Topic: Looking for a lymphedema specialist in NYC

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Posted on: Jul 26, 2021 03:27PM

Posted on: Jul 26, 2021 03:27PM

meredithjane wrote:

I am not sure if this should be here or in the Lymphedema sub-forum. If anyone has advice on that, please let me know.

Anyway, I had a mastectomy on the left side a bit over four weeks ago. One sentinel lymph node had cancer, so my surgeon did an axillary lymph node dissection on the left side. (None of those nodes, other than the one sentinel node, had cancer.) She referred me to a physical therapist to evaluate and manage (if necessary) any lymphedema. But alas, the group she referred me to does not participate in my insurance.

So, I am hoping someone here can recommend a lymphedema specialist (physical therapist, other provider, or group) in New York City.

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Aug 14, 2021 02:10PM ratherbesailing wrote:

Hi MeredithJane -

I went to East 68th St. And, yes, my therapist specialized in lymphedema.

So sorry to hear about Mount Sinai!

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Aug 14, 2021 02:23PM meredithjane wrote:

Thank you!

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May 7, 2022 10:25PM dancemom wrote:

very late seeing this, but maybe this can help someone else in future. I too was having a very hard time finding a PT who knew about Post-mastecomy care. (yes, during one phone call, after explaining what i needed multiple times, the receptionist asked "so you had knee surgery, right?" I screamed into the phone "NO I HAD MY BOOB CHOPPED OFF" and hung up.) Spear Physical therapy on E14th st has a specialist i have been seeing for post-surgery and throughout radiation to help me keep my very physical job. She is great. They take most insurance.

Dx 3/16/2021, IDC, Right, 3cm, Stage IV, metastasized to other, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/29/2021 Femara (letrozole) Targeted Therapy 4/26/2021 Ibrance (palbociclib) Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Surgery 1/3/2022 Lymph node removal (Right): Sentinel; Mastectomy (Right): Skin Sparing Radiation Therapy 3/14/2022 Whole breast, Radiation boost: Right breast, Chest wall, Lymph nodes, Other part
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May 8, 2022 11:14AM meredithjane wrote:

Thanks, dancemom! I appreciate the info about Spear PT!

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