We are 228,650 members in 84 forums discussing 159,786 topics.

Help with Abbreviations

Topic: Google. Friend or Foe

Forum: Recommend Your Resources — Book reviews, favorite web sites, products, articles.

Posted on: Jan 25, 2020 09:58PM

TB90 wrote:

This is a place to recommend your sites on Google that are accurate, current and accessible for all. Google is often mentioned as a place to avoid. A place to instil terror. Well it was a lifeline for me. And it did instil terror. How can we maximize this resource to our advantage? BC patients need info and need info in a timely fashion. Where else is this readily available? Symposiums are not accessible for all and doctors rarely have the time to provide all we need to know. Libraries? BCO members quote info and studies and I suspect many are found on Google. So rather than close the library door for fear of what may lurk there, let’s help others access what may promote their health and well being. Thanks in advance for posting

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/17/2013 Mastectomy: Left Radiation Therapy 2/19/2014 Breast
Log in to post a reply

Page 1 of 1 (10 results)

Posts 1 - 10 (10 total)

Log in to post a reply

Jan 25, 2020 10:37PM MinusTwo wrote:

NCI -

Mayo Clinic

Sloan Kettering

Stanford

MD Anderson


2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
Log in to post a reply

Jan 25, 2020 10:58PM Beesie wrote:

  • NCCN Guidelines.

https://www.nccn.org/professionals/physician_gls/default_nojava.aspx

Anyone can access the Patient Guides; registration is required to access the Physician Guides but registration is easy.

  • Moose and Doc

https://breast-cancer.ca/

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
Log in to post a reply

Jan 25, 2020 11:33PM TB90 wrote:

I love Moose and Doc but would never have had the confidence to admit it, simply by its title. Now endorsed by Beesie, I can openly admit it.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/17/2013 Mastectomy: Left Radiation Therapy 2/19/2014 Breast
Log in to post a reply

Jan 26, 2020 03:14AM WC3 wrote:

I tend to use Google Scholar but the papers there are not intended for the general public and may be difficult for those without an academic background to draw proper conclusions from.


Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 5/31/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/14/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
Log in to post a reply

Jan 26, 2020 05:47AM MelissaDallas wrote:

Memorial Sloan Kettering’s herb and supplement database for info on effectiveness (if any) along with interactions and estrogenic properties

https://www.mskcc.org/cancer-care/diagnosis-treatment/symptom-management/integrative-medicine/herbs/search


LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
Log in to post a reply

Jan 26, 2020 10:37AM exbrnxgrl wrote:

On a more general note, there are a few things I look for when googling info on bc or most anything else for that matter.

- Date of information. When was the study/paper etc. published?

- Who did the research/study? Are they legit, credible sources? Yes, I know that faulty research and insufficient documentation as well as a few flat out falsifications exist in the world of scientific research. The faster those bad apples are exposed the better, but they still remain in the minority.

- Anecdotal evidence, what can I say? It can be uplifting and encouraging but it's not data.

Google can be helpful but make sure or the validity and credibility of what you read.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
Log in to post a reply

Jan 26, 2020 11:41AM TB90 wrote:

Thanks for the recommendations everyone.

Exbrnxgrl. Excellent advise. That’s why it is so helpful for recommendations of specific sites as so many of us can struggle initially with which ones are legit. I have since figured this out but even as I demonstrated above, I was leery of endorsing a site called Moose and Doc even though it really helped me.

When newbies come on board, we say, try not to stress and stay off of Google. I could do neither. So with suggestions here, hopefully they can read this and navigate Google safely.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/17/2013 Mastectomy: Left Radiation Therapy 2/19/2014 Breast
Log in to post a reply

Jan 26, 2020 11:53AM Beesie wrote:

TB90, actually it was djmammo who gave me the confidence to admit that I love Moose and Doc. He posted a while back that it's one of his favorite sites. Happy

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
Log in to post a reply

Apr 13, 2020 07:42AM EllieClark wrote:

Google makes the process of finding the right information easier and greatly facilitates our online travel.

Log in to post a reply

Apr 13, 2020 11:44AM MinusTwo wrote:

Ellie - welcome to BCO. When you get a chance, do go to My Profile and post your diagnosis & treatment information. It makes it easier to share.

Yes, Google is a wonderful place to find information. The problem is there's also mis-information & hype. It's challenging when someone's researching a symptom - such as a pimple, or a disease - such as breast cancer. You can "diagnose" your death w/o ever seeing a doctor to calm your fears & accurately review the question.

I can remember the days when our only resource was the dictionary or an encyclopedia. It's great to have knowledge at your fingertips - just sometimes hard to remember the web is not a doctor & certainly not the definitive answer. But for finding & listening to the old songs of the 50's at 3am - it's GREAT!!

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014

Page 1 of 1 (10 results)