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Topic: Coming off tamoxifen early to have a baby

Forum: Young With Breast Cancer —

Connect with those under 40 who have been diagnosed.

Posted on: Jan 25, 2011 03:03PM

bearcat13 wrote:

Hi everyone

I'm a little lonely over here in the UK and was hoping to find some kindred spirits.  I'm now almost two years on from my diagnosis.  I was diagnosed with Her 2+, weakly ER+ breast cancer in April 09 at the age of 37 about three months before we were due to be married and a few weeks after completion of our first round of IVF (sadly unsuccessful) for which I'd given up my rather stressful job to give it the best chance.  The last few years have been a whirlwind of chemo, surgery (I had a mastectomy and reconstruction and lymph node clearance), radiotherapy followed by herceptin, taking me to mid 2010.  For a full five months the Doctors thought I had secondary cancer but thankfully later results showed that they had been mistaken.  I'm now on tamoxifen (just over a year in with four more to go) and zoladex and am contemplating coming off the tamoxifen early to have a baby. 

I'm waiting for a test on my ovarian reserve which will show whether I am producing sufficient follicles to make embryo freezing viable.  Once that comes through (and I suspect it will show that there is no point going down the embryo freezing route) I will have to make the decision whether to come off the tamoxifen this year whilst I'm still 39 and therefore eligible for free treatment (I know, we are SO lucky in the UK) and have presumably a higher fertility rate.  Or wait a year or two when my fertility will be at rock bottom.  I've never felt so old!!!

This is a very lonely decision to have to make, with no statistics and limited evidence to spell out the risks.  My oncologist is very happy with me going down the IVF route, but the odds really do seem to be stacked against it being successful. Adoption also looks challenging for us because of my medical history and my partners (he has a spinal injury and is paralysed from the chest down). 

I went for a consult with the fertility clinic over the weekend and was shocked to hear that one of the UK's most famous fertility clinics had never treated anyone in my situation.  It seems that very few women of child bearing age, who want children but are at that crucial age when they can't wait five years get the sort of aggressive cancer that I had.  Most people have either had their family or have had time to freeze their embryos.   So I'm feeling a little alone.  Whilst I wouldn't wish this situation on anyone, it would be great to hear from someone else who is struggling with the decision whether or not to come off tamoxifen after a year and a half to try for pregnancy.

Take care all

Lisa x
Dx 3/9/2009, IDC, 6cm+, Stage II, Grade 2, 1/14 nodes, ER+/PR-, HER2+
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Mar 8, 2016 11:52PM Kirboxx wrote:

it's been a while since I checked in here and a lot has happened. Hubby lost his job in September then was diagnosed with bowel cancer 6 weeks later. He had almost all of his colon removed and they got all the cancer so they don't need him to have chemo or radiation. At the same time he was in hospital my period came back after almost 10 months after finishing zoladex and tamoxifen.

I broke the radius bone at my wrist the day before Valentines and needed to have surgery to insert a plate and screws. Hubby got offered a new job with really good future prospects contracting to the government.

We also found out on the 28th Feb that I'm pregnant! I was putting my lack of period down to stress and the op but it turned out to be early pregnancy symptoms.

I'm almost 7 weeks and will be due late October. We were completely taken by surprise as we had both been feeling unwell for a while so we weren't actively trying too hard this month and only tried once. Hubby is very pleased with himself about that.

We were worried about the effect all the drugs etc I was taking for the pain for my arm would have (morphine and ketamine in emergency, a general for the op and a week of regular panadien and ibuprofen) but the doctor I saw reassured us that there was minimal risk.

We're still in a bit of disbelief over it all but very happy.

