Posted on:
Jun 23, 2003 02:41PM
C
Oakville, On
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Jan 11, 2023
Posted on:
Jun 23, 2003 02:41PM
carmelle
wrote:
Every now and then I read a post on this forum that talks about somebody who has lived a long time with disease. I know there have even been threads with many node positive success stories and stage IV survival stories.
These have been the most uplifting influences for me on my journey.
In a world of breast cancer where medical staff are so reluctant to offer hope and even we ourselves cannot always see the light I think it would be great to have a compilation of good stories that we could put in our drawer and take out for those days when the "scared" comes out too strongly.Then read just enough to spark that hope again.
I am trying to put together these stories in a booklet format and would love it if anybody could email me stories they know that can shed light on our path.
Here is my email: carmelle@bwr.eastlink.ca
I would love to hear from you.
Michelle
update: 02/23/03
glad to see all the stories. just wanted to say that the booklet idea was just an idea. i think the posts do a great job on their own don't you?
let's keep this to the front if we can for any new people to read or add to. barb, you are excellent for not letting this get lost.
Yesterday is History... Tomorrow is Mystery...Today is a gift.
Dx
3/7/2003, IDC, 6cm+, Stage IIIA, Grade 2, 5/15 nodes, ER+/PR-, HER2-
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runner1
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Oct 24, 2003 01:37AM
runner1
wrote:
When I was in hospital for my mastectomy, a wonderful lady came by to see me (she was from a wonderful organization but I can't recall the name!!!). They obviously matched me with someone with a similiar diagnosis as she had one positive node and a mast on one breast as did I. Anyway, she was an 8 year survivor and had experienced no problems at all, either with a recurrance, new cancer or lymphadema. Her visit was so helpful...she looked so healthy and was very upbeat and positive.
-Sandy
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dunner1
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Oct 24, 2003 08:31AM
dunner1
wrote:
I LOVE THIS THREAD!!!!!!!! I was diagnosed with Stage 3 b/c back in Feb (w/lymph nodes involved) and some day my name will be mentioned on this thread b/c I plan on seeing my son grow old with me. During my ordeal I rec.'d numerous cards/letters, here's a quote from one, "Maureen called me a few days ago to tell me about your b/c . I too was operated on for b/c 27yrs ago at age 41. Our children were 15, 8 and 5 yrs old. Several of my lymph nodes were also cancerous. During the yr. of chemo I relied heavily on the doctors, my family and God being there by my side. As I look back I realize how God influenced all of these aspects working together." God be with each and every one of you. Keep the stories coming!!!! Kathy
Dx
2/5/2003, IDC, 4cm, Stage IIIB, Grade 3, ER-/PR-, HER2-
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swannie
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Jan 14, 2009
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Oct 24, 2003 07:50PM
swannie
wrote:
A friend's mom had breast cancer 23 years ago - radical mastectomy and radiation, I think. I know she didn't have chemo. She had a local recurrance in the skin on her scar about 7 years in and had it removed and definitely radiation that time. She has been cancer free for 16 years since then!
S
shelliks
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Oct 30, 2003 05:02AM
shelliks
wrote:
I have not seen this thread before today! I was dx'd 9/22/03 during a axillary lymph node excision, but am having pre-op Taxotere to clean me up a bit before surgery, so I have no idea how many more positive lymph nodes, but I do have a palbable (very small) supraclavicular lymph node (bummer).
BUT, my mom was dx'd in 1980 with metaplastic bc (rare and aggressive). She did not have lymph node involvement. She is a 24 year survivor with no recurrence. She had a radical mastectomy and chemo.
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Oct 30, 2003 05:10AM
scootersmom
wrote:
If any of you want to read a sucess story against all the odds, read Lance Armstrong's book "It is not about the bike". My attitude stunk when I was first diagnosed and my brother bought me this book and I saw how terrible I was being. This man beat all the odds. Now he had testicular cancer, but still. He really went through it.
J
JulieK
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Nov 7, 2003 02:50AM
JulieK
wrote:
Great thread, thanks. That said, there was never any doubt in my mind that I'm going to live to an old age, with or more likely without my boobs.
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Nov 10, 2003 12:45PM
Joan1212
wrote:
My son-in-law works for a law firm and I asked him to e-mail me a synopsis of one of the senior partners. This sounds like a miracle. I want to share this with you. I have to add that the plane flights were a nightmare as he had naseau, etc. I believe this man is in his late 50"s or early 60's
My son-in-laws e-mail follows:
He had malignant melanoma on the retina of his eye. They call this "Ocular Melanoma." He had the option about 6-7 yrs. ago when he was diagnosed to either have his eye removed or to take it out at surgery, put a radioactive seed over the melanoma, and to put the eye back. He opted for the latter.
He passed by 5 or 6 years with a clean bill of health. Earlier this year, he had abdominal symptoms. The doctors finally determined that the melanoma metastasized to his liver, and that 80% of his liver was cancerous. He was given about 6 months to live.
After getting a variety of opinions, he went to the National Cancer Institute in Bethesda, MD to take part in an experimental study. 6 months later, his 80% liver involvement is now down to 1%, and that might (or might not) even still be regressing.
Too early to call it a cure, but he wasn't expected to last until Christmas.
Joan
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Nov 14, 2003 04:15AM
Joan1212
wrote:
Here is the follow up on my "success story". This is in the IndyStar today.
Click on this site and read the details of this "incredible story"
http://www.indystar.com/articles/5/092646-6765-009.htmlJoan
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sgolden
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Nov 14, 2003 09:25PM
sgolden
wrote:
That is a very cool and inspiring story. Just the reason I say statistics are just statistics, not people. Thank you so much for this post.
C
carmelle
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Nov 28, 2003 03:16PM
carmelle
wrote:
moving to the top.
Michelle
Yesterday is History... Tomorrow is Mystery...Today is a gift.
Dx
3/7/2003, IDC, 6cm+, Stage IIIA, Grade 2, 5/15 nodes, ER+/PR-, HER2-
