Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!
Posted on: Jun 23, 2003 03:41PM
Carmelle wrote:Every now and then I read a post on this forum that talks about somebody who has lived a long time with disease. I know there have even been threads with many node positive success stories and stage IV survival stories.
Posts 1441 - 1470 (1,483 total)
Feb 13, 2019 05:56PM 32B wrote:
I was diagnosed with DCIS in January 2018 at the age of 32, just as my husband and I were starting to plan for having children. Among other things, I was scared of all the ways that breast cancer can affect your fertility.
A little over a year later, I am thrilled to be cancer-free, fully recovered from a UMX so that I have one healthy breast for nursing, confirmed BRCA negative, and 5 months pregnant with a healthy and active little girl!
Feb 13, 2019 06:19PM PebblesV wrote:
Oh wow 32B congratulations and thank you for sharing!
Feb 15, 2019 07:51AM - edited Feb 15, 2019 07:51AM by 32B
Feb 15, 2019 08:12AM Nas wrote:
congratulations 32B❤️❤️❤️ It’s a new chapter in ur life, enjoy every single second of it❤️❤️
Mar 2, 2019 08:54AM SnowFlower100 wrote:
The mother of one good friend of my fiancé had cancer when she was young, got treated, and delivered the friend of my fiancé. She is now still alive :)
Mar 2, 2019 09:01AM SnowFlower100 wrote:
That's fantastic news 32 B! Your story give me plenty of hope! I was diagnosed at 29 (3 months ago), now still in radiotherapy. I have been worrying about BC affecting my fertility too. I was told by my oncologist that it's recommended to do at least 2 years of Hormone therapy (in my case Tamoxifen) and then can interrupt the therapy for pregnancy and then continue to take Tam to a final 10 years... Concerned about the side effects of Tam but also the recurrence risk if not taking it, Im still undecided. I read from your profile that you didn't do any hormone therapy even though you are ER PR positive? Thanks a lot!
Mar 13, 2019 07:36PM hkkw17 wrote:
Hieveryone, need to hear updates from long time survivors again ... please keep on updating this wonderful thread .. it gives a lot of hope to us newly diagnosed people !!
Mar 25, 2019 12:09PM Carmelle wrote:
Hi! Checking in for yearly post. It was 2003 when began this hoping to hear/share stories of inspiration and hope. Now it's 2019. Kids are mostly young men now. They were 1 and 3 at dx. Life is a journey and look back at BC now as a big catalyst for growth and change. Would have punched anybody who said that to me in 2003 with so much fear and worry. Still remember though how extremely heavy and hard it is to have life thrown into "fear, worry and anxiety" for life itself. It's a big load and managing it beyond a challenge but can be done. I'm 54, 38 at dx and had lump for over 3 yrs then.
If wish anything for you it's healing power of kindness. Kindness first for yourself. Treat you gently. Allow you grace of healing in peace. Love yourself. Sounds just like words but this is truly what felt during that time and began doing for first time in life. It's a process that continues unfold. HUGS for all of you. Lots love. Michelle
Mar 28, 2019 08:48PM PebblesV wrote:
Carmelle aka Michelle thank you so much for posting and congratulations on your success!
May 24, 2019 07:38AM SLL101984 wrote:
Hi everyone! Just wanted to pop on this thread and quickly share my story for those new here! I know reading through these posts in my days after diagnosis really helped calm me down.
This past Tuesday, May 21, was the first anniversary of my double mastectomy. It was also the first anniversary of me being cancer free!
January 2018 I noticed I was constantly tired, no matter how’s much sleep I got I was exhausted, like I had a new born again exhausted. Then in March I went in for my yearly gyno appointment (which I was 7 months late for), and that’s when my doctor said the words “this spot on your breast feels funny to me”. I knew in that moment it wasn’t good, I had this feeling in my gut that things were going to get bad. I thank my lucky stars my dr made me go get a mammogram (which showed nothing) and then a ultrasound (which found the spot and led to a biopsy) right then and there. I was only 33 at this time so many doctors would have been like come back in 6 months we’ll see if it changes. April 18, 2018, diagnosis day. The same dr who delivered my baby not even two years prior called to deliver this news, breast cancer. The next month was a whirlwind of tests, scans, bloodwork, and dr appointments.
I chose the surgery I did because I had to give myself the biggest peace of mind going forward. Can it come back? Sure. Hopefully it doesn’t, but I’m getting to the point where it isn’t the first thing I think about every morning and the last thing at night. I also did not need radiation and my oncotype score was a 14 so it took chemo off the table. I’m one year into tamoxifen and doing well.
I remember being in your shoes, scared, angry, anxious. And trust me all those emotions come flooding back all the time. I wanted to make sure to come back here, now a year later, to share my story because most survivors are out there living life so since we don’t often hear from them we don’t think they exist! But we do!
I got through this and you will too!
Jun 1, 2019 10:55AM 32B wrote:
Hi SLL. Thanks for sharing your story and congratulations on your anniversary! What a great milestone!
Jun 25, 2019 09:46AM NWArtLady wrote:
I recall a post around the time I was diagnosed wherein a person asked why there were no long term survivors in this forum and a wise person answered that it was because they were off living their lives. A few did respond and seeing those survivors gave me great hope for my own survival. I decided then to come back every year that I can and let y'all know that I'm still alive and kicking! It's been 8 years, here's to (hopefully) many more!
Remember, when you're going through hell, keep going. ~Churchill
Jun 26, 2019 03:11AM Alicethecat2 wrote:
Ladies (and any gentlemen too)
It was the posts from long-term survivors such as MsPhil and Chrissy B and people a few years ahead of me such as Special K that kept me going - and people such as Moonflower and Farmer Lucy who were going through it with me that kept me going in 2012. We all still post from time to time.
It would be wonderful to hear from even more long-term survivors.
Best wishes to everyone going through this.
Jun 26, 2019 11:15AM sgreenarch wrote:
Hi! I haven't been on the site in a few years. I keep this one thread, this one subject, on my alerts because it always makes me happy to read about long term survivors. I was diagnosed with early stage invasive lobular carcinoma in July of 2010. I had a uni mastectomy and have been on Tamoxifen and then Letrozole, all together for almost 9 years.There are side effects but nothing terrible, or nothing that I can't get used to. I swim and walk a lot, and try to eat healthy. I remember how frightened I was at the beginning. I don't think we ever will forget this, but life has gone on and thank God, I am just busy living. Sending good wishes to all.
Jun 26, 2019 06:21PM Alicethecat2 wrote:
Thank you so much for giving other people hope.
Jun 26, 2019 09:51PM nye1980 wrote:
Not quite a long-term survivor yet, but three years on now and just had all my annual scans and bloodwork and all is well.
Jul 3, 2019 05:14AM vanessa99 wrote:
I just passed 10 years since diagnosis and feel better than ever. I was on Tamoxifen for 5 years, and have been on Femara for 4 years. One more year on Femara, then I'll fly solo. Best wishes to all the wonderful ladies on these boards. <3