Topic: Diagnosed at 33 and looking at options

Forum: Young With Breast Cancer — Connect with those under 40 who have been diagnosed.

Posted on: Nov 27, 2021 07:05AM

Posted on: Nov 27, 2021 07:05AM

chmoore88 wrote:

Hello everyone.. I am 33 and was diagnosed last Friday with invasive ductal carcinoma, with a 19mm (1.9 cm) mass, grade 1. I have not yet heard of the "make up" of HER2 and all of that. I know that will be a game changer as far as treatment goes, so I am worried about that. There is a significant history of cancers in my family. Of note, my Mother passed from ovarian cancer at the age of 59, her sister also had ovarian cancer, and my paternal aunt was diagnosed and treated for breast cancer. I learned since my diagnosis that she began having abnormal mammograms at the age of 23 (but no concrete diagnosis until post menopause). My maternal grandmother passed away from colon cancer, my paternal grandmother from lung cancer, and my paternal aunt at a young age to skin cancer (hence the genetic testing). About a year ago I completed genetic testing and was referred for a one year high risk follow up. The mammogram showed 2 areas of concern, which was followed up with an additional mammo, then an ultra sound, and a biopsy of both of the areas last Friday. I have a surgical consultation next Thursday. I have been researching different treatment options and it is pretty overwhelming.

Here are a few of the options I am considering:

Double mastectomy with breast reconstruction using my tummy fat - (hello tummy tuck!)

But also getting a full hysterectomy and tube removal.

Does anyone have experience with this type of combination?

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Nov 27, 2021 08:23AM - edited Nov 27, 2021 08:23AM by voraciousreader

chmoore…i am sorry to hear about your diagnosis and the loss of your mom. Holiday weekends are a slow period of time on this breast cancer board.

hopefully, others will see your threads soon and respond. I am sorry that I cannot offer any advise on this topic.

i wish you well.

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Nov 27, 2021 08:58AM elainetherese wrote:


If your cancer is Grade 1, it is highly unlikely to be HER2+, which is usually Grade 2 or Grade 3. If you go ahead with all that surgery, you are probably looking at multiple surgeries. No surgeon would do the mastectomy/DEIP flap at the same time as the full hysterectomy/tube removal. Plus, recovery from the mastectomy/DIEP flap will take some time. ((Hugs)) It's hard to wait for all the test results, but at least you're looking ahead!

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Nov 27, 2021 09:02AM aram wrote:

Chmoore, I am BRCA1 positive. I had BMX with immediate reconstruction with implants. I will be having hysterectomy this December. Good luck with your choice.

Dx at 40, BRCA1 Dx 2/5/2021, IDC, Left, 1cm, Grade 3, ER-/PR-, HER2- Dx 2/5/2021, IDC, Left, 3cm, Grade 3, ER-/PR-, HER2- Chemotherapy 3/9/2021 AC + T (Taxol) Targeted Therapy 6/1/2021 Herceptin (trastuzumab) Targeted Therapy 6/2/2021 Perjeta (pertuzumab)
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Nov 27, 2021 12:00PM waves2stars wrote:

My surgeon didn’t rule out having a hysterectomy at the same time as DIEP flap. HOWEVER, now that I’ve had a single DIEP, I think having a double plus gynecological surgery would be risking complications and a much tougher recovery than is necessary. Dropping yourself directly into menopause (at your age) along wit a big surgery doesn’t seem like a great idea.

DX @ 47. IDC 2.1 cm, DCIS 2.8 cm, Luminal B Dx 7/19/2021, IDC, Left, 2cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-, FISHISHCISH Surgery 8/31/2021 Lymph node removal; Mastectomy; Mastectomy (Left); Reconstruction (Left): DIEP flap Dx 9/2021, DCIS, Left, 2cm, Stage 0, Grade 2, ER+, HER2- Hormonal Therapy 9/20/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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