We are 193,651 members in 81 forums discussing 143,546 topics.

Help with Abbreviations

All TopicsForum: Recommend Your Resources → Topic: Dr Google deserves more credit these days

Topic: Dr Google deserves more credit these days

Forum: Recommend Your Resources — Book reviews, favorite web sites, products, articles.

Posted on: Jul 2, 2017 08:42PM

Traveltext wrote:

I think the oft-repeated comment on posts here to keep away from Dr Google is no longer true.

Looking at the top 10 search results on Google.com for the term "breast cancer" delivers the results below. Above this list are always a few ads, including mostly a couple for our own breast cancer.org.

I'd suggest all these sites have lots of useful info on bc.

Then, on the second page of results you get sites from Komen, Mayo Clinic, and others that have more good info.

Even looking at results for terms such as "breast cancer treatment" and "breast cancer symptoms" delivers plenty of reliable information.

I know from being in the search engine marketing business from way back in the day, that medical search results up until five years ago were pretty bad, but Google now understands the importance of delivering apt medical search results.

Of course, the internet is full of bad advice, and you can find that on BCO at times, so always double check information.


GOOGLE RESULTS 2 July 2017

1.
Breast Cancer - American Cancer Society
https://www.cancer.org/cancer/breast-cancer.html
Get detailed information about breast cancer risks, causes, symptoms, treatments , and more from the American Cancer Society.

2.
Breastcancer.org - Breast Cancer Information and Awareness
www.breastcancer.org/
We are a 501(c) non-profit organization offering a complete resource for breast cancer, including up-to-date information on the latest treatments, screening tests, ...

3.
Breast Cancer: Causes, Symptoms and Treatments - Medical News ...
www.medicalnewstoday.com/articles/37136.php
May 5, 2016 - Breast cancer usually starts off in the inner lining of milk ducts or the lobules that supply them with milk. A malignant tumor can spread to other ...

4.
Breast Cancer—Patient Version - National Cancer Institute
https://www.cancer.gov/types/breast
Information about breast cancer treatment, prevention, genetics, causes, screening, clinical trials, research and statistics from the National Cancer Institute .

5.
WebMD Breast Cancer Center: Types, Symptoms, Causes, Genes ...
www.webmd.com/breast-cancer/default.htm
The five year survival rate of breast cancer is over 90% when caught early. Get in -depth breast cancer information here including symptoms.

6.
Breast Cancer | Breast Cancer Symptoms | MedlinePlus
https://medlineplus.gov › Health Topics
Breast cancer affects 1 in 8 women during their lives. Here's what you need to know about risk factors, symptoms, diagnosis, and treatment.

7.
Breast Cancer Causes, Symptoms, Stages, Treatment & Signs
www.medicinenet.com › ... › cancer a-z list › breast cancer (facts, stages) index
Get the facts on breast cancer awareness, signs, symptoms, stages, types, treatment, and survival rates. Statistics show that 40000 women in the U.S. die of ...

8.
Breast cancer - Wikipedia
https://en.wikipedia.org/wiki/Breast_cancer
Breast cancer is cancer that develops from breast tissue. Signs of breast cancer may include a lump in the breast, a change in breast shape, dimpling of the skin, ...

9.
Why Doctors Are Rethinking Breast-Cancer Treatment | Time.com
time.com/4057310/breast-cancer-overtreatment/
Not the sort of thing that usually comes out of the mouth of a woman who's just been diagnosed with breast cancer. For 20 minutes she'd been ...

10.
Our Feel-Good War on Breast Cancer - NYTimes.com
www.nytimes.com/2013/04/28/magazine/our-feel-good-....
Breast cancer in your breast doesn't kill you; the disease becomes deadly when it metastasizes, spreading to other organs or the bones.

Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

Log in to post a reply

Page 2 of 2 (51 results)

Posts 31 - 51 (51 total)

Log in to post a reply

Jul 3, 2017 04:08PM Sadiesservant wrote:

Hi All,

I'm going to weigh in here as I feel there is an additional reason to avoid Dr. Google. It can be particularly worrisome when you are looking for specifics on advanced disease. When I was diagnosed with malignant pleural effusion I was convinced I had less than two years to live, possibly less than a year! This is certainly not the case as I now know but Dr. Google gave me a bum steer. The stats are out of date and most of the info is related to lung cancer. Scared the you know what out of me. I joked that I planned everything except my funeral between diagnosis and my first appointment with my oncologist. So for those with recurrence Dr. G is not your friend.

The reason that I rarely post on the not diagnosed but worried thread is the same reason that I am mindful of posting outside of the stage IV thread, I don't want to worry people unnecessarily. My story is not your story but I am sure folks look at my situation, recurrence more than 15 years out, and feel somewhat hopeless. I know there are a lot of us advanced Stage ladies (and men) with a lot of experience with this crappy disease who are afraid to instil panic before they are even sure there is an issue. Personally, it would be helpful to me if only Stage IV could see my diagnosis and treatment. It's such useful info for those in the same boat but scary stuff for those less educated.

Oh, and I hate FB. No "likes" please.

Dx 4/2001, IDC, Right, 1cm, Stage IIA, Grade 3, 1/10 nodes, ER+ Surgery 5/11/2001 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 6/7/2001 CEF Radiation Therapy 12/17/2001 Whole-breast: Breast Hormonal Therapy 12/20/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/2/2007 Femara (letrozole) Hormonal Therapy 10/22/2007 Arimidex (anastrozole) Dx 1/3/2017, IDC, Right, Stage IV, metastasized to lungs, ER+/PR+, HER2- Chemotherapy 1/27/2017 Taxol (paclitaxel) Hormonal Therapy 3/30/2017 Arimidex (anastrozole) Targeted Therapy 4/21/2017 Ibrance (palbociclib)
Log in to post a reply

Jul 3, 2017 04:50PM Lucy55 wrote:

Sadiesservant ..yes ..I can see how outdated some of the stats and studies on stage 4 are :..We only have to look at so many people living long happy lives after diagnosis on this site to know that ..please never be put of from posting ..15 years cancer free gives us all HOPE !!

I fail to see how a " like button " can cause anyone grief ...now ..a "don't like " might be another story 😵

Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/15/2014
Log in to post a reply

Jul 3, 2017 05:03PM Traveltext wrote:

Closed Facebook group pages can be used as message boards, and medical FB pages operate in this way. Note, FB closed group posts don't go outside the group. Questions are answered, experiences shared, and links to appropriate resources posted. I believe social media sites that use real names are more civil than sites that use avatars, because the cloak of anonymity is not available. Wisdo.com has a breast cancer support group and their motto is: "We are all here for each other. A safe place to talk openly without fear of judgement. This is where we can share our real feelings!" While I fully understand that that's not the motto here, I prefer the hard edge to this site, since I can give as well as take if that's necessary.

Artista is right, BCO is a collection of cliques. People in various disease stages have bonded over the years and they support each other. But newcomers often serve a probation before being included. Yes, I'm a guy, but this disease is genderless and I can bring a male perspective and differing concerns to the boards. Like Lucy55 I love the longevity of this site and hearing stories from those long-term survivors. While I don't like losing people from my IBC clique, I know that those of us continuing are living longer because of our support for each other.


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

Log in to post a reply

Jul 3, 2017 08:52PM MinusTwo wrote:

Wrenn - Traveltext is a feature on BCO as a male with breast cancer. We're so glad to have him.

Still - I personally don't like & don't want to do Facebook. I would not appreciate a "like" button. I think people need to express what they think with words Breast cancer is not an easy topic like having chocolate ice cream for lunch, or learning how do stand-up paddle board.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Jul 3, 2017 09:17PM wrenn wrote:

I know he is male but was wondering how that related to the conversation. I often miss the point these days so just wondered if the fact that he is male somehow changed the way he thought about google or likes

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 11/25/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Jul 3, 2017 09:58PM LimnoGal wrote:

Sadiesservant-I understand what you are saying with respect to having your your diagnosis information available to any and all viewers.

