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Topic: Success Stories!

Forum: Biographies and Inspiring Stories —

Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Jun 23, 2003 03:41PM

Carmelle wrote:

Every now and then I read a post on this forum that talks about somebody who has lived a long time with disease. I know there have even been threads with many node positive success stories and stage IV survival stories.
These have been the most uplifting influences for me on my journey.
In a world of breast cancer where medical staff are so reluctant to offer hope and even we ourselves cannot always see the light I think it would be great to have a compilation of good stories that we could put in our drawer and take out for those days when the "scared" comes out too strongly.Then read just enough to spark that hope again.
I am trying to put together these stories in a booklet format and would love it if anybody could email me stories they know that can shed light on our path.
Here is my email: carmelle@bwr.eastlink.ca
I would love to hear from you.
Michelle

update: 02/23/03
glad to see all the stories. just wanted to say that the booklet idea was just an idea. i think the posts do a great job on their own don't you?
let's keep this to the front if we can for any new people to read or add to. barb, you are excellent for not letting this get lost.
Yesterday is History... Tomorrow is Mystery...Today is a gift. Dx 3/7/2003, IDC, 6cm+, Stage IIIA, Grade 2, 5/15 nodes, ER+/PR-, HER2-
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Jan 26, 2019 07:35AM Nico1012 wrote:

Bumping for Denise . . .

Dx 4/2/2008, IDC, 2cm, Grade 3, 5/15 nodes, ER+/PR+, HER2-
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Feb 9, 2019 05:59PM Nico1012 wrote:

Bumping for Rhonda . . .

Dx 4/2/2008, IDC, 2cm, Grade 3, 5/15 nodes, ER+/PR+, HER2-
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Feb 13, 2019 05:56PM 32B wrote:

I was diagnosed with DCIS in January 2018 at the age of 32, just as my husband and I were starting to plan for having children. Among other things, I was scared of all the ways that breast cancer can affect your fertility.

A little over a year later, I am thrilled to be cancer-free, fully recovered from a UMX so that I have one healthy breast for nursing, confirmed BRCA negative, and 5 months pregnant with a healthy and active little girl!

Dx 1/12/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Surgery 2/8/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement
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Feb 13, 2019 06:19PM PebblesV wrote:

Oh wow 32B congratulations and thank you for sharing!

Dx 9/7/2018, IDC, Right, 1cm, Stage IIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- (FISH) Surgery 9/18/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 15, 2019 07:51AM - edited Feb 15, 2019 07:51AM by 32B

This Post was deleted by 32B.
Dx 1/12/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Surgery 2/8/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement
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Feb 15, 2019 07:52AM 32B wrote:

:)

Dx 1/12/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Surgery 2/8/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement
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Feb 15, 2019 08:12AM Nas wrote:

congratulations 32B❤️❤️❤️ It’s a new chapter in ur life, enjoy every single second of it❤️❤️

Dx 12/5/2017, IDC, Right, 1cm, Stage IIA, Grade 1, 1/8 nodes, ER+/PR+, HER2- Surgery 12/14/2017 Mastectomy: Left, Right Radiation Therapy 2/7/2018 Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 2, 2019 08:54AM SnowFlower100 wrote:

The mother of one good friend of my fiancé had cancer when she was young, got treated, and delivered the friend of my fiancé. She is now still alive :)


Dx 12/7/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 2/1/2019 Whole-breast: Breast Hormonal Therapy 3/31/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 2, 2019 09:01AM SnowFlower100 wrote:

That's fantastic news 32 B! Your story give me plenty of hope! I was diagnosed at 29 (3 months ago), now still in radiotherapy. I have been worrying about BC affecting my fertility too. I was told by my oncologist that it's recommended to do at least 2 years of Hormone therapy (in my case Tamoxifen) and then can interrupt the therapy for pregnancy and then continue to take Tam to a final 10 years... Concerned about the side effects of Tam but also the recurrence risk if not taking it, Im still undecided. I read from your profile that you didn't do any hormone therapy even though you are ER PR positive? Thanks a lot!

Dx 12/7/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/13/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 2/1/2019 Whole-breast: Breast Hormonal Therapy 3/31/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 2, 2019 03:56PM Nico1012 wrote:

Bumping for Toni . . .

Dx 4/2/2008, IDC, 2cm, Grade 3, 5/15 nodes, ER+/PR+, HER2-
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Mar 6, 2019 04:13PM hkkw17 wrote:

Thank you everyone for great stories !! It really helps new ones like us to stay strong !

