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Jan 13, 2020 07:41PM
Hi @nem126 - I haven't been on any of these forums since the dark days of treatment but went on today and searched threads for coming off Tamoxifen to get pregnant and saw your post - I'm in the same boat!
I'm 34 and I came of Tamox last Feb. after the two-year mark. So for me, it's been almost a year "trying." Problem from the get-go was it took 4+ months to get my period back, so that was July, and it's been on a random disappearing act since. My fertility docs have no clue why I'm so irregular (um, maybe all that damn LUPRON, is what I want to say). We have an IVF cycle scheduled for whenever my period returns (we have 8 frozen embryos from before chemo). Who knows though, my period is "late" at the moment by six days (and heartbreakingly, NOT pregnant).
I had a pie-in-the-sky hope that I could get pregnant naturally and avoid all those stimulation/hormonal IVF meds, which scare me a LOT for some reason, but looks like IVF will be the way to go. It's scary, because to fit within that "try for two years then get back on Tamoxifen" window is closing in. I have to get pregnant by April. It's stressful, and I start to doubt even trying and stressing over this, and my husband and I are trying to prepare ourselves for a life without kids if it comes down to it. I get so sad because my husband acts like he's okay with it, and he is, but I can tell he wants to be a dad. But the whole process terrifies me. My mom had a recurrence that spread and she died in April (so, stress for me is def a factor...) All in all, I feel your pain and understand.
On a hopeful note, I know another surviver who - on her third round of IVF, right at the tail end of her "window" - got preggo with her last remaining embryo and she's due in May (she's 32).
Did your doc give you a "window" off the Tamoxifen, too?
4/21/2016, IDC, Right, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER+/PR+, HER2+
5/18/2016 AC + T (Taxol)
9/12/2016 Lumpectomy: Right