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Topic: Looking for Pinktober Alternative buttons, shirts, charities

Forum: Recommend Your Resources — Book reviews, favorite web sites, products, articles.

Posted on: Sep 11, 2015 11:15AM

ShetlandPony wrote:

My family wants to wear alternative buttons or shirts this October. Does anyone have suggestions or links on where to get some asap?

We want to promote "awareness" that pink picnics and marketing end up contributing very little money toward finding a cure, even though around 30 percent of early stagers progress to stage iv/metastatic through no fault of their own, and some are stage iv at diagnosis. (These are the people made invisible in the typical awareness campaign, and the ones who die of the disease.) We want people to know that this disease is not fun, cute, sexy, or a great free boob job.

Also, once people get this message, we would like to be able to suggest a couple organizations they can donate to that will actually use their donation to help find better stage iv treatments and eventually a cure.


2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Posts 31 - 45 (45 total)

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Sep 30, 2018 08:56PM Traveltext wrote:

I’m getting feedback from Stage IV folks suggesting groups such as Metavivor and MetUp are worthy recipients of donations.

Recommended reading is the site set up a couple of years ago by regulars on this thread:

www.PinktoberSucks.com


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Oct 10, 2018 04:13AM shepkitty wrote:

Thank you ShetlandPony for this starting this thread! Big hoof/paw bump to celebrate that we're still around to educate and decimate!

I am shirting all my grown up responsibili-tees and am instead posting some stuff to show our rejection of the "Pink Culture".

(It's been a hella year - apologies to my dear friends for popping over here first)

PInK AlterNatives 2018

~ Almost all the items shown above from 2017 are still available!


Teespring for Metavivor with front and back print Sold as a tank top too, offered in 3 colors.

Take This Pink Ribbon Off My Eyes No Doubt Smoke Gray T-Shirt Front #Dontignorestage4 Metavivor.Org Smoke Gray T-Shirt Back


Cancer Lifers for Houston front\back - Other colors crew neck, V-neck and long sleeve available


#Lifer New Navy T-Shirt Front Metastatic Cancer Research Not Ribbons New Navy T-Shirt Back


MALE BREAST CANCER


Male Breast Cancer Survivor Overcome The Stigma Awareness Speak Out To Save A Brothers Life White T-Shirt Front



"Keep passing open windows" Dx 2/2013 Stage IV mets to bones/spine, IDC, Left, 1cm, Grade 3, ER+/PR-, HER2-. Dx 1/23/2017 brain mets. Bone Rads, 2 Kyphoplasty, 1 Craniotomy, 3 Gamma Knife. Xeloda May 2017. DX 11/7/17 DCIS,Left, Ibrance 6/18
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Oct 10, 2018 05:30AM shepkitty wrote:

Amazon sells shirts from Cafe Press - Some artists may make donations or have cancer, unfortunately not stated. This is the fastest way to get a shirt order though. All shirts available in different colors and styles.

For AnimalCrackers ~

F Awareness, Find a Cure

Not Dead Dont Ignore

Surviving Metastatic

breast cancer awareness one in eight

#ResearchNotRibbons



* I am bewildered at how many great products there are that denounce the ribbons but don't offer a website for a worthy charity. Does anyone know how to add text ourselves to a shirt? Sharpies, Iron on Letters....... any suggestions?

"Keep passing open windows" Dx 2/2013 Stage IV mets to bones/spine, IDC, Left, 1cm, Grade 3, ER+/PR-, HER2-. Dx 1/23/2017 brain mets. Bone Rads, 2 Kyphoplasty, 1 Craniotomy, 3 Gamma Knife. Xeloda May 2017. DX 11/7/17 DCIS,Left, Ibrance 6/18
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Oct 10, 2018 05:44AM Lula73 wrote:

This young man is handmaking these keychains and (with a little education from me) donating proceeds to METAvivor. If you are interested, PM me...




-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/13/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/2/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/2/2018 Femara (letrozole)
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Oct 10, 2018 11:49AM - edited Oct 10, 2018 11:49AM by Spookiesmom

I think Cafe Press allows you to design your own shirts. Or find a local t shirt shop and do your own. Big Frog is local for me, and on line. Doesn't get any proceeds to research, but you can wear your feelings.

