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Topic: Could lymph node positive survivors share their story?

Forum: Who or What Inspires You? —

Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Apr 24, 2011 12:41AM

Rachel1 wrote:

I was dx in May 2010 with IDC stage 2, grade 3, BRCA2+, ER+ with 7 positive nodes. I would like to hear from long term survivors as this has been a very scary journey. Thank you so much!!!

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May 15, 2011 02:56PM Mamita49 wrote:


 Rachel I am not very happy to see that since April no one has written anything.

Please........ Me too, I had 2 nodes involved, and when I read about long term survivor and DICS and am not surprised, but we node + need also some encouraging stories. 

small little liver buggers Dx 12/15/2008, IDC, 3cm, Grade 3, 2/7 nodes, ER+/PR+, HER2- Dx 12/2012, IDC, Stage IV, Grade 3, 0/0 nodes, mets, ER+/PR-, HER2-
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May 15, 2011 03:00PM christina1961 wrote:

I know they are on here, because I've read their posts!  My sister was stage 3C ER+ - it has been more than four years since her surgery and she had 10 + nodes out of 12 ILC.

Dx 2/5/2011, IDC, 2cm, Stage IIB, Grade 3, 2/16 nodes, ER+/PR-, HER2-
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May 15, 2011 03:22PM mrsnjband wrote:

I had 5 positive nodes and it has almost been 3 years since my BMX.  NJ

Norma June, Bi-lateral MX 2008, Bi-lateral DIEP 2011 Dx 1/10/2008, IBC, <1cm, Stage IIIB, ER-/PR-, HER2- Chemotherapy 1/25/2008 AC Chemotherapy 3/10/2008 Taxol (paclitaxel) Chemotherapy 5/29/2008 Taxotere (docetaxel) Surgery 7/10/2008 Lymph node removal: Right; Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 8/11/2008 Surgery 8/15/2011 Reconstruction (right): DIEP flap Surgery 8/15/2011 Reconstruction (left): DIEP flap Surgery 12/12/2011 Reconstruction (left)
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May 15, 2011 03:29PM sschmidt wrote:

Hello...just stopped in and saw this....I am 5+ years out.  Perhaps one of the reason there is not a lot of response is due to ...the longer one is NED the less they visit this site.  Just a thought.

 I was sooo worried as well the first two years.  Still cross my fingers when I go for blood tests etc.

Dx 2/10/2006, IDC, <1cm, Stage IIA, Grade 2, 2/16 nodes, ER+/PR+, HER2-
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May 15, 2011 03:35PM elmcity69 wrote:

well, i'm not a long termer (yet! Laughing) but i am going strong, feeling well, and living life.

cancer is a sneaky bastard. you'll see gals on the stage iv thread with no nodes, and women with several nodes cancer free for many years. hard to know why, i think.

just keep on, keeping on.

i blithely ignore all stats/research articles/etc etc. if i'm here and healthy, i don't really care...and if something changes, God forbid, i'll tackle it then.

good luck to you! hugs...


Dx 9/24/2009, ILC, 2cm, Stage IIIC, Grade 3, 15/19 nodes, ER+/PR-, HER2+
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May 15, 2011 03:40PM Rachel1 wrote:

It's strange how things work out. I posted here weeks ago and there was no response. Today I am having an absolutely horrible day and wondering how to go on and when I look at the boards, I have all of you offering support. Thank you. This means so much to me.  Love, Rachel

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May 15, 2011 03:45PM kirismum wrote:

Here's a long thread that might be helpful and encouraging for you:

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May 15, 2011 03:48PM ma111 wrote:

I had 19 of 19 nodes positive. Dx in August 2009. Currently undergoing Herceptin and trying to get in a vaccine trail.

Worrying is a natural part of having cancer. Hang in there. Er+ is a good thing as there is a lot of treatment for it.

