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Topic: Doctor Confusion: What you Doctor says/What your Doctor means

Forum: Humor and Games — Breast cancer is no laughing matter, but sometimes a good joke or a game is the best medicine.

Posted on: Sep 10, 2012 09:54AM - edited Sep 10, 2012 09:56AM by GmaFoley

GmaFoley wrote:

No Doctor names please.. This is to be a place to vent and have funny/or not so funny stories with your doctor/LE visits.

I saw this get well card which made me laugh but at the same time got me wondering..  Below, i changed the words around but you will get the idea..I left out the ones that really disturbed me.. but what do you all think? Especially with the LE therapist and Doctor yo-you we seem to play some crazy games to get help in certain situations.. Lets use this topic to work through some of these frustrations we have. I made this for everyone not just the family of Lymphedema followers... I sure others have what I call - Doctor Confusion - Please join me..

What the Doctor says   -- What the Doctor means

I'd like to run a few more tests. -- I want a new sports car.

Please make a follow-up appt. -- I'd also like a music system to go with it.

Let's send you to a specialist -- I have no clue what is wrong with you.

Good News/Bad News -- I have bad news 

My personal ones:

You are fine, don't worry -- Her arm's not swollen, I only took out one node, it can't be LE. 

That is interesting -- What the heck caused that?

Oh I see you have allergies -- How quick can I get her out of here.

Oh a friend told me her gyn doc comes into visit her in a mini skirt and high heels... what's up with that???

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Sep 11, 2012 04:41AM - edited Sep 11, 2012 04:42AM by Leah_S

Gma, these are spot on! I don't have any to add, but I sure hope the gyn doc who visited dresed like that is female. I mean, a miniskirt is one thing, drag is another.

Leah

Dx 11/3/2008, IDC, 1cm, Stage IV, Grade 3, 6/17 nodes, ER+/PR+, HER2-
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Sep 11, 2012 05:00AM - edited Sep 11, 2012 05:02AM by GmaFoley

Leah - You are too funny - that is what I am getting at - lets make eachother laugh through these frustrations and thoughts!!!!

BTW Yes she was female.. but I told my friend she might want to try another doc.. it seemed this gyn was "my way or the highway" - never helped my friend with her pain or concerns - I referred her to someone else..

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Sep 11, 2012 04:27PM GmaFoley wrote:

Well, it looks like this one is a dud... I will leave it here for a week then delete it if it doesn't take off... Bummer 

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Sep 11, 2012 05:27PM FireKracker wrote:

Ya only started it yesterday....give it a chance...if you didnt post this thread on the after rads thread i would have never known.....start doin your own advertisement on other threads....this is spot on...quote from Leah.

Right now i hate all the white coats!!!!!!!!!

Ya might want to go to the pinktober threads....those sistas get things done....

Can ya tell i worked in the advertisement dept?

Focktober!!!!Pink stinks!!!!
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Sep 11, 2012 05:49PM Cindyl wrote:

This might sting -- It's going to hurt like h*ll

You may feel some pressure (I'll be standing on your belly)

Take two asprin and call me in the morning -- and I'll make sure you can't get past the snotty receptionist. 

Stay calm, have courage and watch for signs. Dx 2/11/2012, IDC, 3cm, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/29/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Radiation Therapy 4/15/2012 Hormonal Therapy 5/22/2012
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Sep 11, 2012 06:32PM New-girl wrote:

My favorite....."It normally doesn't hurt"  also " Most women don't complain about that"

I also adore my BS who said that she only took out 3 nodes.  When presented with the path report, she sidestepped about how I would probably never get lymphedema but oh here is a precription for the arm sleeves and I better get them soon.

Dx 1/19/2012, DCIS, <1cm, Stage I, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, ILC, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Surgery 2/13/2012 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 7/26/2012 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 12/14/2012 Reconstruction (left): DIEP flap, Nipple reconstruction; Reconstruction (right): DIEP flap, Nipple reconstruction Dx 1/19/2016, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2-
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Sep 11, 2012 06:56PM carol57 wrote:

Breast surgeon: 'less than 1% of my patients get lymphedema after sentinel node biopsy'

Translation: 'I don't follow my patients very long, so I don't know who gets lymphedema'

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Sep 12, 2012 01:34AM Quail wrote:

"Sharp scratch"

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Sep 12, 2012 05:19AM GmaFoley wrote:

I'm happy ladies - you're definitely getting into this!!!