Surgery Lumpectomy: Left
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May 4, 2016 02:32PM brandford37 wrote:

Hello Ladies I'm trying for a while now to give my husband a baby what he ever wanted we been together 11 months now 2 months ago I'm diagnosed with breast Cancer had my Lumpectomy surgery April 12 starting Chemo May 16 my treatment is ( Epirubicin + Cyclophosphamide Every 2 weeks × 4 doses ) and ( Abraxane once a week for 12 weeks ) wanna know if this kind of treatment can affect me from having a baby, I would like to conceive aafter treatment... can someone tell me their's a hope for me I'm 37 and I'm hoping for the best through out treatment

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May 4, 2016 07:58PM - edited May 4, 2016 08:03PM by LM070917

Hey brandford37, there definitely is hope. Did you do IVF prior to chemo? I did one cycle and got 2 embryos. I've just finished my main treatment(chemo and rads) and started hormone therapy about a month ago. Are you on zoladex? This is a monthly injection which shuts down your ovaries prior to chemo to protect them and your fertility. It doesn't always work, but it's worth trying. I'm 35 years now and when i met with my oncologist last week, she advised that I should wait the full five years before getting pregnant as I am high risk (stage/grade/lymph nodes and young age). She said if you're lower risk that most docs advise after 2-3 years of hormone therapy. As much as five years isn't ideal, I also don't want to risk myself when my risk is higher. At the moment it's just about you and getting healthy again, everything else comes second.
Dx 9/18/2015, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/14 nodes, ER+/PR+, HER2- Chemotherapy 11/1/2015 AC + T (Taxol) Surgery Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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May 5, 2016 05:35AM Lolis wrote:

hi Brandford,

That chemo mix (if I remember correctly) has an intermediate risk for affecting fertility. Have you talked to your MO about fertility preservation?

As Lottomarine said the risk of getting pregnant depends on your stage, however there have been ladies that have gotten pregnant after chemo. If you are ER/PR+ they would recommend to try after 2 years of tamoxifen. But it is doable.

Chemo does affect fertility but the extend will depend on your body.

I would talk with the MO and if possible go through an IVF round (I did and have 6 embryos waiting)

Hugs.

First dx @ 33, mets @ 36.....my lucky number is 3 😊 Dx 3/22/2014, DCIS, Left, 5cm, Stage 0, Grade 2, 8/24 nodes, ER+/PR+, HER2- Dx 3/22/2014, IDC, Left, 5cm, Stage IIIA, Grade 2, 8/24 nodes, ER+/PR+, HER2- Surgery 4/22/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 5/15/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 9/11/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 9/29/2014 Breast, Lymph nodes Dx 12/6/2017, IDC, Left, Stage IV, metastasized to other, Grade 3, ER+/PR-, HER2- (IHC) Targeted Therapy 1/8/2018 Kisqali Hormonal Therapy 1/9/2018 Femara (letrozole), Zoladex (goserelin) Surgery 5/16/2019 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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May 6, 2016 11:20PM SKD wrote:

I have been meaning to post here forever as I remember checking up on this board many times looking for inspiration of ladies getting pregnant after BC! Well after stage 2 BC and 6 rounds Chemo.. 5 years later after 2 years trying and going back to the IVF clinic, I have a healthy baby boy! He is now 22 months and my biggest blessing. It is possible and when it happens it is the most amazing thing and totally worth the wait.

Dx 3/21/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 1/7 nodes, ER+, HER2- Dx 3/29/2010, IDC, 3cm, Stage IIB, Grade 1, 1/7 nodes, ER+ Surgery Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy FAC
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May 16, 2016 09:55PM fight4two wrote:

Congrats Kirboxx and SKD!!! So happy for you two!!

Does anyone get any guidance from their MO regarding how long they recommend you try to get pregnant (IE how long you can have a break from tamoxifen)? My period has been like clockwork since I got off tamoxifen, and after 4 months of trying, still nothing. I know its still early days, but I don't want to just keep trying forever and ever if there is little or no hope.... if my eggs are destroyed from chemo and I can't get pregnant with a healthy baby, is there any way to know? I just don't want to be wasting too much time off tamoxifen if my fertility is destroyed and didn't know how long I should try before rushing back to my tamoxifen! Thanks for any guidance -- either personal opinions or suggestions from MOs!!