However, from a different point of view, I learned a LOT from posts I read from several women and men with advanced diagnoses. The diagnosis info helped me sort out posts in my mind- those from folks with lots of experience vs. those from newbies (like me at the time). A measure of street cred, if you will. And rather than the diagnoses scaring me off, they were a huge comfort. It was proof positive that you didn't drop dead within days of your diagnosis, and that treatment was do-able. Seeing those diagnoses made me realize that life really does go on.

So, thank you all for your help. It has been invaluable to me.

Moving on.... Dx 11/2016, DCIS/IDC: Papillary, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER+/PR-, HER2- Surgery 2/11/2016 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Balloon-catheter: Breast
Log in to post a reply

Jul 3, 2017 10:03PM - edited Jul 4, 2017 12:44AM by ShetlandPony

This Post was deleted by ShetlandPony.
2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn. Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast, liver, retroperitoneal nodes. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda
Log in to post a reply

Jul 3, 2017 10:36PM Traveltext wrote:

wrenn, I just interested in the future of digital media generally, so not sure if this a guy thing. BCO, as far as I'm aware, don't intend to abandon this forum. Rather they are aware of falling participation rates here and looking to connect to, most likely, a younger audience that spends lots of time on social media. Their FB and Twitter presence is all about bringing people here. BCO is somewhat institutionalized, both in the management, and many of the long-term people posting here, and I can understand why there is resistance to change. However, since the Internet is a dynamic entity governed by its users, it will be they who determine the direction and success, or otherwise, of this or any other any site. We all remember Alta Vista and MySpace.

The potential audience for this site is the 250,000 newly diagnosed women and 2,500 men annually diagnosed with breast cancer in the US who are having issues with their diagnosis or treatment, not to mention a few hundred thousand more people worldwide who speak English or Spanish . A minute proportion of these people currently use BCO.

It would be good if BCO management could update us on the future of this site and the changes they have in mind. That's when the real debate will begin.


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

Log in to post a reply

Jul 3, 2017 10:55PM Freya wrote:

Rather they are aware of falling participation rates here and looking to connect to, most likely, a younger audience that spends lots of time on social media.

When you talk about a younger audience, what age group are you talking? It would seem odd to target 20 - 40 yr olds for example because they use social media, when the age group that gets BC the most is 45 - 75, around 67% ( although I was younger than that). Some stats on social media use.

Like some others here I dont have facebook, twitter, instagram etc accounts. I am a private person, and even the information on my dx and treatment is very basic in my signature.

Dx 2009, ILC/IDC, Right, 6cm+, Stage IV, metastasized to bone/liver, Grade 3, 14/22 nodes, ER+/PR+, HER2-
Log in to post a reply

Jul 3, 2017 11:08PM Traveltext wrote:

By younger audience, I mean people 50 and under. It's certainly interesting from those stats to note that around 70% of US adults use one or more social media sites. FB last week announced that there are now 2 billion active users (defined as using once a month) worldwide.


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

Log in to post a reply

Jul 4, 2017 01:08PM MinusTwo wrote:

Yes, many of my friends have had to succumb to facebook if they wanted to see their grandchildren at all. They are not happy how it has taken over their lives. I am not happy going to dinner with grown-ups who spend the entire meal looking at their damn phones. I don't like it when millennials do it either, but it's not so disappointing. I don't mean to sound like an old curmudgeon. I just think there should be boundaries, and the dinner table should be one of them.

I have received a lot of advice and support on this site. I left after my first go round. When they found a recurrence, I came back. I believe in paying it forward. If I can help even one person with one tiny thing, I will do so. HOWEVER - if this site turns into "facebook lite", I will have to say good bye.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Jul 4, 2017 02:40PM Traveltext wrote:

Hmm, I can just see us scrolling the pages of BCO at dinner parties. "Hey, check out this neatmastectomy".


