Topic: Young and Oncotype score

Forum: Young With Breast Cancer — Connect with those under 40 who have been diagnosed.

Posted on: Dec 18, 2019 06:52AM

Posted on: Dec 18, 2019 06:52AM

Lvp84 wrote:

i originally posted this elsewhere but figure it fits best here, i’m 35 years old and waiting for the final piece of the puzzle.. my Oncotype. I’m highly ER/PR positive and Her2- and grade 3 tumour. Very curious to know what score you guys got and what decision you made on chemo...

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Jan 6, 2020 08:02AM JamieGillham wrote:

Hi there,

I was diagnosed at 28 years old and had an oncotype score of 13. I was scheduled to do 6 rounds of chemo but my oncologist lowered it to 4 rounds after my results. He did say that with such a low score usually I wouldn't have received chemo at all but because I only 28 years old he felt better if I did chemo.

I was estrogen positive and grade 2 tumor. Two tumors were found in my left breast with the distance between them I only had the option of a mastectomy and later had a mastectomy on my other side as well.

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Jan 6, 2020 08:20AM Lisey wrote:

I was 40 when diagnosed with a 20 score. I got a Mammaprint as a second opinion and it said 'low risk' so no chemo for me. The TailorX study is now showing that even younger women can safely skip chemo if lower than a 25 score. I'm glad I didn't do chemo, I'm saving it for if/when BC ever comes back. With that, I'm on Tamoxifen for 10 years. I'm 3.5 years in.

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 31, 2020 09:46AM MirandaPriestly wrote:

I was 31 at dx and my Oncotype was 0. I think (at least at the time) that my Onc had never seen that before. I also had Mammaprint, which came back at low risk.

Dx 6/14/2016, IDC, Left, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/11/2016 Mastectomy: Left, Right; Reconstruction (left): Saline implant; Reconstruction (right): Saline implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 31, 2020 12:58PM buttonsmachine wrote:

My Oncotype was 32. I did do chemo.

If it looks like you need to do chemo, ask your MO about possibly adding ovarian suppression during chemo - it helps protect your ovaries, but also might help chemo to be more effective because the cancer is not being simultaneously fed by estrogen.

Best wishes to you. It's a hard situation at any age, but especially when we are supposed to be in our "prime."

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/31/2017 Whole breast Hormonal Therapy 3/31/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 11/30/2017 AC Surgery 3/31/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 4/30/2018 External: Lymph nodes, Chest wall Chemotherapy 6/30/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/14/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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Feb 27, 2020 04:42AM Blackrose231105 wrote:

mine was 16 but because I was 30, my oncologist wanted to go ahead with chemo

Dx 5/2017, IDC, Left, 1cm, Stage IB, Grade 2, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Breast, Lymph nodes Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lumpectomy: Left; Lymph node removal: Sentinel
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Feb 27, 2020 05:14AM - edited Feb 27, 2020 05:15AM by rambros

Mine score was 19 (12% risk of recurrence with or without chemo). Did chemo for my age (36), size & grade of tumor plus one positive lymph node. Hope you get a low score. I was 90% ER and 90% PR plus grade 3

Dx 10/8/2014, IDC, Left, 3cm, Stage IIB, Grade 3, 1/10 nodes, ER+/PR+, HER2- Surgery 11/16/2014 Mastectomy; Mastectomy (Left); Prophylactic mastectomy; Prophylactic mastectomy (Right) Chemotherapy 1/5/2015 AC + T (Taxol) Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Surgery Radiation Therapy Lymph nodes, Chest wall
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Apr 24, 2020 12:13AM PoojaMG wrote:

Hi! Do you know of anyone with a high oncotype score? Mine just came back and it is 66 (?!?!). I feel like that has to be a mistake?

Dx 3/2020, IDC, Left, 3cm, Stage IIB, Grade 3, 0/6 nodes, ER+/PR+, HER2-,
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Apr 24, 2020 10:46AM redkitty815 wrote:

I have a similar diagnosis-grade 3, ER/PR+, Her 2- and am 43. I have nodal involvement and my team actually put me on neo-adjuvant chemo therapy and in a clinical trial (adding in immunotherapy or placebo) because the high grade makes it both higher risk and more responsive to chemo. I just got my last dose of chemo and don’t regret my decision

Dx 11/26/2019, IDC, Left, 3cm, Stage IIB, Grade 3, 1/12 nodes, ER+/PR+, HER2- Chemotherapy 12/18/2019 AC + T (Taxol) Targeted Therapy 7/11/2020 Herceptin (trastuzumab) Chemotherapy 7/11/2020 Navelbine (vinorelbine) Surgery Lymph node removal; Mastectomy; Reconstruction (Left); Reconstruction (Right)
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Apr 24, 2020 11:03AM peregrinelady wrote:

Pooja, what are your percentages of ER,PR.? If they are low, maybe you are closer to triple negative?
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Surgery 5/17/2015 Mastectomy; Mastectomy (Left) Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/18/2016 Mastectomy; Mastectomy (Right); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Hormonal Therapy 7/31/2016 Arimidex (anastrozole) Hormonal Therapy 7/19/2020 Femara (letrozole) Hormonal Therapy 3/3/2021 Arimidex (anastrozole)
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Apr 24, 2020 12:38PM moderators wrote:

Hi PoojaMG,

We are sorry you find yourself here, but glad you found this community.

The numbers can be difficult to understand. Here is a something we've written that may help make more sense of it: Oncotype DX: Genomic Test to inform breast cancer treatment. What is your treatment team suggesting for you?

Thinking of all of you! Keep us posted!


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