Dx 8/20/2012, IDC, 3cm, 2/9 nodes, ER+/PR+, HER2- Chemotherapy 10/1/2012 AC Chemotherapy 11/26/2012 Taxotere (docetaxel) Surgery 1/20/2013 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Radiation Therapy 3/4/2013
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May 17, 2016 09:23AM laura_ingalls wrote:

dear fight4two,

there are tests that an RE (or in some cases even a OBGYN) can run regarding fertility potential:

1. Blood tests like AMH/FSH testing can provide input on ovarian reserve. The FSH test usually occurs on day 3.

2. ultrasounds can provide input on Antral follicle count (how many eggs are growing at the start of the cycle) and what your lining is like.

regular/clockwork periods are a great sign though!

Smile

i would get in touch with an RE, especially if you are over 35. RE = reproductive endocrinologist.

finally, remember that the guy has a contribution to make here too! you could be the most fertile lady in the world but if the little swimmers are not able to do their job, your own fertility is moot! :)

i am looking forward to being in your situation once i am done with my treatments and a grace period...i can't wait to try again for baby #2.

best wishes to you dear. please feel free to PM me if you need anything or have any questions.

hugs!

laura*


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May 24, 2016 09:03PM Tmh0921 wrote:

Fight4Two

We tried for 7 months after I stopped Tamoxifen before I got pregnant. I was frustrated and worried, but my OB/GYN told me not to be too concerned until we had been trying for a year.

Tracy

First Dx at 27 years old in 1999, 2nd Dx 2018, 3rd Dx 2019... Current Oncotype: 26 Dx 12/7/1999, IDC, Left, 1cm, Stage IB, Grade 2, 0/14 nodes, ER+/PR+ Surgery 12/22/1999 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary Radiation Therapy 1/31/2000 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/1/2000 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 8/24/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/5/2018 Lumpectomy: Left Dx 9/7/2018, DCIS, Left, <1cm, Stage 0, Grade 1 Dx 5/31/2019, IDC, Left, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 8/5/2019 Lymph node removal: Left; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 9/4/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/2/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Jun 3, 2016 08:51AM LM070917 wrote:

that's great news SKD, you are an inspiration,thank you for coming back and sharing this with us.

Dx 9/18/2015, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/14 nodes, ER+/PR+, HER2- Chemotherapy 11/1/2015 AC + T (Taxol) Surgery Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Jul 6, 2016 01:16AM clarrn wrote:

Question: My onc said we can start trying for baby number 2 in September. In Canada scans aren't generally done unless you have symptoms. Do you think I should ask for a scan? (No labs drawn either).

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Jul 7, 2016 03:33PM - edited Jul 7, 2016 03:34PM by christina0001

My onc also does not do scans unless there are symptoms. I still get mammograms but I only had a unilateral mastectomy. If you've had a double mastectomy, I would think you probably don't need those either. My onc does do lab work although the CA2729 (I think that's what it's called) is not 100% reliable and I don't think all oncs check it.

Anyway me personally, I would not ask for a scan if you are not having any worrisome symptoms. Just my opinion. Good luck working on baby #2, we had baby #1 last year and are expecting #2 this September!

Surgery 1/11/2012 Lumpectomy: Right Dx 1/16/2012, IDC, 2cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2+ Surgery 2/10/2012 Lymph node removal: Right, Sentinel Targeted Therapy 2/13/2012 Herceptin (trastuzumab) Chemotherapy 2/13/2012 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 8/10/2012 Mastectomy: Right Hormonal Therapy 8/24/2012 Radiation Therapy 10/1/2012 Breast Surgery 7/30/2013 Reconstruction (right): DIEP flap
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Jul 7, 2016 11:41PM clarrn wrote:

Yep. My oncologist asked me if I had read the latest research on scans when the patient is asymptomatic. (Knowing that I would have because I always show up with stack of new research) Of course I have read 6 relevant ones this week. All saying that it is pretty pointless. So he said. 'I don't see the point of having you wait and worry for nothing. There are no guarantees. You feel great. Go make your miracle baby.' I wish you all had my oncologist. What a blessing. Pixie dust for all of us! Fingers crossed.

