Topic: Any survivors out there diagnosed at a young age???

Dec 5, 2015 06:25AM - edited Dec 5, 2015 06:28AM by Lolis

Hi,

I was diagnosed at 33. Found my lump three months after my first miscarriage and realized (personally) that it was BC on my one year wedding anniversary. Had an u/s the year before (due to existing fibroadenoma - been having yearly u/s since I was 25) and it was normal although a new cyst had appeared.

I was dx with stage III (my lucky number) IDC, which was laying in a bed of DCIS and the lump I first noticed was in the area of the new cyst. So to this day I wonder if my u/s the year before my diagnosis was misread or if IDC invaded the cyst. 8 positive nodes (5 with macromets and 3 with micromets).

The BC was highly hormone receptive and I keep wondering if my pregnancy accelerated the things. I am grateful to my lil angel but I have yet to get completely over the loss.

I completed a round of IVF after surgery and before chemo. Completed 6 round of FEC-D (which wasn't bad) and 25 rounds of radiation. Currently on Tamoxifen and told that I won't ever be allowed to get pregnant again just in case there is one of those suckers dormant somewhere. DH is terriefied of the thought of me being pregnant, we'll go thru surrogacy.

In 3 months I will be 2 years out of dx and the fear of recurrence is less with everyday that passes although some days are darker than others but those don't last a long time.

Hugs to you all and keep smiling!!!

Jan 1, 2016 02:30PM Honeytagh wrote:

bump

Jan 1, 2016 05:45PM MissBee123 wrote:

I was diagnosed 7 months ago at age 31. Had some "intimate" time with my husband. After, he rolled over, poked my breast and said, "What's that?" From there everything spiraled downwards. Eggs are frozen, went through one round of chemo, double mastectomy, found out I also have thyroid cancer (thanks to the PET scan my breast surgeon ordered), had a thyroidectomy, and am beginning a second round of chemo in 10 days.

It's been an incredibly hard and emotional year. My husband and I had to cancel our one vacation due to chemotherapy beginning. We bought a new home and were going to relocate to Denver from NYC. Instead, due to the intensity of care I needed and health insurance, we are still here almost a year past our planned move date. We had hoped to begin a family this year but instead my eggs sit frozen in a medical facility and the idea of children seems so abstract it's hard to imagine. It's been very hard to smile and congratulate all my friends who have become pregnant or given birth this year (and with Facebook it's starting to feel like it's literally everyone but me). I try not to complain about it, but figure if there is a place that understands, it's here in these forums. It just makes my heart hurt. Staying positive all the time is mentally exhausting. Sometimes I just want to have a good old fashioned temper tantrum and kick my feet and cry!

Jan 7, 2016 10:26AM LisaEllen wrote:

It has been a long time since I was on these boards!

Miss Bree, your post touched me deeply. You have every right to throw a temper tantrum! Cancer sucks and it is not fair. But you are a beautiful, strong woman and we are here to encourage you and love you through the worst of treatment. Please have Hope! (((Hugs)))

I am a nine year survivor in March. There are many of us out there but more ladies closer to diagnosis are here posting. Many of us five plus years out rarely check the threads.

I was 37 when diagnosed. No family history. 2.2 dm DCIS, with 0 nodes, ER+, PR+, Her2-, grade 3, high Ki67 score. Was given a 17% recurrance rate within ten years after treatment. So far, nothing!!

BiLat mastectomies, recon, biLat salping oopherectomy. 4 rounds dose dense AC, 4 rounds dose dense Taxol, five years amrimidex, no radiation.

Thank God for good doctors and for the ladies and men on these threads. This site was my lifeline and kept me going. There were times that I could barely post because I was crying onto my keyboard. Cancer is terrifying. Keep posting and know that we are all rooting for each other!!

Jun 8, 2016 07:18PM Tmh0921 wrote:

I was diagnosed at age 27 in in 1999. I was stage 1B IDC, grade 2, ER+/PR+, 0/14 nodes.

I had a lumpectomy, sentinel node and axillary node biopsy, radiation, and Tamoxifen.

I've been NED for 16 and 1/2 years, and have had two children since BC.

A coworker of mine was Dx with stage 2 IDC, ER-/PR-, two nodes positive at age 24. And again with DCIS at 44. She's 35 years out from her first Dx, and about 16 years out from her second.

Tracy

Aug 19, 2016 09:48AM Eibra wrote:

bump

Aug 20, 2016 02:35AM Eibra wrote:

dear fd1 congrats and many happiness years to come ! You just made our day xo

Dec 6, 2017 02:17PM Lexica wrote:

Bump

Sep 22, 2019 09:52AM - edited Sep 22, 2019 09:52AM by eloqui

Diagnosed at age 26, now 5 years out at age 31 with no evidence of recurrence. I had a breast MRI last month which was all clear. In those five years, I met and got married to an amazing husband, raised a big beautiful dog, and got a new job.

When I was diagnosed, I had a dark scary voice in my head telling me I wouldn't make it five years. It is hard to believe I was just 26 when everything happened. I feel like I've lived a lifetime in the past 5 years. I just completed Lupron + AI for 5 years and am now trying to decide whether to switch to Tamoxifen or stay on the current regimen for another year or two.

Thank you for everyone who's shared your experience on this thread. They've helped me keep that hope alive.

Sep 22, 2019 03:33PM LisaEllen wrote:

32B, I just logged back in for a walk down memory lane after many years of being away from these boards. I was first diagnosed in 2007 at the age of 37. I had stage two, grade 3 ductal breast cancer. I received eight rounds of ACT, no rads, and an oral chemo for five years. I also had bilateral (due to age and high score for aggressive growth rate) mastectomies with expanders and implants, But I am finished with treatment. It has been 12 years of being cancer free. I no longer see my oncologist! I play tennis and fully enjoy life. That being said, I do still miss my breasts. I eventually went with tattooed nipples and I’m pretty happy with them. That fleeting sadness will probably always be there. I can completely relate to your remark. Hang in there, some days I don’t even think about breast cancer. Hugs to you from South Carolina

Oct 1, 2019 01:49PM - edited Oct 1, 2019 01:49PM by M0mmyof2

I was diagnosed 6 1/2 years ago at age 37. Still fighting and counting every day as a blessing. Determined to die as a cranky old woman who keeps everyone guessing at what I'm up to!

Oct 8, 2019 04:28AM Prahan wrote:

Thanks survivors for your inspirational stories, really a boost