Topic: How has the Pandemic affected you as a cancer patient/survivor

Forum: All things COVID-19 or coronavirus — A place to discuss the impact of COVID-19 (Coronavirus) on you and the ones you love.

Posted on: Sep 8, 2021 06:58PM

Posted on: Sep 8, 2021 06:58PM

trishyla wrote:

Has the Pandemic substantially impacted your life as a current or former cancer patient? Please post your stories; heartbreaking, frustrating, even uplifting.

If you post anything about treatments, cures, vaccinations, hospitalizations or deaths, please back it up with research from accepted, credible sources. Your Uncle's neighbor's third wife who posted a crazy conspiracy theory on Facebook is not a credible source.

Angry, passionate, sad are all acceptable, disrespectful is not.


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)
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Sep 27, 2021 03:43PM moth wrote:

wrenn, that's right, older nurses had to upgrade to BSN & the employers often paid & offered time off. My mom was a diploma nurse from bcit but she retired before the bachelor's became mandatory.

LPNs get paid less so some administrators are preferentially staffing with them, esp on regular med/surg wards, There's a whole thing about changing scope of practice for the various nurses & what they can & can't do... lots of jostling for power as you can imagine.

I have my first follow up xray tomorrow & we'll see how it's healing. I'm getting used to it. Funny how adaptable we are - everything becomes the new normal. thx for the good wishes :)

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy) Chemotherapy 6/1/2022 Other
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Sep 27, 2021 06:53PM chowdog wrote:

Just want to share this article.

https://www.theguardian.com/us-news/2021/sep/27/us...


Dx 6/2007, IDC, Right, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 7/2/2007 Mastectomy; Mastectomy (Left); Mastectomy (Right) Chemotherapy 8/15/2007 AC + T (Taxol) Hormonal Therapy 1/10/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Dx 2/12/2018, IDC, Stage IV, metastasized to brain/bone/lungs, ER+/PR+, HER2- Hormonal Therapy 2/12/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 3/19/2018 External Local Metastases 3/19/2018 Brain Targeted Therapy 4/9/2018 Ibrance (palbociclib) Hormonal Therapy 4/9/2018 Femara (letrozole), Zoladex (goserelin)
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Sep 27, 2021 11:13PM minustwo wrote:

My best friend who graduated from HS in 1962 was an RN. Sometime in the late 90's the hospital (s) started making a college degree mandatory in addition to be a supervisor or for promotions. She was over 55 by then so just blew it off.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 28, 2021 03:23PM moth wrote:

in the previous thread and I think maybe even in this one there was some suggestion by some that vaccinated people are just as likely to be spreading the disease because they might have it and be asymptomatic.

This is wrong. There is a good article in the Atlantic explaining why this is wrong.

https://www.theatlantic.com/ideas/archive/2021/09/...


I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy) Chemotherapy 6/1/2022 Other
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Sep 28, 2021 07:21PM traveltext wrote:

Thanks to those of you who agreed to be quoted in the article on the Pandemic's affects on bc patients. Will post the link when the article is live. I'm donsting the writer’s fee to BCO.

Covid in Australia

The virus arrived here as fast as anywhere in the world. Airplane and cruise ship passengers carried it on their return from business and leisure trips. Immediately, the federal government closed the international borders. They remain shut to this day. Second, individual states put their citizens into lockdown for a month or six weeks. Those infected were quarantined or hospitalised. When things were seemingly under control, life returned to normal. That lasted a few months then individual cities locked down when infections were deemed to get ahead of the hospital system. Since later last year, the major cities have been in an out of lockdown. Some of the world’s longest lockdowns have occurred in Melbourne and Sydney. The latter is running its latest to 12 weeks now.

The aim was to put lives ahead of the economy. The government paid wage subsidies, businesses were given support, and people worked from home where possible. Shops were mostly open and takeout food always available. The construction, mining and agricultural industries carried on as usual. Obviously, national debt ballooned but the economy stayed on an even keel .

When Delta made it here it was all a matter of rinse and repeat. Just now are plans being made to open up more as vaccination rates rise. As with the United States, the situation re opening fully is patchy. We’ll see how the next few months goes. Unlike the U.S., loss of life here has been low at around 1200 people in a country of 25m.

What a wake up call the whole episode has been for the world. And how lucky were BCO folks to have our support forums in place? Then again, cancer people have seen hospitals limit non-covid patients and breast screenings have decreased. Good luck to us all!




