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Topic: Any survivors out there diagnosed at a young age???

Forum: Who or What Inspires You? —

Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Jun 12, 2013 11:59AM

Youngwithbc wrote:

There might already be a thread about this but can't find it! Was hoping to start one where people who were diagnosed young (20s/30s) could share their survivor stories, if you are more than a few years past diagnosis. It can be difficult to find people who had BC at a young age, and I find it encouraging when I find people who were my age at diagnosis and are now doing great many years later. I'm sure others might find it inspiring as well.

Anyone out there??

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Jun 12, 2013 12:33PM RebzAmy wrote:

Hi Youngwithbc - believe it or not there are lots of us, I was in my early 30s when diagnosed and am now coming up for 6 years down the line.  You can see my diagnosis below and treatment so I hope this gives you and other younger ladies hope.  

Smile

Diagnosed June 2007, IDC, Grade 3, 4-5cm lump, several lymph nodes involved, HER2+++, 4 months of high strength chemo, mastectomy and lymph node removal, radiotherapy & a year of herceptin and recently had preventative surgery to other breast.
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Jun 12, 2013 02:45PM - edited Jun 12, 2013 02:46PM by Colt45

My dad's cousin is a 27 year BC survivor. She didn't have a family history. She had children before 30, breastfed, she was active/ athletic, not overweight, not a smoker, not a drinker----she did everything supposedly right.... and at age 32, she was diagnosed with BC. I do not know the pathology of her BC, but I've learned that she had a mastectomy and chemo----so it warranted aggressive treatment.

She is thriving. You would never know.

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/7/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/13/2012 AC Chemotherapy 2/7/2013 Taxol (paclitaxel)
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Jun 13, 2013 08:29PM Youngwithbc wrote:

Thanks so much for sharing Colt, that is awesome!



Congrats Reb on 6 years... I'm so glad you posted. I am Her2 as well. It is so hard for me to imagine 6 years into the future right now, but I hope soon it won't be so hard to picture it.

Anyone else out there? I'm sure others will stumble on this at some point and it will help give some hope.

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Jun 13, 2013 08:34PM sherry35 wrote:

I was diagnosed at 34 ( 3 weeks before my 35th birthday) and I'm 41 now.

Dx 3/2007, IDC, 4cm, Stage IIIB, Grade 3, 23/23 nodes, ER+/PR+, HER2- (FISH) Surgery 4/9/2007 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/15/2007 AT Surgery 11/12/2007 Prophylactic ovary removal Surgery 6/29/2009 Lumpectomy: Right Radiation Therapy 9/5/2009 Breast Surgery 7/5/2010 Prophylactic mastectomy: Left Surgery 7/29/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 10/12/2018, IDC, Right, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy Kisqali Hormonal Therapy Femara (letrozole)
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Jun 13, 2013 09:20PM JennaJMU wrote:

That is awesome Sherry!! I'm 33 and your story inspires me!!

Dx 2/15/2013, IDC, 4cm, Stage IIB, Grade 3, 1/5 nodes, ER+/PR+, HER2- Surgery 3/22/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2013 AC + T (Taxol)
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Jun 13, 2013 09:51PM sherry35 wrote:

Jenna,
Very similar dx. I did chemo ( 3 FEC, 3 Taxol), rads (25 +5 boosts). Had a hysterectomy and have one more year on femara.
I'm having a delayed bilateral diep recon. On July 29th. Can't wait.
Cheers,
Sherry

Dx 3/2007, IDC, 4cm, Stage IIIB, Grade 3, 23/23 nodes, ER+/PR+, HER2- (FISH) Surgery 4/9/2007 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/15/2007 AT Surgery 11/12/2007 Prophylactic ovary removal Surgery 6/29/2009 Lumpectomy: Right Radiation Therapy 9/5/2009 Breast Surgery 7/5/2010 Prophylactic mastectomy: Left Surgery 7/29/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 10/12/2018, IDC, Right, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy Kisqali Hormonal Therapy Femara (letrozole)
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Jun 13, 2013 10:49PM JennaJMU wrote:

How soon after treatment did you get a hysterectomy? I'm debating on if I should get my ovaries out since I'm highly hormone positive.

Dx 2/15/2013, IDC, 4cm, Stage IIB, Grade 3, 1/5 nodes, ER+/PR+, HER2- Surgery 3/22/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2013 AC + T (Taxol)
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Jun 14, 2013 01:12AM Forgiven4ever wrote:

I just wanted to say our diagnosis are very similiar and I am 34 yrs
old currently and almost a year clear..and with Gods grace many more to come for both of us!

