Topic: How has the Pandemic affected you as a cancer patient/survivor

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Sep 8, 2021 05:58PM

Posted on: Sep 8, 2021 05:58PM

trishyla wrote:

Has the Pandemic substantially impacted your life as a current or former cancer patient? Please post your stories; heartbreaking, frustrating, even uplifting.

If you post anything about treatments, cures, vaccinations, hospitalizations or deaths, please back it up with research from accepted, credible sources. Your Uncle's neighbor's third wife who posted a crazy conspiracy theory on Facebook is not a credible source.

Angry, passionate, sad are all acceptable, disrespectful is not.


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/4/2017 Xeloda (capecitabine)
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Sep 26, 2021 02:52PM exbrnxgrl wrote:

I do not delight in the sickness or passing of others, even when prevention was available, but I remain curious about the thoughts of those who became very sick or died from Covid, in an attempt, probably futile, to understand their thinking. I ran across a site, https://www.sorryantivaxxer.com/post/desire-powell-53-administrative-assistant-anti-vaxxer-didn-t-desire-vaccine-died-of-covid , that chronicles the illness or death of anti-vaxxers. What really struck me was the number of people who truly believed that Covid19 wasn’t worse than the flu or that they were in such superior states of good health that they would never catch it! Quite a few also regretted being misinformed or unaware . What? Huh? These are the most baffling reasons for not wanting the vaccine. Where have these folks been for the last 18 months? I feel sympathy for their loved ones but how could anyone be “misinformed” at this point unless they simply choose to be?

Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-
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Sep 26, 2021 03:01PM serenitystat wrote:

Alberta needs a hard lockdown. They're doing the opposite.


🌻 🇺🇦 BCO leaked our private data. 🤦🏻‍♀️🤷🏻‍♀️ . . . . . "Do not overlook the little joys!" (Hesse, 1905) 🐶Dx.11/2015.IDC.L.IIIC.10/11nodes.++- ☕️12/2015.L.Mast 🛀2/2016.4AC.12Taxol.fasted 🖼9/2016.Rads.Nodes.ChestWall.15+4boosts 🥐10/2016.Tamox(2.5y) 🌲4/2019.Exemestane 🎭12/2019.Ibrance/Xgeva 🕊
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Sep 26, 2021 03:54PM - edited Sep 26, 2021 04:01PM by divinemrsm

exbrnxgrl, I have been following the sorryantivaxxer site (I think I mentioned it here as well) and I read some of the posts after these people get Covid who say, “wow, I didn't know it would be this bad, that I would get this sick.". Like you, I cannot comprehend how these people are not getting the message: Covid19 can be deadly and its Delta variant is even more lethal. There also seems to be a surprising number of health care workers listed on the site who were antivax and then died of Covid. To me it is even more mind boggling that some in the medical field choose not to protect themselves with a vaccine. Did they even ever trust in the medicine and health care they were providing? Or did they just go in to the field because of job availability and pay?


found lump 12-22-10—ilc—er+/pr+/her2—stage iv bone mets—chemo~lumpectomy~radiation~arimidex—March 2019-ibrance/aromasin* —Sept 2019-verzenio* —March 2020-xeloda*
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Sep 26, 2021 04:15PM wrenn wrote:

I don't think any profession is immune to irrational thinking and I wonder how many in health care or in that line of work are in it for altruistic reasons? I worked in health care for many years and didn't come across that many who were true helpers no matter how good they wer at their job. There were also a lot of not so bright ones. 🤷🏼♀️

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Sep 26, 2021 04:20PM exbrnxgrl wrote:

Yes, the number of anti-vax nurses was surprising. There were also quite a few posts that described parents “who would do anything for their children” who have now left their children without one and sometimes, both parents. I still feel like a bit of a ghoul for viewing that site. It hasn’t furthered my understanding of why people are against the vaccine.

Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-
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Sep 26, 2021 05:02PM serenitystat wrote:

There are many levels of nursing education. It has a low barrier to entry.

No profession is immune to misinformation. Even an immunologist is involved in the COVID+ patient who was convinced to leave AMA by an anti-vaxxer. She was terminated recently from her university.

https://www.irishtimes.com/news/ireland/irish-news...


