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Topic: Coming off tamoxifen early to have a baby

Forum: Young With Breast Cancer —

Connect with those under 40 who have been diagnosed.

Posted on: Jan 25, 2011 04:03PM

bearcat13 wrote:

Hi everyone

I'm a little lonely over here in the UK and was hoping to find some kindred spirits.  I'm now almost two years on from my diagnosis.  I was diagnosed with Her 2+, weakly ER+ breast cancer in April 09 at the age of 37 about three months before we were due to be married and a few weeks after completion of our first round of IVF (sadly unsuccessful) for which I'd given up my rather stressful job to give it the best chance.  The last few years have been a whirlwind of chemo, surgery (I had a mastectomy and reconstruction and lymph node clearance), radiotherapy followed by herceptin, taking me to mid 2010.  For a full five months the Doctors thought I had secondary cancer but thankfully later results showed that they had been mistaken.  I'm now on tamoxifen (just over a year in with four more to go) and zoladex and am contemplating coming off the tamoxifen early to have a baby. 

I'm waiting for a test on my ovarian reserve which will show whether I am producing sufficient follicles to make embryo freezing viable.  Once that comes through (and I suspect it will show that there is no point going down the embryo freezing route) I will have to make the decision whether to come off the tamoxifen this year whilst I'm still 39 and therefore eligible for free treatment (I know, we are SO lucky in the UK) and have presumably a higher fertility rate.  Or wait a year or two when my fertility will be at rock bottom.  I've never felt so old!!!

This is a very lonely decision to have to make, with no statistics and limited evidence to spell out the risks.  My oncologist is very happy with me going down the IVF route, but the odds really do seem to be stacked against it being successful. Adoption also looks challenging for us because of my medical history and my partners (he has a spinal injury and is paralysed from the chest down). 

I went for a consult with the fertility clinic over the weekend and was shocked to hear that one of the UK's most famous fertility clinics had never treated anyone in my situation.  It seems that very few women of child bearing age, who want children but are at that crucial age when they can't wait five years get the sort of aggressive cancer that I had.  Most people have either had their family or have had time to freeze their embryos.   So I'm feeling a little alone.  Whilst I wouldn't wish this situation on anyone, it would be great to hear from someone else who is struggling with the decision whether or not to come off tamoxifen after a year and a half to try for pregnancy.

Take care all

Lisa x
Dx 3/9/2009, IDC, 6cm+, Stage II, Grade 2, 1/14 nodes, ER+/PR-, HER2+
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Dec 9, 2017 01:26AM KungFuKitty84 wrote:

I am so happy that I found this thread! I was diagnosed in September of last year at 32, and after 4 rounds of A/C, and 9 rounds of Taxol, and being on zoladex, I've been so afraid that I won't be able to conceive (and carry to term with no defects). But you ladies' success stories are really giving me serious hope! My boyfriend of 6 years and I are planning to get married in 2019, and we want to start trying about a year into our marriage, which is when I'll be coming up on my 2 years on tamoxifen. I'll be 35/36 then, and beyond ready for a baby. Congratulations clarrn!!! I'm so happy for you!

Don't worry, I'll live. Dx 9/7/2016, DCIS/IDC, Right, 3cm, Stage IIB, Grade 3, 7/11 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 2/27/2017 Zoladex (goserelin) Chemotherapy 2/27/2017 AC + T (Taxol) Surgery 8/11/2017 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left Radiation Therapy 10/16/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy 3/23/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Jan 15, 2018 12:54AM HolaSandy wrote:

I’m so glad I came across this thread. Lately I’ve been strongly considering taking a break from tamoxifen to try to get pregnant. I’ve been on tamoxifen since October 2016. My MO wants me to wait until I’m 5 years in to take that break, but I will be 38 then and I know FEC-D is hard on fertility. I’m just scared I’ll miss my window, and with that study that says pregnancy doesn’t appear to affect recurrence rates, I feel this might be the time to do it. I needed to see these success stories. Now just to work up the nerve to have that discussion with my MO again..