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Jul 14, 2016 02:27AM kiwikid wrote:

hey everyone

Just a quick update. 30 weeks pregnant! Baby girl is big and strong and I can't wait to meet her.

Xxx

Age 34 Dx 11/14/2012, IDC, 1cm, Stage IB, Grade 1, 1/4 nodes, ER+/PR+, HER2- Surgery 11/21/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 12/29/2012 AC Hormonal Therapy 3/25/2013 Surgery 4/14/2013 Mastectomy: Left; Reconstruction (left)
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Jul 18, 2016 11:23AM Hope_AZ wrote:

Kiwikid! Congratulations and best wishes for a smooth delivery! You deserve that!

I'm jumping in to join the ladies who have been actively trying to get pregnant after treatment. I was diagnosed at 36 and will be 40 this year. My onc took me off tamox this time last year to try.My ovarian range tested in the low normal range last summer. So far no go. :(

My cycles seem to be more consistent now. 24 days most months (a couple of 26 and 1 cycle of 28 days). I'm trying to stay as natural as possible as I'm not sure about Clomid....

I'll post if we have any success. Good luck to all who are trying. I'm not giving up yet!


Dx 5/1/2013, IDC, Right, Stage IIA, Grade 2, ER+/PR+, HER2- Surgery 6/5/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/22/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/30/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 28, 2016 12:46PM velo wrote:

Congrats to all those who are expecting!

I was dx at 38 while TTC unsuccessfully for 2 years. I had IVF prior to chemo but the eggs retrieved did not fertilize. My periods returned approx 10 months after chemo and I believe I stopped the tamoxifen after about a year and a half to TTC again. The fertility specialist thought I would have as much chance conceiving on my own and that IVF would not be helpful. Two years later... I was contemplating using a donor egg but unsure due to high cost.

And then whamo... the cancer returns (42 now). Initially they thought it was "just DCIS" so I was hoping that treatment would be complete with mastectomy and I could go with egg donor. Now I find out it is invasive (and aggressive grade) so likely will need to go back on tamoxifen but awaiting Oncotype DX tests and need an axillary dissection surgery to decide on chemo.

Just feeling really hopeless right now because I feel like I have nothing to live for because I really just so much want to be a mom. Not sure if adoption would be an option at all due to recurrence.

:-(

Dx 5/14/2012, IDC, Left, 2cm, Stage IIA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 5/22/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 8/14/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/20/2012 Breast, Chest wall Hormonal Therapy 12/3/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 6/2016, DCIS, Left, <1cm, Stage 0, Grade 3 Surgery 7/5/2016 Mastectomy: Left Dx 7/7/2016, IDC, Left, 1cm, Stage IB, Grade 3, ER+/PR+, HER2- Chemotherapy 9/1/2016 AC + T (Taxol) Dx 10/2019, IDC, Stage IV, metastasized to bone/lungs, Grade 2, ER+/PR-, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant), Zoladex (goserelin) Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Aug 3, 2016 11:37AM beyondboobies wrote:

Hi! I know it's been years since this thread has been active... but I'm curious what came of your story? I see from your profile picture you had a little one!! Congratulations!! I just turned 38 and have been considering having a child before I get much older, but I am on tamoxifen and I didn't think it was an option. I was diagnosed in 2014, bilateral mastectomy in Nov 2014.. so I haven't been on tamox too long. I haven't discussed having a child with my oncologist yet, but she said I should have no problem after the five years (we discussed prior to taking tamox, referred me to a fertility specialist and my ovaries look great).

