I don't post often, but I feel I'm in need of input from people who may understand. I trust all of my doctors, but I always seem to fall in a gray area. It's a good thing because I have not received a one-size-fits-all treatment plan, but at the same time, it's gotten frustrating because I'm kind of at an impasse.
First of all, I'm 36 years old, and I was diagnosed 8/5 with IDC ER/PR+ HER2-. There was a lot of back and forth between my surgeon and oncologist regarding neoadjuvant chemo--We knew I was node-positive from the beginning as one of my biopsies was on an enlarged node. My oncologist ordered the Oncotype test which came back with a low score🙌🏻.
Fast forward to my BMX on 9/27 where the pathology yielded 3/16 positive nodes, and I was also positive for lymphovascular space invasion as well as focal perineural invasion. I had my appointment today with my oncologist, and now he is nervous for me to not receive chemotherapy, knowing there are 3 positive nodes as well as the LVI and PNI. He ordered a Mammaprint test today to get some more information, so I'll get that back in the next couple of weeks.
I feel like I have all the facts, but my "new school" oncologist is now nervous about not giving me chemo, simply because there's not as much long term data to support the node-positive disease genomic tests (plus the LVI and PNI situation).
I honestly feel right down the middle in terms of what to do. Do I risk potentially being over-treated and cause irreparable damage to my body? Do I risk potentially being under-treated and take a chance on the cancer returning...even though recurrence is a chance for all of us, no matter what, would I feel like if it did return, I didn't do everything possible to prevent it?
I'd love feedback. All of our situations are so incredibly different, but we all have one thing in common-cancer. What would you do?
36 years old, no family history of any type of cancer, found the lump myself, glad I listened to my gut!
8/5/2019, IDC, Right, 2cm, Stage IIB, Grade 2, 3/16 nodes, ER+/PR+, HER2-
9/27/2019 Mastectomy: Left, Right
11/8/2019 AC + T (Taxol)
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