🌻 🇺🇦 BCO leaked our private data. 🤦🏻‍♀️🤷🏻‍♀️ . . . . . "Do not overlook the little joys!" (Hesse, 1905) 🐶Dx.11/2015.IDC.L.IIIC.10/11nodes.++- ☕️12/2015.L.Mast 🛀2/2016.4AC.12Taxol.fasted 🖼9/2016.Rads.Nodes.ChestWall.15+4boosts 🥐10/2016.Tamox(2.5y) 🌲4/2019.Exemestane 🎭12/2019.Ibrance/Xgeva 🕊
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Sep 26, 2021 05:47PM - edited Sep 26, 2021 05:50PM by exbrnxgrl

True about the different levels of nursing. Most, if not all, of those listed simply say “nurse" and make no distinction between the levels. I don't know about other nursing levels but in my area of CA, getting into some nursing programs, BSN specifically, is quite difficult so no low barrier there. I know you can also get an associates degree and an RN at some community colleges.It may be easier for LVNs.

Dx IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, ER+/PR+, HER2-
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Sep 26, 2021 06:09PM - edited Sep 26, 2021 06:28PM by chisandy

Minus, in lieu of a ReactEmoji, I'd definitely like to see a "comment" option here (like on Quora)--so that the "hooray," "I disagree," or "so sorry" typed reaction could be clearly shown to refer to the post in question--rather than showing up several pages forward after the thread has taken several turns in another direction. I suppose one could "comment" by identifying the poster and cutting/pasting a quote from the post--but that would be so cumbersome as to be counterproductive. Meaningful discourse requires clarity and (ideally) specificity. (Isn't meaningful discourse part of what this site is all about)?

Serenity, there's a folksinger-songwriter of mine who's digging herself an ever-deeper rabbit hole of vaccine disinformation--especially railing against the entire pharmaceutical industry and "allopathic medicine" community. (The latter a term invented by the alterna-woos). Even before the pandemic, I have felt dismayed that so many of my fellow creatives vehemently reject actual medicine in favor of homeopathy (which is scientifically ridiculous), "healthy lifestyle" (almost universally vegan) and "alternative" herbal remedies. I suppose it's a combination of an artistic lifestyle being less-than-lucrative, and a sense that one's superior talent makes them privy to information that "they" (Big Pharma & the AMA) don't want you to know because "they" can't patent and therefore profit off it. I nearly came to blows with someone in my former BC support group--which fell by the wayside after our facilitator died--kept railing against "AMA medicine." The AMA has no enforcement authority whatsoever--it publishes a medical journal, holds (or held, pre-pandemic) conventions, lobbies (prior to the OrangeJuliusCaesar administration, conservatively), provides affinity-group discounts on merch & services like insurance or car rentals, and levies outrageously expensive dues (the lobbying & dues being why my cardiologist husband has steadfastly refused to join).

And despite his usually liberal stance and generally quick wit, Bill Maher increasingly infuriates me when he steers every COVID panel discussion to obesity as the root of all medical problems, and eating meat and dairy as the cause of obesity. Even back in his late-'90s Politically Incorrect days he would insult non-slender people with whom he disagreed as "big fat pie wagons." (I'm a mildly overweight "petite pastry cart" by his definition, but I'm also allegedly dragging us all down the road to global perdition because I eat animal flesh, eggs & cheese).

I've tried repeatedly over the years to be vegan, but my metabolism can't handle the amount of starch necessary to make it palatable; and so the pounds piled on and my glucose & lipid levels soared. (And when it comes to those "nutritionists" like the former figure-skater PhD Joel Furman who does PBS pledge-week programs and says he happily exists on just green veggies, nuts and a tiny amount of olive oil...oy to the vey).

Sorry for inadvertently dissing any vegans here--but not sorry for dissing those trying to militantly shove veganism down my omnivorous throat.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy; Lumpectomy (Right) Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Sep 26, 2021 06:09PM wrenn wrote:

I knew many with low level education who were amazing.

Anyone could teach elementary schools back in the day and some of those were amazing teachers. Formal education doesn't equal intelligence or sound mental health.

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Sep 26, 2021 06:31PM chisandy wrote:

Two of the smartest people I know are autodidacts--one who dropped out of high school at 16 and didn't get his GED till he was 40; and another who spurned an acceptance by Harvard but dropped out of a small college/theological seminary after one semester. They both are incredibly well-read.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy; Lumpectomy (Right) Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)

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