Dx - 09/2018 / Stage 1 Er+Pr+hr- lumpectomy , radiation and on tamoxifen currently
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Mar 13, 2019 07:36PM hkkw17 wrote:

Hieveryone, need to hear updates from long time survivors again ... please keep on updating this wonderful thread .. it gives a lot of hope to us newly diagnosed people !!

Dx - 09/2018 / Stage 1 Er+Pr+hr- lumpectomy , radiation and on tamoxifen currently
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Mar 24, 2019 03:36PM hkkw17 wrote:

Bumping for more success stories !

Dx - 09/2018 / Stage 1 Er+Pr+hr- lumpectomy , radiation and on tamoxifen currently
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Mar 25, 2019 12:09PM Carmelle wrote:

Hi! Checking in for yearly post. It was 2003 when began this hoping to hear/share stories of inspiration and hope. Now it's 2019. Kids are mostly young men now. They were 1 and 3 at dx. Life is a journey and look back at BC now as a big catalyst for growth and change. Would have punched anybody who said that to me in 2003 with so much fear and worry. Still remember though how extremely heavy and hard it is to have life thrown into "fear, worry and anxiety" for life itself. It's a big load and managing it beyond a challenge but can be done. I'm 54, 38 at dx and had lump for over 3 yrs then.

If wish anything for you it's healing power of kindness. Kindness first for yourself. Treat you gently. Allow you grace of healing in peace. Love yourself. Sounds just like words but this is truly what felt during that time and began doing for first time in life. It's a process that continues unfold. HUGS for all of you. Lots love. Michelle


Yesterday is History... Tomorrow is Mystery...Today is a gift. Dx 3/7/2003, IDC, 6cm+, Stage IIIA, Grade 2, 5/15 nodes, ER+/PR-, HER2-
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Mar 26, 2019 05:27PM Nico1012 wrote:

Bumping for Aisha . . .

Dx 4/2/2008, IDC, 2cm, Grade 3, 5/15 nodes, ER+/PR+, HER2-
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Mar 26, 2019 05:37PM LovebeingNana wrote:

Michelle you are such an encouragement. Thank you.

Dx 2/11/2014, IDC, 2cm, Grade 3, 0/2 nodes, ER+/PR+, HER2-
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Mar 27, 2019 09:38PM hkkw17 wrote:

Bumping !!

Dx - 09/2018 / Stage 1 Er+Pr+hr- lumpectomy , radiation and on tamoxifen currently
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Mar 28, 2019 08:48PM PebblesV wrote:

Carmelle aka Michelle thank you so much for posting and congratulations on your success!

Dx 9/7/2018, IDC, Right, 1cm, Stage IIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- (FISH) Surgery 9/18/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 29, 2019 10:19AM hkkw17 wrote:

bumping for more success stories

Dx - 09/2018 / Stage 1 Er+Pr+hr- lumpectomy , radiation and on tamoxifen currently
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Apr 9, 2019 08:06PM Nico1012 wrote:

Bumping for Linda . . .

Dx 4/2/2008, IDC, 2cm, Grade 3, 5/15 nodes, ER+/PR+, HER2-
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May 15, 2019 06:51AM Nico1012 wrote:

Bumping for Charlene . . .

Dx 4/2/2008, IDC, 2cm, Grade 3, 5/15 nodes, ER+/PR+, HER2-
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May 24, 2019 07:38AM SLL101984 wrote:

Hi everyone! Just wanted to pop on this thread and quickly share my story for those new here! I know reading through these posts in my days after diagnosis really helped calm me down.

This past Tuesday, May 21, was the first anniversary of my double mastectomy. It was also the first anniversary of me being cancer free!

January 2018 I noticed I was constantly tired, no matter how’s much sleep I got I was exhausted, like I had a new born again exhausted. Then in March I went in for my yearly gyno appointment (which I was 7 months late for), and that’s when my doctor said the words “this spot on your breast feels funny to me”. I knew in that moment it wasn’t good, I had this feeling in my gut that things were going to get bad. I thank my lucky stars my dr made me go get a mammogram (which showed nothing) and then a ultrasound (which found the spot and led to a biopsy) right then and there. I was only 33 at this time so many doctors would have been like come back in 6 months we’ll see if it changes. April 18, 2018, diagnosis day. The same dr who delivered my baby not even two years prior called to deliver this news, breast cancer. The next month was a whirlwind of tests, scans, bloodwork, and dr appointments.

I chose the surgery I did because I had to give myself the biggest peace of mind going forward. Can it come back? Sure. Hopefully it doesn’t, but I’m getting to the point where it isn’t the first thing I think about every morning and the last thing at night. I also did not need radiation and my oncotype score was a 14 so it took chemo off the table. I’m one year into tamoxifen and doing well.