Surgery 12/12/2011 Reconstruction (right) Dx 12/13/2011, IDC, 5cm, Stage IIB, Grade 2, 1/5 nodes, ER+/PR+, HER2- Surgery 1/14/2012 Lymph node removal: Right, Sentinel Surgery 2/8/2012 Lymph node removal: Right, Sentinel Chemotherapy 3/8/2012 AC + T (Taxol) Surgery 9/14/2012 Mastectomy: Right Surgery 9/14/2012 Prophylactic mastectomy: Left Hormonal Therapy 10/6/2012 Surgery 11/4/2012 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 5/31/2013 Reconstruction (left); Reconstruction (right)
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Jun 14, 2013 01:19AM Forgiven4ever wrote:

Also right now my obgyn does internal ultrasounds every 6 months just to monitor and watch for any abnormalities until we decide it is a good time for the hysterectomy, which I will do for sure since I am brca2 positive..I was told even with the gene the earliest case for ovarian/cervical/uterine cancer is 40..so they said prob when I am about 35-36yrs.old...

Surgery 12/12/2011 Reconstruction (right) Dx 12/13/2011, IDC, 5cm, Stage IIB, Grade 2, 1/5 nodes, ER+/PR+, HER2- Surgery 1/14/2012 Lymph node removal: Right, Sentinel Surgery 2/8/2012 Lymph node removal: Right, Sentinel Chemotherapy 3/8/2012 AC + T (Taxol) Surgery 9/14/2012 Mastectomy: Right Surgery 9/14/2012 Prophylactic mastectomy: Left Hormonal Therapy 10/6/2012 Surgery 11/4/2012 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 5/31/2013 Reconstruction (left); Reconstruction (right)
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Jun 14, 2013 07:08AM JennaJMU wrote:

Thank you forgiven! I know they don't like doing hysterectomies on young women if you can't do HRT but I'm always looking for people who did it. I'd rather suffer with menopause symptoms and bone loss than have these estrogen factories make the cancer come back.

Dx 2/15/2013, IDC, 4cm, Stage IIB, Grade 3, 1/5 nodes, ER+/PR+, HER2- Surgery 3/22/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2013 AC + T (Taxol)
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Jun 19, 2013 10:55PM Youngwithbc wrote:

Any others out there??

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Jul 28, 2013 12:01PM marmalade_skies wrote:

I was diagnosed when I turned 33, and now I'm 36 going on to 37. Hoping to clear the 5 year mark soon! :) Am so glad to see this thread. 

Dx 3/4/2010, IDC, 2cm, Stage II, Grade 3, 0/2 nodes, ER+/PR+, HER2-
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Jul 28, 2013 10:23PM mightymon wrote:

I was diagnosed just 2 months before turning 31 and will turn 34 next month. :0)

Dx 7/30/2010, IDC, 1cm, Stage II, Grade 3, 1/27 nodes, ER+/PR+, HER2-
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Jul 28, 2013 10:24PM rozem wrote:

i have a friend diagnosed at 28 - she is 46 now

FEC-DH, LUMP, 25 RADS, TAMOX, BMSX with LD flap (worst surgery ever) Dx 8/2011, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2+
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Jul 28, 2013 10:35PM Colt45 wrote:

Pardon me for considering 46 young... BUT my sister's BFF in high school's mom had BC when she was 46 or possibly a few years younger.

I don't know the pathology or adjuvant treatment (I think chemo) but I know she had a mastectomy... That was at least 30 years ago (she's now 76 and still living a great life).

It can be done. It IS done... A LOT. There is no good reason to believe that you're not going to be just like that.

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/7/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/13/2012 AC Chemotherapy 2/7/2013 Taxol (paclitaxel)
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Jul 29, 2013 01:37PM Youngwithbc wrote:

Thanks for continuing this thread! I was actually just thinking about it, because I have been reading/following so many stories of young adults with BC who were diagnosed with mets a couple years after finishing their treatment. Sometimes when I hear too many stories like that, I start to really lose hope and the anxiety sets in. Since BC tends to be more aggressive and harder to treat in young women, it's really helpful and inspiring to find young women who are thriving and doing well, without recurrence. I have met a couple in "real life" and I know it's really helped me when I start to feel worried about my future.

