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Topic: Recent Nipple Discharge After Double Mastectomy

Forum: Young With Breast Cancer —

Connect with those under 40 who have been diagnosed.

Posted on: Aug 11, 2015 11:24PM

babyo20 wrote:

Hello everyone. Last year I was diagnosed with stage 0 DCIS so had a double mastectomy with reconstruction. Several months after I got pregnant once again. Our second son was born just two weeks ago! :) About a few months ago I noticed clear and white discharge from my nipples but did not call my PS until a few days ago. She called me back saying she was surprised that was happening since she inverted the nipples so there should not be discharge coming from them. I am not sure if this was brought on by pregnancy or just because but wanted to see if this happened to anyone else. With my PS being stumped wanted to reach out to all of you!

Thanks!

Dx 5/1/2014, DCIS, 5cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 6/10/2014 Mastectomy: Left; Prophylactic mastectomy: Right Surgery 6/10/2014 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Mar 28, 2016 11:10AM StephieL wrote:

I had a bilateral mastectomy and reconstruction two years ago. One year ago I started have some small white discharge from my nipples, I haven't gone to the doctor about it yet I figured it would go away on its own. Since then the discharge has started coming out of both nipples and has increased in the amount of discharge. However unlike you I have not had any children yet so I don't think pregnancy triggered yours but I'm no doctor.

It hasn't been going away so I've decided to go see the doctor now about it and I'll let you know what happens.

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Mar 28, 2016 02:40PM Moderators wrote:

StephieL this topic hasn't been active in some while now, in case you hadn't noticed. You may consider starting a new topic on this issue. We are interested in hearing what your doctor suggests. Are you seeing your plastic surgeon, or oncologist?

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jan 4, 2018 11:09AM babyo20 wrote:

Hello there. Just curious to know what the issue was with your nipple, can you share just for our knowledge? Thank you!

Dx 5/1/2014, DCIS, 5cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 6/10/2014 Mastectomy: Left; Prophylactic mastectomy: Right Surgery 6/10/2014 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Jul 17, 2018 03:25PM Amby317 wrote:

I was just wondering what this ended up being. I had a nipple sparing/sharing double mastectomy in 2016. I had a baby 4 months ago and just noticed that I am having a small amount of white discharge coming from my left nipple that was made from part of the right nipple. I only have thile discharge if I squeeslze my nipple. My cancer was on the left side originally. Hoping its nothing but it doesn't seem normal to me...

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Nov 5, 2018 03:23PM babyo20 wrote:

hello ladies, I just realized there was a response to this, sorry for the delay.


My doctor referred with other doctors and there were only a few reported cases. Said it could be some wax type substance left over from the bilateral or since I still had my nipples it could be some leftover milk from my ducts that the hormones produced. Never got a clear answer but after an ultrasound found no out everything was good.

Did you hear anything relating to your situation

Dx 5/1/2014, DCIS, 5cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 6/10/2014 Mastectomy: Left; Prophylactic mastectomy: Right Surgery 6/10/2014 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Mar 26, 2019 02:26PM mstahre wrote:

I have the same question and am seeing a surgeon to discuss this issue. I had my son a few weeks ago and am noticing a discharge every day. I did not have this with my first child in 2015 (surgery was in 2010).

In case anyone is wondering, here is a recent research article from Massachusetts General Hospital that examined nipple discharge in women post mastectomy and with and without subsequent pregnancies. the title can be searched with Google "

Nipple Discharge after Nipple Sparing Mastectomy With and Without Associated Pregnancy"

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