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Aug 5, 2016 07:03PM Hope_AZ wrote:

Velo, I'm sorry to hear about the reoccurrence. We had a similar cancer and our chemo treatment was the same. I wanted to write to tell you not to give up hope of becoming a mom. I live in the US but a close friend of mine has Stage 4 thyroid cancer (our age) and she found a way to privately adopt! It does happen! Wishing you the best!

Dx 5/1/2013, IDC, Right, Stage IIA, Grade 2, ER+/PR+, HER2- Surgery 6/5/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/22/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 9/30/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 7, 2016 01:05PM velo wrote:

Hi Hope,

Best wishes to you as well! Sounds like you were on the Tamoxifen a bit longer than I was so hopefully the will bode well for you in terms of not having a recurrence.

Keep me posted how your quest to motherhood goes!

Tanya

Dx 5/14/2012, IDC, Left, 2cm, Stage IIA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 5/22/2012 Lumpectomy: Left; Lymph node removal: Left, Sentinel Chemotherapy 8/14/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 11/20/2012 Breast, Chest wall Hormonal Therapy 12/3/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 6/2016, DCIS, Left, <1cm, Stage 0, Grade 3 Surgery 7/5/2016 Mastectomy: Left Dx 7/7/2016, IDC, Left, 1cm, Stage IB, Grade 3, ER+/PR+, HER2- Chemotherapy 9/1/2016 AC + T (Taxol) Dx 10/2019, IDC, Stage IV, metastasized to bone/lungs, Grade 2, ER+/PR-, HER2- Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant), Zoladex (goserelin) Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Aug 9, 2016 01:17AM bearcat13 wrote:

Hi Beyondboobies (love the tag!)

Thanks for the congratulations. I'm now 44 with a gorgeous, frustrating, lovely 4 year old boy. Having come to the end of my 5 years on tamoxifen, I'm debating whether to try for a second child. I think perhaps I won't, it feels a little bit too much like tempting fate having had my little miracle given that I'll need IVF again. Still thinking about it though! Good luck with your decision and planning. It might be worth discussion with your oncologist temporarily coming off tamoxifen to try for a child before your treatment is complete, tamoxifen holidays are becoming more and more common.

Congratulations to all of you who have taken this difficult path and are expecting. Such wonderful news!

For those still trying, sending you a big big hug and hoping that you get everything you want and deserve.

Take care

Lisa x

Dx 3/9/2009, IDC, 6cm+, Stage II, Grade 2, 1/14 nodes, ER+/PR-, HER2+
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Aug 22, 2016 12:45PM plenarose wrote:

hi just wondered if somebody could help. me and my husband were trying to conceive before I was diagnosed with breast cancer I'm also 40 nearly 41 and time is quickly running out been trying to conceive for 6 months. on tamoxifen only for three months or so, is it safe to stop taking tamoxifen so early or after ive finished radiotherapy. I'm so confused not sure what to do.

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Aug 22, 2016 02:32PM Moderators wrote:

Dear plenarose, Welcome to the community. We are sorry that you are facing these tough questions but glad that you reached out here. We are hoping that others will offer their ideas here soon. We do suggest that you consult with your treatment team and discuss your options with those who know your situation and can best advise you. Here is some information on our main site on Pregnancy after Treatment. It may not answer your direct question but we hope it will offer you additional thoughts. Keep us posted. The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Aug 22, 2016 09:35PM tatasister10 wrote:

it's been a while ladies. Annnd IM PREGNANT! Quick rundown for those grasping at straws or searching for hope.

Dx oct 2011.

Chemo finished April 12 herceptin finished Dec 12

tamoxifen with lupron for 3 yrs (also note ladies-never be tested for amh on these. Mine was .12 and I thought I'd never be a mom again.)

Stopped lupron periods came back 6 months later.

Stopped tamoxifen

Tried for a year...nothing

Tested amh on no meds...whopping 3.7 perfect egg quality after 6 rounds of chemo

Had a blocked tube. Which is surprising since I have a little girl 5 yrs old

Onc cleared for ivf

Ivf Dr has special protocol for bc patients

Successful on first round

TWINS!!!!!