I remember being in your shoes, scared, angry, anxious. And trust me all those emotions come flooding back all the time. I wanted to make sure to come back here, now a year later, to share my story because most survivors are out there living life so since we don’t often hear from them we don’t think they exist! But we do!

I got through this and you will too!

Dx 4/18/2018, ILC, Left, 2cm, Stage IA, 0/5 nodes, ER+/PR+, HER2- Surgery 5/21/2018 Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Jun 1, 2019 10:55AM 32B wrote:

Hi SLL. Thanks for sharing your story and congratulations on your anniversary! What a great milestone!

Dx 1/12/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/8 nodes, ER+/PR+, HER2- Surgery 2/8/2018 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Tissue expander placement
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Jun 5, 2019 04:49PM Nico1012 wrote:

Bumping for Vicki . . .

Dx 4/2/2008, IDC, 2cm, Grade 3, 5/15 nodes, ER+/PR+, HER2-
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Jun 25, 2019 09:46AM NWArtLady wrote:

I recall a post around the time I was diagnosed wherein a person asked why there were no long term survivors in this forum and a wise person answered that it was because they were off living their lives. A few did respond and seeing those survivors gave me great hope for my own survival. I decided then to come back every year that I can and let y'all know that I'm still alive and kicking! It's been 8 years, here's to (hopefully) many more!

Remember, when you're going through hell, keep going. ~Churchill

Just keep swimming, just keep swimming... ~Dory
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Jun 26, 2019 03:11AM Alicethecat2 wrote:

Ladies (and any gentlemen too)

It was the posts from long-term survivors such as MsPhil and Chrissy B and people a few years ahead of me such as Special K that kept me going - and people such as Moonflower and Farmer Lucy who were going through it with me that kept me going in 2012. We all still post from time to time.

It would be wonderful to hear from even more long-term survivors.

Best wishes to everyone going through this.


Alice x









Dx 1/4/2012, IDC, Right, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR+, HER2+ (FISH) Surgery 2/7/2012 Mastectomy: Right Targeted Therapy Herceptin (trastuzumab) Radiation Therapy 3DCRT: Chest wall Chemotherapy Taxotere (docetaxel) Chemotherapy CEF
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Jun 26, 2019 11:15AM sgreenarch wrote:

Hi! I haven't been on the site in a few years. I keep this one thread, this one subject, on my alerts because it always makes me happy to read about long term survivors. I was diagnosed with early stage invasive lobular carcinoma in July of 2010. I had a uni mastectomy and have been on Tamoxifen and then Letrozole, all together for almost 9 years.There are side effects but nothing terrible, or nothing that I can't get used to. I swim and walk a lot, and try to eat healthy. I remember how frightened I was at the beginning. I don't think we ever will forget this, but life has gone on and thank God, I am just busy living. Sending good wishes to all.

Dx 7/20/2010, ILC, 2cm, Stage IB, 0/3 nodes, ER+/PR+, HER2-
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Jun 26, 2019 06:21PM Alicethecat2 wrote:

SGreenarch

Thank you so much for giving other people hope.

Alice

Dx 1/4/2012, IDC, Right, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR+, HER2+ (FISH) Surgery 2/7/2012 Mastectomy: Right Targeted Therapy Herceptin (trastuzumab) Radiation Therapy 3DCRT: Chest wall Chemotherapy Taxotere (docetaxel) Chemotherapy CEF
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Jun 26, 2019 09:51PM nye1980 wrote:

Not quite a long-term survivor yet, but three years on now and just had all my annual scans and bloodwork and all is well.

Dx 6/1/2016, DCIS/IDC, Right, 2cm, Stage IIIA, Grade 1, 4/28 nodes, ER+/PR-, HER2- Surgery 6/15/2016 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Chemotherapy 7/19/2016 TAC Hormonal Therapy 10/16/2016 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 12/5/2016 Whole-breast: Lymph nodes, Chest wall
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Jul 3, 2019 05:14AM vanessa99 wrote:

I just passed 10 years since diagnosis and feel better than ever. I was on Tamoxifen for 5 years, and have been on Femara for 4 years. One more year on Femara, then I'll fly solo. Best wishes to all the wonderful ladies on these boards. <3

The mind replays what the heart can't delete... Dx 6/25/2009, ILC, 4cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 8/18/2009 Mastectomy: Left Chemotherapy 9/28/2009 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/5/2010 Hormonal Therapy 3/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 4/27/2015 Femara (letrozole)

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