eligible on Friday, but we may try to get her to a walk-in to get boosted sooner. If her classes move to in person, then she'll have to take the public transit.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 13, 2022 01:22PM SerenitySTAT wrote:

Brilliant! 😎


"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 13, 2022 01:43PM AliceBastable wrote:

That's the best solution yet!

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Jan 13, 2022 01:47PM SerenitySTAT wrote:

Simultaneously crude and elegant! ThumbsUp

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 13, 2022 02:13PM SerenitySTAT wrote:

QC government is trying its best to spread the virus. The Ministry of Education is looking for parent volunteers to cover for teachers who can't be in the classroom due to COVID.

Gotta keep those under-vaccinated kids in the school Petri dish with no clean air and no good masks.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 13, 2022 03:20PM Dancemom wrote:

11 being sent home from school with an at home test as a close contact as I write. I still have drains. 20 is set to go back to college on Sunday. She is hoping to at least get back into her labwork for a little bit until they shut things down...I was thinking that since numbers here are improving, she has a shot at staying in the lab.. This is too stressful.

Dx 3/16/2021, IDC, Right, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/28/2021 Femara (letrozole) Targeted Therapy 4/20/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal: Sentinel; Mastectomy: Right
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Jan 15, 2022 05:39PM SerenitySTAT wrote:

Dancemom - Hope 11 is negative and that you’re recovering well. It is stressful.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Jan 15, 2022 06:10PM Dancemom wrote:

thanks serenity. His first home test was negative, we are to redo in a few days. Stupidest thing is we don't even know if he is actually a close contact. Lab apparently lost some tubes.. ? At this point, whatever, i throw my hand up and just hope the fact that i am off ibrance because of the surgery means I have some white blood cells left.🤪🤪

Dx 3/16/2021, IDC, Right, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/28/2021 Femara (letrozole) Targeted Therapy 4/20/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal: Sentinel; Mastectomy: Right
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Jan 15, 2022 06:11PM - edited Jan 16, 2022 02:27AM by Dancemom

unfortunately my 11 is too prude to enjoy that fart joke as much as I did, haahhaa

Dx 3/16/2021, IDC, Right, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/28/2021 Femara (letrozole) Targeted Therapy 4/20/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal: Sentinel; Mastectomy: Right

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