Topic: Long Term BC Survivors

Forum: Who or What Inspires You? — Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Apr 30, 2008 07:40PM

Posted on: Apr 30, 2008 07:40PM

Jellydonut wrote:

Long-Term BC Survivors:  Hooray for them and may all of us live long enough to be in this great groupl

Betty Ford - 34 years! (diagnosed in 1974)

Nancy Reagan - 21 years!

Shirley Temple-Black 36 years! (diagnosed in 1972)

Ruby Dee - over 30 years!

Sandra Day O'Connor - 26 years! (diagnosed in 1982)

Jill Eikenberry - 22 years!

Kate Jackson - 21 years!

Ann Jillian - 23 years! (diagnosed in 1985 at 35 years old; had a child in 1992)

Richard Roundtree - 15 years!

Marcia Wallace - 23 years!

Diahann Carroll - 10 years!

Rue McClanehan - 11 years!

Olivia Newton John - 15 years!

Linda Ellerbee - 17 years!

If there are other famous long-term survivors' that I've missed, please add to the list.

Dx 3/2002, IDC, Stage IV, 3/8 nodes, mets, ER+/PR+, HER2-
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Jul 25, 2013 11:20AM claireinaz wrote:

Cherylinohio, no...i think they were just lucky.

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Jul 31, 2013 03:22PM ahdjdbcjdjdbkf wrote:

One very important note about long-term survivors who were diagnosed 20+ years ago - many of them were DCIS only and never knew the difference between DCIS and IDC. I love long-term survivor stories but honestly they give me more hope if the person actually knew she had IDC. Still, I'm very happy for all the DCIS only women with such a great prognosis!! That's why when people try to give me hope telling me about their 80 year old neighbor diagnosed 40 years ago I take it with a major grain of salt - sadly, it was usually a case of DCIS. That being said, my sister was diagnosed with DCIS at 36 and IDC at 46. She is 56 and NED 10 years.

Dx 3/2/2012, IDC, Right, 3cm, Stage IIA, Grade 3, 1/12 nodes, ER-/PR-, HER2+, Dx 3/2/2012, IDC, 1cm, Stage IIA, Grade 3, 1/12 nodes, ER-/PR-, HER2+ Surgery 3/23/2012 Mastectomy: Left, Right Chemotherapy 4/6/2012 AC + T (Taxol) Targeted Therapy 6/28/2012 Herceptin (trastuzumab) Radiation Therapy 10/8/2012 3DCRT: Breast, Lymph nodes Surgery 1/28/2013 Reconstruction (left); Reconstruction (right) Surgery 8/7/2013 Reconstruction (right): Latissimus dorsi flap Surgery 8/7/2013 Reconstruction (left) Surgery 2/25/2014 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction
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Jul 31, 2013 04:07PM - edited Jul 31, 2013 04:14PM by colt45

*sigh*

Now I wonder how many 20+ year survivors think they were invasive----but really were not.

And I wonder what this does to survival rates in general.

The more I think about it, the more my hopes are dashed.




Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/7/2012 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 12/13/2012 AC Chemotherapy 2/7/2013 Taxol (paclitaxel)
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Aug 13, 2013 05:47PM kaza wrote:

I work with the elderly, i see so many ladies who had mastectomy 20 ...30 ....years ago, it does give us hope, but did these ladies have invasive cancer???? we will never know, x

Dx 7/17/2009, IDC, 2cm, Stage IA, Grade 1, PR+, HER2- Surgery 10/17/2009 Mastectomy: Left; Reconstruction (left): Latissimus dorsi flap
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Aug 13, 2013 11:43PM shoppygirl wrote:

My mother was diagnoised 20 years ago. She had a 1 cm tumor and no lymphnodes. ( although who knows, she may have had micromet but they did not check for such things back then). She had a lumpectomy and 30 rads. She was told to have chemo as her cancer was very aggressive. She choose not to do it. She is still alive and doing well.

Less than 2mm of cancer in the sentinel lymph node. Dx 1/27/2013, IDC, 2cm, Stage IB, Grade 2, 1/3 nodes, ER+, HER2- Surgery 2/28/2013 Mastectomy: Left, Right Chemotherapy 4/9/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 8/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 8/20/2013 Breast, Lymph nodes Surgery 1/30/2014 Prophylactic ovary removal Surgery 9/26/2015 Reconstruction (left): Saline implant, Tissue expander placement; Reconstruction (right): Saline implant, Tissue expander placement Hormonal Therapy 10/16/2015 Femara (letrozole)
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Aug 15, 2013 10:46AM dogsandjogs wrote:

I had invasive cancer 31 years ago. Had a mastectomy and no further treatment other than annual blood tests.

However, I did get a new primary in the other breast in 2011.

Dx 11/1982, IDC, <1cm, Stage I, Grade 2, 0/17 nodes Surgery 11/17/1982 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Nipple reconstruction Dx 11/15/2010, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+ Surgery 2/11/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel
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Aug 23, 2013 05:03PM Cpacino wrote:

My aunt had stage 3 6+cm 17 years ago... Not sure of the pathology but her journey gives me hope daily! She living the dream.

Pathological Complete Response! Forward, Onward, Outward! Dx 9/28/2012, IDC, Left, 3cm, Stage IIIA, Grade 3, 3/8 nodes, ER-/PR-, HER2- Chemotherapy 10/5/2012 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Gemzar (gemcitabine), Taxotere (docetaxel) Surgery 2/5/2013 Mastectomy: Left, Right Surgery 8/2/2013 Prophylactic ovary removal Radiation Therapy
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Aug 23, 2013 05:11PM BayouBabe wrote:

Love hearing these stories! It takes fear away from us newbies! Thank you for sharing!

BRCA1+, IDC
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Aug 26, 2013 11:20AM hearmeroar wrote:

Does anyone have a survival plan or do you just go day-by-day and hope for the best? Thanks!

Dx 1/14/2013, IDC, 1cm, Stage IIA, Grade 2, 3/12 nodes, ER+/PR+, HER2-
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Aug 26, 2013 12:15PM dogsandjogs wrote:

Exercise, healthy diet, trying to remain as stress-free as possible. Taking calcium w/D.  That's  what I do.  My doctor doesn't believe in a lot of vitamins, supplements, etc. as long as I have a healthy diet.

Dx 11/1982, IDC, <1cm, Stage I, Grade 2, 0/17 nodes Surgery 11/17/1982 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Nipple reconstruction Dx 11/15/2010, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+ Surgery 2/11/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel

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