Dx 8/4/2009, IBC, <1cm, Stage IV, 19/19 nodes, ER-/PR-, HER2+
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May 17, 2011 04:24PM azs40 wrote:

Rachel1...go over to the "Success Stories" board - there are lots of great stories there. I'm almost three years out and every once in awhile I still go over for a little inspiration Smile. Hang in there...
azs40 Dx 8/2008, IDC, Left, 1cm, Stage IIIA, Grade 2, 4/28 nodes, ER+/PR+, HER2- Dx 11/2017, Stage IV, ER+/PR-, HER2-
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May 21, 2011 11:14PM kathleen1966 wrote:

Yes, I just came from there.  lots of stories of positive nodes.  This site hasn't been around that long has it?  Most of the stories of long term node positive women were told to women on here (why would a woman who had cancer 33 years ago join this site...).  My oncologist has a patient with 25 positive nodes that is on year nine of remission. Also her2+.  Hope its true and she didn't say it just to make me feel better Laughing
Dx 7/26/2010, IDC, 1cm, Stage IIIA, Grade 2, 4/15 nodes, ER-/PR-, HER2+ Dx 7/26/2010, DCIS, 6cm+, Stage IIIA, Grade 2, 4/15 nodes, ER-/PR-, HER2+ Dx 7/26/2010, Paget's, 1cm, Stage IIIA, Grade 2, 4/15 nodes, ER-/PR-, HER2+ Surgery 8/23/2010 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 9/7/2010 Herceptin (trastuzumab) Chemotherapy 9/7/2010 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 3/1/2011 Breast, Lymph nodes
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May 23, 2011 05:26PM lolita85 wrote:

Hi, I just read this! I'm, stage 3a with 7+ nodes. I had neo chemo, masectomy, more chemo and rads. So far so good, and it was 18 months ago :-) Cancer it is depends lots of it on your attitude. Whilst I was in treatment I stopped reading and talking with ppl (with cancer) in the waiting room, because it freaked me out, some of them were there for more than 10 YEARS! Now I realized they are the only ones understanding me, not even my docs.

Feel better, I know there are a lot of great survivor stories out there!

Carla Dx 11/23/2009, ILC, 6cm+, Stage IIIA, 7/18 nodes, ER+, HER2-
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May 23, 2011 10:25PM - edited May 23, 2011 10:28PM by Curlylocks

HI Rachell

 I am a 5 1/2 year survivor diagnosed at age 41 with stage IIB, IDC, grade 3 with 3 positive lymph nodes out of 23 removed.

 This journey is really hard emotionally in the beginning.  It does get better believe it or not as treatment finishes and you start to heal your body and soul.  Getting there is not easy, one baby step in front of the other in the beginning.  Give yourself time to grieve the loss of your "carefree life" the way it once was.  Crying is very cleansing for the soul and helps let it all out.  

I am happy, healthy and took up running almost a year ago and love it!  I ran my first 5km race within 3 months of starting training and could not run a block within being winded prior to this!!!

 I wish you the best  in your journey!

 Send me a private message or post on this thread if you have any questions, would be more than happy to answer them.


Dx 10/23/2005, IDC, 4cm, Stage IIB, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 11/8/2005 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 12/4/2005 AC + T (Taxol) Hormonal Therapy 4/30/2006 Arimidex (anastrozole) Radiation Therapy 5/31/2006 Breast Surgery 5/2/2008 Prophylactic ovary removal Surgery 12/15/2013 Prophylactic mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 1/9/2014, IDC, <1cm, Grade 1, ER-/PR-, HER2- Chemotherapy 2/10/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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May 26, 2011 04:21PM GoldenGirls wrote:


 My mom is approaching her 10 years of survival of stage 3 with multiple node involvement...I believe it was well over 10 that tested positive for cancer at the time. She has not had a recurrence! She had a lumpectomy and they removed the nodes they needed to at the same time and she went on to have a few weeks of chemo and radiation and spent 5 years on Tamoxifen and the last 4+ years on Fermara which she will go off of in a couple of months when she reaches the 10 year mark.

And my mom is not the only woman I know who had node involvement and has survived 10+ years :)

 Stay strong ladies!!

Mom was originally dx in 10/2001. Mets to bones and 2 supraclavicular nodes in 01/2013. She passed away from complications from bone metastases Dec 2016.
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May 26, 2011 04:46PM hrf wrote:

Rachel, lots of positive stories. I had 4 / 6 positive 2 years ago. I am also BRCA2+ and I think that is a bigger worry

BRCA2+ first dx in Oct. 2004 2nd dx Feb. 2009 a new primary
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May 27, 2011 06:15AM bcisnofun wrote:

While not about me, I know the RN in my Dr's office was stage 3 and that was 15 years ago and she looks great.  Another friend of mine was in a support group when she went through breast cancer 8 years ago.  She said half of them had positive nodes and the other half did not.  They still stay in touch and the only one of them who has had a recurrence is my friend, who had no node involvement.  I don't know my node status yet - BMX is on 6/1, but these stories give me hope.  Hope they give you hope too. 

Dx 4/29/2011, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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May 27, 2011 07:03AM LizR wrote:

Rachel:  I think we traded messages when you were first diagnosed.  Looks like you just hit your 1 year mark - congrats!  I'll never forget my 1 year anniversary - I was in an 8 week support group program (about moving on after BC) - and it was my turn to talk and I cried like a baby (not happy tears)!  After some discussion, it was the impact of it being my 1 year anniversary (November) - and remembering how horrible that day was a year before (anniversaries can actually be tough for us).   It will be 7 years this November and I had 2 positive lymph node + a positive node in my breast. I was terrified for 2 years and obsessed with fear of recurrence.  What actually helped me was the various discussion boards (here and young survival coalition) and seeing so many node positive women being OK - and then realizing that it is really a crap shoot as to who will recur.  I was in a morbid place for a long time - but every day was better and soon the cloud lifted completely.  To me, it has been very similar to losing a close relative - the beginning is almost unbearable but with time, it is something that you don't forget but can move beyond.  Take care and feel free to send a PM with any questions.  Liz

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May 28, 2011 03:29PM - edited May 28, 2011 03:29PM by TerriD

My second dx was Dec 2009. Had 2 postive nodes. Now am double masc. First episode was in 2000, no lymph nodes then, but tumor was very large. So I did surgery, chemo and rads. Second time at chemo was hard but I worked thru teh whole thing (parttime). Rads was tuff, they seared me chest and neck.  Kept working though.  I am now just battling cellulitis form teh lymphedema.  I am 2 years out, and ticked about the NCCN guidelines not allowing follow up scans anymore, but every once in a while there is an excuse for someone to scan me...I am well...and still fighting...and still learning to remember to value life each and every moment...hugs terri in MI

2x survivor. 1Peter 2:24 Claim Victory! Dx1 age 37 Masc 2/2000 Tumor 4.5cm ER+ Implant Chemo 6 months Dx2 age46 Masc 12/2008 No recons.ER+ Chemo 6 months 36Rads 2/12 Lymph nodes Mild Lymphadema Re-current cellulitis (well over 100 episodes!)
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May 28, 2011 03:30PM - edited May 28, 2011 03:30PM by TerriD

This Post was deleted by TerriD.
2x survivor. 1Peter 2:24 Claim Victory! Dx1 age 37 Masc 2/2000 Tumor 4.5cm ER+ Implant Chemo 6 months Dx2 age46 Masc 12/2008 No recons.ER+ Chemo 6 months 36Rads 2/12 Lymph nodes Mild Lymphadema Re-current cellulitis (well over 100 episodes!)
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May 29, 2011 09:23PM DATO wrote:

I just hit the 5 year anniversary of my diagnosis this month.  I was stage 3A, grade 3 with 6 of 9 positive nodes.  I had TAC chemo, rads, hysterectomy, a bilateral mastectomy, DIEP reconstruction, 1 year of tamoxifen (before the hysterectomy) and I'm in year 4 of Arimidex.  I'm also in the clinical trial for biphosphonates (I'm in the Zometa arm of the trial).  I feel great.  I go to the gym 3-5 days a week, I do heavy yard work.  I remember those very scary days but five years out the future looks very bright. Hang in there.


