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Topic: Long Term BC Survivors

Forum: Who or What Inspires You? —

Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Apr 30, 2008 06:40PM

Jellydonut wrote:

Long-Term BC Survivors:  Hooray for them and may all of us live long enough to be in this great groupl

Betty Ford - 34 years! (diagnosed in 1974)

Nancy Reagan - 21 years!

Shirley Temple-Black 36 years! (diagnosed in 1972)

Ruby Dee - over 30 years!

Sandra Day O'Connor - 26 years! (diagnosed in 1982)

Jill Eikenberry - 22 years!

Kate Jackson - 21 years!

Ann Jillian - 23 years! (diagnosed in 1985 at 35 years old; had a child in 1992)

Richard Roundtree - 15 years!

Marcia Wallace - 23 years!

Diahann Carroll - 10 years!

Rue McClanehan - 11 years!

Olivia Newton John - 15 years!

Linda Ellerbee - 17 years!

If there are other famous long-term survivors' that I've missed, please add to the list.

Dx 3/2002, IDC, Stage IV, 3/8 nodes, mets, ER+/PR+, HER2-
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May 28, 2008 12:08PM sherry2007 wrote:

How long before you're concerned a survivor?

There should be a better way to start a day than waking up every morning Dx 10/12/2007, ILC, 5cm, Stage II, Grade 3, HER2+
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Jun 9, 2008 07:42PM Jellydonut wrote:

Sherry,

You're a survivor at the moment of diagnosis as cancer has been in the body for quite a long time.  At least that's my take on "survivorship."

Good luck to you.

Dx 3/2002, IDC, Stage IV, 3/8 nodes, mets, ER+/PR+, HER2-
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Jul 8, 2008 03:59PM - edited Jul 8, 2008 04:08PM by lagunamil

jellydonut  --  how about being a survivor for almost 50 years and then being diagnosed with a recurrence in the old radical mastectomy area?  Has this happened to anyone else?

lagunamil

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Sep 19, 2008 01:51AM pinoideae wrote:

bump for success stories

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Oct 13, 2008 10:13AM LisaH wrote:

I'm coming up on 6 years next month!  Diagnosed at age 33.

Lisa H. Dx 11/6/2002, IDC, Left, 1cm, Stage IA, Grade 2, 0/11 nodes, ER+/PR+, HER2+ Surgery 11/6/2002 Mastectomy: Left Chemotherapy 12/13/2002 AC Hormonal Therapy 2/14/2003
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Oct 21, 2008 07:24PM - edited Sep 23, 2010 07:52PM by msphil

Hi, All I,m a 16yr survivor this december(Praise the Lord) L mast, with reconstruction(my body rejected it) taken out, chemo, radiation, Tamoxifen for 5yrs, hot flashes, vaginal dryness, all during making wedding plans to my wonderful husband, I believe you are a survivor each day that U make another day, it should start there.  idc,stage2,0/3 nodes, adriamycin,cytoxin,rads.  msphil

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Jan 2, 2010 08:58AM - edited Jan 2, 2010 08:59AM by dreaming

In  April I will be ,God willing  17 years from diagnosis, during this time I had 2 biopsies, I know that a recurrence can happen no matter how many years I have been in remission, for this reason I see my surgeon in April, and 6 months later my oncologist.

It is important to have follow ups, not be paranoid about it,but cautious. 

After the mastectomy a second diferent cancer was found: Invasive Ductal Carcinoma, C.F.M.: Dx 7/7/1991, ILC, Right, 1cm, Stage IA, Grade 1, 0/18 nodes, ER+/PR+, HER2-
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Jan 18, 2010 07:48PM Makratz wrote:

bump

Inspiring stories!

Linda...♥♥♥ Never, never, never give up ~ Winston Churchill
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Apr 28, 2010 12:52PM LisaH wrote:

Bump...

Haven't been here in a while!  Just wanted to stop in and say hi....and say life is good.

