Join Us

We are 216,859 members in 84 forums discussing 160,262 topics.

Help with Abbreviations

Topic: Oncotype score? Did you have to do chemo or did you pass on it?

Forum: Young With Breast Cancer —

Connect with those under 40 who have been diagnosed.

Posted on: Jun 8, 2018 08:36AM

SLL101984 wrote:

Hi ladies,

Just had a BMX 2.5 weeks ago and this coming Tuesday I will meet with my MO for the first time. I should know my oncotype score that day. I only had one tumor, no lymph nodes involved, estrogen positive, her2 negative, and early stage. However I am young, 33. I feel like chemo will be recommended regardless of my oncotype score solely because of my age. anyone in a similar situation? What was your oncotype number? Chemo recommended or just tamoxifen?

Dx 4/18/2018, ILC, Left, 2cm, Stage IA, 0/5 nodes, ER+/PR+, HER2- Surgery 5/20/2018 Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Log in to post a reply

Page 1 of 1 (20 results)

Posts 1 - 20 (20 total)

Log in to post a reply

Jun 8, 2018 08:44AM vampeyes wrote:

diagnosed at 41

Oncotype 21

No chemo

Radiaton

Tamoxifen

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 8, 2018 08:50AM - edited Jun 8, 2018 08:51AM by Cpeachymom

sll- yes, they will probably recommend chemo because of your age.

Age 39

Oncotype 14

Chemo was recommended by my MO but not by my second opinion

Went with no chemo.

39 at Dx. Fate whispers to the warrior, 'You can not withstand the storm.' The warrior whispers back, 'I am the storm.' Dx 6/21/2017, IDC, Right, 4cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- Surgery 7/4/2017 Lymph node removal: Sentinel; Mastectomy: Right Hormonal Therapy 9/10/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 9/17/2017 Lymph nodes, Chest wall Surgery 10/9/2018 Reconstruction (right): Tissue expander placement Surgery 3/24/2019 Reconstruction (right): Saline implant Hormonal Therapy Zoladex (goserelin)
Log in to post a reply

Jun 8, 2018 09:09AM carmstr835 wrote:

age 61 at diagnosis bilateral IDC

Bilateral mastectomy and axillary dissection of the right side,

Radiation 30 fractions and bolus

onca scores of 17 and 19

HR +

HER2 +

Lymph + and extranodal


MO recomended no chemo, I went for 2nd opinion and they recommended chemo. I decided to do chemo + 1 year of targeted therapy for the HER2+

Dx 3/1/2017, DCIS/IDC, Both breasts, 1cm, Stage IIB, Grade 2, 2/17 nodes, ER+/PR-, HER2+ (FISH) Hormonal Therapy 3/21/2017 Arimidex (anastrozole) Surgery 3/26/2017 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 5/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 6/26/2017 Herceptin (trastuzumab) Targeted Therapy 6/27/2017 Perjeta (pertuzumab) Chemotherapy 6/27/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 9/10/2017 Breast, Lymph nodes, Chest wall Surgery 7/9/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 10/15/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery 9/17/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Targeted Therapy Nerlynx
Log in to post a reply

Jun 8, 2018 11:38AM Georgia1 wrote:

Hi there. Please be sure to check out the latest science announced earlier this week - many women in your situation - and maybe you! - no longer require chemo. I believe the cutoff is an oncotype score of 15 for women under age 50.

As for me, I was 59 with a score of 18. No chemo.

Here's the link:

https://www.cancer.gov/news-events/press-releases/...


Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 9, 2018 03:46AM SLL101984 wrote:

Georgia1- thank you for that article. I guess I’ll keep fingers cross and prayers my score comes back really low!!

Dx 4/18/2018, ILC, Left, 2cm, Stage IA, 0/5 nodes, ER+/PR+, HER2- Surgery 5/20/2018 Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Log in to post a reply

Jun 9, 2018 05:06AM nonomimi5 wrote:

I am sorry you have to go through this and you are so young.

Age 54, Oncotype 17, no chemo (accelerated 16 radiation therapy)

DX at 53. Surgery at 54. Oncotype 17 Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/28/2018 Breast Hormonal Therapy 7/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 9, 2018 04:23PM Meow13 wrote:

High score of 34, but 53 years old when diagnosed. Decided to say no to chemo and yes to AI drugs.

7 years and still no recurrence.

Log in to post a reply

Jun 15, 2018 09:34AM SLL101984 wrote:

Hi ladies....my score came back at a 14 and chemo was not recommended! I will be starting tamoxifen on Monday, and as of right now it’s a 10 year plan. Hoping I get lucky with minimal side effects...

Dx 4/18/2018, ILC, Left, 2cm, Stage IA, 0/5 nodes, ER+/PR+, HER2- Surgery 5/20/2018 Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
Log in to post a reply

Jun 15, 2018 11:10AM Georgia1 wrote:

Great news! Tamoxifen has benefits after only 2 years, so if it helps you mentally just focus on the shorter time period. That's what I do. :)

Best wishes.

Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Aug 28, 2018 11:43AM BT39 wrote:

I just turned 39 and am waiting to see if they can do the Oncotype on my tumor, which might be too small for the test (4mm). Usually they need at least 5mm. It's going to be challenging to sort out as even though the tumor is tiny, it's mighty. It had a lot of aggressive characteristics so it's going to be really questionable I think. Several experts have said I might need only endocrine therapy BUT that there would be A LOT of discussion about it because of all the other characteristics and my age, and that chemo is def. not off the table. I'm really lucky I randomly caught it so early, but I feel like all these questions about next steps are going to be a lot to sort through!

Dx 6/29/2018, DCIS/IDC, Left, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/14/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 10/1/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Sep 19, 2018 05:03AM Knitpig wrote:

My first opinion wouldn't send my tissue for oncotype. Told me to take Tamoxifen (optional) and check in yearly. The tumor was primarily DCIS with 3 small parts of IDC, 2mm, 3mm, 4mm.

I sought a second opinion with an Oncologist who thought it was completely reasonable to request Oncotyping on a 4mm tumor (what's 1mm difference?)

Oncotype score came back low. 13! If it had been higher they would have made me do infusion chemo.

Because of my age they ended up asking me to try ovarian suppression and AI since it showed a greater benefit for women under 35. So, that's what I'm doing.



33 years old, Dx Jan/2017 4cm+ DCIS. Unilateral MX February, DCIS with multi-focal IDC <1cm, Stage 1, 0/2 nodesER/PR+ HER2- Oncotype 13, April 2017, Zoladex + Tamoxifen Dx 1/3/2017, DCIS/IDC, Left, 4cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/16/2017 Mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
Log in to post a reply

Sep 19, 2018 07:03AM Meow13 wrote:

No one can make you do chemo. You chose it based on information. You chose not your doctor.

Log in to post a reply

Sep 19, 2018 02:49PM ChiSandy wrote:

Dxed at 64. Oncotype DX 16. No chemo, just lumpectomy, radiation (16 targeted sessions) and AI (letrozole). The latest phase of the TAILORx study validates my MO's decision to recommend that I skip chemo.

Now, carmstr835 above ended up getting chemo despite a score of 17-19....but that was almost surely because her tumor turned out to be triple-positive (not sure why it was even OncotypeDX-tested, since the test is strictly for HER2- cancers). HER2+ is treated with the "targeted therapies" Herceptin &/or Perjeta, which almost all MOs insist on first giving with chemo before administering them alone for a year.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
Log in to post a reply

Oct 6, 2018 06:15AM BT39 wrote:

Knitpig:

They did the Oncotype on my 4mm tumor and said that generally is the smallest they can do one on. Mine was really high so I started chemo this week, the minimal at 4 infusions. After that they are also suggested I try OS and an AI. However I am 39 and will definitely have to discuss this further with some experts. How have you felt on it so far? Although I think they suggested Tamoxifen first to get premenopausal women close to menopause and then start the OS injections and switch to an AI.

Dx 6/29/2018, DCIS/IDC, Left, <1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/14/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Chemotherapy 10/1/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Oct 6, 2018 01:59PM Jinx27 wrote:

I was told that Oncotype was done on older women and my One said no. Is there any way the can still run the test even though Im 3 years out? Will it help?

Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
Log in to post a reply

Oct 6, 2018 03:32PM Peregrinelady wrote:

The purpose of the Oncotype is to see if you would benefit from chemo. With the size of your tumor and 3 nodes, I would think that most oncologists would have recommended chemo. At this point, I do not believe it would help to have the test done.
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Surgery 5/17/2015 Mastectomy: Left Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/18/2016 Mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/31/2016 Arimidex (anastrozole) Hormonal Therapy 7/20/2020 Femara (letrozole)
Log in to post a reply

Oct 7, 2018 12:11AM edwards750 wrote:

I agree the test is done on the front end and wouldn’t be beneficial years out but that’s just my opinion.

Diane

Log in to post a reply

Jul 3, 2019 01:40PM OnTarget wrote:

I was diagnosed at 42 and my oncotype score was 16.

Chemo was not recommended by my MO. I'm going to do OS + an AI (I don't know which one yet).


Diagnosed at 42, Oncotype score 16, ITC in one node- considered node negative. Lost right implant to infection March 2020. Waiting to start reconstruction all over again. Dx 4/8/2019, ILC, Left, 3cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 4/23/2019, ILC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/15/2019 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 6/13/2019 Zoladex (goserelin) Chemotherapy 8/5/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/5/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
Log in to post a reply

Jul 9, 2019 10:52PM MirandaPriestly wrote:

I think it's becoming more common for chemo to not be recommended due to newer forms of testing like mammaprint and oncotype. I was dx at 31yo, ERPR+/HER2- with no lymph node involvement. Oncotype 0 and low risk (now considered ultra low risk) mammaprint. No chemo was recommended. Also on tamoxifen for 10 years but taking a break after 3 to try to have a baby.

Dx 6/14/2016, IDC, Left, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jul 10, 2019 10:52AM - edited Jul 11, 2019 10:12AM by thecargirl

There is a 10 year recurrence score your physician can get by logging in to the physicians portal at Genomic Health. This score includes your RS along with the clinical and pathological information about your tumor, that your physician adds. My 10 year distant recurrence score based only on the RS was 22 % recurrence, the RSPC (Recurrence Score Pathological Clinical) score was 6%……... when my tumor information along with my age was calculated along with my RS score.

Page 1 of 1 (20 results)