Kristyn. Age 32 at Dx, nurse, wife, mom. Know that there is something inside you that is greater than any obstacle. Dx 2/3/2016, DCIS/IDC, Right, 4cm, Grade 3, 1/9 nodes, ER+/PR+, HER2- Chemotherapy 3/11/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/7/2016 Mastectomy: Right Hormonal Therapy 10/5/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/9/2016 Whole-breast: Breast, Lymph nodes, Chest wall
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Feb 15, 2018 05:40AM - edited Mar 2, 2018 06:53AM by Sophiemara

Holasandy- I'm in a similar predicament and share your pain

I was dx at 34 just over 2.5 years ago now. I had stage 3/grade 3, 2 nodes positive and ER+. I've been on hormone therapy for 2 years and I'm now 37. I have no kids and my onco wants me to wait the full five years, as she says I am high risk. I will be 40/41 by then and I feel definitely at the end of my biological clock. I did have 2 embryos frozen, but I'm concerned about if they don't work (40% chance of a live birth) or my ovaries don't work again (I don't know post chemo) . The last thing I want is to risk my life, but I also don't want cancer to deprive me of children as well, so I am thinking about interrupting treatment..at maybe year 3/4.

Dx 9/2015, IDC, Right, 6cm+, Stage IIIB, Grade 3, 2/14 nodes, ER+/PR+, HER2- Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Surgery Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap
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Feb 28, 2018 09:17PM Mishka3265 wrote:

Any ladies not have their period return after chemo and tamoxifen? I was dx at 30 years old. I finished 16 rounds of chemo June 2017 and am now on tamoxifen. Blood tests at Fertility clinic show I have diminished ovarian reserve. Period hasn’t returned since I started chemo one year ago. Getting worried it won’t return...sigh.:-(

Dx 1/11/2017, IDC, Right, 1cm, Stage IA, Grade 3, 0/9 nodes, ER-/PR+, HER2- Chemotherapy 2/3/2017 AC + T (Taxol) Surgery 7/11/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 1, 2018 04:42PM AgentMo wrote:

Unfortunately yes, one of them being me. It broke my heart as I was so sure that I would be able to have a baby if I took the risk. But no, I am afraid

Dx 5/2010, IDC, 2cm, Stage IIIA, Grade 2, 4/13 nodes, ER+/PR+, HER2-
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Mar 1, 2018 07:27PM clarrn wrote:

My blood tests showed diminished ovarian reserve too. My fertility specialist said that I couldn't get pregnant and wasn't a candidate for IVF... but here I am, after a devastating missed miscarriage last year, now 37 weeks pregnant. I hope you all get your miracles ♡

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Mar 1, 2018 09:11PM Nickel103 wrote:

Hello ladies,

I’m in the exact same boat here. Its somewhat comforting to know there are others faced with this gut wrenching decision, but I’m so sorry to see so many young women faced with this choice. My heart goes out to you ladies.

I was diagnosed at 34 er/pr positive in early 2017. After undergoing chemo ac/taxol during my mastectomy I was diagnosed with a second breast cancer. Apparently half my tumor was er/Pr and the other half her2+. So, more treatment with herceptin and xeloda. Another fun surprise - my lymph nodes had always been negative on MRI scans and biopsy and then were found to be positive upon axillary dissection. Argh! I’m now doing monthly Lupron shots and Femara and am about ready to jump out a window with hot flashes and insomnia.

I have a now almost 3 year old, and had been planning to try for a second pregnancy back when she was about 18 months. But then I found my lump. My husband and I froze embryos prior to beginning chemo, but I’m so torn about coming off my hormone therapy early to have a second baby. My husband and my entire family are pretty against it, understandably. My medical oncologist seems to have come around to the idea somewhat, given some of the recent studies about there not being an increased risk of recurrence. His perspective though is that I’d still be losing the protection of a proven life saving therapy. He insists using a gestational surrogate is the safest thing to do.

I’ve considered using a gestational surrogate and have hadconsultations with several agencies. That said, the prospect still makes me nervous and the cost is astronomical. I feel like it’s a choice between risking my life or practically bankrupting my family. OR not having a baby, which feels like it’s not an option for me!

I also went so far as to seek a second opinion from a practitioner at Dana farber who is currently running the POSITIVE study. This is looking specifically at the long term outcomes for women who interrupt hormonal therapy to get pregnant. Unfortunately it seems the study will not be completed for several years still. Specific to my situation though the oncologist indicated their research doesn’t think having a baby will increase the risk, although interruption of endocrine therapy may not allow you as much risk reduction. So still not a great clear answer.

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Mar 2, 2018 06:59AM - edited Mar 2, 2018 07:00AM by Sophiemara

Welcome Nickel, yeah it's a tricky one but as you say nice to find others. That's interesting about the positive trial, what stage were you? My onco said it wasn't a good idea for me to enroll due to my stage and node involvement, but I'm seriously hoping all oncologists don't necessarily think the same, otherwise it won't be so helpful for stage 3ers.