NED breast and prostate cancer. Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.
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Sep 28, 2021 08:51PM sadiesservant wrote:

Hi Traveltext. I don’t think I’ve posted anything article worthy on this thread but happy to contribute if you see anything.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/10/2001 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/21/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/28/2017 Arimidex (anastrozole) Targeted Therapy 4/19/2017 Ibrance (palbociclib) Dx 10/12/2017, IDC, Right, Stage IV, metastasized to other Chemotherapy 10/20/2017 Xeloda (capecitabine) Radiation Therapy 11/15/2017 External Local Metastases 11/15/2017 Radiation therapy: Bone Hormonal Therapy 1/18/2018 Faslodex (fulvestrant) Radiation Therapy 8/2/2018 External Local Metastases 8/2/2018 Radiation therapy: Bone Radiation Therapy 11/5/2018 External Local Metastases 11/5/2018 Radiation therapy: Bone Targeted Therapy 10/9/2019 Verzenio Radiation Therapy 11/3/2020 External Local Metastases 11/3/2020 Radiation therapy: Bone Dx 1/22/2021, IDC, Right, 1cm, Stage IV, metastasized to liver, Grade 2, ER+/PR+, HER2- Chemotherapy 2/4/2021 Xeloda (capecitabine) Chemotherapy 10/8/2021 Other Chemotherapy 1/7/2022 Other
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Sep 30, 2021 11:40AM trishyla wrote:

Been quiet on this thread. I hope that means we're starting to see a little normalcy return to our lives.

I've been feeling a little more optimistic about where my state, California, is at this point. We're at 71% with at least one shot and 58% fully vaccinated. Add that to our verified case total of 4.73 million (which is most likely grossly understated) and we have at least 80% of our population with at least some protection. Probably closer to 90%, especially in populated areas like Los Angeles.

I rejoined the gym, but haven't gone there yet. Still a little nervous, even though I'm fully vaccinated. Anyone else feeling that way?

Hope everyone is well and getting back to their lives.

Trish



Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)
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Sep 30, 2021 11:51AM beaverntx wrote:

Trish, absolutely feeling that way. I continue to go to the grocery store and have resumed a small group meeting at church (all members are fully masked) but not yet comfortable attending a larger worship service. Maybe after Moderna booster is approved and received?

Our county's number of active cases has just returned to the level we had two months ago. In the two months we kept seeing new record highs so it is a relief to see the numbers of active cases going down instead of up. Fingers crossed it keeps going that way, although it does appear to be following the typical delta variant pattern.

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Radiation Therapy 3/11/2018 Whole breast: Breast Surgery 6/15/2018 Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 30, 2021 12:08PM wrenn wrote:

I feel like I have stopped yacking about it because I am feeling too down. It is really getting to me lately that it just seems endless. I want to see my grand daughter but numbers here just keep going up thanks to unvaccinated people. This table makes me nervous. It is from yesterday in BC. Although I have started going into stores when they first open (not busy) I don't feel safe. I am happy to hear that it is getting better someplace though so thank you for posting good news. Gives me hope.

Triple Negative Metaplastic. I had one dose of Cytoxan/Taxotere and was then cut off due to complications. Surgery 8/16/2013 Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy (Left): Simple; Mastectomy (Right): Simple
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Sep 30, 2021 01:41PM trishyla wrote:

l think this past few months have been the hardest for me. When the Pandemic first hit, we hunkered down and did what we had to do to stay safe. Just one foot in front of the other and no expectation that it would end anytime soon.

But recently, when things opened up and we saw the numbers drop, I felt like we had turned a corner and would soon be back to normal. And to have that hope snatched away by the new Delta variant has been really hard on me. I have a constantly on edge feeling in the pit of my stomach; waiting for the other shoe to drop, I think. I hate it.

The other reason I'm struggling right now is financial. Both my husband and I have not worked since March of last year. Our savings took a huge hit, but we managed. And then we found out last week that my husband's union is getting ready to call a nationwide strike in the next two weeks. All film and television production will come to a grinding halt.

It's a necessary move, and we support it 100%, but man the timing sucks. We're already set to lose our health insurance at the end of October because of not enough hours, so this is just another stressor piled on top of everything else. Thank goodness for Covered California. If it weren't for Obamacare no one would insure me. At least one thing I can count on.

Hang in there, wrenn and Beaverntx. It will get better. Probably not as soon as we would like, but eventually.

Trish


Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)

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