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

Log in to post a reply

Jul 4, 2017 03:31PM Lucy55 wrote:

Minus Two ..I often read your posts helping to support people on this site , and I always think what a comfort and help you are to so many ...so please don't leave , whether a like button is installed or not .

Traveltext ..HaHa ..I would definately hit the like button on your last post ( if there was one , of course ) !!!!..


Dx 8/27/2014, IDC, <1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Hormonal Therapy 9/15/2014
Log in to post a reply

Jul 4, 2017 03:38PM TB90 wrote:

If it had not been for Dr. Google, I have no idea how I ever would have managed. There is so much misinformation out there shared with us in every fashion, including the often unwelcome advise of others. We only have to turn on the news for an instant to recognize that facts are just not valued the way they used to be. We all have to carefully scrutinize the info we receive no matter from where and I find it somewhat patronizing when professionals tell me to stay off Dr. Google. Here in Canada they spend so little time educating and providing information that I would have known nothing if I had not researched myself and then been led to this forum. Beesie and others saved my sanity (somewhat :) and although I almost fainted with fear once while researching something, I want all the info and I will decide what is useful for me.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
Log in to post a reply

Jul 4, 2017 03:52PM ElaineTherese wrote:

I agree, Traveltext, that if you Google "breast cancer," many of the first sites to pop up are respectable. However, like many here, I do worry about the person who Googles various terms (e.g., "rash on breast") and quickly jumps to the conclusion that he/she is dying.

I have to admit that I don't respond much to the "worried, but not diagnosed" posts. Unlike djmammo, who knows a lot about radiology, I don't know much about how to interpret scans. I also don't know much about benign breast conditions. Like many on here, I respond to posts that I feel I can speak to -- I have more to offer a newly diagnosed person who is HER2+ or triple positive than to someone who is triple negative.

I personally wouldn't care for a "Like" button, but then again, I don't do Facebook, Twitter, or Instagram either. This place shouldn't host a popularity contest; it should be a place where people can vent and complain and (civilly) discuss various topics. It is messy and repetitive (there must be at least 50 threads where people kvetch about the AIs). However, this site gave me the most realistic understanding of what chemo involved and different ways to address its side effects. I will never forget the comfort it provided me during the worst period of my life.


DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/23/2014 AC Targeted Therapy 9/17/2014 Perjeta (pertuzumab) Targeted Therapy 9/17/2014 Herceptin (trastuzumab) Chemotherapy 9/17/2014 Taxol (paclitaxel) Surgery 1/12/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Hormonal Therapy 2/25/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/9/2015 Breast, Lymph nodes
Log in to post a reply

Jul 4, 2017 04:22PM Traveltext wrote:

My regular doctor encourages me to use authoritative medical web sites. She says, I use the Mayo Clinic site all the time. ElaineTherese is right, though, search terms vary and more dubious results can be delivered to freak people out. Then they turn up here for clarification. But I agree with TB90, we all have to carefully scrutinize the info we receive no matter where it comes from.

I'd suggest most regulars here would regard themselves as patient advocates, and follow their treatments based on all the knowledge they garner from the internet or professional sources. That's why, when you've been here for years, you do have lots to offer newbies, as in "Beesie and others saved my sanity."

While BCO is a bit chaotic, there's nothing that hasn't been discussed and, with the search function, you can read it all. The BCO FB page doesn't carry medical comments, it's really just promoting bc matters and even includes links to the forums here. There's no way this FB page will ever supplant or replace the discussion forums here.