Clarrn- that's fantastic news! Congrats! Can I ask if you took hormone therapy and how long for? And how long did your onco say to wait before trying? Thanks

Dx 9/2015, IDC, Right, 6cm+, Stage IIIB, Grade 3, 2/14 nodes, ER+/PR+, HER2- Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Surgery Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap
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Mar 2, 2018 01:27PM Nickel103 wrote:

Hi SophieMara,

I was a stage 2b at diagnosis, but they re-staged me to 3a after my mastectomy.

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Mar 3, 2018 11:18PM - edited Mar 3, 2018 11:19PM by Mishka3265

Clarrn Congrats!!! Thanks for giving me hope!

Dx 1/11/2017, IDC, Right, 1cm, Stage IA, Grade 3, 0/9 nodes, ER-/PR+, HER2- Chemotherapy 2/3/2017 AC + T (Taxol) Surgery 7/11/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 10, 2018 03:49AM clarrn wrote:

Sophiemara-

I was on tamoxifen for about a year and a half. Took 1 month off before starting to try to get pregnant for it to clear. The scary part of it for me was going off with no real guarantee that we would be successful, and then the risk was for nothing. Pregnancy provides a ~40% reduction in risk of recurrence which is better than tamoxifen, so I am not worried while I am pregnant.

I will go back on tamoxifen 6-8 weeks after delivery for another 8 years.

This is one wild roller coaster ladies!

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Mar 26, 2018 07:42PM scally1 wrote:

Hi ladies.

My recent blood work (cycle day 2) showed FSH 9 and estradiol was less than 5. Not good, huh?

I still have a regular period. I also use ovusense to detect ovulation. According to this monitor, I am ovulating.

Does the low estradiol number indicate my eggs are not viable, even though I may still be ovulating?

My fertility doctor has not provided any guidance on the results. A staff member called me with the numbers, but couldn't answer any questions. I'm currently looking for a new doctor....

I would really appreciate any input you may have? Thanks ladies. xxx

37 at dx. Stage 1.Triple postive. Chek2 mutation. Tumor 1.6cm plus micro tumors
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Apr 23, 2018 03:00AM clarrn wrote:


Our little miracle arrived 5 weeks ago ♡

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Apr 23, 2018 06:58PM Novagirl wrote:

Beautiful!! Congratulations clarrn!! Thank you so much for sharing and offering hope!

First diagnosed at age 31 when my son was a year old. Xgeva, Ibrance, Femara 12/2018 Dx 5/30/2013, IDC, Left, 2cm, Stage IIB, Grade 3, 2/12 nodes, ER+/PR+, HER2- (FISH) Surgery 6/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 8/30/2013 Herceptin (trastuzumab) Chemotherapy 8/30/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2014 Breast, Lymph nodes Hormonal Therapy 3/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/20/2014 Fareston (toremifene) Dx 12/7/2018, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Targeted Therapy 12/22/2018 Ibrance (palbociclib) Hormonal Therapy 12/22/2018 Femara (letrozole), Zoladex (goserelin)
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Apr 23, 2018 07:18PM Sophiemara wrote:

That’s fantastic news, big congratulations Clarrn! Hope you and baby are going well and thanks for keeping us posted. There is definitely light at the end of the tunnel.

Dx 9/2015, IDC, Right, 6cm+, Stage IIIB, Grade 3, 2/14 nodes, ER+/PR+, HER2- Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Surgery Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap
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Apr 23, 2018 11:00PM Mabs wrote:

Congratulations!!! I'm so happy for you and your family!!! God bless you each and every day!!!

Dx 8/2014, IDC, Left, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 9/1/2014 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 11/3/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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May 2, 2018 10:24AM Marchz wrote:

Omg,she’s beautiful! Congratulation!

Dx 3/2017, IDC, Right, 1cm, Stage IB, Grade 1, ER+/PR+, HER2- (IHC) Radiation Therapy Whole-breast: Breast, Lymph nodes
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Jun 22, 2018 02:26AM clarrn wrote:

Grieving the restarting of tamoxifen and how good I felt off it. Only 8 more years of tamoxifen side effects! Urggh. I am so grateful that we have this drug to significantly help keep us cancer free but I wish there was something that didn't make me feel 80!