November will be my 8 year anniversary.  Wink

Lisa H. Dx 11/6/2002, IDC, Left, 1cm, Stage IA, Grade 2, 0/11 nodes, ER+/PR+, HER2+ Surgery 11/6/2002 Mastectomy: Left Chemotherapy 12/13/2002 AC Hormonal Therapy 2/14/2003
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Apr 28, 2010 12:59PM carly1972 wrote:

I am 56 years old and a survivor of 9 years. I had a mastectomy with reconstruction, and then had an implant in the "good" breast to match up the recon on the other. For the first time in my adult life I am without health ins. and have been turned down by numerous ins. companies until I hit my 10 year. Now, the implant in my good breast has gone "flat". Does anyone know what happens if you don't have it removed? I am terrified about leaving it in, but without health ins. I don't know how to get it done.

carly1972
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May 3, 2010 09:34AM - edited Sep 30, 2014 02:04PM by Moderators

Carly, hugs g/friend. I am currently going through a sep/divorce and that is one of my greatest fears, to lose health insurance. I am not sure what I can offer right at the moment, however I do know a couple of ladies that went through similar so I will leave my e_mail for you and if you would like to respond to it I will put you in touch with some ladies who might be able to help. One thing I am sure about is you need that recon out and cleaned up especially if it was silicone, which was used pretty widely back then. My name's kathy. Hugs xoxoxox

Edited by Mods to remove personal email address. Please do not provide personal contact information on the public threads. If you wish to share contact information, please do so via Private Message.

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Jul 14, 2010 10:04AM - edited Jul 14, 2010 10:05AM by Margarida-HB

I was 26 when diagnosed with BC. 16 years ago no such thing as a girl in her 20's with BC and furthermore, not one who would survive very long.  Now, unfortunately, its more common for a 20 something to have bc.   That was 16 years ago and am considered one of the longest surviving bc survivors in Canada, according to some doctors at PMH.

 I still get rejected for life insurance and to be honest, haven't bothered to fight it as have no time to argue with the ignorant.  Maybe I should?

Dx 12/6/1996, IDC, 4cm, Stage IV, 0/12 nodes, ER+
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Aug 26, 2010 08:30AM - edited Aug 26, 2010 08:31AM by dreaming

Do you know of anybody that was diagnosed with ovarian cancer after breast? I am really worried, I had the signs and had to force my family doctor to order a CT, well I have ascites in the pelvis, "some"according to her, I am going to see an OB,and have the marker for ovarian done, I know there is a higher risk for breast cancer and vice versa. I am terrified, I was not with breast cancer , ignorance was a blessing.but now I know too much.

After the mastectomy a second diferent cancer was found: Invasive Ductal Carcinoma, C.F.M.: Dx 7/7/1991, ILC, Right, 1cm, Stage IA, Grade 1, 0/18 nodes, ER+/PR+, HER2-
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May 13, 2011 11:08AM starella wrote:

bump

Dx 9/8/2010, IDC, <1cm, Stage I, Grade 3, 0/2 nodes, ER-/PR-, HER2+
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Oct 3, 2012 12:00PM LisaH wrote:

10 years this month. I don't hang around the board often, but drop by once in a while to post. A lot has happened in 10 years, aside from the life we all know. My sister had babies (twins) born, a baby die, and then a fourth child (healthy), my Father was diagnosed with prostate cancer (now 4 years NED), lost my Mother, watched my children move from elementary school, to middle school, high school and now college. My daughter was in kindergarten when I was diagnosed. She's now in the 10th grade. My son was a third grader and now is a freshman (Knob) at The Citadel.

Time marches on....I'm still marching to the beat. Keep marching girls!!!!!

Lisa H. Dx 11/6/2002, IDC, Left, 1cm, Stage IA, Grade 2, 0/11 nodes, ER+/PR+, HER2+ Surgery 11/6/2002 Mastectomy: Left Chemotherapy 12/13/2002 AC Hormonal Therapy 2/14/2003
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Oct 4, 2012 08:17AM CherylinOhio wrote:

Lisa H, what a wonderful 10 years you have had!! I am so happy to hear that and hope I can come back in 5 and yes even 10 years to share my story with others.