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
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Aug 9, 2019 07:51AM DogMomRunner wrote:

I'd like to revive this thread unless there is an updated one somewhere. I'm looking for non pink non religious/prayer cancer shirts connected to a decent charity

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Aug 9, 2019 07:59AM - edited Aug 9, 2019 08:01AM by Jons_girl

areyoudense.org has a great T-shirt. You have to request one through their website. But for those of us who have very dense tissue which wasn't seen on a mammo women need to know that mammos won't always see cancer. Which isn't something we are ever really told.

Also another idea...you could go to zazzle and make some T-shirt's too with whatever you want it to say.Then this community could support the effort!😊just a idea!

Jons girl

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 7/5/2017 Lumpectomy: Left; Lymph node removal: Sentinel
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Aug 20, 2019 05:22PM - edited Aug 20, 2019 05:25PM by Olma61

👋🏼 I'm a designer in Amazons merch program. These are two of mine:

“Keep the Pink" https://www.amazon.com/Me-Breast-Cancer-Activist-T-Shirt/dp/B07VS6WD14/

“Screw the Pink" if you're a little edgier https://www.amazon.com/s?k=Screw+the+pink&i=fashion&bbn=7141124011&rh=n%3A7141123011%2Cn%3A%217141124011%2Cn%3A7147445011&dc&qid=1566338809&rnid=7141124011&ref=sr_nr_n_6

Royalties do benefit a metastatic cancer patient 👆who makes occasional donations to BCO. 😁

I would be happy to take requests for designs and either put them up on Amazon or have them printed privately for you. I can do mugs and other items, too.

Another “Don't Ignore Stage IV “ https://www.amazon.com/dp/B07CH6GDPZ?ref_=pe_2196150_146773810

Here's a screenshot of one design,if it isn't too large.



10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Aug 24, 2019 08:40AM DogMomRunner wrote:

thanks Jons girl and Olma!

Olma - I would love to see some shirts that state that breast cancer comes in all different types. There are 3 people at work diagnosed in the past 5 months with different types of BC. Also a HER-2 positive shirt would be great. No pink ribbons

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Aug 24, 2019 09:32AM MountainMia wrote:

I'd love a t-shirt that says "Ask me about my hair-do."

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Aug 24, 2019 01:23PM Olma61 wrote:

I love these ideas! I am on it!

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone
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Sep 18, 2019 06:48PM ShetlandPony wrote:

Bump. It’s almost Pinktober! Do you have your alternative shirts, buttons, and bags ready? And suggestions for inquirers of where their donation money will actually do some good? I like Metavivor. And of course we are grateful to BCO four having a stage iv forum.


2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Sep 19, 2019 06:09AM - edited Sep 29, 2019 07:40PM by Mavericksmom

This Post was deleted by Mavericksmom.
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Sep 19, 2019 08:52AM - edited Sep 19, 2019 09:29AM by DogMomRunner

I think I will get a metavivor shirt (even though I was stage 1). Just to let people know that BC is not always caught early stage.

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Sep 19, 2019 04:46PM - edited Sep 19, 2019 10:48PM by Olma61

Hey just wanted to share - I checked Amazon Smile - Metavivor is one of the charities listed so if you buy any random item on Amazon and use Amazon Smile you can have the (small) donation go to Metavivor. Also, I went to buy one of my own breast cancer shirts from Amazon and I got an automatic popup during checkout asking if I wanted to donate through Smile - it defaulted to Susan G Komen, but there was the ability to search for a different charity and both BCO and Metavivor were choices I could make from there.

Admittedly, the donation through Smile is small, only point-5 percent. But if you do regular shopping through there too, it does add up.

10/30/2017 Xgeva for bone mets 5/31/2018 Taxol finished! "If one just keeps on walking, everything will be all right” - Kierkegaard Dx 8/3/2017, IDC, Right, 2cm, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (IHC) Targeted Therapy 10/28/2017 Perjeta (pertuzumab) Targeted Therapy 10/28/2017 Herceptin (trastuzumab) Chemotherapy 10/30/2017 Taxol (paclitaxel) Hormonal Therapy 5/14/2018 Arimidex (anastrozole) Radiation Therapy 5/30/2019 External: Bone

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