Hope we can keep this thread going and that more young survivors will come out from hiding... :)

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Aug 6, 2013 01:25AM - edited Aug 6, 2013 03:03AM by Vella

This Post was deleted by Vella.
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Aug 6, 2013 08:24AM melp27 wrote:

I was diagnosed in july 2011 at 27 years old. I do have a family history of breast cancer and a genetic syndrome that predisposes me to getting another cancer. last month I reached the two year mark and im super relieved they always say the first two years is the most important.

Dx 7/25/2011, ILC, Left, 6cm+, Grade 3, 20/24 nodes, ER+/PR+, HER2- Surgery 8/14/2011 Lymph node removal: Left, Sentinel; Mastectomy: Left Radiation Therapy 2/14/2012 Breast Dx 10/2/2014, DCIS, Right, 2cm, Stage 0, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 10/19/2014 Mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 6/28/2015 Reconstruction (left): Latissimus dorsi flap, Tissue expander placement Dx 9/2015, ILC, Stage IV, metastasized to lungs, ER+, HER2- Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Aug 6, 2013 09:07AM oandtolivo wrote:

I was dx,ed at 34 and I'm now 36.  We just moved from Germany back to the us.  I meet with my new oncologist yesterday and I'm going to continue tamoxifen and zoladex to the 10 mark.  Even then I'll be 44 and I could still come out of menopause.   I'm a 36 year old whos been made into a 56 year old.  It's rough, but it's better than the alternative.

3x FEC 3xDoc 28 Rads 18herceptin 10yrsZoladx 10yrs Tamoxifin (Tricentric tumor) Dx 5/11/2011, IDC, 2cm, Stage IIA, Grade 3, 0/9 nodes, ER+/PR+, HER2+
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Aug 6, 2013 10:00AM GatorGal wrote:

Diagnosed at 37 in 1987 with lymph node involvement and a "not so good" prognosis. Lived to raise my 3 kids, now have 4 grandchildren. Lived 21 years cancer free before mets to lung in 2008. I am now 62, being treated but doing well. AI's and chemo has kept my cancer contained in my lung and though I will be on chemo forever I have good QOL and feel blessed beyond belief!

When people asked how old she was, she would say 1009365 more or less because she was so glad to be alive that she counted every day a birthday! (Brian Andreas, Storypeople) Dx 5/2008, IDC, Right, Stage IV, metastasized to bone/liver/lungs, 11/27 nodes, ER+/PR+, HER2- Chemotherapy 4/11/2011 Taxotere (docetaxel) Chemotherapy 8/14/2011 Gemzar (gemcitabine) Chemotherapy 6/13/2012 Doxil (doxorubicin) Chemotherapy 12/12/2012 Taxol (paclitaxel) Chemotherapy 9/11/2013 CMF Chemotherapy 4/16/2014 Carboplatin (Paraplatin) Chemotherapy 12/17/2014 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 9/9/2015 Navelbine (vinorelbine) Chemotherapy 12/23/2015 Halaven (eribulin) Chemotherapy 4/13/2016 Abraxane (albumin-bound or nab-paclitaxel) Chemotherapy 6/15/2016 Ixempra (ixabepilone) Hormonal Therapy 7/27/2016 Arimidex (anastrozole)
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Aug 9, 2013 05:23PM Mandy85 wrote:

Hi Youngwithbc, I was dx with bc when I was 26 years old, almost two year since my dx. With no family history of bc.

Dx 6/16/2011, IDC, 2cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 8/7/2011 Lumpectomy: Left Radiation Therapy 9/30/2011 Breast Hormonal Therapy 11/21/2011
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Aug 12, 2013 11:18PM Youngwithbc wrote:

So happy to hear of all the young survivors, woohoo! Thanks for sharing.

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Sep 14, 2013 03:03PM Trina25 wrote:

Hi, I was diagnosed last year at the age of 25. Today Sept 14 is actually the date that I had the surgery to remove the lump. Three days later the pathology report came back and I had cancer. I have made it thru chemo, mastectomy and partially radiation( I stopped it) I truly feel as if I had enough in just a years time to have a lifetime movie made based on my life. I am looking forward to my implant exchange in Nov, I have had the dreaded tissue expanders since March. I hope that 2014 will be a great year as I should be recovered from what I hope will be my last surgery for breast cancer for a while and just start to put the pieces of my life back together.

