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Topic: Long Term BC Survivors

Forum: Biographies and Inspiring Stories —

Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Apr 30, 2008 06:40PM

Jellydonut wrote:

Long-Term BC Survivors:  Hooray for them and may all of us live long enough to be in this great groupl

Betty Ford - 34 years! (diagnosed in 1974)

Nancy Reagan - 21 years!

Shirley Temple-Black 36 years! (diagnosed in 1972)

Ruby Dee - over 30 years!

Sandra Day O'Connor - 26 years! (diagnosed in 1982)

Jill Eikenberry - 22 years!

Kate Jackson - 21 years!

Ann Jillian - 23 years! (diagnosed in 1985 at 35 years old; had a child in 1992)

Richard Roundtree - 15 years!

Marcia Wallace - 23 years!

Diahann Carroll - 10 years!

Rue McClanehan - 11 years!

Olivia Newton John - 15 years!

Linda Ellerbee - 17 years!

If there are other famous long-term survivors' that I've missed, please add to the list.

Dx 3/2002, IDC, Stage IV, 3/8 nodes, mets, ER+/PR+, HER2-
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Posts 31 - 46 (46 total)

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Oct 1, 2013 12:41PM LisaH wrote:

LisaH checking in again.  This year marks my 12th year.  I don't come around here often because we are too busy living life.  When I wasn diagnosed at the age of 33, my children were 8 and 5.  Now they are 19 and 16.  My son is a sophomore in college and my daughter is a junior in HS. 

We are out here! And yes, I had IDC, 1.4 cm, stage 1, grade 2, ER/PR+, HER2+, 0/11 nodes.

Stay strong ladies!

Lisa H. Dx 11/6/2002, IDC, Left, 1cm, Stage IA, Grade 2, 0/11 nodes, ER+/PR+, HER2+ Surgery 11/6/2002 Mastectomy: Left Chemotherapy 12/13/2002 AC Hormonal Therapy 2/14/2003
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Oct 4, 2013 10:27PM Youngwithbc wrote:

Love reading these stories, please keep posting more!

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Oct 6, 2013 09:20AM soriya123 wrote:

thank you lisa....your post give me hope to see my kids grow up to middle n high school n college. my kids 11 n 8.

Dx 6/17/2013, IDC, 2cm, Stage II, Grade 3, 0/2 nodes, ER-/PR-, HER2+ Targeted Therapy 7/16/2013 Herceptin (trastuzumab) Chemotherapy 7/16/2013 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 12/3/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right
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Oct 6, 2013 09:32AM jwilco wrote:

I love this! I need to check in here more often. It's so encouraging and helps me when I'm in that awful what if frame of mind.

Thank you all for continuing to check in!
Dx 8/2011, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2-
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Oct 6, 2013 11:05AM dogsandjogs wrote:

I was diagnosed in 1982 and for sure it was an IDC. They knew the difference in those days so I don't think you can say that many of the old-time diagnoses were not IDC. I do sometimes think that the aggressive treatments we have these days make things worse. Not always, but sometimes---and I think the oncs should tell us that---

Dx 11/1982, IDC, <1cm, Stage I, Grade 2, 0/17 nodes Surgery 11/17/1982 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Nipple reconstruction Dx 11/15/2010, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+ Surgery 2/11/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel
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Nov 12, 2013 04:00PM - edited Oct 31, 2014 04:30PM by TectonicShift

This Post was deleted by TectonicShift.
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Nov 12, 2013 10:22PM Youngwithbc wrote:

I wish every story was as great as that one... thanks for sharing!

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Aug 5, 2014 04:33AM songbird68 wrote:

My sister in law was dx 3 years ago with nodes+ and she is doing well. My friend was dx IDC stage 3 four years ago and had no recurrence. Another friend had DCIS and has just hit the ten year mark cancer free. The nurse looking after me in hospital for my ooph was a long term survivor too.

It's a year for me. It does get easier with time doesn't it.

More stories please! Must be time for lisaH to update:)

x x x

multifocal IDC and DCIS. Age 44 at dx. Cancer wanted a piece of me, it won't get the rest of me. Stay strong. Dx 8/7/2013, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+, HER2- (FISH) Surgery 8/19/2013 Mastectomy: Left; Reconstruction (left) Hormonal Therapy 8/28/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/27/2014 Prophylactic ovary removal Surgery 6/19/2014 Prophylactic mastectomy: Right; Reconstruction (right) Surgery 8/3/2014 Reconstruction (right) Hormonal Therapy 9/10/2014 Aromasin (exemestane)
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Dec 27, 2014 05:43PM Lucy55 wrote:

Bump

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/15/2014
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Feb 27, 2015 11:49PM Aeon wrote:

My mom was dx at 45 IDC with 4 nodes. She did chemo and rads and moved on with her life. She had 2 recurrences since then and ultimately had a BMX. She is 72 now, cancer free, and still has a more active social life than I ever will .

