Topic: Could lymph node positive survivors share their story?

Forum: Who or What Inspires You? — Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Apr 24, 2011 12:41AM

Posted on: Apr 24, 2011 12:41AM

Rachel1 wrote:

I was dx in May 2010 with IDC stage 2, grade 3, BRCA2+, ER+ with 7 positive nodes. I would like to hear from long term survivors as this has been a very scary journey. Thank you so much!!!

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Feb 28, 2012 07:42AM upthere wrote:

thanks for the lift!!! will check out the "waiting room". i just wish i could stop dwelling on bc every minute ... anyway. . scan put off till tomorrow. all of yu in this area are so positive and kind i am glad i stopped in. never did this before. it helps to meeet everyone and not feel so alone.

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Mar 15, 2012 08:28PM myth451 wrote:

Please ...check the comments on this storyLaughing...is one really inspired me...please girls read it.

Maria C.

http://today.msnbc.msn.com/id/46724913/ns/today-weddings/t/bride-rare-cancer-i-wont-live-fear

M.Castellani
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May 25, 2012 12:51PM - edited Jun 22, 2012 11:42AM by overjoyed4life

DX 6/5/2010, ILC, 5cm, Stage IIIc, Grade 1, 22/29 nodes, ER+/PR+, HER2-. Still here and kicking. Loving life!

Sharon Dx 6/5/2010, ILC, 5cm, Stage IIIC, Grade 1, 22/29 nodes, ER+/PR+, HER2- Chemotherapy 6/20/2010 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide) Surgery 1/11/2011 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right Radiation Therapy 2/1/2011 Hormonal Therapy 4/1/2011 Arimidex (anastrozole) Hormonal Therapy 7/31/2012 Aromasin (exemestane) Dx 6/30/2017, Stage IV, metastasized to bone
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Jun 8, 2012 07:41AM tortoise wrote:

Hi all, lovely stories, and am in need of them at the moment as yesetrday I read an article about a girl this magazine had been following and she dies of her breast cancer pretty quickly.  I have 17 / 24 nodes, and I struggle to find anywhere any stories about people surviving with that many...  But I know it's all a lottery anyway, and it's true what they say about it spreading even if you have no node involvement.  Anyone else got 17???  xx  

Dx 9/29/2011, IDC, 6cm+, Stage IV, Grade 2, 17/24 nodes, mets, ER-/PR-, HER2- Surgery 10/14/2011 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Chemotherapy 12/1/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 5/31/2012 Breast Hormonal Therapy 7/9/2012 Targeted Therapy 1/16/2013 Avastin (bevacizumab)
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Jun 8, 2012 07:42AM tortoise wrote:

ah, just seen your 22 nodes.  well done you  xxx

Dx 9/29/2011, IDC, 6cm+, Stage IV, Grade 2, 17/24 nodes, mets, ER-/PR-, HER2- Surgery 10/14/2011 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Chemotherapy 12/1/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 5/31/2012 Breast Hormonal Therapy 7/9/2012 Targeted Therapy 1/16/2013 Avastin (bevacizumab)
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Jun 8, 2012 07:48AM tortoise wrote:

another fellow 17-noder.  not that i wish it on anyone else but i get comfort knowing i'm not alone.  i was diagnosed end sept 2011, had chemo and started radiotherapy this week (3 down, 22 to go).  i feel very positive mpost of the time, but then a little thing triggers me off every couple of months and then i get depressed for a coupole of days.  that's where im at now.  but this site is great and helping to drag me out of my depression!!

Dx 9/29/2011, IDC, 6cm+, Stage IV, Grade 2, 17/24 nodes, mets, ER-/PR-, HER2- Surgery 10/14/2011 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Chemotherapy 12/1/2011 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel), Xeloda (capecitabine) Radiation Therapy 5/31/2012 Breast Hormonal Therapy 7/9/2012 Targeted Therapy 1/16/2013 Avastin (bevacizumab)
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Jun 8, 2012 08:30AM my2boys wrote:

I had 2 positive nodes HER2+++/ER+ and I was diagnosed in 2008.  I guess that makes me almost 4 years out!

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Jun 8, 2012 08:49AM camillegal wrote:

I really never ave this much thought---I had almost 40 nodes out and like 25 were pos. and it's all good. So just concentrate on now and feel better.

Dx 2007, Stage IV, 24/38 nodes, HER2+
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Jul 21, 2012 04:32PM Michele-co wrote:

Hello,  I just want you all to know that I am a 22 year survivor of stage II breast cancer with 6 of 16 positive nodes ER positive.  I know it is scary to be facing this desease but there are many, many of us that have survived and thrived.  I almost never even think about cancer anymore.  It's a fading memory.  I was 36 when diagnosed and my first doctor was not optimistic.  I changed doctors and then went through all the treatments, chemo, radiation, complete hysterectomy, and tamoxifen which were what was available back then.  After I made it to five years I knew I was ok and slowly didn't worry about it anymore.  You'll all get to that point.  

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Jul 21, 2012 04:58PM Jill1962 wrote:

Hi Rachel,

Just getting back to this website after 6 years as I just started Femara and wanted info I could rely on!

I am a 17 year survivor, first diagnosed at 33 in 1995 and then at 44 in 2006.

I had 18 nodes removed and 4 were crappy!  I had dbl mast as I had lump on LB and nodes on R side by ribcage???

Needles to say they threw everything at me to figure out how it go to the right side without being in the RB.  Still don't know but I'm still here to talk about it!

The first time I had a lumpectomy LB and 2 out of 4 nodes were crappy so they decided to give me chemo and tamoxifen.

I finished 5 years on tamoxifen and am now starting Femara for 3 years and am also going thru Recon using my own Fat.. as I tried the TE's and implants twice and both times failed because of my thin skin (rads).

At least I am getting some free lipo out of this process and watching my new foobs getting bigger with each treatment.  Life is good......

I had my ovaries removed two weeks ago so that I could go on the Femara and so far so good no SE's yet to speak of and my DH is happy that I still like him. ;p

I am so grateful to be here and I am enjoying life to the fullest, I now have two grandchildren and a wonderful DH that has been with me every step of the way. 

Enjoy the journey!

8/8/1995, DCIS, 1cm, Stage II, 2/4 nodes, ER+/PR+, HER2- Lumpectomy LB, Chemo, Rads, Tamoxifen 5 years - 5/8/2006, IDC, 1 cm Stage IIb, 4/18 nodes, ER+/PR+, HER2- Dbl Mast, Chemo, Rads, Tamox 5 yrs, Femara just started! Radiation Therapy 11/1/1996 Breast, Lymph nodes Radiation Therapy 3/10/2007 Breast, Lymph nodes

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