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Topic: Question For Those Breastfeeding Near Time of Diagnosis...

Forum: Young With Breast Cancer —

Connect with those under 40 who have been diagnosed.

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Posted on: Jan 11, 2019 08:35PM

Lexica wrote:

Just curious if any others experienced difficulty breastfeeding or low milk supply before diagnosis. I had low milk supply with both children (diagnosed 2 years after second child was born). I exclusively pumped for 6 months with my first because she had latch issues. Had clogged ducts with the first, but not the second. Just low milk supply for both. Any others with similar experiences? I know it's likely a fruitless endeavor, but I'm still looking for a why to all of this - or at least a contributing factor.

Diagnosed at 34. 2 years of Ibrance via PALLAS trial (ends 4/2020) Dx 7/2017, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Dx 12/27/2017, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
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Jan 11, 2019 10:35PM Falconer wrote:

Hi,

I breastfed all three of my children- ages 20, 17, and 5 for a year plus. I was diagnosed two years ago when my youngest was 3. My midwife told me that breastfeeding was great protection against Bc. So when I started the mini pill a year after my youngest, I hoped that all the nursing I did would protect me from BC and allow me to take the pill safely. It didn't. So I think it was my family history and taking the pill- my mom never breastfed any of us and she developed BC in her 50s. That's my two cents. Sorry you're here in this boat. Best to you
Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots Nov. 2016-December 2017 Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2017 Reconstruction (left): DIEP flap Surgery Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 14, 2019 10:39PM bestrongforeveryone wrote:

I just got diagnosed and I only finished breastfeeding 8 months ago. I pumped most of the time and also low milk supply. notbsure if any connections but seem like lots new mums diagnosed with BC also breastfed. breastfeeding really prevent BC? I thought it is the oppsite case

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May 30, 2019 07:46PM iChan25 wrote:

I was diagnosed when I was weaning my then 20 month old. I think it was probably there before but couldn't feel it from all the lumpiness caused by breastfeeding. I didn't have low supply, in fact I had oversupply that lasted for almost 10 months until my son started eating solids more frequently.

Dx 3/14/2019, IDC, Left, 5cm, Stage IIIA, Grade 3, ER-/PR-, HER2+ (FISH) Chemotherapy 4/2/2019 AC Targeted Therapy 5/28/2019 Perjeta (pertuzumab)
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May 31, 2019 01:05AM ShetlandPony wrote:

As I understand it, breastfeeding is helpful for prevention IF the first pregnancy is before age 30. It makes the breast tissue settle down. But after age 30 pregnancy raises bc risk for a while. As for why, I think in time it will be shown that most women with premenopausal bc have a genetic susceptibility (perhaps as yet unknown). It’s not your fault. Say it. “It’s not my fault.”

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
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Jun 1, 2019 01:01AM gb2115 wrote:

I breastfed (well, pumped actually) about 4 years before diagnosis. The cancer side NEVER gave nearly as much milk as the non cancer side. I could pump 8-12 oz out of the left but the right would be 3-4 on a good pump session. I have always wondered if there was something to that.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
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Jun 3, 2019 03:36PM Lexica wrote:

ShetlandPony - My first daughter was born the day after my 30th birthday... Oi. I know, though - IT'S NOT MY FAULT. Thanks :)

Diagnosed at 34. 2 years of Ibrance via PALLAS trial (ends 4/2020) Dx 7/2017, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Dx 12/27/2017, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
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Jun 3, 2019 03:40PM Lexica wrote:

Also, when I sought my second opinion from Hopkins (from an Oncologist that actually works at the same Federal campus as I do but does her clinic hours at Hopkins - small world), she asked me if my kid stopped wanting to nurse from the cancer side. I didn't remember, honestly, but she said she was convinced the cancer made the milk taste funny and babies usually stopped nursing from the cancer breast. Just her anecdotal opinion, but I was always curious if it was true!

Diagnosed at 34. 2 years of Ibrance via PALLAS trial (ends 4/2020) Dx 7/2017, IDC, Left, Stage IIIC, Grade 2, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Dx 12/27/2017, DCIS/IDC, Left, 6cm+, Stage IIIA, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
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Jun 12, 2019 02:11AM IM2C wrote:

This happened to me. I was breastfeeding my 17 month old when I was diagnosed. She never had a side preference, but I know from when I had to pump that my cancer side (the right) always had less output than my other side. My imaging showed that my tumor was completely blocking some ducts (I forget the word for this - necro-something, it showed on my imaging reports which I assume caused the difference in milk volume. With IDC, this makes sense - the cancer grows in your ducts, so it can affect supply. Mine did, anyway.

Dx 5/2019, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER+/PR+, HER2+ Surgery Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy Other Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab) Targeted Therapy Perjeta (pertuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jun 12, 2019 11:18PM Tresjoli2 wrote:

I had low supply with both children, and was diagnosed when my daughter was two, following two miscarriages. My MO believes I had PABC - pregnancy associated breast cancer.

Diagnosed at age 40 after going for my baseline mammogram. Dx 4/21/2015, IDC, Left, <1cm, Stage IA, 0/2 nodes, ER+/PR+, HER2+ (FISH) Dx 4/21/2015, DCIS, Left, 4cm, Stage 0, Grade 3 Surgery 5/18/2015 Lumpectomy: Left; Lymph node removal: Sentinel Targeted Therapy 6/19/2015 Herceptin (trastuzumab) Chemotherapy 6/19/2015 Taxol (paclitaxel) Chemotherapy 8/7/2015 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 9/23/2015 Whole-breast: Breast Hormonal Therapy 10/11/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 2, 2019 02:49AM LMP100 wrote:

I was diagnosed about 3 months after weaning my 20 month old. I thought it was just a cyst or something from weaning. My son always preferred the left breast, and I have the tumor in the right. I did make less in the right, but that could have been due to his preference for the other breast. The tumor seemed to appear quickly.

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Oct 11, 2019 12:54AM Anotherone wrote:

I was diagnosed when still breastfeeding an almost a 2 yo. Cancer side had less milk but the child did not Express any preferences. The whole breast was one big lump :(.

Primary in 2006, metastasis 2019. Sorry can lot log in diagnosis and treatment info properly - it gets jumbled. Dx 10/10/2006, IDC, Left, Stage IIIC, metastasized to lungs, Grade 3, 4/9 nodes, ER-/PR-, HER2+ Dx 7/1/2019, IDC, Stage IV, metastasized to lungs Chemotherapy 9/17/2019 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy Herceptin (trastuzumab) Radiation Therapy External: Chest wall Surgery Lymph node removal: Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Tissue expander placement

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