Topic: Could lymph node positive survivors share their story?

Forum: Who or What Inspires You? — Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Apr 23, 2011 09:41PM

Posted on: Apr 23, 2011 09:41PM

Rachel1 wrote:

I was dx in May 2010 with IDC stage 2, grade 3, BRCA2+, ER+ with 7 positive nodes. I would like to hear from long term survivors as this has been a very scary journey. Thank you so much!!!

Log in to post a reply

Page 2 of 12 (112 results)

Log in to post a reply

May 23, 2011 02:26PM lolita85 wrote:

Hi, I just read this! I'm, stage 3a with 7+ nodes. I had neo chemo, masectomy, more chemo and rads. So far so good, and it was 18 months ago :-) Cancer it is tricky...it depends lots of it on your attitude. Whilst I was in treatment I stopped reading and talking with ppl (with cancer) in the waiting room, because it freaked me out, some of them were there for more than 10 YEARS! Now I realized they are the only ones understanding me, not even my docs.

Feel better, I know there are a lot of great survivor stories out there!

Carla Dx 11/23/2009, ILC, 6cm+, Stage IIIA, 7/18 nodes, ER+, HER2-
Log in to post a reply

May 23, 2011 07:25PM - edited May 23, 2011 07:28PM by Curlylocks

HI Rachell

 I am a 5 1/2 year survivor diagnosed at age 41 with stage IIB, IDC, grade 3 with 3 positive lymph nodes out of 23 removed.

 This journey is really hard emotionally in the beginning.  It does get better believe it or not as treatment finishes and you start to heal your body and soul.  Getting there is not easy, one baby step in front of the other in the beginning.  Give yourself time to grieve the loss of your "carefree life" the way it once was.  Crying is very cleansing for the soul and helps let it all out.  

I am happy, healthy and took up running almost a year ago and love it!  I ran my first 5km race within 3 months of starting training and could not run a block within being winded prior to this!!!

 I wish you the best  in your journey!

 Send me a private message or post on this thread if you have any questions, would be more than happy to answer them.

Michele

Dx 10/23/2005, IDC, 4cm, Stage IIB, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 11/8/2005 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 12/4/2005 AC + T (Taxol) Hormonal Therapy 4/30/2006 Arimidex (anastrozole) Radiation Therapy 5/31/2006 Breast Surgery 5/2/2008 Prophylactic ovary removal Surgery 12/15/2013 Prophylactic mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 1/9/2014, IDC, <1cm, Grade 1, ER-/PR-, HER2- Chemotherapy 2/10/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

May 26, 2011 01:21PM GoldenGirls wrote:

Hi,

 My mom is approaching her 10 years of survival of stage 3 with multiple node involvement...I believe it was well over 10 that tested positive for cancer at the time. She has not had a recurrence! She had a lumpectomy and they removed the nodes they needed to at the same time and she went on to have a few weeks of chemo and radiation and spent 5 years on Tamoxifen and the last 4+ years on Fermara which she will go off of in a couple of months when she reaches the 10 year mark.

And my mom is not the only woman I know who had node involvement and has survived 10+ years :)

 Stay strong ladies!!

Mom was originally dx in 10/2001. Mets to bones and 2 supraclavicular nodes in 01/2013. She passed away from complications from bone metastases Dec 2016.
Log in to post a reply

May 26, 2011 01:46PM hrf wrote:

Rachel, lots of positive stories. I had 4 / 6 positive 2 years ago. I am also BRCA2+ and I think that is a bigger worry

BRCA2+ first dx in Oct. 2004 2nd dx Feb. 2009 a new primary
Log in to post a reply

May 27, 2011 03:15AM bcisnofun wrote:

While not about me, I know the RN in my Dr's office was stage 3 and that was 15 years ago and she looks great.  Another friend of mine was in a support group when she went through breast cancer 8 years ago.  She said half of them had positive nodes and the other half did not.  They still stay in touch and the only one of them who has had a recurrence is my friend, who had no node involvement.  I don't know my node status yet - BMX is on 6/1, but these stories give me hope.  Hope they give you hope too. 