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Jul 9, 2018 12:49AM Princess_Meg wrote:

Hi Sakura. Your story here is such an inspiration. Now i am seriously considering going off hormone pills to try for a baby via IVF and sperm donor as i am not married. I will be 39 next month, was diagnosed last september at 38. No kid. How are you doing now with everything? How is baby Arthur? Blessings to you and yours. Meg

Dx at 38 Dx 9/19/2017, DCIS/IDC, Right, 3cm, Stage IIB, Grade 2, 1/10 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 11/19/2017 AC + T (Taxol) Surgery 3/20/2018 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Reconstruction (right): Tissue expander placement Radiation Therapy 4/30/2018 Targeted Therapy 5/2/2018 Herceptin (trastuzumab) Hormonal Therapy 8/1/2018 Femara (letrozole) Surgery 11/20/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Latissimus dorsi flap, Silicone implant Targeted Therapy 11/28/2018 Perjeta (pertuzumab)
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Jul 17, 2018 09:43PM HolaSandy wrote:

Hi everyone,

I had my appointment with the fertility dr several weeks ago. All of my levels are in the low range of normal. She was super supportive of me taking a tamoxifen break and suggested sooner rather than later. Had my appointment with my onco yesterday and she completely surprised me and was supportive. A year ago when we talked about it, she said we could talk about it after I’d been on tamoxifen for 5 years. So the plan is to stop in october, have a short washout (one or 2 menstrual cycles) and go from there!

Kristyn. Age 32 at Dx, nurse, wife, mom. Know that there is something inside you that is greater than any obstacle. Dx 2/3/2016, DCIS/IDC, Right, 4cm, Grade 3, 1/9 nodes, ER+/PR+, HER2- Chemotherapy 3/11/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/7/2016 Mastectomy: Right Hormonal Therapy 10/5/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/9/2016 Whole-breast: Breast, Lymph nodes, Chest wall
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Jul 18, 2018 08:06AM - edited Jul 18, 2018 08:13AM by Sophiemara

Hey HolaSandy,

Wow that's great news your fertility specialist and oncologist are so supportive!

Did your oncologist say what changed their mind? So you would have been on tamoxifen for 2.5 years? I have similar stats to you and I'm considering coming off arimidex in March as I would have been on it for 3 years. I'll be 38 then, so really dont want to wait much longer, although my oncologist wants me to wait the full 5 years.

Exciting news for you!

Dx 9/2015, IDC, Right, 6cm+, Stage IIIB, Grade 3, 2/14 nodes, ER+/PR+, HER2- Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Surgery Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap
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Jul 25, 2018 11:50AM HolaSandy wrote:

Hi Sophiemara,


Thanks! Yes I’m excited! October 5 will be 2 years on tamoxifen for me, so I will stop around then. My onco did not say what changed her mind, but she did say that she got a letter from my fertility doctor. I’m not sure what exactly was in the letter, but the fertility doc was super supportive, so I’m guessing it was after reading that letter that she changed her mind. She did say that ideally I won’t be off of T for more than 1.5 years.

I would recommend, if it’s a possibility for you, going to see a fertility specialist and getting them to check your potential ability to conceive. From there you can have a discussion with your onco about your results, and maybe it would make more sense for you to try sooner than the 5 year mark. Take care

Kristyn. Age 32 at Dx, nurse, wife, mom. Know that there is something inside you that is greater than any obstacle. Dx 2/3/2016, DCIS/IDC, Right, 4cm, Grade 3, 1/9 nodes, ER+/PR+, HER2- Chemotherapy 3/11/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Surgery 9/7/2016 Mastectomy: Right Hormonal Therapy 10/5/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 11/9/2016 Whole-breast: Breast, Lymph nodes, Chest wall
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Jul 31, 2018 10:30AM scally1 wrote:

congratulations!! That’s wonderful. Beautiful family. X

37 at dx. Stage 1.Triple postive. Chek2 mutation. Tumor 1.6cm plus micro tumors
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Apr 2, 2019 11:08AM nem126 wrote:

Hi!

I am looking at stopping tamoxifen NEXT MONTH to try to conceive! While I'm excited... it's starting to "get real" and I am also starting to get quite anxious about the whole prospect of it. Mostly the idea of being off my meds. I need stories from people who have done this already. I know the POSITIVE trial is out there, but they won't have results from that in time to help me.

I was diagnosed and treated 2 years ago. Currently 34 going on 35. My 2 years of tamoxifen will be up at the end of the month. Onc advised that I do a 3 month wash out period, then try to conceive. He also said I should only try for about 6 months, and if I cannot get pregnant, to give up at that point. I did not do IVF... could not afford it and I didn't feel comfortable with it, but I know that is deeply personal. So... here I am... about to turn 35.... and I only have a 6 month shot at getting pregnant.

We have no children. If this works out, this would be our only one.

Any advice from someone in a similar situation? Is there anything you can do while you are off tamoxifen to cut your recurrance risk a little? I plan on going back on it after I've (hopefully) had a baby.... but I wish there was something supplemental I could do for my health during the time period or so I'll be off of it.

