Topic: Could lymph node positive survivors share their story?

Forum: Who or What Inspires You? — Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Apr 24, 2011 12:41AM

Posted on: Apr 24, 2011 12:41AM

Rachel1 wrote:

I was dx in May 2010 with IDC stage 2, grade 3, BRCA2+, ER+ with 7 positive nodes. I would like to hear from long term survivors as this has been a very scary journey. Thank you so much!!!

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May 15, 2011 02:56PM Mamita49 wrote:

Hello,

 Rachel I am not very happy to see that since April no one has written anything.

Please........ Me too, I had 2 nodes involved, and when I read about long term survivor and DICS and am not surprised, but we node + need also some encouraging stories. 

small little liver buggers Dx 12/15/2008, IDC, 3cm, Grade 3, 2/7 nodes, ER+/PR+, HER2- Dx 12/2012, IDC, Stage IV, Grade 3, 0/0 nodes, mets, ER+/PR-, HER2-
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May 15, 2011 03:00PM christina1961 wrote:

I know they are on here, because I've read their posts!  My sister was stage 3C ER+ - it has been more than four years since her surgery and she had 10 + nodes out of 12 ILC.

Dx 2/5/2011, IDC, 2cm, Stage IIB, Grade 3, 2/16 nodes, ER+/PR-, HER2-
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May 15, 2011 03:22PM mrsnjband wrote:

I had 5 positive nodes and it has almost been 3 years since my BMX.  NJ

Norma June, Bi-lateral MX 2008, Bi-lateral DIEP 2011 Dx 1/10/2008, IBC, <1cm, Stage IIIB, ER-/PR-, HER2- Chemotherapy 1/25/2008 AC Chemotherapy 3/10/2008 Taxol (paclitaxel) Chemotherapy 5/29/2008 Taxotere (docetaxel) Surgery 7/10/2008 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 8/11/2008 Surgery 8/15/2011 Reconstruction (right): DIEP flap Surgery 8/15/2011 Reconstruction (left): DIEP flap Surgery 12/12/2011 Reconstruction (left)
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May 15, 2011 03:29PM sschmidt wrote:

Hello...just stopped in and saw this....I am 5+ years out.  Perhaps one of the reason there is not a lot of response is due to ...the longer one is NED the less they visit this site.  Just a thought.

 I was sooo worried as well the first two years.  Still cross my fingers when I go for blood tests etc.

Dx 2/10/2006, IDC, <1cm, Stage IIA, Grade 2, 2/16 nodes, ER+/PR+, HER2-
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May 15, 2011 03:35PM elmcity69 wrote:

well, i'm not a long termer (yet! Laughing) but i am going strong, feeling well, and living life.

cancer is a sneaky bastard. you'll see gals on the stage iv thread with no nodes, and women with several nodes cancer free for many years. hard to know why, i think.

just keep on, keeping on.

i blithely ignore all stats/research articles/etc etc. if i'm here and healthy, i don't really care...and if something changes, God forbid, i'll tackle it then.

good luck to you! hugs...

janyce

Dx 9/24/2009, ILC, 2cm, Stage IIIC, Grade 3, 15/19 nodes, ER+/PR-, HER2+
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May 15, 2011 03:40PM Rachel1 wrote:

It's strange how things work out. I posted here weeks ago and there was no response. Today I am having an absolutely horrible day and wondering how to go on and when I look at the boards, I have all of you offering support. Thank you. This means so much to me.  Love, Rachel

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May 15, 2011 03:45PM kirismum wrote:

Here's a long thread that might be helpful and encouraging for you:

 http://community.breastcancer.org/forum/108/topic/743397?page=29#idx_870

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May 15, 2011 03:48PM ma111 wrote:

I had 19 of 19 nodes positive. Dx in August 2009. Currently undergoing Herceptin and trying to get in a vaccine trail.

Worrying is a natural part of having cancer. Hang in there. Er+ is a good thing as there is a lot of treatment for it.

Dx 8/4/2009, IBC, <1cm, Stage IV, 19/19 nodes, ER-/PR-, HER2+
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May 17, 2011 04:24PM azs40 wrote:

Rachel1...go over to the "Success Stories" board - there are lots of great stories there. I'm almost three years out and every once in awhile I still go over for a little inspiration Smile. Hang in there...
azs40 Dx 8/2008, IDC, Left, 1cm, Stage IIIA, Grade 2, 4/28 nodes, ER+/PR+, HER2- Dx 11/2017, Stage IV, ER+/PR-, HER2-
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May 21, 2011 11:14PM kathleen1966 wrote:

Yes, I just came from there.  lots of stories of positive nodes.  This site hasn't been around that long has it?  Most of the stories of long term node positive women were told to women on here (why would a woman who had cancer 33 years ago join this site...).  My oncologist has a patient with 25 positive nodes that is on year nine of remission. Also her2+.  Hope its true and she didn't say it just to make me feel better Laughing
Dx 7/26/2010, IDC, 1cm, Stage IIIA, Grade 2, 4/15 nodes, ER-/PR-, HER2- Dx 7/26/2010, DCIS, 6cm+, Stage IIIA, Grade 2, 4/15 nodes, ER-/PR-, HER2- Dx 7/26/2010, Paget's, 1cm, Stage IIIA, Grade 2, 4/15 nodes, ER-/PR-, HER2- Surgery 8/23/2010 Lymph node removal; Lymph node removal (Left): Sentinel, Underarm/Axillary; Mastectomy; Mastectomy (Left) Targeted Therapy 9/7/2010 Herceptin (trastuzumab) Chemotherapy 9/7/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 3/1/2011 Breast, Lymph nodes

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