Topic: Long Term BC Survivors

Forum: Who or What Inspires You? — Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: May 1, 2008 12:40AM

Posted on: May 1, 2008 12:40AM

Jellydonut wrote:

Long-Term BC Survivors:  Hooray for them and may all of us live long enough to be in this great groupl

Betty Ford - 34 years! (diagnosed in 1974)

Nancy Reagan - 21 years!

Shirley Temple-Black 36 years! (diagnosed in 1972)

Ruby Dee - over 30 years!

Sandra Day O'Connor - 26 years! (diagnosed in 1982)

Jill Eikenberry - 22 years!

Kate Jackson - 21 years!

Ann Jillian - 23 years! (diagnosed in 1985 at 35 years old; had a child in 1992)

Richard Roundtree - 15 years!

Marcia Wallace - 23 years!

Diahann Carroll - 10 years!

Rue McClanehan - 11 years!

Olivia Newton John - 15 years!

Linda Ellerbee - 17 years!

If there are other famous long-term survivors' that I've missed, please add to the list.

Dx 3/2002, IDC, Stage IV, 3/8 nodes, mets, ER+/PR+, HER2-
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Mar 6, 2015 12:53AM 1974Cher wrote:

Amazing to hear your Moms success, thank you I needed that - found out 6 of my nodes were positive yesterday, so this was much needed to hear!

All the best to you Aeon x

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Apr 17, 2015 04:04PM katcar0001 wrote:

My aunt (by marriage) is an 18 year survivor of IDC--only had a mastectomy, no chemo or rads or hormonal therapy. She cried after they sent her home when she realized they weren't giving her chemo. But she has been fine all these years. Her mother was also a long time survivor (died of another cause) and was on Tamoxifen.

Cheers!

IDC left side, ER+/PR+/AR+. Oncotype 17, Ki-67 - 4%, MAPK1 and PIK3CA mutations. UMX 12/4/14, no chemo or rads. Tamoxifen 1/7/2015. Benign tumor removed from rt. side on 2/25/15. Started Anastrozole/Arimidex 7/4/17. Dx 11/22/2014, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-, Surgery 12/4/2014 Lymph node removal: Left, Sentinel; Mastectomy: Left Hormonal Therapy 1/7/2015 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 2/23/2015 Lumpectomy: Right Surgery 8/3/2015 Reconstruction (left): Tissue expander placement Surgery 11/19/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Aug 3, 2015 07:49AM Suladog wrote:

Just checking in 25 year survivor here, I had TN breast cancer in 1990, no nodal involvement, a mx and 8 rounds of CMF

Dx 6/6/1990, IDC, Left, <1cm, Stage IA, Grade 3, 0/18 nodes, ER-/PR-, HER2- Surgery 7/20/1990 Mastectomy: Left Chemotherapy 8/19/1990 CMF Dx 10/5/2014, IDC, Right, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2+, Surgery 10/28/2014 Mastectomy: Right Chemotherapy 1/28/2015 Taxol (paclitaxel) Targeted Therapy 1/29/2015 Herceptin (trastuzumab) Hormonal Therapy 5/30/2015 Arimidex (anastrozole)
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Jan 7, 2018 11:26PM nez_khot wrote:

Hey

Margarida-HB


Very Inspiring to know you are in your 16th year of Cancer free survival.

Were you Her2+ what was your ER PR state and what stage were you at?

Also all these years did you do anything specific for lifestyle and diet ?

What treatment did you do, I mean what chemo drugs, how many cycles , radiation etc.

can we connect over the phone if you are comfortable talking.


Neha Khot

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Jan 7, 2018 11:30PM nez_khot wrote:

Hi Suladog,

After 1990 did it reoccur in 2014?

what was the initial diagnosis and what chemo drugs did you take and what were the side effects?

Also if and when it came back , what stage were you at and did you again do chemo?


Regards,

Neha Khot

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Jan 8, 2018 05:43PM - edited Jan 8, 2018 05:46PM by dogsandjogs

Got a message from Neha Knot today and it reminded me to check in. To recap: 11mm breast cancer in right breast in 1982. Felt a lump and went to a surgeon whom I had gone to previously to have breast cysts drained from time to time in his office. This lump felt different; eg. hard, irregular, non-moveable. He removed it in his office and sent it in. Verdict was cancer. I then went for a bone scan and kidney scan because he told me if cancer was found elsewhere there would be no point in doing the surgery!! Luckily the scans were negative and I had the surgery about a week later. I had decided to have a modified radical mastectomy (no removal of the muscle which was sometimes done). They removed and dissected 17 lymph nodes, none were malignant. I had the reconstruction done right after the surgery and the 2nd part done the following year. Reconstruction was so easy in those days. I had no lymphedema. Didn't even know the word in those days.

Follow-up were annual mammograms (on the OTHER breast only) and annual blood tests.

Then in 2010 I felt a lump in the other breast. Had the lumpectomy and decided to not do radiation. Tried Aromasin for 2 moths, but the side effects were just too hard to deal with.

I only have a mammogram every other year.Both cancers were missed by yearly mammograms so I don't think they really work for me. Am trying to get my insurance to pay for MRI's instead.



Dx 11/1982, IDC, <1cm, Stage I, Grade 2, 0/17 nodes Surgery 11/17/1982 Lymph node removal: Right; Mastectomy: Right; Reconstruction (right): Nipple reconstruction Dx 11/15/2010, IDC, <1cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+ Surgery 2/11/2011 Lumpectomy: Left; Lymph node removal: Left, Sentinel
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Feb 13, 2019 11:29PM - edited Feb 13, 2019 11:30PM by conscorner

I was diagnosed in 2007 with invasive lobular stage 1, grade 2. At first it was going to be a lumpectomy, but after the MRI, it turned into a mastectomy. I opted for both breasts. I never had chemo or radiation. I was given tamoxifen and zolodex shots. It was 11 years last September and I'm grateful to be here. Back in 2007, I celebrated my 53rd birthday in the hospital. I'm 64 now, thankful.

Long Term BC Survivors


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