Some days there won't be a song in your heart...sing anyways. Emory Austin Dx 3/29/2011, 4cm, Stage IIIC, Grade 3, 17/23 nodes, ER+/PR+, HER2- Chemotherapy 5/24/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 9/21/2011 Breast, Lymph nodes Surgery 3/18/2012 Reconstruction (right): Latissimus dorsi flap Surgery 9/17/2012 Mastectomy: Left; Reconstruction (left); Reconstruction (right) Surgery 12/19/2012 Prophylactic ovary removal Hormonal Therapy 1/1/2013 Arimidex (anastrozole)
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Jul 7, 2013 05:13PM Colt45 wrote:

We know they're out there. LisaH, bless her, keeps checking in... after 6 years, 8 years, then 10 years.

I wish more LisaH's would post an encouraging message.

I think it would help balance out some of the other stories. This is a wonderful place for support and understanding. And naturally, the lion's share of the discussions will be women in crisis. And the fact that everyone receives so much support is so beautiful. I am grateful for all of you.

I just wish more of the successes were chronicled.

My dad's cousin is a 27 year survivor. My sister's friend's mom is over 30 years now.

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/7/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/13/2012 AC Chemotherapy 2/7/2013 Taxol (paclitaxel)
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Jul 7, 2013 11:15PM - edited Jul 7, 2013 11:15PM by ruthbru

My aunt was diagnosed with BC in the 1960's. She had a masectomy with no further treatment (standard of care at the time). She died a few years ago at the age of 88, never having a recurrence.

My grandfather was diagnosed with stomach cancer in the 1950s. He had surgery, was sent home to die, and he did....30 years later, at the age of 93, of old age!

A friend of mine is a 35 year BC survivor....not only has she survived, she had two healthy children following her treatments...kids who are now grown up with children of their own.

I am 6 1/2 years out, and so far, so good!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jul 8, 2013 08:30AM Colt45 wrote:

@ruthbru: those are very nice stories to hear. Thank you.

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/7/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/13/2012 AC Chemotherapy 2/7/2013 Taxol (paclitaxel)
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Jul 23, 2013 08:01PM CherylinOhio wrote:

I have heard about many women who wre treated back in the day of no chemo just a radical mx and they live to ripe old ages. I am beginning to wonder if the chemo and rads and meds we take now a days is worse than just surgery???

Some days there won't be a song in your heart...sing anyways. Emory Austin Dx 3/29/2011, 4cm, Stage IIIC, Grade 3, 17/23 nodes, ER+/PR+, HER2- Chemotherapy 5/24/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 9/21/2011 Breast, Lymph nodes Surgery 3/18/2012 Reconstruction (right): Latissimus dorsi flap Surgery 9/17/2012 Mastectomy: Left; Reconstruction (left); Reconstruction (right) Surgery 12/19/2012 Prophylactic ovary removal Hormonal Therapy 1/1/2013 Arimidex (anastrozole)
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Jul 25, 2013 10:20AM claireinaz wrote:

Cherylinohio, no...i think they were just lucky.

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Jul 31, 2013 02:22PM ahdjdbcjdjdbkf wrote:

One very important note about long-term survivors who were diagnosed 20+ years ago - many of them were DCIS only and never knew the difference between DCIS and IDC. I love long-term survivor stories but honestly they give me more hope if the person actually knew she had IDC. Still, I'm very happy for all the DCIS only women with such a great prognosis!! That's why when people try to give me hope telling me about their 80 year old neighbor diagnosed 40 years ago I take it with a major grain of salt - sadly, it was usually a case of DCIS. That being said, my sister was diagnosed with DCIS at 36 and IDC at 46. She is 56 and NED 10 years.

