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Topic: Lookiing for BS PS (and MO) Recommendations - Bay Area CA

Forum: Recommend Your Resources — Book reviews, favorite web sites, products, articles.

Posted on: May 24, 2020 11:19AM

Lifo45 wrote:

Hello all,

I've been recently diagnosed with IDC and so glad that this forum is available as I have a steep learning curve! I don't know anyone who has had breast cancer. I have received a BS recommendation from a fantastic member on this forum and looking for a couple more just in case the recommended BS doesn't work out because she is out of my network or has a scheduling conflict, etc..

Here is what I know so far:

I have IDC in right breast. It's in 2 quadrants (2.4 CM and .9 CM) and has impacted at least 1 lymph node. I'm ER+ve/PR -ve/HER2-ve. We're still waiting on genetic testing results and MRI.

The MO I've seen has indicated I'll likely have surgery first (based on info I have so far I'll go for mastectomy + reconstruction with my own tissue) then chemo. He also said I'd need to take AI for 5 years - I'll want at least a second opinion on whether there are alternatives to AI and am open to switching to another MO - although the medical practice I'm working with offers a broad range of medical services it's not a comprehensive cancer care center.

Please recommend BS or PS or MO with whom you worked that came highly recommended. If you could indicate why you selected that Dr., that would be much appreciated. (FYI My insurance is -ex-Kaiser so can't use Kaiser Drs.)

Thank you!

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May 24, 2020 04:20PM exbrnxgrl wrote:

This won’t be of much help because 1) I am a Kaiser patient 2) All of my original docs have since moved out of CA or the country. But... I did get my second opinions at Stanford. They did a great job and communicated very well with my Kaiser mo. I would highly recommend them for a second opinion and since you are not a Kaiser patient, you could even switch to one of their doctors. My second opinion doc was Melinda Telli. A friend of mine who also has bc is a patient of Dr. Telli’s and has only good things to say about her. Take care

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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May 24, 2020 07:20PM Moderators wrote:

Lifo, welcome to Breastcancer.org, although we're sorry you had to find us for this reason. Hope you find the information and support your seeking here int his wonderful Community. If you decide to pursue a second opinion, you can read much more about it at the main Breastcancer.org site, including why, where and when to get them, and what to expect.

We hope this helps!

The Mods


To send a Private Message to the Mods: community.breastcancer.org/mem...
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May 24, 2020 09:33PM Lifo45 wrote:

Thanks @ exbrnxgrl! I will look up Dr. Telli
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May 24, 2020 09:34PM Lifo45 wrote:

Thanks, moderator- I'll review,

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