I was dx at 39 and am awaiting surgery on 3/17. (BRCA negative, but haven't done the full panel)

Here's hoping that stubborn streak and 'powering through' attitude I obviously inherited from my mom applies to this as well!

Diagnosed 3 weeks before 40th birthday; Oncotype: 4 Dx 2/3/2015, DCIS, 2cm, Grade 3, ER+/PR+, HER2- Dx 2/3/2015, IDC, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/9/2015 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 4/13/2015 Whole-breast: Breast
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Mar 5, 2015 06:53PM 1974Cher wrote:

Amazing to hear your Moms success, thank you I needed that - found out 6 of my nodes were positive yesterday, so this was much needed to hear!

All the best to you Aeon x

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Apr 17, 2015 10:04AM katcar0001 wrote:

My aunt (by marriage) is an 18 year survivor of IDC--only had a mastectomy, no chemo or rads or hormonal therapy. She cried after they sent her home when she realized they weren't giving her chemo. But she has been fine all these years. Her mother was also a long time survivor (died of another cause) and was on Tamoxifen.

Cheers!

IDC left side, ER+/PR+/AR+. Oncotype 17, Ki-67 - 4%, MAPK1 and PIK3CA mutations. UMX 12/4/14, no chemo or rads. Tamoxifen 1/7/2015. Benign tumor removed from rt. side on 2/25/15. Started Anastrozole/Arimidex 7/4/17. Dx 11/22/2014, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 12/3/2014 Lymph node removal: Left, Sentinel; Mastectomy: Left Hormonal Therapy 1/6/2015 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/22/2015 Lumpectomy: Right Surgery 8/2/2015 Reconstruction (left): Tissue expander placement Surgery 11/18/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 3, 2015 01:49AM Suladog wrote:

Just checking in 25 year survivor here, I had TN breast cancer in 1990, no nodal involvement, a mx and 8 rounds of CMF

Dx 6/6/1990, IDC, Left, <1cm, Stage IA, Grade 3, 0/18 nodes, ER-/PR-, HER2- Surgery 7/20/1990 Mastectomy: Left Chemotherapy 8/19/1990 CMF Dx 10/5/2014, IDC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Surgery 10/28/2014 Mastectomy: Right Chemotherapy 1/28/2015 Taxol (paclitaxel) Targeted Therapy 1/29/2015 Herceptin (trastuzumab) Hormonal Therapy 5/30/2015 Arimidex (anastrozole)
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Jan 7, 2018 05:26PM nez_khot wrote:

Hey

Margarida-HB


Very Inspiring to know you are in your 16th year of Cancer free survival.

Were you Her2+ what was your ER PR state and what stage were you at?

Also all these years did you do anything specific for lifestyle and diet ?

What treatment did you do, I mean what chemo drugs, how many cycles , radiation etc.

can we connect over the phone if you are comfortable talking.


Neha Khot

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Jan 7, 2018 05:30PM nez_khot wrote:

Hi Suladog,

After 1990 did it reoccur in 2014?

what was the initial diagnosis and what chemo drugs did you take and what were the side effects?

Also if and when it came back , what stage were you at and did you again do chemo?


Regards,

Neha Khot

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Jan 8, 2018 11:43AM - edited Jan 8, 2018 11:46AM by dogsandjogs

Got a message from Neha Knot today and it reminded me to check in. To recap: 11mm breast cancer in right breast in 1982. Felt a lump and went to a surgeon whom I had gone to previously to have breast cysts drained from time to time in his office. This lump felt different; eg. hard, irregular, non-moveable. He removed it in his office and sent it in. Verdict was cancer. I then went for a bone scan and kidney scan because he told me if cancer was found elsewhere there would be no point in doing the surgery!! Luckily the scans were negative and I had the surgery about a week later. I had decided to have a modified radical mastectomy (no removal of the muscle which was sometimes done). They removed and dissected 17 lymph nodes, none were malignant. I had the reconstruction done right after the surgery and the 2nd part done the following year. Reconstruction was so easy in those days. I had no lymphedema. Didn't even know the word in those days.

Follow-up were annual mammograms (on the OTHER breast only) and annual blood tests.

Then in 2010 I felt a lump in the other breast. Had the lumpectomy and decided to not do radiation. Tried Aromasin for 2 moths, but the side effects were just too hard to deal with.

I only have a mammogram every other year.Both cancers were missed by yearly mammograms so I don't think they really work for me. Am trying to get my insurance to pay for MRI's instead.



Dx 11/1982, IDC, <1cm, Stage I, Grade 2, 0/17 nodes Surgery 11/17/1982 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Nipple reconstruction Dx 11/15/2010, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+ Surgery 2/11/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel

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