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All TopicsForum: Young With Breast Cancer → Topic: Coming off tamoxifen early to have a baby

Topic: Coming off tamoxifen early to have a baby

Forum: Young With Breast Cancer —

Connect with those under 40 who have been diagnosed.

Posted on: Jan 25, 2011 01:03PM

bearcat13 wrote:

Hi everyone

I'm a little lonely over here in the UK and was hoping to find some kindred spirits.  I'm now almost two years on from my diagnosis.  I was diagnosed with Her 2+, weakly ER+ breast cancer in April 09 at the age of 37 about three months before we were due to be married and a few weeks after completion of our first round of IVF (sadly unsuccessful) for which I'd given up my rather stressful job to give it the best chance.  The last few years have been a whirlwind of chemo, surgery (I had a mastectomy and reconstruction and lymph node clearance), radiotherapy followed by herceptin, taking me to mid 2010.  For a full five months the Doctors thought I had secondary cancer but thankfully later results showed that they had been mistaken.  I'm now on tamoxifen (just over a year in with four more to go) and zoladex and am contemplating coming off the tamoxifen early to have a baby. 

I'm waiting for a test on my ovarian reserve which will show whether I am producing sufficient follicles to make embryo freezing viable.  Once that comes through (and I suspect it will show that there is no point going down the embryo freezing route) I will have to make the decision whether to come off the tamoxifen this year whilst I'm still 39 and therefore eligible for free treatment (I know, we are SO lucky in the UK) and have presumably a higher fertility rate.  Or wait a year or two when my fertility will be at rock bottom.  I've never felt so old!!!

This is a very lonely decision to have to make, with no statistics and limited evidence to spell out the risks.  My oncologist is very happy with me going down the IVF route, but the odds really do seem to be stacked against it being successful. Adoption also looks challenging for us because of my medical history and my partners (he has a spinal injury and is paralysed from the chest down). 

I went for a consult with the fertility clinic over the weekend and was shocked to hear that one of the UK's most famous fertility clinics had never treated anyone in my situation.  It seems that very few women of child bearing age, who want children but are at that crucial age when they can't wait five years get the sort of aggressive cancer that I had.  Most people have either had their family or have had time to freeze their embryos.   So I'm feeling a little alone.  Whilst I wouldn't wish this situation on anyone, it would be great to hear from someone else who is struggling with the decision whether or not to come off tamoxifen after a year and a half to try for pregnancy.

Take care all

Lisa x
Dx 3/9/2009, IDC, 6cm+, Stage II, Grade 2, 1/14 nodes, ER+/PR-, HER2+
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Jan 26, 2017 10:23PM clarrn wrote:

Started bleeding heavily today. I know that I am miscarrying. Not sure what's next. Not sure if it is responsible for me to stay off tamoxifen to keep trying. I guess I shouldn't worry about that just yet. Heartbroken.

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Jan 27, 2017 07:14AM fd1 wrote:

clarrn, I'm sorry. Hugs.

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Jan 27, 2017 08:21PM SKD wrote:

how are you doing cllarn?


I start chemo next week followed by surgery than radiation. My son ales born 12 days ago and he is healthy and doing well!

Dx 3/21/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 1/7 nodes, ER+, HER2- Dx 3/29/2010, IDC, 3cm, Stage IIB, Grade 1, 1/7 nodes, ER+ Surgery Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy FAC
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Jan 28, 2017 04:55PM clarrn wrote:

SKD- I am coping. I passed my baby at home last night. We are going to bury 'her' in the garden this spring and plant peonies there. Even if we move we can transplant the peonies. My heart is breaking, but my husband is grieving with me, and my beautiful 5 year old (who did not know we were pregnant) gives me purpose and many smiles. She was away at her cousins last night so she wouldn't be there for the painful physical part. We named the baby Celeste Noelle as she is heavenly and we found out we were pregnant a week before Christmas. It is helping me to acknowledge that we lost a very real little person.

Thank you for asking and letting me share. I am grateful that I got to be pregnant for those 10 weeks, and thankful that I got to see her and say goodbye.

Love and baby dust to you all.

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Jan 28, 2017 04:57PM clarrn wrote:

SKD- Congratulations on your beautiful baby boy! Will be thinking of you as you start treatment again.

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Feb 8, 2017 10:56AM SKD wrote:

I'm sorry to hear about clarnn. I hope you are doing okay and I have been thinking about you.

Dx 3/21/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 1/7 nodes, ER+, HER2- Dx 3/29/2010, IDC, 3cm, Stage IIB, Grade 1, 1/7 nodes, ER+ Surgery Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy FAC
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Feb 25, 2017 07:06PM clarrn wrote:

How long was everyone's tamoxifen break? Is 1 year typical?

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Feb 25, 2017 07:07PM - edited Feb 25, 2017 07:07PM by clarrn

This Post was deleted by clarrn.
30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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May 15, 2017 06:50PM scally1 wrote:

Hello everyone! I haven't seen any posts in awhile. I hope everyone is well. Sending you all positive vibes ~~~❤~~~~. I'm still on tamoxifen, debating to take a break next year...

37 at dx. Stage 1.Triple postive. Chek2 mutation. Tumor 1.6cm plus micro tumors

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