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Topic: Survivors not on these boards

Forum: Who or What Inspires You? —

Share your personal story, diagnosis, and treatment path, and stories of survival, hope, and success to encourage and inspire others!

Posted on: Jan 18, 2016 11:18AM

Honeytagh wrote:

Hi everybody

Let's talk about all the survivors that have managed to overcome this disease and have been NED for many years. A lot of them are not on these boards. By sharing the stories of the long term survivors that are not here we can give each other some inspiration .

I want to begin with the stories of four ladies. I met three of them at the clinic who were more than 10 years beyond diagnosis without recurrence . The other lady was my daughter's friend's grandma who died 27 years after her diagnosis because of an unrelated disease.

Hanieh

Dx at 32 Dx 7/11/2014, IDC: Medullary, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 7/23/2014 Lumpectomy; Mastectomy Dx 11/8/2017, IDC, Right, 4cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2- Radiation Therapy Whole-breast: Breast Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 18, 2016 01:09PM ksusan wrote:

I know many, but I feel strongly that if they wanted their stories shared here, they'd share them themselves. I don't feel comfortable telling other people's stories without their permission.

Mutant uprising quashed. Dx 1/2015, IDC, Right, Stage IIA, 1/1 nodes, ER+/PR+, HER2- Dx 1/2015, DCIS, Left, Stage 0, Grade 3, 0/2 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Jan 18, 2016 04:50PM Fallleaves wrote:

Hi Hanieh,

My oncologist had breast cancer 17 years ago, but is now healthy and helping many women fight the disease.

Laura

Dx 7/5/2013, IDC, 2cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/20/2013 Lumpectomy: Right
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Jan 18, 2016 05:23PM - edited Jan 22, 2016 10:46AM by Yolo123

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Jan 18, 2016 05:26PM exbrnxgrl wrote:

Personally, as long as we're not using names or identifying details, I think it's fine

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Jan 18, 2016 05:36PM - edited Jan 22, 2016 10:45AM by Yolo123

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Jan 18, 2016 09:43PM littleblueflowers wrote:

My great aunt had breast cancer at 50, still going strong at 101. Great idea for a topic!

If it stops the nightmares, it probably won't kill me Surgery 3/8/2015 Mastectomy: Left, Right Dx 3/9/2015, IDC, Left, 1cm, Stage IB, Grade 3, 2/16 nodes, ER-/PR-, HER2- Radiation Therapy Lymph nodes Chemotherapy AC + T (Taxol)
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Jan 18, 2016 10:34PM Honeytagh wrote:

Thank you all for your replies. If we know how some people managed to overcome it we feel stronger in our battle. Unfortunately the great majority of the ladies on these boards are in the middle of this battle or have recently finished treatment. Long term survivors seldom appear here.

Yolo123 I, too,strongly believe that we are all sisters who can support each other.

Love

Hanieh

Dx at 32 Dx 7/11/2014, IDC: Medullary, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 7/23/2014 Lumpectomy; Mastectomy Dx 11/8/2017, IDC, Right, 4cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2- Radiation Therapy Whole-breast: Breast Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 18, 2016 10:49PM ruthbru wrote:

My aunt had BC in the early 1960s. She had a radical mastectomy & nothing else (that was all the treatment offered to her at the time). She died 30 years later at the age of 88 without ever having a recurrence.

Another acquaintance was in her mid-30s with three small children when she was diagnosed. She underwent treatment, waited 5 years & then had two more kids. All are grown up now and she is a grandmother many times over. She remains cancer free to this day.


"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jan 18, 2016 11:21PM Englishmummy wrote:

love, love, love these stories - hope they keep coming. Little blue - 101! Wow. Although, 88 also sounds pretty darn good!

Dx 5/22/2015, IDC, Right, 2cm, Grade 2, 0/5 nodes, ER+/PR+, HER2- (FISH) Dx 5/22/2015, IDC: Tubular, Left, 1cm, Grade 1, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 6/10/2015 Mastectomy: Left, Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Hormonal Therapy 7/22/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 20, 2016 07:00PM leaf wrote:

My grandmother had breast cancer in the early 1950s. In this era, there were no mammograms, no chemotherapy and no radiation, so I assume she had a breast lump. She had bilateral radical mastectomies. She lived another 25 years until she was in her late 80s, no further signs of cancer, and died of a totally unrelated cause.

In this 1953 paper, if I'm reading this right, in a woman with a radical mastectomy for unilateral breast cancer, about 25% of the women lived for 15 years or longer. I'm not sure (I'm no statistician) they take into account that women who survive for 40 years after a radical mastectomy (and no other breast cancer treatment) have a good chance of dying from something else besides breast cancer. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1802815/?page=4

Classic LCIS.If knowledge can create problems, it is not through ignorance that we can solve them- Isaac Asimov Dx 12/8/2005, LCIS, ER+/PR- Surgery 1/24/2006 Lumpectomy: Left Hormonal Therapy 7/15/2006 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 22, 2016 08:34PM - edited Mar 27, 2016 01:19AM by funthing42

This Post was deleted by funthing42.
Dx 6/1/2009, IDC, <1cm, Grade 2, ER+/PR+, HER2- Hormonal Therapy 6/5/2009 Arimidex (anastrozole) Surgery 6/5/2009 Lumpectomy: Right Radiation Therapy 8/1/2009 Whole-breast: Breast Hormonal Therapy 11/1/2009 Arimidex (anastrozole) Dx 11/1/2013, IDC, 1cm, Stage IA, Grade 2, ER+/PR-, HER2+ Surgery 1/1/2014 Mastectomy: Right; Prophylactic mastectomy: Left Targeted Therapy 2/1/2014 Herceptin (trastuzumab) Chemotherapy 2/1/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Dx 10/1/2014, IDC, Right, <1cm, ER+/PR-, HER2- (FISH) Hormonal Therapy 11/1/2014 Aromasin (exemestane) Dx 2/2016, IDC, ER+/PR-, HER2-

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