Dx 3/2/2012, IDC, Right, 3cm, Stage IIA, Grade 3, 1/12 nodes, ER-/PR-, HER2+ (FISH) Dx 3/2/2012, IDC, 1cm, Stage IIA, Grade 3, 1/12 nodes, ER-/PR-, HER2+ Surgery 3/22/2012 Mastectomy: Left, Right Chemotherapy 4/5/2012 AC + T (Taxol) Targeted Therapy 6/27/2012 Herceptin (trastuzumab) Radiation Therapy 10/7/2012 3DCRT: Breast, Lymph nodes Surgery 1/27/2013 Reconstruction (left); Reconstruction (right) Surgery 8/6/2013 Reconstruction (right): Latissimus dorsi flap Surgery 8/6/2013 Reconstruction (left) Surgery 2/24/2014 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction
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Jul 31, 2013 03:07PM - edited Jul 31, 2013 03:14PM by Colt45

*sigh*

Now I wonder how many 20+ year survivors think they were invasive----but really were not.

And I wonder what this does to survival rates in general.

The more I think about it, the more my hopes are dashed.




Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/7/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/13/2012 AC Chemotherapy 2/7/2013 Taxol (paclitaxel)
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Aug 13, 2013 04:47PM kaza wrote:

I work with the elderly, i see so many ladies who had mastectomy 20 ...30 ....years ago, it does give us hope, but did these ladies have invasive cancer???? we will never know, x

Dx 7/17/2009, IDC, 2cm, Stage IA, Grade 1, PR+, HER2- Surgery 10/16/2009 Mastectomy: Left; Reconstruction (left): Latissimus dorsi flap
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Aug 13, 2013 10:43PM shoppygirl wrote:

My mother was diagnoised 20 years ago. She had a 1 cm tumor and no lymphnodes. ( although who knows, she may have had micromet but they did not check for such things back then). She had a lumpectomy and 30 rads. She was told to have chemo as her cancer was very aggressive. She choose not to do it. She is still alive and doing well.

Less than 2mm of cancer in the sentinel lymph node. Dx 1/27/2013, IDC, 2cm, Stage IB, Grade 2, 1/3 nodes, ER+, HER2- Surgery 2/27/2013 Mastectomy: Left, Right Chemotherapy 4/8/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 8/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 8/19/2013 Breast, Lymph nodes Surgery 1/29/2014 Prophylactic ovary removal Surgery 9/26/2015 Reconstruction (left): Saline implant, Tissue expander placement; Reconstruction (right): Saline implant, Tissue expander placement Hormonal Therapy 10/16/2015 Femara (letrozole)
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Aug 15, 2013 09:46AM dogsandjogs wrote:

I had invasive cancer 31 years ago. Had a mastectomy and no further treatment other than annual blood tests.

However, I did get a new primary in the other breast in 2011.

Dx 11/1982, IDC, <1cm, Stage I, Grade 2, 0/17 nodes Surgery 11/17/1982 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Nipple reconstruction Dx 11/15/2010, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+ Surgery 2/11/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel
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Aug 23, 2013 04:03PM Cpacino wrote:

My aunt had stage 3 6+cm 17 years ago... Not sure of the pathology but her journey gives me hope daily! She living the dream.

Pathological Complete Response! Forward, Onward, Outward! Dx 9/28/2012, IDC, Left, 3cm, Stage IIIA, Grade 3, 3/8 nodes, ER-/PR-, HER2- Chemotherapy 10/5/2012 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel) Surgery 2/5/2013 Mastectomy: Left, Right Surgery 8/2/2013 Prophylactic ovary removal Radiation Therapy
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Aug 23, 2013 04:11PM BayouBabe wrote:

Love hearing these stories! It takes fear away from us newbies! Thank you for sharing!

BRCA1+, IDC
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Aug 26, 2013 10:20AM hearmeroar wrote:

Does anyone have a survival plan or do you just go day-by-day and hope for the best? Thanks!

Dx 1/14/2013, IDC, 1cm, Stage IIA, Grade 2, 3/12 nodes, ER+/PR+, HER2-
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Aug 26, 2013 11:15AM dogsandjogs wrote:

Exercise, healthy diet, trying to remain as stress-free as possible. Taking calcium w/D.  That's  what I do.  My doctor doesn't believe in a lot of vitamins, supplements, etc. as long as I have a healthy diet.

Dx 11/1982, IDC, <1cm, Stage I, Grade 2, 0/17 nodes Surgery 11/17/1982 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Nipple reconstruction Dx 11/15/2010, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+ Surgery 2/11/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel

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