I hit 5 years cancer free in oct 2016

Babies due in jan 2017.


STILL I RISE! Dx 10/31/2011, IDC, Stage I, Grade 3, 0/7 nodes, ER+/PR+, HER2+ Targeted Therapy 12/27/2011 Herceptin (trastuzumab) Chemotherapy 12/27/2011 Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 4/30/2012
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Aug 22, 2016 11:51PM Srh242 wrote:

congratulations tatasister

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Aug 23, 2016 06:08AM Lolis wrote:

Congratulations tatasister!!!

First dx @ 33, mets @ 36.....my lucky number is 3 😊 Dx 3/22/2014, DCIS, Left, 5cm, Stage 0, Grade 2, 8/24 nodes, ER+/PR+, HER2- Dx 3/22/2014, IDC, Left, 5cm, Stage IIIA, Grade 2, 8/24 nodes, ER+/PR+, HER2- Surgery 4/22/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 5/15/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 9/11/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 9/29/2014 Breast, Lymph nodes Dx 12/6/2017, IDC, Left, Stage IV, metastasized to other, Grade 3, ER+/PR-, HER2- (IHC) Targeted Therapy 1/8/2018 Kisqali Hormonal Therapy 1/9/2018 Femara (letrozole), Zoladex (goserelin) Surgery 5/16/2019 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Aug 23, 2016 07:36AM - edited Aug 23, 2016 07:37AM by Moderators

Great news, tatasister, congratulations!! We're super happy for your pregnancy!

Warm wishes,

The Mods


To send a Private Message to the Mods: community.breastcancer.org/mem...
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Aug 23, 2016 12:06PM fd1 wrote:

Plenarose - I'm not sure if you are saying that you've been trying to conceive for six months while on tamoxifen, but if so, that's not a good idea. It can cause horrible problems for your future baby. As for whether it's safe, you should have an open discussion with your oncologist. At my hospital, it's at least two years before you can stop to try for a baby. Best of luck in making these difficult decisions.

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Sep 7, 2016 10:27PM MirandaPriestly wrote:

Well, I picked up my very first bottle of Tamoxifen this week. I plan to start Friday night just to give my body the weekend before going back to work on Monday.

My husband wants me to take if for 3 years and then take a break for (fingers crossed) a baby. I'm 31, 32 in November of this year so that will put me at 35 when we start trying. I just said I am not willing to wait the 5 years. But, I will then have to go back on it for 7 more if we stay on this plan after the potentialbaby.

It's been a hard week. All of my closest friends are now pregnant or already have kids and it seems like everywhere I turn its more pregnancy announcements. And now I've got to force myself to take a drug that won't allow me to have the same. Ugh!!


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Sep 7, 2016 10:28PM MirandaPriestly wrote:

also congratulations tatasister- you deserve it!!

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Sep 8, 2016 05:13PM FUBC wrote:

Miranda,

have you consider freezing your eggs before starting tamoxifen?

Just an opinion.

I am 41 and tried fertility treatments a few years ago but was unsuccessful. At this point I have given up but if my odds were better I would have gone through with the process of freezing my eggs. Maybe you should speak to your oncologist. It should put a delay of 30 to 60 days on your treatment. If you had mastectomy done, 30-60 days is not a big problem

Dx at age 41 Dx 5/6/2016, LCIS/ILC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Sep 9, 2016 12:54PM fd1 wrote:

Hi Miranda - I just wanted to say I feel your pain. I had turned 31 two days before being diagnosed. I had been on Tamoxifen/Zoladex since late 2012 and just switched to Exemestane/Zoladex. I plan to stop the treatment very soon to try as I will be 36 in January and to me that is the very latest I wanted to wait. The announcements are the worst. I felt so guilty feeling more sad for myself than I was happy for them....

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