Dx 5/12/2006, IDC, 1cm, Stage IIIA, Grade 3, 6/9 nodes, ER+/PR+, HER2-
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Jun 1, 2011 09:09AM cp418 wrote:

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Sep 2, 2011 09:22PM - edited Sep 2, 2011 09:26PM by msphil

Hello sweetie, this is msphil and I am a 17 yr cancer survivor(Praise God), I had 3 nodes positive, I was in the process of making wedding plans when I found the lump in my L breast, I was also mis diagnosed, first they called me and said it was cancer, then a short while later another call, it was a mistake I didn,t have it, then after callibg my fiancee atthe time, to give the good news again another call it was indeed me, so I was on a rollercoaster ride.  My husband encourage me to write about itin a book and I did, called "The Healings Of Breast Cancer" A Physical And Spiritual Healing Of My Body And Soul. It is Inspiring to say the least, it can be purchased from Publisher faster at 18887954274ext7876.  (idc,stage 2, 3 noded,L mast, chemo and rads, reconstruction(body rejected it) and 5 yrs on tamoxifen. God Bless and keep us ALL.  msphil 

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Nov 28, 2011 07:24PM Carmelle wrote:

i'm going on 9 years. 5+ nodes. They were very large. I heard that after a few years the nide pos thing equalizes and we're in the same boat as all others.

Yesterday is History... Tomorrow is Mystery...Today is a gift. Dx 3/7/2003, IDC, 6cm+, Stage IIIA, Grade 2, 5/15 nodes, ER+/PR-, HER2-
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Nov 28, 2011 07:29PM Timbuktu wrote:

Your story is amazing.  Did they explain how you had so many positive nodes with such a small tumor?  Such a complicated disease!

Dx 7/9/2011, IDC, 2cm, Stage IIA, Grade 2, 1/5 nodes, ER+/PR+, HER2-
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Nov 28, 2011 07:31PM lisamed123 wrote:

I am going on 4 years since diagnosis this coming January.  Lots of positive nodes (10) and triple negative.  I remember being scared and looking for those survivors on the board here with stats similar to mine.

Dx 1/15/2008, IDC, 1cm, Stage IIIB, Grade 3, 10/21 nodes, ER-/PR-, HER2-
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Nov 28, 2011 08:10PM Rennasus wrote:

My sister, at age 31, had 3 positive nodes, a BMX and chemo. That was 1984.

She is still doing great!

BMX & TE 2/3/11; incision revisions 2/19/11, 3/28/11, 4/26/11; right TE removed 7/6/11; put back 12/1/11; exchange 9/5/12. Tamoxifen 3/2011-9/2013; Femara 11/2013-4/2016. BCI test 2/2016. Blogging at: Dx 12/8/2010, IDC, Right, 3cm, Stage IIA, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/3/2011 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/3/2011 Lymph node removal: Right, Sentinel, Underarm/Axillary Surgery 2/19/2011 Reconstruction (right) Hormonal Therapy 3/24/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/28/2011 Reconstruction (right) Surgery 4/26/2011 Reconstruction (right) Surgery 7/6/2011 Reconstruction (right) Surgery 12/1/2011 Reconstruction (right): Tissue expander placement Surgery 9/5/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/1/2013 Femara (letrozole)
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Nov 28, 2011 08:54PM pupmom wrote:

I'm so happy to read this thread! I'm just starting down the cancer road, but with 2 positive nodes, I need these stories soooo much! Thanks to all!!

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Dec 5, 2011 08:03PM onlydaughter wrote:

Hello all,

  Just found this forum and find it an inspiration. My dear mom was recently diagnosed and had a lumpectomy. one node of 2 positive. ER+/PR+ Her 2 unequivocal...I am looking forward to discussing this journey that God planned for us. Thank you for being her. God bless all of you.

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Dec 7, 2011 07:21PM Leslie1962 wrote:

Her2+++, grade 3, stage IIIC, 11/18 positive nodes. Doing very well 2 years out. Wink
Dx 9/3/2009, IDC, 3cm, Stage IIIC, Grade 3, 11/18 nodes, ER-/PR-, HER2+
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Dec 29, 2011 01:02PM - edited Dec 29, 2011 01:04PM by Sierra

Hello to all here:

I just found this thread as well

and am 12 years out

grade 3, er-pr- with 1 node positive ..

My very best wishes to all posting here

for a great New Year!


The Time is Now! Dx 1/2000, 3cm, Stage IIB, Grade 3, 1/14 nodes, ER-/PR-
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Jan 21, 2012 06:50PM Rachel1 wrote:


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