Topic: Any survivors out there diagnosed at a young age???

Forum: Who or What Inspires You? — Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Jun 12, 2013 11:59AM

Posted on: Jun 12, 2013 11:59AM

Youngwithbc wrote:

There might already be a thread about this but can't find it! Was hoping to start one where people who were diagnosed young (20s/30s) could share their survivor stories, if you are more than a few years past diagnosis. It can be difficult to find people who had BC at a young age, and I find it encouraging when I find people who were my age at diagnosis and are now doing great many years later. I'm sure others might find it inspiring as well.

Anyone out there??

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Jun 12, 2013 12:33PM RebzAmy wrote:

Hi Youngwithbc - believe it or not there are lots of us, I was in my early 30s when diagnosed and am now coming up for 6 years down the line.  You can see my diagnosis below and treatment so I hope this gives you and other younger ladies hope.  

Smile

Diagnosed June 2007, IDC, Grade 3, 4-5cm lump, several lymph nodes involved, HER2+++, 4 months of high strength chemo, mastectomy and lymph node removal, radiotherapy & a year of herceptin and recently had preventative surgery to other breast.
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Jun 12, 2013 02:45PM - edited Jun 12, 2013 02:46PM by colt45

My dad's cousin is a 27 year BC survivor. She didn't have a family history. She had children before 30, breastfed, she was active/ athletic, not overweight, not a smoker, not a drinker----she did everything supposedly right.... and at age 32, she was diagnosed with BC. I do not know the pathology of her BC, but I've learned that she had a mastectomy and chemo----so it warranted aggressive treatment.

She is thriving. You would never know.

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/7/2012 Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 12/13/2012 AC Chemotherapy 2/7/2013 Taxol (paclitaxel)
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Jun 13, 2013 08:29PM Youngwithbc wrote:

Thanks so much for sharing Colt, that is awesome!



Congrats Reb on 6 years... I'm so glad you posted. I am Her2 as well. It is so hard for me to imagine 6 years into the future right now, but I hope soon it won't be so hard to picture it.

Anyone else out there? I'm sure others will stumble on this at some point and it will help give some hope.

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Jun 13, 2013 08:34PM sherry35 wrote:

I was diagnosed at 34 ( 3 weeks before my 35th birthday) and I'm 41 now.

Dx 3/2007, IDC, 4cm, Stage IIIB, Grade 3, 23/23 nodes, ER+/PR+, HER2-, Surgery 4/9/2007 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/15/2007 AT Surgery 11/12/2007 Prophylactic ovary removal Surgery 6/29/2009 Lumpectomy: Right Radiation Therapy 9/5/2009 Breast Surgery 7/5/2010 Prophylactic mastectomy: Left Surgery 7/29/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 10/12/2018, IDC, Right, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy Kisqali Hormonal Therapy Femara (letrozole)
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Jun 13, 2013 09:20PM JennaJMU wrote:

That is awesome Sherry!! I'm 33 and your story inspires me!!

Dx 2/15/2013, IDC, 4cm, Stage IIB, Grade 3, 1/5 nodes, ER+/PR+, HER2- Surgery 3/22/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2013 AC + T (Taxol)
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Jun 13, 2013 09:51PM sherry35 wrote:

Jenna,
Very similar dx. I did chemo ( 3 FEC, 3 Taxol), rads (25 +5 boosts). Had a hysterectomy and have one more year on femara.
I'm having a delayed bilateral diep recon. On July 29th. Can't wait.
Cheers,
Sherry

Dx 3/2007, IDC, 4cm, Stage IIIB, Grade 3, 23/23 nodes, ER+/PR+, HER2-, Surgery 4/9/2007 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/15/2007 AT Surgery 11/12/2007 Prophylactic ovary removal Surgery 6/29/2009 Lumpectomy: Right Radiation Therapy 9/5/2009 Breast Surgery 7/5/2010 Prophylactic mastectomy: Left Surgery 7/29/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 10/12/2018, IDC, Right, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy Kisqali Hormonal Therapy Femara (letrozole)
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Jun 13, 2013 10:49PM JennaJMU wrote:

How soon after treatment did you get a hysterectomy? I'm debating on if I should get my ovaries out since I'm highly hormone positive.

Dx 2/15/2013, IDC, 4cm, Stage IIB, Grade 3, 1/5 nodes, ER+/PR+, HER2- Surgery 3/22/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2013 AC + T (Taxol)
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Jun 14, 2013 01:12AM Forgiven4ever wrote:

I just wanted to say our diagnosis are very similiar and I am 34 yrs
old currently and almost a year clear..and with Gods grace many more to come for both of us!

Surgery 12/12/2011 Reconstruction (right) Dx 12/13/2011, IDC, 5cm, Stage IIB, Grade 2, 1/5 nodes, ER+/PR+, HER2- Surgery 1/14/2012 Lymph node removal: Right, Sentinel Surgery 2/8/2012 Lymph node removal: Right, Sentinel Chemotherapy 3/8/2012 AC + T (Taxol) Surgery 9/14/2012 Mastectomy: Right Surgery 9/14/2012 Prophylactic mastectomy: Left Hormonal Therapy 10/6/2012 Surgery 11/4/2012 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 5/31/2013 Reconstruction (left); Reconstruction (right)
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Jun 14, 2013 01:19AM Forgiven4ever wrote:

Also right now my obgyn does internal ultrasounds every 6 months just to monitor and watch for any abnormalities until we decide it is a good time for the hysterectomy, which I will do for sure since I am brca2 positive..I was told even with the gene the earliest case for ovarian/cervical/uterine cancer is 40..so they said prob when I am about 35-36yrs.old...

Surgery 12/12/2011 Reconstruction (right) Dx 12/13/2011, IDC, 5cm, Stage IIB, Grade 2, 1/5 nodes, ER+/PR+, HER2- Surgery 1/14/2012 Lymph node removal: Right, Sentinel Surgery 2/8/2012 Lymph node removal: Right, Sentinel Chemotherapy 3/8/2012 AC + T (Taxol) Surgery 9/14/2012 Mastectomy: Right Surgery 9/14/2012 Prophylactic mastectomy: Left Hormonal Therapy 10/6/2012 Surgery 11/4/2012 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 5/31/2013 Reconstruction (left); Reconstruction (right)
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Jun 14, 2013 07:08AM JennaJMU wrote:

Thank you forgiven! I know they don't like doing hysterectomies on young women if you can't do HRT but I'm always looking for people who did it. I'd rather suffer with menopause symptoms and bone loss than have these estrogen factories make the cancer come back.

Dx 2/15/2013, IDC, 4cm, Stage IIB, Grade 3, 1/5 nodes, ER+/PR+, HER2- Surgery 3/22/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2013 AC + T (Taxol)

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