I'm so jealous of all the "regular" people who can have a relatively stress- free pregnancy... mine seems infinitely complicated. Not exactly the way I planned.

Thank you so much for any advice!!

Sarah


Diagnosed at 32. Life is weird! Dx 12/6/2016, ILC/IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/11/2017 Lumpectomy: Left, Right; Lymph node removal: Sentinel Radiation Therapy 2/28/2017 Whole-breast: Breast, Chest wall
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Apr 3, 2019 01:12AM clarrn wrote:

nem126- Hi! I did 2 years of tamoxifen and then stopped for 1 month before trying to conceive. We also didn't freeze eggs or embryos. My fertility numbers were not great, but my oncologist said that miracles happen and to go for it. We conceived in the 6th month. Unfortunately we had a missed miscarriage at 10 weeks which was beyond devastating. Our oncologist said to try for another 6 months, and again we conceived on the 6th month! My fertility specialist said it didn't make sense with my numbers. Being pregnant was SO healing for me. As far as what I did off tamoxifen, it was what you do anyway when you are trying (eat well, exercise moderately). I re-started tamoxifen 6 weeks after my beautiful baby boy joined our family. Oh and I was 34 when he was born so very similar to you in that regard. For us, the risk did not deter me or my husband, but we definitely discussed the what-ifs. I know we were very fortunate to conceive. Good luck!

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/27/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Apr 3, 2019 01:31PM nem126 wrote:

Hi clarrn! Thanks for replying!

It's good to hear that being pregnant was healing for you. I can't tell how I'm going to feel about it, I hope eventually the same way. Right now I'm excited but my anxiety is really picking up too. Just seems like so many things could go wrong. But, all I can do is try. It's interesting that you were allowed to start trying after one month- my doctor is telling me wait 3. I looked up the half life of tamoxifen- 7-14 days, so you would think a month would be totally safe. Not sure why he has me waiting 3.

Congratulations on your baby!!

Sarah

Diagnosed at 32. Life is weird! Dx 12/6/2016, ILC/IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/11/2017 Lumpectomy: Left, Right; Lymph node removal: Sentinel Radiation Therapy 2/28/2017 Whole-breast: Breast, Chest wall
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Apr 8, 2019 07:15PM Sophiemara wrote:

Hi Sarah,

I came off arimidex and zoladex 2 months ago now. I think by far the thought of stopping all meds, was worst than actually doing it. I feel so much better since, I feel like my body is working as it should for once, no more hot flushes etc..anyway, I got my period back after 5 weeks and my fertility specialist is tracking my cycle to see if I’m actually ovulating. So far so good. I’m in a similar situation in that I have no kids. I’m also 38 now, so for me its now or never.

Dx 9/2015, IDC, Right, 6cm+, Stage IIIB, Grade 3, 2/14 nodes, ER+/PR+, HER2- Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Surgery Mastectomy: Left, Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap
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Apr 11, 2019 10:52AM nem126 wrote:

Hi Sophiemara!

I wish you the best of luck- let’s keep each other updated on here. It would be nice to be able to go through this with a pen pal :).

I’m glad to hear that stopping meds wasn’t so bad. I’m hoping my anxiety won’t last too long... maybe it’s just the time period leading up to it that’s hard.. second guessing my decision etc.

Hope to talk to you again soon!!

Diagnosed at 32. Life is weird! Dx 12/6/2016, ILC/IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 1/11/2017 Lumpectomy: Left, Right; Lymph node removal: Sentinel Radiation Therapy 2/28/2017 Whole-breast: Breast, Chest wall
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Apr 11, 2019 11:04AM WC3 wrote:

bearcat13:

I was 38 when I was diagnosed, and still had the idea of starting a family on the table, and did not have time to preserve my fertility. A lot of people act like it would have been impossible for a 38 year old to conceive, which upsets me because I actually had some fertility testing not long before that which indicated that my odds of having good eggs were high, and my mother easily got pregnant at 39. I really feel like the fertility of women in their late 30s and early 40s is underestimated.


Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Apr 11, 2019 11:32AM Gudrun wrote:

Dear young ladies,

my daughter (see stats below) is in her 4th month pregnant now. After stopping Tam for 6 months she immediately conceived. She had not freezed eggs and had not taken Zoladex during chemo.

I hope this makes some of you feel optimistic.

G

Daughter dx at 28: Dx 8/2015, IDC, Left, 3cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ (IHC) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery Mastectomy: Left; Reconstruction (left): TUG flap

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