Dx 4/29/2011, IDC, 1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

May 27, 2011 04:03AM LizR wrote:

Rachel:  I think we traded messages when you were first diagnosed.  Looks like you just hit your 1 year mark - congrats!  I'll never forget my 1 year anniversary - I was in an 8 week support group program (about moving on after BC) - and it was my turn to talk and I cried like a baby (not happy tears)!  After some discussion, it was the impact of it being my 1 year anniversary (November) - and remembering how horrible that day was a year before (anniversaries can actually be tough for us).   It will be 7 years this November and I had 2 positive lymph node + a positive node in my breast. I was terrified for 2 years and obsessed with fear of recurrence.  What actually helped me was the various discussion boards (here and young survival coalition) and seeing so many node positive women being OK - and then realizing that it is really a crap shoot as to who will recur.  I was in a morbid place for a long time - but every day was better and soon the cloud lifted completely.  To me, it has been very similar to losing a close relative - the beginning is almost unbearable but with time, it is something that you don't forget but can move beyond.  Take care and feel free to send a PM with any questions.  Liz

Log in to post a reply

May 28, 2011 12:29PM - edited May 28, 2011 12:29PM by TerriD

My second dx was Dec 2009. Had 2 postive nodes. Now am double masc. First episode was in 2000, no lymph nodes then, but tumor was very large. So I did surgery, chemo and rads. Second time at chemo was hard but I worked thru teh whole thing (parttime). Rads was tuff, they seared me chest and neck.  Kept working though.  I am now just battling cellulitis form teh lymphedema.  I am 2 years out, and ticked about the NCCN guidelines not allowing follow up scans anymore, but every once in a while there is an excuse for someone to scan me...I am well...and still fighting...and still learning to remember to value life each and every moment...hugs terri in MI

2x survivor. 1Peter 2:24 Claim Victory! Dx1 age 37 Masc 2/2000 Tumor 4.5cm ER+ Implant Chemo 6 months Dx2 age46 Masc 12/2008 No recons.ER+ Chemo 6 months 36Rads 2/12 Lymph nodes Mild Lymphadema Re-current cellulitis (well over 100 episodes!)
Log in to post a reply

May 28, 2011 12:30PM - edited May 28, 2011 12:30PM by TerriD

This Post was deleted by TerriD.
2x survivor. 1Peter 2:24 Claim Victory! Dx1 age 37 Masc 2/2000 Tumor 4.5cm ER+ Implant Chemo 6 months Dx2 age46 Masc 12/2008 No recons.ER+ Chemo 6 months 36Rads 2/12 Lymph nodes Mild Lymphadema Re-current cellulitis (well over 100 episodes!)
Log in to post a reply

May 29, 2011 06:23PM DATO wrote:

I just hit the 5 year anniversary of my diagnosis this month.  I was stage 3A, grade 3 with 6 of 9 positive nodes.  I had TAC chemo, rads, hysterectomy, a bilateral mastectomy, DIEP reconstruction, 1 year of tamoxifen (before the hysterectomy) and I'm in year 4 of Arimidex.  I'm also in the clinical trial for biphosphonates (I'm in the Zometa arm of the trial).  I feel great.  I go to the gym 3-5 days a week, I do heavy yard work.  I remember those very scary days but five years out the future looks very bright. Hang in there.

Darlene

Dx 5/12/2006, IDC, 1cm, Stage IIIA, Grade 3, 6/9 nodes, ER+/PR+, HER2-
Log in to post a reply

Jun 1, 2011 06:09AM cp418 wrote:

http://fremonttribune.com/news/local/article_74798eb0-8b97-11e0-9620-001cc4c002e0.html

Page 2 of 12 (112 results)

Scroll to top button