We are 159,125 members in 80 forums discussing 125,785 topics.

Help with Abbreviations

All TopicsForum: Young With Breast Cancer → Topic: Cold caps?

Topic: Cold caps?

Forum: Young With Breast Cancer —

Connect with those under 40 who have been diagnosed.

Posted on: Oct 27, 2013 08:43PM

eartman wrote:

anyone try these? How did you get them? Do you order them ?

Log in to post a reply

Posts 1 - 3 (3 total)

Log in to post a reply

Oct 27, 2013 08:53PM , edited Oct 27, 2013 08:54PM by Cougarlicious

There's a whole thread dedicated to this. It works best with those on TC tx vs AC. Depending on the brand, you can rent or buy, but they are pricey (renting can be $500/mo, not including dry ice and other equipment).


Diagnosed while 6 months pregnant...baby born 10/26 healthy with full head of hair despite three AC txs! Dx 7/2013, IDC, 3cm, Stage IIA, Grade 3, ER+/PR-, HER2- Chemotherapy 08/17/2013 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol Surgery 02/25/2014 Mastectomy of one or both breasts: Mastectomy of my right breast; Prophylactic (also called preventive) mastectomy of one or both breasts : Prophylactic (also called preventive) mastectomy of my left breast ; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Radiation Therapy 04/20/2014
Log in to post a reply

Oct 27, 2013 11:39PM 4sewwhat wrote:

Thanks for pointing her our direction Cougar! How's that baby?

Eartman, the thread has tons of info. Feel fre to PM me also if you would like some help navigating the info! I can tell you they can be pricey, but depending on the situation and the type of caps they can be affordable. They made a huge difference in my outlook and many of the ladies on the thread speak to that as well.

Hope to see you over on the thread! Let me know if I can be of any help.

47 when diagnosed 15 months after I originally went to doc about lump I found :( oncotype 13. Cold capping pics on my blog LaughingThruBreastCancer.blogs... Dx 3/25/2013, ILC, 5cm, Stage IIB, Grade 1, ER+/PR+, HER2- Dx 5/20/2013, ILC, 6cm+, Stage IIIC, Grade 1, 22/32 nodes, ER+/PR+, HER2- Chemotherapy 06/13/2013 Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel) Radiation Therapy 09/29/2013
Log in to post a reply

Dec 22, 2013 11:25PM gildedcage wrote:

I used cold caps during my TC x6 treatment. It worked well for me. I was also on the Lupron shot during chemo, which can have a side effect of hair loss. Despite all this, I've still got a full head of hair. It's thinned quite a bit and I prob lost about half my hair just through shedding but no one can tell. I never needed a wig. It's expensive but worth it, IMO. Keep in mind, cold caps show less success with ACT than TC.

Surgery 06/12/2013 Lumpectomy in one or both breasts: Lumpectomy in my right breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Chemotherapy 08/26/2013 Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel) Radiation Therapy 01/08/2014 Dx 1/28/2015, IDC, Right, 1cm, Stage IV, Grade 3, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy