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Apr 2, 2019 08:08AM
I am looking at stopping tamoxifen NEXT MONTH to try to conceive! While I'm excited... it's starting to "get real" and I am also starting to get quite anxious about the whole prospect of it. Mostly the idea of being off my meds. I need stories from people who have done this already. I know the POSITIVE trial is out there, but they won't have results from that in time to help me.
I was diagnosed and treated 2 years ago. Currently 34 going on 35. My 2 years of tamoxifen will be up at the end of the month. Onc advised that I do a 3 month wash out period, then try to conceive. He also said I should only try for about 6 months, and if I cannot get pregnant, to give up at that point. I did not do IVF... could not afford it and I didn't feel comfortable with it, but I know that is deeply personal. So... here I am... about to turn 35.... and I only have a 6 month shot at getting pregnant.
We have no children. If this works out, this would be our only one.
Any advice from someone in a similar situation? Is there anything you can do while you are off tamoxifen to cut your recurrance risk a little? I plan on going back on it after I've (hopefully) had a baby.... but I wish there was something supplemental I could do for my health during the time period or so I'll be off of it.
I'm so jealous of all the "regular" people who can have a relatively stress- free pregnancy... mine seems infinitely complicated. Not exactly the way I planned.
Thank you so much for any advice!!
Diagnosed at 32. Life is weird!
12/6/2016, ILC/IDC, Left, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-
1/11/2017 Lumpectomy: Left, Right; Lymph node removal: Sentinel
2/28/2017 Whole-breast: Breast, Chest wall
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)