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Topic: Life without estrogen

Forum: Young With Breast Cancer — Connect with those under 40 who have been diagnosed.

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Posted on: Jan 7, 2020 10:44PM

Posted on: Jan 7, 2020 10:44PM

mikamika wrote:

Hello,

I'm 38 y.o. and soon I will start AI+lupron shots.

Please, share your experience, how are you doing in your 20s and 30s on AI. What helps your skin, hair, musculs, bones, mood, memory and cognitive functions?

Dx at 38 Dx 8/2019, ILC, Stage IIA, Grade 2, ER+/PR+, HER2- Radiation Therapy Hormonal Therapy Arimidex (anastrozole)
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Jan 8, 2020 07:15AM aln82 wrote:

Following- I am 37 y.o. and starting AI + lupron soon too!~

Dx 8/1/2019, IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2-, Surgery 8/11/2019 Lumpectomy: Right; Lymph node removal: Sentinel
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Jan 9, 2020 07:01AM Kat104 wrote:

Sorry I can't share experience yet, but maybe others will do so soon. Just wanted to join you guys, because I'm 39 and will start the shots as soon as insurance approves. Was on tamoxifen for 2.5 years with no side effects, but unfortunately I had a small local recurrence, so now I'm switching. AI will be added in 4 months. Obviously I'm thankful for options, but I'm nervous about effects too...

Dx 10/6/2016, IDC, Left, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/21/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Dx 12/2019, IDC, Left, ER+/PR+, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole breast
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Jan 10, 2020 01:07AM Prahan wrote:

I am 37 and on Tamoxifen and lupron. Lupron shots once in 3 months. Completed 2 shots.

Regarding low estrogen , i experience GERD and sore throat. I too get jaw pain. Don't know it is side effect of lupron.

Dx 3/18/2019, IDC, Left, 1cm, Stage IB, Grade 1, 1/1 nodes, ER+/PR+, HER2-, Surgery 3/27/2019 Lumpectomy: Left Radiation Therapy 5/7/2019 Whole breast: Breast, Lymph nodes Hormonal Therapy 5/8/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Jul 16, 2020 10:22AM Longtails wrote:

I'm 38 and recently started on OS (Zoladex) + AI. Interested in hearing what effects the under 40 thrivers are experiencing. Trying to stay ahead of the adverse effects by exercising daily, taking vitamins, drinking enough water and keeping my skin moisturized.

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Jul 16, 2020 10:45AM illimae wrote:

I started a little later than you all (41) but it’s doable. You may have sore knee joints, lack of sex drive and some moments of rage, so warn your spouses, lol. You’ll feel like an old lady at first but things generally level out. I like Haylo Gyn moisturizer for sex and Aveeno with sunscreen for my face, other than that, go easy on yourselves and give it time.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2- Radiation Therapy 10/19/2017 External Local Metastases 10/19/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/22/2019 External Local Metastases 5/22/2019 Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External Local Metastases 2/16/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 16, 2020 12:59PM illimae wrote:

Oh and this! Possibly from reduced estrogen, definitely a chemo side effect.


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2- Radiation Therapy 10/19/2017 External Local Metastases 10/19/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/22/2019 External Local Metastases 5/22/2019 Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External Local Metastases 2/16/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 16, 2020 01:38PM Longtails wrote:

illimae, thanks for the advice and haha yes definitely have experienced that chemo brain too often...hope it doesn't get worse on hormonal therapy!

Has anyone been experiencing joint stiffness? All of a sudden during radiation, before starting hormonal therapy, my joints started aching a lot. Doing slow, deliberate body weight exercises daily has really helped to relieve the discomfort.


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Jul 16, 2020 02:24PM - edited Jul 16, 2020 02:25PM by dizzywombat

Joining as well and appreciate those sharing their experiences! I'm 38 and started Tamoxifen + Lupron a couple weeks ago. Waiting for the side effects to kick in (story of our lives). Would really love to not lose my hair again.


Dx 10/22/2019, ILC, Right, 3cm, Stage IIIC, Grade 2, ER+/PR+, HER2-, FISHISHCISH Chemotherapy 11/21/2019 AC + T (Taxol) Surgery 4/21/2020 Lymph node removal; Mastectomy; Mastectomy (Right) Radiation Therapy 5/24/2020 Whole breast: Lymph nodes, Chest wall Hormonal Therapy 7/7/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/29/2020 Prophylactic mastectomy; Prophylactic mastectomy (Left); Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap
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Jul 16, 2020 03:45PM illimae wrote:

Longtail, I only had joint issues with my knees but part of that may have been overdoing it at the gym.

PSA: lack of estrogen moments...


Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2- Radiation Therapy 10/19/2017 External Local Metastases 10/19/2017 Brain Radiation Therapy 4/18/2018 External Local Metastases 4/18/2018 Brain Radiation Therapy 5/22/2019 External Local Metastases 5/22/2019 Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External Local Metastases 2/16/2020 Brain Radiation Therapy 7/20/2020 External Local Metastases 7/20/2020 Radiation therapy: Bone Radiation Therapy 12/4/2020 External Local Metastases 12/4/2020 Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 16, 2020 06:03PM Longtails wrote:

Oh yes dizzywombat, with you on the hair. Are you taking or planning on taking any supplements for that?

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