Trying to get into seeing my pcp for (Non LE side)swollen arm: Oh sorry he doesn't have any openings until Oct 2nd - you better keep your Sept 27th appt - Receptionist really saying - I don't want to find you an appt...

Other response - if you need to see someone sooner go to urgent care downstairs - Receptionist again saying - I still don't want to find you an appt... 

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Sep 12, 2012 05:52AM New-girl wrote:

After battling celluitis for a solid month, I asked my PS yesterday about breast lymphedema.  The fact that I had 16 nodes removed is like the elephant in the room.  So I ask him and he says....yeah you might want to see a specialist!  Is that the same as "I don't have a clue " or " Gag- I certainly didn't yank the nodes, her BS did it". 

Dx 1/19/2012, DCIS, <1cm, Stage I, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, ILC, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Surgery 2/13/2012 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 7/26/2012 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 12/14/2012 Reconstruction (left): DIEP flap, Nipple reconstruction; Reconstruction (right): DIEP flap, Nipple reconstruction Dx 1/19/2016, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2-
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Sep 12, 2012 05:55AM GmaFoley wrote:

grt42btexan - I vote for "I don't have a clue BUT its not my fault!"

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Sep 12, 2012 06:15AM Cindyl wrote:

RO "LE stems from node removal during the surgery"

Surgeon "Radiation damage"

 =not my fault

Stay calm, have courage and watch for signs. Dx 2/11/2012, IDC, 3cm, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 2/29/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Radiation Therapy 4/15/2012 Hormonal Therapy 5/22/2012
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Sep 12, 2012 06:32AM GmaFoley wrote:

Cindy yep - my two fought over that for a year before I put my foot down and said, "I DON'T CARE who's at fault... Just get me a script for an LE Therapist!"

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Sep 12, 2012 07:47AM New-girl wrote:

Our cancer support group is having a LE Specialist speak to our group this Thursday.  I am planning on getting as much info as possible.  I think I am a unique case to my PS and goodness knows my BS will not ever deal with it. 

Dx 1/19/2012, DCIS, <1cm, Stage I, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, ILC, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Dx 1/19/2012, IDC, 1cm, Stage I, Grade 2, 0/16 nodes, ER+/PR+, HER2- Surgery 2/13/2012 Lymph node removal: Left, Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 7/26/2012 Reconstruction (left): Nipple reconstruction; Reconstruction (right): Nipple reconstruction Surgery 12/14/2012 Reconstruction (left): DIEP flap, Nipple reconstruction; Reconstruction (right): DIEP flap, Nipple reconstruction Dx 1/19/2016, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2-
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Sep 12, 2012 08:29AM FireKracker wrote:

See I told you this will take off.

was gonna bump it but i see no need.

great goin sista.

Ill be back.

Focktober!!!!Pink stinks!!!!
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Sep 12, 2012 11:40AM GmaFoley wrote:

what doc means
Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Sep 13, 2012 07:37AM GmaFoley wrote:

Here's a new one LOL - I talk to my surgeon's office about my good arm swelling - He says its probably the LE, Have your LE therapist treat it as such. if you are still concerned, call me next week. What he was REALLY saying is that his is on his way out the door on vacation and he will deal with it when he gets back...

Imagine God in His HUGE rocking chair, rocking you and saying, "It will be ok, you can do it. I will be right here for you". Oncotype score: 8, Rads 28, Bilateral arm, truncal LE and now Obstructive Sleep Apnea Dx 4/19/2011, IDC, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2-
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Sep 13, 2012 07:54AM - edited Sep 13, 2012 08:10AM by kira

I haven't weighed in, but as someone who works in health care, works very hard and doesn't get a huge salary, I think a lot of these comments are based on misconceptions and previous eras in health care.

Sure I've been disappointed and frustrated by my health care providers, but I sure don't think their failings have to do with avarice: it's ignorance, IMO.