Katrina Harris Surgery 9/13/2012 Lumpectomy: Left Dx 9/17/2012, IDC, 6cm+, Grade 3, PR- Chemotherapy 10/6/2012 CEF Surgery 2/28/2013 Mastectomy: Left, Right Surgery 2/28/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/14/2013 Reconstruction (left); Reconstruction (right) Radiation Therapy Breast
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Oct 1, 2013 03:56PM - edited Oct 1, 2013 03:57PM by LisaH

Hello ladies!

I'm an "old" woman compared to most of you now but not too long ago, I was just like you.

Diagnosed at age 33 (acutally closer to 32 as I had just had a birthday).  I just celebrated my 44th birthday.  This year will be my 12th year!

Keep the faith ladies!

Lisa H. Dx 11/6/2002, IDC, Left, 1cm, Stage IA, Grade 2, 0/11 nodes, ER+/PR+, HER2+ Surgery 11/6/2002 Mastectomy: Left Chemotherapy 12/13/2002 AC Hormonal Therapy 2/14/2003
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Oct 1, 2013 07:58PM JenSF wrote:

Dear Lisa,

Thank you for your post! I was just praying the past few days to meet someone who had overcome this battle over 5, 8, 10, 15 years!  We need this courageous stories other than all the treatments.  My mother in law was a survivor (Stage 3) since 1996.  Her 17th year this year.  It broke her heart when I shared with her the news. But soon we both are back on track.  I just had my surgery and will kick off chemo soon 2nd half of October. 

Please keep sharing your victory!  It really helps!!  

Warmly,

Jen

Dx 9/5/2013, IDC, 2cm, Stage IIA, Grade 2, 0/5 nodes, ER+/PR-, HER2- Surgery 9/19/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 10/17/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Oct 1, 2013 09:40PM Youngwithbc wrote:

Thanks for sharing Lisa... that is awesome! I am officially at one year... :)

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Oct 1, 2013 09:56PM sth314 wrote:

I'm a 12 year survivor who was diagnosed at 35. Not sure if that is considered "young" anymore. Wink There is an origanization called the Young Survival Coalition strictly for young breast cancer patents/survivors. You can find more about them on their website Youngsurvival.org.

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Oct 1, 2013 11:00PM melmcbee wrote:

Bumping for the inspiration that yall bring to me. I was 42 at diagnosis and I thought I was young.

Melanie Dx 6/24/2012, ILC, 2cm, Stage IIIA, Grade 2, 8/15 nodes, ER+/PR+, HER2- Surgery 7/9/2012 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right Surgery 8/9/2012 Lymph node removal: Right, Underarm/Axillary Chemotherapy 8/23/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/9/2013 Breast, Lymph nodes Surgery 5/30/2013 Reconstruction (left); Reconstruction (right) Surgery 12/4/2013 Reconstruction (right) Dx 3/29/2017, ILC, Stage IV, metastasized to bone, ER+/PR- Dx 11/19/2019, ILC, Stage IV, metastasized to other, ER-/PR+, HER2- (IHC) Chemotherapy 8/19/2020 Abraxane (albumin-bound or nab-paclitaxel) Immunotherapy Tecentriq (atezolizumab) Hormonal Therapy Faslodex (fulvestrant) Chemotherapy Xeloda (capecitabine)
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Oct 1, 2013 11:01PM JenSF wrote:

Hi sth314, yes you are young!  Thank you for your post!  That's encouraging!  I found the Young Survival Coalition before my surgery!  That's good help!  They have some good info too.  Recommeneded.

Tonite, I asked my 9 yr old to shop hats with me on headcovers.com.  Really good selectons.  We will await delivery......

Dx 9/5/2013, IDC, 2cm, Stage IIA, Grade 2, 0/5 nodes, ER+/PR-, HER2- Surgery 9/19/2013 Lymph node removal: Right, Sentinel; Mastectomy: Right Chemotherapy 10/17/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Oct 1, 2013 11:07PM LisaMomOfFour wrote:

My grandmother was diagnosed at 26, lived to be 60.  

My aunt was also diagnosed at 26, and she recently had heart surgery, and is recovering well at age 76.

My cousin was diagnosed at 29, then again at 33, has since then adopted a child and is so very happy at 41.

My other cousin was diagnosed at 28, and is now about 52.  

As you can see we have a strong genetic link here.  I tested negative for BRCA (though my cousins are all positive).   I was 47 when diagnosed three years ago.  

I wish I was making this up.  I have three daughters ages 16, 12 and 12.  Despite my negative BRCA status, I am so worried for them.  

Dx 10/9/2010, IDC, 2cm, Stage IIB, Grade 2, 1/14 nodes, ER+/PR+, HER2-

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