One of the lovely moderators suggested I try this forum after posting in the invasive lobular forum with no replies...
I am writing from Australia. I have had no success over finding anyone else who was this young at diagnosis currently or previously with ILC. I asked my breast nurse to reach out to her colleagues for me across Australia and no one has replied saying they have a patient with the same at a similar age.
I am 27, on 13/2/19 I was diagnosed with classic invasive lobular carcinoma L) breast.
I have no family history. was of previous very good health (still feel healthy!) and moderately fit. Married, no kids yet.
Had L) mastectomy and axilliary clearance 28/2 - tumour 5cm and 1 x 1mm micromet in 1/14 lymph nodes, stage 2B.
I've searched around the Australian forum with no luck, everyone “young” I’ve seen diagnosed with lobular isover 40. I asked my surgeon and oncologist, both can only recall one other patient they treated under 30 with ILC.
Thought I'd try here - I'm looking for hope. Is there anyone out there beyond 5 year disease free survival who has had ILC in my age range?
I start chemotherapy today actually! Plan is 4 rounds of AC and 4 Taxol with likely radiation after.
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