I believe I was especially disheartened as the people who let me down were people I had previously trusted, and worked with.

Knowledge is the antidote to fear, Ralph Waldo Emerson Dx 5/10/2008, IDC, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Sep 13, 2012 10:31AM - edited Sep 18, 2012 09:42AM by Dejaboo

My 1st PS-(the one that really messed up my reconstruction) 

What he said at 1 week post op:  "I have never had a patient in as much pain as you, I dont know what to do with you"

What he meant:  Its your pain, its your problem, deal with it.

statistics are just a group of numbers looking for an argument Dx 3/7/2008, IDC, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR-, HER2+
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Sep 13, 2012 07:11PM FireKracker wrote:

When I couldnt get in touch with my Dr.His nurse told me he had to take his mother to the airport to go back to India...

When he did call me he told me he had an emergency!!!!!

Focktober!!!!Pink stinks!!!!
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Sep 13, 2012 08:18PM ridergirl wrote:

Really wanted his mother gone!!! Sorry....damn inside voice :-)

Dx 6/25/2012, 6cm+, mets, ER+/PR+, HER2- Hormonal Therapy 7/8/2012 Chemotherapy 10/3/2012 AC Chemotherapy 11/15/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Chemotherapy 1/24/2013 Taxol (paclitaxel) Radiation Therapy 2/10/2013 Bone
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Sep 14, 2012 08:09AM carol57 wrote:

OK, ladies, I'm going to argue for another perspective.  My LE care was based on referral by my PS, when I was primarily under his care.  Later, when I made an appointment with my primary care physician, just to talk about LE and transfer my LE care to her, she started right out by saying, 'I am not going to say lympha-what-a? --but in truth, I know very little about lymphedema. So, let's get started--what do you need from me, and let's frame in my homework assignment for how I'm going to learn how to support you.'

Physicians get very little training in the lymphatic system, and it's easy for our frustration in getting proper LE evaluation and treatment to spill over into a generally cynical attitude about our doctors and surgeons.  I'm guilty of that, too. Don't get me started on my breast surgeon who seriously denies LE.  But let's acknowledge that some of what's dysfunctional is the healthcare system, not necessarily the individual physicians.  I was not overjoyed that my doctor has no training in LE, but I could kiss her for being so honest about that, and for being so willing to do and learn what's needed to help me.  (But she's finding it frustrating to find what she needs to know about LE...another broader-picture LE problem to solve!)

Carol

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Sep 14, 2012 08:19AM Dakota212 wrote:

Went to my primary care she talked me into doing my yearly gyn appointment since I was there.... She said as she was looking at my cervix " I have never seen that in the ten years I have been in practice ".... Never had another pap with my primary always my gyn!!!!

💓💓💓 Onco type score 32 Dx 7/16/2012, IDC, 2cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 9/27/2012 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 11/7/2012 AC + T (Taxol)
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Sep 14, 2012 09:54AM kira wrote:

Carol, my wonderful PCP has said "you know more about LE that I do: tell me what you need" and then she does it. I know she has my back and my scripts and that's all I want/need from her at this point.

Kira

Knowledge is the antidote to fear, Ralph Waldo Emerson Dx 5/10/2008, IDC, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Sep 14, 2012 03:15PM Binney4 wrote:

My incredible medical onc has retiredCry, but like Carol's PCP, he readily admitted he knew little about LE. Neither did his nurses, which became obvious when they tried to write the prescriptions I needed for garments and couldn't make heads nor tails of it--"Night garments? What in the world is that?" So I arranged with them for a time when I could talk to all the nurses. I emailed several garment companies and told them what I was doing and they sent me samples, fabric pieces, and loads of brochures with pictures in them of every kind of comression garment imaginable. I went to the get-together with one arm wrapped, and I brought in my own garments to show them. They were thrilled to learn about it all, and I've never had another problem with poorly-written prescriptions.

When you think about it, why on earth would they know anything about our garments? Nursing programs don't teach about it, and when would they see a patient with a night garment? Never!Undecided

Another time I had to go to the ER and didn't want them touching my arms, so I wore my night sleeves. They were dumb-founded and kept asking me what was under the garments! They have no clue. But the thing is, they were all really interested in learning. I had a whole string of both doctors and nurses popping in to learn about my garments and my LE, and they were grateful for the chance to learn something new.