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

Log in to post a reply

Jul 4, 2017 06:04PM Artista928 wrote:

I can see the like button creating a popularity type of contest/feeling v the person having to actually either say ditto so and so are take a moment to write their thoughts. I don't care for fb either. I only am on there to see pics of fam otherwise I can't stand seeing 10 like for something without anyone saying a word about what is it they like about it, esp if it's something that could be controversial or taken wrong. I don't care for emoticons either as a replacement for words. Too impersonal. Such a site like this that is personal imo shouldn't start looking fb or tweeter ish.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Jul 6, 2017 06:41PM edwards750 wrote:

I'm not a big fan of FB except to post family pics for family and friends but I do support many animal rescue sites too on FB. I have learned to steer clear of abuse stories because it is too upsetting plus they run the same stories multiple times.

There are people who post their life histories on FB as well as what they are doing every day. No offense to them but who cares? Pretty self centered if you ask me.

I had a patient advocate from the getgo. She was awesome. Thiswebsite was one of the ones she suggested I check out and I'm glad I did. It has been my lifeline. I have also made friends outside the website and our common DX.

I have to admit I had an experience with breast bruising and surfed the net for answers. I was terrified of what could have caused it. Still don't know but it's long gone. Had it not disappeared I was planning on making a trip to my doctor. Idk if I will ever be over the fear factor with breast cancer despite being 6 years out next month.

Diane

Log in to post a reply

Jul 6, 2017 07:20PM Artista928 wrote:

OMG I can't stand seeing people just post random things. Close fam maybe, but I'm going to Arbys for dinner or I'm watching this movie just clogs up FB. I don't want to hurt their feelings by unfriending them so most of my 'friends' are on do not follow mode.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Jul 7, 2017 12:24AM ChiSandy wrote:

Ah, yes—MySpace (I forget who called it “God’s abandoned Internet playground”). I do FB (but since I joined BCO, not as often), for its Messenger and the ability to reach out to friends, relatives & my music’s fans in general; I also use it to post quips or make political statements (I don’t do memes). And when I had updates to my CaringBridge page, I announced them on my FB page. For some forgotten reason, I started a Pinterest account but have yet to “pin” anything. If I like something enough to post a picture of it, I put it up on FB. I keep getting e-mails that so-and-so is now “following” me on Pinterest, and that my Pinterest friend so-and-so (I’ve never made a friend request or followed anyone) has “pinned” something I should see. For the same reason, I’ve never felt the need to get an Instagram or Snapchat account, either. The only reason I have a YouTube page is that it’s easier to direct people there than to try to embed videos on my website (which I built from the host’s templates, since I lack the patience to try HTML coding).

But Twitter? Yeesh, it takes me 140 characters just to clear my throat! The few times I’ve posted there were either because I could make a short quip or it was cross-posted from FB. The day BCO moves its platform to Twitter, Instagram or Pinterest (can you imagine “pinning” pics of your reconstructions?) is the day I take a sledgehammer to my computer and iPad.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
Log in to post a reply

Jul 7, 2017 12:56AM Traveltext wrote:

I'm on a couple of different cancer FB groups, but try not to confuse my disease posts with my personal FB page which is for family stuff and a few friends. As to the latter, I mostly turn off notifications to avoid too much extraneous "noise". Twitter is my new communications fave for one topic only, male bc advocacy. It is just perfect since I'm followed and following the main bc charities and the heavy tweeters in the male bc game. I know some people can't get out of bed for 140 characters, or like Chi, clear their throat, but it's not about long chats or complex discussion, rather for brief comments and links to appropriate sites and discussions. For reaching those making decisions and for infiltrating people's headspace, Twitter works a charm. A retweet from a big Twitter account can move my comments from hundreds of followers to thousands. Pinterest, Instagram, Snapchat have their devotees, but I also ain't one. There's only so much communicating one can do, and I don't think they would work in my fields. Wisdo, I've just discovered, has a few bc chat groups growing followers at a great rate but, although great support is offered those in psychological distress, for medical detail it's definitely a case of the blind leading the blind. I cancelled my account after two days.


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

Page 2 of 2 (51 results)