When I go in for procedures like colonoscopies (yuck!Tongue out), I make sure I have a whole stack of the Jobst LE brochures for professionals (free for the asking from the company) and a handful of the ReidSleeve neon pink alert bracelets (also free), and I hand them out to everybody in scrubs no matter who they are. Last time, as I left, there was a clump of them at the front desk leaning over one of the brochures and talking intently about it. They just don't know. But fortunately we can change that!LaughingKissCool

Granted it's a bit surreal to be teaching a class in LE while flat on your back and dressed in a johnny, but hey! We'll all in this together!Smile

Onward!
Binney

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Sep 14, 2012 07:05PM Blessings2011 wrote:

"You're going to feel a little pinch..." (This is going to feel like a gunshot wound, so don't say I didn't warn you...)

"We're going to put a little pressure on that..." (You may want to take a deep breath now because it will feel like an elephant standing on your chest and you definitely won't be able to breathe for a while...)

"No one has ever complained of that before...." (We'd go crazy if we had to actually listen to all the whiners...)

"I'm just going to step out and call the Radiologist in...." (OMG, you're bleeding like a stuck pig, and I don't want to be responsible!)

"See if you can hold real still for me now...." (What do you mean, your arm doesn't bend that way? Do you want this test or not?)

"The doctor is running a few minutes late..." (You might as well go home and eat lunch because it's gonna be a while...)

"I can take a message and let the doctor know you called - again...." (Quit bothering me. I'm trying to plan my girlfriend's baby shower.)

Dx 9/15/2011, IDC, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/4/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/21/2012 Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/4/2012 Arimidex (anastrozole) Hormonal Therapy 10/21/2013 Femara (letrozole)
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Sep 15, 2012 06:58PM FireKracker wrote:

Well  said blessings...and all so true...unfortunately...its sooo sad what those white coats get away with.....

Where are the good old drs.from years ago who actually listen.....

only my internist hears me...really hears me...dont get me wrong i do love my drs.but something happened to the medical field and im betting its all about the almighty $$$$$$$$$$.....

I love the one about its only gonna be a little pinch...are you kidding me...pinch my ass you are killing me!!!!!those damn needles hurt especially when your veins suk!!!!!!

Focktober!!!!Pink stinks!!!!
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Sep 15, 2012 07:00PM thefuzzylemon wrote:

This might sting a little = I've never actually had this done and it probably hurts like hell.

I'll prescribe you medication = all I know how to do is prescribe medication and I cannot help your mental illness.

How would you describe the pain = this number doesn't matter in any way shape or form..I just want to see what you'll say.

Take this with a meal = You better take this with food or you'll regret it big time.

Get lots of rest = you probably won't be able to rest at all.

When are you available for your next appt? = It doesn't matter when you're available so let me tell you when you'll be here...

Gma - I saw that you created this on the OMG thread!  Sorry it took me so long to get here!!  LOL  I LOVE being sarcastic ;)

The Fuzzy Lemon (including all her personalities) Dx 1/20/2011, 2cm, Stage IIIC, Grade 3, 14/15 nodes, ER+/PR+, HER2-
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Sep 15, 2012 07:07PM FireKracker wrote:

When im in bad pain and the drs ask on a 1 ---10 how would you describe the pain....I say 100...you gotta see the look in every drs.eyes.....DO YOU GET THE MESSAGE!!!!!!!!!!!Im in freekin pain......

And when are you available for your next appt...i wanna say WOULD YOU SAY THAT TO YOUR MOTHER!

Thank God their coats are white.If they were pink i think i would scream!!!!!!

Focktober!!!!Pink stinks!!!!
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Sep 17, 2012 07:52AM Dakota212 wrote:

I love the drs appointment one. I always say when everyone wants an appointment. First thing in the morning or the last of the day.... Alot of people work!!!

💓💓💓 Onco type score 32 Dx 7/16/2012, IDC, 2cm, Stage I, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 9/27/2012 Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 11/7/2012 AC + T (Taxol)

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